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by rockhound
Wed May 23, 2018 9:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I declined Oxaliplatin
Replies: 6
Views: 437

Re: I declined Oxaliplatin

According to everything I've read, Oxaliplatin DOES improve results in patients with dMMR, including those with Lynch and suspected Lynch. Here's one example: https://watermark.silverchair.com/djv438.pdf?token=AQECAHi208BE49Ooan9kkhW_Ercy7Dm3ZL_9Cf3qfKAc485ysgAAAaQwggGgBgkqhkiG9w0BBwagggGRMIIBjQIBA...
by rockhound
Wed May 16, 2018 10:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 969
Views: 83477

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

My reversal was about a month after chemo ended. It had nothing to do with the timing of the scans, but rather waiting for my blood counts to go up. I'm not sure why your oncologist thinks you have to wait to have a scan before having the reversal. What does your surgeon say? My oncologist told me ...
by rockhound
Wed May 16, 2018 4:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 969
Views: 83477

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

. . . I'm disappointed as I'm rather in a hurry to get rid of the bag and port. This would put surgery somewhere around October. . . I can understand the stoma, butt are they going to take both the bag and the port out at the same time? This was a long time ago (14 yrs ago), butt i had to wait 2 yr...
by rockhound
Wed May 16, 2018 4:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Two Precancerous polyps at age 28
Replies: 4
Views: 397

Re: Two Precancerous polyps at age 28

I went for my first colonoscopy last week because my father had a villous adenoma at age 31, which he needed surgery to remove. So he told me to go now, as I am in that age range he anticipated. My father's mother died of colon cancer in her 50's with that same villous adenoma, as did my father's a...
by rockhound
Fri May 11, 2018 9:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newbie here: gallbladder or recurrence? Anyone know if gallbladder issues are common after folofox?
Replies: 6
Views: 290

Re: Newbie here: gallbladder or recurrence? Anyone know if gallbladder issues are common after folofox?

I’m coming up on my 1 year anniversary of diagnosis. (Stage 3, CC 2 nodes positive) I have always struggled with anxiety- specifically about getting cancer, (Oh the irony). Now that I’ve had cancer, and finished treatment, I’m becoming crippled with fear of recurrence. I have strange twinges of pai...
by rockhound
Wed Apr 25, 2018 8:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tubular Adenoma Polyp found during colonoscopy - 27 years old
Replies: 7
Views: 1169

Re: Tubular Adenoma Polyp found during colonoscopy - 27 years old

I definitely appreciate all of the replies and reassurances. I've consulted with my gastro/surgeon's office and we are considering the possibility of testing for Lynch Syndrome since they agreed, 27 years old is pretty young to be having these issues (I think it helps that I was assigned to a docto...
by rockhound
Wed Apr 18, 2018 9:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 31 year old male, 1.5 cm tubular adenoma
Replies: 6
Views: 601

Re: 31 year old male, 1.5 cm tubular adenoma

Hi Everyone, I have been lurking on this site since June of 2017 when my body presented worrying symptoms, mainly blood in stool. At the time I was a father to a wonderful 2 year old boy with another baby (gender unknown at the time) on the way. I figured rather than take the risk I would make an a...
by rockhound
Mon Mar 12, 2018 11:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal surgery
Replies: 59
Views: 6251

Re: Reversal surgery

My reversal surgery is done! My surgical site is very sore, but otherwise no pain. I had pain all over my abdomen when I woke up, but they gave me pain meds. My surgery lasted less than 90 minutes. I’m very comfortable in my hospital bed. I’m right next to the bathroom which is good, and my roommat...
by rockhound
Tue Mar 06, 2018 11:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy Tomorrow
Replies: 10
Views: 1108

Re: Colonoscopy Tomorrow

Good luck! I had my first after diagnosis/treatment/etc. in Jan. It was not clear (polyp removed), but that is allright with me because it still did what it was supposed to do- get rid of something that could become cancer! Preventative measure = good outcome.
by rockhound
Sat Mar 03, 2018 9:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Alcohol use since diagnosis
Replies: 28
Views: 3192

Re: Alcohol use since diagnosis

I’m not concerned about it. I have a mixed drink or two a couple times a month. Same here, a few beers a week, sometimes a night with two, when out with friends celebrating something. I look at it like this- I did not go through all that crap to not enjoy things I like. Alchohol is not going to cau...
by rockhound
Wed Feb 21, 2018 4:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bowel prep - Does it ever get easier?!?!
Replies: 9
Views: 858

Re: Bowel prep - Does it ever get easier?!?!

I have done the miralax prep, go lytely, and suprep. The worst is probably the go lytely, and the suprep is bad but isn't as much to drink. I miralax prep is the most tolerable, but none of them are fun. Especially without most of your rectum. Good luck I did the golytely for my colonoscopy a month...
by rockhound
Tue Feb 13, 2018 11:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cause of colon cancer discovered
Replies: 37
Views: 3103

Re: Cause of colon cancer discovered

Rikimaroo wrote:We are just unlucky, cries....No more casinos for me unlucky there too. LOL


I won $15 playing blackjack once, but more than made up for that via losses...that is the truth about casinos!!
by rockhound
Tue Feb 13, 2018 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OTC Suggestions for Nausea from Oxaliplatin
Replies: 25
Views: 1713

Re: OTC Suggestions for Nausea from Oxaliplatin

susie0915 wrote:I didn't really have issues with nausea, but my oncologist gave me zofran and compazine to have on hand.


same here, used the compazine once but it was nice to have them both around in case I needed them
by rockhound
Mon Feb 12, 2018 4:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cause of colon cancer discovered
Replies: 37
Views: 3103

Re: Cause of colon cancer discovered

For Colo rectal Cancer, I think its mainly what you eat and how your lifestyle is in regarding movement. If you sit all day and don't get up to allow blood circulation, or eat a lot of red meat, and drink a lot of alcohol I think this contributes more heavily then this study. Most docs I know have ...
by rockhound
Sun Feb 11, 2018 11:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: doctor in Cincinnati
Replies: 12
Views: 993

Re: doctor in Cincinnati

I lived in the greater cinci area for ~12 yrs. Had a friend that was diagnosed with early stage colon cancer in his 20's (~18 yrs ago- he's fine!) and he went to UC medical center; same with another close friend of mine who had throat cancer (again, 15+ yrs ago). Both had great experiences.. UC is a...

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