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by rockhound
Mon Dec 18, 2017 10:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic testing (Lynch syndrome) questions
Replies: 5
Views: 164

Re: Genetic testing (Lynch syndrome) questions

Hello I am Lynch positive. I have been advised by Genetics Counsellor to get my siblings ( who are disease free so far) tested for Lynch. They are married with kids and leading normal lives with the usual ups and downs. They are scared of reality and feel that if they test positive they will worry ...
by rockhound
Sat Dec 16, 2017 12:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxiety and questions about follow up and tubular adenoma
Replies: 20
Views: 415

Re: Anxiety and questions about follow up and tubular adenoma

Because we have universal healthcare in Denmark you are put in a screening program. Like if you have parents with Lynch or early colon cancer you’ll get testet by age 25 always. And if you have Lynch you are entitled a colonoscopy every second year, they probably find it sufficient enough for most ...
by rockhound
Thu Dec 14, 2017 11:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 472
Views: 34003

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Thanks for the reassurances on the port install tomorrow. I'm supposed to be at the hospital at 7 AM so I'll get up around 4:30. I ordered the Convatec Stoma Powder so I'm going with Convatec for now as it has been the best that I've tried so far (though that's only two things). I will eventually t...
by rockhound
Thu Dec 14, 2017 11:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxiety and questions about follow up and tubular adenoma
Replies: 20
Views: 415

Re: Anxiety and questions about follow up and tubular adenoma

Are all these data for "normal" population or Lynch syndrome folks, like me? If Lynch, then the process of polyp formation and also polyp turning to cancer can be greatly accelerated (e.g., as in 1 yr or 2). That's why the genetic information, esp. if you are young, is really important.. ...
by rockhound
Thu Dec 14, 2017 11:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxiety and questions about follow up and tubular adenoma
Replies: 20
Views: 415

Re: Anxiety and questions about follow up and tubular adenoma

... My GI doctor did say that I needed to tell my siblings to get screened for polyps and cancer. Should I consider genetic testing? Would my insurance cover it considering my history? ... Any thoughts on that? I'm sorry, but I don't have much information about genetic testing. I never had it done,...
by rockhound
Thu Dec 14, 2017 10:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxiety and questions about follow up and tubular adenoma
Replies: 20
Views: 415

Re: Anxiety and questions about follow up and tubular adenoma

Polyps at 5mm and under don’t often end up cancerous and tubular is the best look for it to have. Only around 10% of all Adeomas becomes cancerous that 90% that don’t. They most often make the checkup scale 1, 3 or 5 years depends on the report. They know approximately how fast it takes for a polyp...
by rockhound
Wed Dec 13, 2017 2:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxiety and questions about follow up and tubular adenoma
Replies: 20
Views: 415

Re: Anxiety and questions about follow up and tubular adenoma

Thanks to all of you for your feedback..... I'm wondering if I told my PCP that I wanted a colonoscopy at 3 years instead of 5 years, if my insurance would cover it? Do any of you know the answer to that? As for the genetic testing is that something my insurance would pay for based on my history? W...
by rockhound
Wed Dec 13, 2017 11:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxiety and questions about follow up and tubular adenoma
Replies: 20
Views: 415

Re: Anxiety and questions about follow up and tubular adenoma

You might consider getting tested for Lynch Syndrome, given your age.. If Lynch positive, then you want to have colonoscopies every year - polyps form and turn into cancer much faster than the rest of the population (like in 1 year or so where normally it might take 5-10 years), also upper GI scope...
by rockhound
Wed Dec 13, 2017 10:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxiety and questions about follow up and tubular adenoma
Replies: 20
Views: 415

Re: Anxiety and questions about follow up and tubular adenoma

You might consider getting tested for Lynch Syndrome, given your age.. If Lynch positive, then you want to have colonoscopies every year - polyps form and turn into cancer much faster than the rest of the population (like in 1 year or so where normally it might take 5-10 years), also upper GI scope...
by rockhound
Tue Dec 12, 2017 5:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxiety and questions about follow up and tubular adenoma
Replies: 20
Views: 415

Re: Anxiety and questions about follow up and tubular adenoma

I have been lurking for several days and I am so impressed by the wealth of information and support given on this website. I am hoping that someone can offer some insight after my recent procedure. After suffering from severe stomach pain and a change in bowel movements (loose stool, several times ...
by rockhound
Fri Dec 08, 2017 4:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgical oncologist vs colorectal surgeon?
Replies: 17
Views: 1561

Re: Surgical oncologist vs colorectal surgeon?

With the prevalence of colorectal cancers, it is not difficult to find a colorectal surgeon that is also a surgical oncologist. It is generally easier to find such a surgeon at a major cancer center with a GI cancer specialty. Again, this shouldn't be difficult to find based on the number of cases ...
by rockhound
Fri Dec 08, 2017 4:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 472
Views: 34003

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Learning Curve: The Surgeon as a Prognostic Factor in Colorectal Cancer Surgery (2005) http://eknygos.lsmuni.lt/springer/404/86-104.pdf Thirteen consultants, none of whom had a special interest in colorectal surgery, operated on 645 patients with colorectal cancer. Outcome differed tremendously bet...
by rockhound
Thu Dec 07, 2017 3:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 472
Views: 34003

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The belt was really great running, except mine would sometimes pop off the hooks; would have to stop and reattach under the compression wrap. So perhaps tighten the belt up well! I never used the Cavilon spray so can't comment vs. the wipes, but the wipes were pretty easy to use. Glad to hear that ...
by rockhound
Thu Dec 07, 2017 11:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 472
Views: 34003

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The visit to the Stoma Nurse went well this morning. The original appointment was for 10 days after discharge but it was moved out three weeks due to a conflict or something. I think that I would have been a lot better off if the original appointment date were kept. I think that the rationale would...
by rockhound
Wed Dec 06, 2017 5:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 472
Views: 34003

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

You may want to look into crusting to help heal the areas of irritation you have. There are some good videos on YouTube about it. Basically, you layer stoma powder and barrier wipes to form a crust over the raw area that protects it so it can heal, but still allows the adhesive to stick. It has wor...

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