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by AJQ
Sat Jun 16, 2018 3:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung mets after HIPEC
Replies: 5
Views: 747

Re: Lung mets after HIPEC

I am on watch and wait and my next scan is in 2 weeks. AJ, Did scan reveal anything more? There is a lot on this site re: lung thangs; in fact there was a thread titled "Lung Thang Gang" if I remember correctly, but i couldn't find it through search box. But like I said, you don't have to...
by AJQ
Tue Apr 10, 2018 2:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung mets after HIPEC
Replies: 5
Views: 747

Re: Lung mets after HIPEC

Hi, I have a metastasis in one lung, it was already there at diagnosis in October and had a diameter of 0.8 cm. One month ago, after removal of the main tumor, they took a core needle biopsy and determined that it is a metastasis from CRC and decided to wait three months before taking a new CAT sca...
by AJQ
Mon Apr 09, 2018 10:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung mets after HIPEC
Replies: 5
Views: 747

Lung mets after HIPEC

Hello friends, I have not posted for a while as I was recovering from HIPEC and then started working full time. Had my scan on Jan 30th this year which showed 2 lung nodules (6mm, 2mm). I am on watch and wait and my next scan is in 2 weeks. so far I feel OK with the exception of some leg weakness an...
by AJQ
Sun Dec 24, 2017 7:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC - MY BFF W/Appendix Cancer
Replies: 18
Views: 2526

Re: HIPEC - MY BFF W/Appendix Cancer

Made some edits to above posts as have later learned that additional mytomycin-c chemo was added during HIPEC. Also added subject titles to links. Update: 12/18) 17 days post HIPEC BFF developed incisional soreness @ navel area, slight downturn of wellbeing 12/19) NP requested pic of area as BFF li...
by AJQ
Sun Dec 03, 2017 10:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC - MY BFF W/Appendix Cancer
Replies: 18
Views: 2526

Re: HIPEC - MY BFF W/Appendix Cancer

Surgery Bowel prep day before surgery. The procedure took place Fri.,Dec.1, approx 6 hrs total. Disease was limited to the right side of abdomen, lower tumor burden than they typically see, 2 lesions on liver, one upper diaphragm, the balance apparently is removed via stripping out the peritoneum l...
by AJQ
Fri Dec 01, 2017 5:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets, Stage IV --- Need advice
Replies: 27
Views: 3193

Re: Peri mets, Stage IV --- Need advice

Robino1 wrote:I will be following your journey closely. I hope you stay NED for YEARS!!! :)


Thank you so much Robino1. Will keep updating you all.

AJ
by AJQ
Fri Dec 01, 2017 12:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets, Stage IV --- Need advice
Replies: 27
Views: 3193

Re: Peri mets, Stage IV --- Need advice

hawkowl wrote:Hi AJQ...I have a cousin who lives overseas and is now more than 3 1/2 years out (and still NED) from HIPEC for appendix cancer with peritoneal spread. Wishing you similar success


Hi Hawkowl,

Thank you. I appreciate it.
Surgery was difficult but hoping to continue being NED.
by AJQ
Mon Nov 27, 2017 7:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets, Stage IV --- Need advice
Replies: 27
Views: 3193

Re: Peri mets, Stage IV --- Need advice

Seriously AJ, now that w/b amazing! Here is our response: :shock: You must be very fit. We've got about 12 years on you, but is encouraging she might be able to accompany her DH to his dr. appt end of Dec for 2nd opinion on prostate cancer tx. A lot going on w/those 2 right now. She wanted to make ...
by AJQ
Sun Nov 26, 2017 9:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets, Stage IV --- Need advice
Replies: 27
Views: 3193

Re: Peri mets, Stage IV --- Need advice

Glad you didn't have complications as the complication rate can be high from HIPEC. Any problems w/reintroducing foods to your diet? Any recommendations? Getting in & out of bed ok? Since BFF not local, they have requested she stay in the area an extra week after release from the hospital just ...
by AJQ
Sat Nov 25, 2017 7:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets, Stage IV --- Need advice
Replies: 27
Views: 3193

Re: Peri mets, Stage IV --- Need advice

fumaros wrote:Glad the surgery went well. Hope the recovery is quick, and you stay free and healthy.


Thank you! So far recovering well at home

AJ
by AJQ
Sat Nov 25, 2017 7:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets, Stage IV --- Need advice
Replies: 27
Views: 3193

Re: Peri mets, Stage IV --- Need advice

Was wondering how your consult went, AJ :) That was quick. They appear to be quick & organized there @ UCSD from initial contact to consult to scheduling surgery. BFF is scheduled there, also w/Dr. Lowy, next wk for HIPEC (also appendix cancer). Glad you were a candidate & doing fine! Curio...
by AJQ
Tue Nov 21, 2017 12:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets, Stage IV --- Need advice
Replies: 27
Views: 3193

Re: Peri mets, Stage IV --- Need advice

Thank you.

I had my HIPEC 3 weeks ago by Dr. Lowy. So far so good and he was able to all the nodules out.

AJ
by AJQ
Sat Oct 14, 2017 9:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets, Stage IV --- Need advice
Replies: 27
Views: 3193

Re: Peri mets, Stage IV --- Need advice

AJQ, so sorry to hear these news. Do you know anything about the mutations/ genetic characteristics of the tumour? Are you in California? You have there many main cancer centers, they surely can help you to get genetic profile and maybe looking for an immunotherapy trial. Maia: yes I am in CA. They...
by AJQ
Fri Oct 13, 2017 12:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets, Stage IV --- Need advice
Replies: 27
Views: 3193

Re: Peri mets, Stage IV --- Need advice

Hey AJ. My mom has stage 4 colon cancer with mets to liver. Her recent scan shows omental thickening which most probably are mets. She's also been having right sided pain after ileostomy reversal. Hopefully those are just adhesions. But very worried now :( we are looking into hipec options. But mos...
by AJQ
Thu Oct 12, 2017 9:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Right side pain --mets?
Replies: 13
Views: 1573

Re: Right side pain --mets?

Thank you all for your answers and support. My doctor ordered CT scan yesterday and today I got the call to see my oncologist this Thursday to discuss scan results. They would not release the results to me :(. I asked them 3 times... This must be bad news and I am very scared and nervous. Thursday ...

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