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by ocstacy
Mon Feb 19, 2018 1:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy reversal experience?
Replies: 8
Views: 186

Re: Ileostomy reversal experience?

The first week or so after everything is hooked back up is a tad hectic and chaotic and stick to bland foods. Imodium will also be your mums friend, at least for the first little while. She’ll see improvements measured in weeks and months rather than days but it does get batter. Good to know about ...
by ocstacy
Mon Feb 19, 2018 1:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy reversal experience?
Replies: 8
Views: 186

Re: Ileostomy reversal experience?

The first week or so after everything is hooked back up is a tad hectic and chaotic and stick to bland foods. Imodium will also be your mums friend, at least for the first little while. She’ll see improvements measured in weeks and months rather than days but it does get batter. Good to know about ...
by ocstacy
Mon Feb 19, 2018 1:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy reversal experience?
Replies: 8
Views: 186

Re: Ileostomy reversal experience?

Unless she does some sort of daily Kegel exercises or daily sphincter exercises to keep the bowel-movement muscles and pelvic floor muscles in shape. So, between now and mid-May, you could try to encourage your mother to do some of these exercises every day so that when it comes time for reversal s...
by ocstacy
Mon Feb 19, 2018 3:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy reversal experience?
Replies: 8
Views: 186

Ileostomy reversal experience?

Hi All, My mother will have her ileostomy reversal sometimes this May. I wanted to ask anyone who has had this done, how their experience was or how can I prep and plan for my mom's pre and post surgery? I have heard pro's and con's. Here are some questions: 1. How long was your ileostomy reversal ...
by ocstacy
Mon Feb 19, 2018 3:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mr Ziggy has passed away
Replies: 16
Views: 865

Re: Mr Ziggy has passed away

I am very sorry for your loss. May he rest in peace. Hugs and love-
by ocstacy
Thu Jan 18, 2018 4:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tribute to my dear friend Anne - aka BeansMama
Replies: 39
Views: 2747

Re: Tribute to my dear friend Anne - aka BeansMama

I feel like I know her, but can't see it. I just remember her posting something about naming her tumor Larry. She was close to my age with children. I can't even imagine. Someone suggested to "Don't ask, but do" when things like this happen. Something to think about. RIP sweet angel Cancer...
by ocstacy
Thu Jan 18, 2018 4:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal recovery time
Replies: 16
Views: 762

Re: Reversal recovery time

My mom is coming in to stay with me for 11 days. My surgeon told me he wants me out of work for a month, so that time has been requested. I wish this snow storm hadn't hit this week. Good to know as I will be your mother with my mother. She is nervous about the reversal too, she hates surgery as th...
by ocstacy
Fri Jan 12, 2018 2:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to minimize surgical complications
Replies: 7
Views: 570

Re: How to minimize surgical complications

The best thing you can do is find the best surgeon possible. What he/she does is going to have the greatest impact on your recovery. I realize it’s late for that now. I searched and searched for the best colorectal surgeon for my mother. He was Chief surgeon and I read the reviews from his patients...
by ocstacy
Fri Jan 12, 2018 2:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So scared. Cancer or hemorrhoids?
Replies: 3
Views: 338

Re: So scared. Cancer or hemorrhoids?

Then, this morning, I had a streak of bright red blood in my stool. Coincidentally, I had a GI consult last week bc my dad had precancerous polyps and have a colonoscopy scheduled on 1/23. I called today to see if they can get me in sooner and they can not. Hi Megan!! I too, had the same symptoms a...
by ocstacy
Fri Jan 12, 2018 2:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is this blood on my stool?
Replies: 6
Views: 523

Re: Is this blood on my stool?

If this could bring some laughter, but kinda silly. I had orange jello before my colonoscopy :D and I could see orange jello in my colon on the scans :lol:
by ocstacy
Fri Jan 12, 2018 12:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is this blood on my stool?
Replies: 6
Views: 523

Re: Is this blood on my stool?

Always safe to go to Dr. Always. I had to fight my way to get a colonoscopy at age 38 yr. old. Finally, after a 2nd opinion, I was granted one. I argued hard, but worth it. They found one benign polyp. My mom was diagnosed 8 months ago. At the moment she has no more cancer! Prayers.
by ocstacy
Fri Jan 12, 2018 12:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My California LAR Story
Replies: 11
Views: 1056

Re: My California LAR Story

I believe that the ileostomy reversal surgery took about 2 hours. I was very happy to have the reversal completed; I still feel that way. Very happy to hear this. Did you have do the clean up chemo prior to your reversal like Xeloda? My mom has to do the Xeloda for 4 months than reversal. Thank you...
by ocstacy
Fri Jan 12, 2018 12:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Got good news today!
Replies: 12
Views: 743

Re: Got good news today!

I am really happy for you! Congrats!!
by ocstacy
Fri Jan 05, 2018 3:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IIA: Chemo or not?
Replies: 29
Views: 1504

Re: Stage IIA: Chemo or not?

I have heard that 3 months seems to be as effective as 6 months. Mine was 4 months of Xelox. I don't know if that protocol pertains to xeloda only though. Not sure. My mom will start her last chemo before reversal tom. Xeloda for 4 months. She did well with it last year. I hope that she will tolera...
by ocstacy
Fri Jan 05, 2018 3:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared & Would Love Some Advice
Replies: 4
Views: 481

Re: Scared & Would Love Some Advice

And even after wiping sometimes it's still wet and itchy back there (very annoying!). Sorry for being so graphic. Don't be embarrassed as I think everyone on this board has experienced that. I had that problem too and thought something was wrong with me. I had my 1st colonscopy done last summer of ...

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