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by AJQ
Sat Oct 14, 2017 9:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets, Stage IV --- Need advice
Replies: 9
Views: 669

Re: Peri mets, Stage IV --- Need advice

AJQ, so sorry to hear these news. Do you know anything about the mutations/ genetic characteristics of the tumour? Are you in California? You have there many main cancer centers, they surely can help you to get genetic profile and maybe looking for an immunotherapy trial. Maia: yes I am in CA. They...
by AJQ
Fri Oct 13, 2017 12:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets, Stage IV --- Need advice
Replies: 9
Views: 669

Re: Peri mets, Stage IV --- Need advice

Hey AJ. My mom has stage 4 colon cancer with mets to liver. Her recent scan shows omental thickening which most probably are mets. She's also been having right sided pain after ileostomy reversal. Hopefully those are just adhesions. But very worried now :( we are looking into hipec options. But mos...
by AJQ
Thu Oct 12, 2017 9:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Right side pain --mets?
Replies: 13
Views: 709

Re: Right side pain --mets?

Thank you all for your answers and support. My doctor ordered CT scan yesterday and today I got the call to see my oncologist this Thursday to discuss scan results. They would not release the results to me :(. I asked them 3 times... This must be bad news and I am very scared and nervous. Thursday ...
by AJQ
Thu Oct 12, 2017 9:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets, Stage IV --- Need advice
Replies: 9
Views: 669

Peri mets, Stage IV --- Need advice

Hello friends, Today I received the worst news from my doc. After 3 months being on XELOX regime, my aggressive Appendix /Cecum cancer spread to the Peritoneum with small met in Omentum, One Lymph node, 2 in Peri and one close to the pelvis. Onc said I am terminal and now can be on Folfiri + Avastin...
by AJQ
Tue Oct 10, 2017 3:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Right side pain --mets?
Replies: 13
Views: 709

Re: Right side pain --mets?

Thank you all for your answers and support. My doctor ordered CT scan yesterday and today I got the call to see my oncologist this Thursday to discuss scan results. They would not release the results to me :(. I asked them 3 times... This must be bad news and I am very scared and nervous. Thursday s...
by AJQ
Sat Oct 07, 2017 11:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Right side pain --mets?
Replies: 13
Views: 709

Right side pain --mets?

Hi all, I have a question about possible liver mets. See my signature below for details Last couple of weeks I have been experience some pain on the right side and it radiates to the back- also on the right side ( I did have right Hemi colectomy). Tylenol does help but then it comes back. Sometime i...
by AJQ
Sun Jul 30, 2017 8:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on XELOX and working?
Replies: 20
Views: 4260

Re: Anyone on XELOX and working?

Update: Started Infusion on Thursday. OK so far with the exception of Nausea and Fatigue. Decided to stay with IV rather than a port.

AJ
by AJQ
Fri Jul 21, 2017 5:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To port or not for Oxi
Replies: 20
Views: 4539

Re: To port or not for Oxi

Thank you for your replies. Appreciate it.
I understand it is a personal choice. Certainly no PICC line.

I will most likely go with a port but hate to be cutup again...thinking :(

AJ
by AJQ
Fri Jul 21, 2017 9:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To port or not for Oxi
Replies: 20
Views: 4539

To port or not for Oxi

Hi, I have a question about a port. I am selecting between two treatment centers and one of them is requiring a port, the other is saying IV only. I fly internationally frequently and a bit of hard stick. I need about 4 or 5 infusions of Oxi and would like to know if I should get a port or go with I...
by AJQ
Mon Jul 17, 2017 10:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on XELOX and working?
Replies: 20
Views: 4260

Re: Anyone on XELOX and working?

Brenda,
Thanks for your reply. Appendix cancer is rare and can be very aggressive and unpredictable. Let's stay in touch. You can PM me and I give you my email address.

AJ
by AJQ
Mon Jul 17, 2017 5:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on XELOX and working?
Replies: 20
Views: 4260

Re: Anyone on XELOX and working?

Thank you Ana and all for your replies. I really
Appreciate them. Going for CT scan this Friday and then first Chemo doze next week. Will keep you all posted

All the best.

AJ
by AJQ
Sun Jul 16, 2017 11:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on XELOX and working?
Replies: 20
Views: 4260

Re: Anyone on XELOX and working?

Thankx aqx99!
I chose thursdays for my infusions and hope to go to work on mondays.
by AJQ
Sun Jul 16, 2017 9:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on XELOX and working?
Replies: 20
Views: 4260

Anyone on XELOX and working?

Hi I am new to this forum and been recently diagnosed of stage 3 appendix/CC. Had right hemicolectomy almost 4 weeks ago and now starting Xelox( Oxaliplatin + Xeloda pills) soon. I must work! Any experience and how to manage with Xelox and weather I can keep working office job full time. Appreciate ...

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