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by jep
Sat Nov 10, 2018 8:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda + Avastin Maintenance for NED people
Replies: 7
Views: 290

Re: Xeloda + Avastin Maintenance for NED people

My husband's onc had talked about this exact maintenance regiment (as my husband is stage 4), but after 6 months of folfox, everything seemed good and he backed off the maintenance. I wanted my husband to do it anyway, but there didn't seem to be any reason to . . . now he has had a recurrence (node...
by jep
Sat Nov 10, 2018 7:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RED, irritated face with Irinotecan + Vectobix
Replies: 6
Views: 166

RED, irritated face with Irinotecan + Vectobix

Hi everyone. My husband had his first treatment of Irinotecan + Vectobix almost 2 weeks ago and his nose is bright red and he feels like his entire face is "chapped." He's been trying Aquaphor, but I'm wondering if anyone has had success with other products. We are heading into a long New ...
by jep
Sat Oct 27, 2018 11:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Irinotecan + mAbs (???)
Replies: 6
Views: 483

Re: Irinotecan + mAbs (???)

Thank you everyone! He has not had Vectibix yet and will be starting on Wednesday . . . hoping for great results! Also happy that surgery is back on the table . . .thank you CRguy for that resource!!
by jep
Sat Oct 27, 2018 10:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Irinotecan + mAbs (???)
Replies: 6
Views: 483

Re: Irinotecan + mAbs (???)

Thank you Veronica! So the mAbs is Vectibix . . . I'm so happy to hear that it worked well for your mom . . . hoping that my husband will respond well too!
by jep
Sat Oct 27, 2018 7:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Irinotecan + mAbs (???)
Replies: 6
Views: 483

Irinotecan + mAbs (???)

Hey everyone, So my husband's oncologist brought his case before the "tumor board" and after review they all decided on the following plan: -3 months of chemo (Irinotecan + mAbs) -then surgery to remove the affected lymph nodes (looks like it's only 2 and they are small) This is a switch f...
by jep
Tue Oct 23, 2018 8:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any tips for settling into home after surgery?
Replies: 10
Views: 884

Re: any tips for settling into home after surgery?

I'm not sure if this will help, but my husband had me go out and buy 6 new big pillows, as he needed to prop himself up to sleep . . . he was basically sleeping sitting up in our bed, and he could not sleep on his side for a very long time . . . you may also want to plan to have high protein shakes ...
by jep
Tue Oct 23, 2018 5:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Time from dx to first treatment?
Replies: 23
Views: 1335

Re: Time from dx to first treatment?

My husband was diagnosed in May 2017 and started chemo in August 2017 . . . so a little over 3 months . . . he had a very long recovery from surgery
by jep
Tue Oct 23, 2018 5:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lymph node tested positive :(
Replies: 14
Views: 1610

Re: lymph node tested positive :(

So my husband's oncologist called him tonight and gave him his suggestions for the next chemo regiment: 5fu + Avastin + leucovorin (12 rounds). Apparently the 1 node that was biopsied is the larger one (in his abdominal area) . . . the other 2 (including the armpit node) are very small . . . his doc...
by jep
Mon Oct 22, 2018 8:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lymph node tested positive :(
Replies: 14
Views: 1610

Re: lymph node tested positive :(

Hi Appletree...no, this was not his first scan....he had a PET scan after surgery (June 2017) which was clear...he also had a CT scan January 2018 (also clear)....all is his bloodwork had been excellent and his oncologist didn't think he needed this most recent scan, but I pushed for it...yes, we're...
by jep
Mon Oct 22, 2018 4:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lymph node tested positive :(
Replies: 14
Views: 1610

Re: lymph node tested positive :(

Yes, we finally got the results of the PET scan this afternoon . . . my husband has 3 affected lymph nodes . . . 2 in the abdominal area and 1 in his arm pit . . . I haven't been able to talk with the doctors yet, but I will definitely be there to speak with his oncologist. Apparently this means che...
by jep
Fri Oct 19, 2018 2:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lymph node tested positive :(
Replies: 14
Views: 1610

Re: lymph node tested positive :(

Thank you so much!! We are still waiting to hear back regarding Wednesday's PET scan....I thought we would have heard by now....
by jep
Wed Oct 17, 2018 9:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lymph node tested positive :(
Replies: 14
Views: 1610

Re: lymph node tested positive :(

Thanks clj! So much useful info in your post and it made me feel better....pet scan was this morning and we should know more in the next day or so...will keep you posted as we learn more...
Jep
by jep
Mon Oct 15, 2018 9:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Internal Iliac Node involvement??
Replies: 18
Views: 1667

Re: Internal Iliac Node involvement??

Hi Punky, I am also sorry to hear what is going on. I am one of those Stage IV due to distant nodes that warriorspouse mentioned. In my case with the tumor in my cecum, my spread to para aortic nodes deemed me stage IV. I never had a PET scan before my initial surgery so it’s hard to know if it was...
by jep
Wed Oct 10, 2018 2:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lymph node tested positive :(
Replies: 14
Views: 1610

Re: lymph node tested positive :(

Thank you AT . . . for both the optimism and the advice.
by jep
Wed Oct 10, 2018 11:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lymph node tested positive :(
Replies: 14
Views: 1610

Re: lymph node tested positive :(

If you have any suggestions as to what we should ask the oncologist, please share them!
thank you everyone . . .
jep

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