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by jep
Sun Nov 26, 2017 5:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with persistent Abscess and strong cramping STG IV
Replies: 8
Views: 393

Re: Anyone with persistent Abscess and strong cramping STG IV

Hi, I'm so sorry to hear about all of your wife's complications....my husband also had a very rough road after open surgery in May....his fistula still has not healed and he has had a surgical drain for 6 months....is your wife on a restricted diet? My husband is still on the low fiber GI diet....
by jep
Thu Nov 09, 2017 9:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Traveling on chemo?
Replies: 17
Views: 610

Re: Traveling on chemo?

Maybe a little weekend getaway road trip would be better.....save the big trip until post chemo....my hubby is 7 rounds into Folfox and he just disconnected today....we hopped into the car and headed to VT! It's so good for his mind and spirits to get out of dodge for a few nights and just enjoy som...
by jep
Tue Nov 07, 2017 5:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic Testing question
Replies: 2
Views: 184

Re: Genetic Testing question

Great, thank you! I will check out that link as well.
by jep
Tue Nov 07, 2017 4:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic Testing question
Replies: 2
Views: 184

Genetic Testing question

Hello everyone. So my husband's tumor was tested for BRAF, NRAS, and KRAS, and all were negative. I feel that this is positive not only for my kids, but also in terms of my husband's response to treatment. He's considered stage 4 because of 1 rogue lymph node that was away from the primary tumor sit...
by jep
Mon Nov 06, 2017 10:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Having open colorectal surgery 11/09/2017
Replies: 55
Views: 1430

Re: Having open colorectal surgery 11/09/2017

Hello. My husband had open surgery to remove a 7 cm tumor from his recto-sigmoid...the surgeon is board certified in colorectal surgery and began surgery robotically...once he got in there, he realized how large the tumor was and switched to manual open surgery. I don't want to freak you out, as I b...
by jep
Tue Oct 24, 2017 9:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 379
Views: 17114

Re: NEW-Need some positivity here.

The nurses trained me to disconnect my husband's pump, but I haven't done it yet. I think it's good to be trained and comfortable doing it because you may have plans to go away for the weekend (or some other plans) and being able to disconnect on your own will give more freedom. I know it's hard to ...
by jep
Sun Oct 08, 2017 6:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with Stage IVa just do Xelolda or 5-fu?
Replies: 83
Views: 4252

Re: Anyone with Stage IVa just do Xelolda or 5-fu?

Good morning. My husband is stage 4 and he will have his 5th round of Folfox next week. So far, he's tolerating it, and has only had some slight sensitivity to cold. Our husbands' surgeries were only days apart. One of my main concerns was the delay in starting chemo (rough recovery from open LAR).....
by jep
Sat Oct 07, 2017 6:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 379
Views: 17114

Re: NEW-Need some positivity here.

Hi everyone! My husband is heading into round 5 of Folfox next week....he hasn't noticed any hair loss and he really loves the ease of his port....we are school teachers and we have 2 elementary aged children....he's careful and washes his hands constantly, but I don't see how anyone can avoid germs...
by jep
Tue Oct 03, 2017 7:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 379
Views: 17114

Re: NEW-Need some positivity here.

I responded to your PM in more detail, but after getting an opinion from MSK and from our local cancer center, both agreed that Folfox was the way to go.
by jep
Mon Oct 02, 2017 9:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 379
Views: 17114

Re: NEW-Need some positivity here.

Hi Teacher2017.....if you peek at my signature (about my hubby) you'll notice a few similarities in your situations.... (my husband and I are also both teachers)....I've learned so much from this group, but a very important point from some members that my man and I keep in our minds is chemo as an a...
by jep
Sun Oct 01, 2017 8:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post op food
Replies: 12
Views: 521

Re: Post op food

My husband was supposed to have robotic surgery, but once they got in there and saw the size of the tumor and the extent of the growth into the wall, they switched to open surgery. I feel as though the docs allowed for solid food way too soon. I really believe that if we had stuck with liquids and s...
by jep
Tue Sep 26, 2017 7:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Avastin yes, Avastin NO!
Replies: 4
Views: 519

Re: Avastin yes, Avastin NO!

Thank you AT and Juliej for your replies! My husband's situation is strange (in a good way!). He's technically a stage 4 because of spread to 1 rogue lymph node (as well as 7 local nodes), but as my oncologist friend put it, stage 4 with an asterisk . . . no spread elsewhere, so we're just taking it...
by jep
Tue Sep 26, 2017 5:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Avastin yes, Avastin NO!
Replies: 4
Views: 519

Avastin yes, Avastin NO!

Hey everyone. So, my husband goes for his 4th treatment tomorrow (folfox). He's been tolerating the treatments pretty well, but my question is about Avastin. Hubby still has a fistula and surgical drain. His oncologist had him start with the Avastin for round 1, but then my husband's incision opened...
by jep
Wed Sep 13, 2017 4:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 379
Views: 17114

Re: NEW-Need some positivity here.

Definitely go with your gut in terms of the surgeon. My husband only met with 1 surgeon, and we both knew that he was the one after 10 minutes in his office. This surgeon is board certified in colorectal surgery and has an excellent reputation. More importantly, he took my husband's dire situation v...
by jep
Wed Sep 06, 2017 8:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New - colonscopy done today
Replies: 12
Views: 2836

Re: New - colonscopy done today

Yes, I totally agree with everything Lee said. Hearing that my husband is stage 4 was the worst moment of my life, but honestly, we've been fighting like hell ever since and we're still living life and raising our kids and taking it one day at a time. Knowing what we're up against helped us focus on...

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