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by jep
Mon Apr 08, 2019 7:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Very hopeful news...cancer vaccine
Replies: 2
Views: 352

Re: Very hopeful news...cancer vaccine

Thank you for sharing this article! News like this always make me feel hopeful and excited that new science is on the horizon...
by jep
Thu Mar 28, 2019 8:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 swollen nodes in abdomen...
Replies: 25
Views: 3517

Re: 2 swollen nodes in abdomen...

YES! Thank you Brenda!! We asked my husband's oncologist about Dr. Cha (after reading your post), and they actually know each other! His onc is going to speak with Cha and set up an appointment....my husband loves his local surgeon but also wants to hear what Dr. Cha has to say.....thank you so muc...
by jep
Mon Mar 25, 2019 2:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 swollen nodes in abdomen...
Replies: 25
Views: 3517

Re: 2 swollen nodes in abdomen...

YES! Thank you Brenda!! We asked my husband's oncologist about Dr. Cha (after reading your post), and they actually know each other! His onc is going to speak with Cha and set up an appointment....my husband loves his local surgeon but also wants to hear what Dr. Cha has to say.....thank you so much...
by jep
Sun Mar 24, 2019 7:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 swollen nodes in abdomen...
Replies: 25
Views: 3517

Re: 2 swollen nodes in abdomen...

My husband trusts his surgeon completely, but he still wants to meet with another surgeon at Smilow just to get another set of eyes on this....unfortunately, my husband's first surgery was "open" so they don't think laparoscopic is a viable option (given all the scar tissue)....
by jep
Sat Mar 23, 2019 2:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 swollen nodes in abdomen...
Replies: 25
Views: 3517

Re: 2 swollen nodes in abdomen...

Hi, yes, the lymph node that was biopsied tested positive :( The big concern is the position of this node (near the aorta)....2 surgeons have already said that they would do his surgery (but they did let us know of the risks)....we're in limbo right now....2 more treatments to complete this cycle of...
by jep
Fri Mar 22, 2019 4:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hai pump leak into lymph nodes
Replies: 10
Views: 893

Re: Hai pump leak into lymph nodes

Sounds like you all have a good plan in place! Hoping it's not a leak and that your hubby keeps moving forward and fighting this s*#t....as you know, our husbands' surgeries were basically at the same time....my man is facing a potential second surgery soon....praying that both men stay strong and b...
by jep
Wed Mar 13, 2019 7:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy coming up....gastroenterologist or surgeon?
Replies: 10
Views: 388

Re: Colonoscopy coming up....gastroenterologist or surgeon?

My husband's surgeon did his first post surgery scope, and will do his 2nd post surgery scope in April...we really trust him and he is extremely thorough in all of his work, but definitely do what you feel most comfortable with. Good luck and hoping all is well!
jep
by jep
Wed Feb 27, 2019 12:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: para-aortic node surgeon rec at MSK??
Replies: 4
Views: 381

Re: para-aortic node surgeon rec at MSK??

Brenda! Thank you so much for your response . . . I will absolutely look into Dr. Cha . . . we are so close to Smilow, but are also willing to travel to MSK. I am very nervous about the surgery, but my husband if pretty calm . . . he feels like this is his best option, so we're headed in this direct...
by jep
Wed Feb 27, 2019 11:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: para-aortic node surgeon rec at MSK??
Replies: 4
Views: 381

Re: para-aortic node surgeon rec at MSK??

We're thinking about trying to get an appointment with either Garcia-Aguilar, Nash, or Paty . . . please chime in if you have any experience with these docs (or others) . . .
Thanks so much!!
jep
by jep
Tue Feb 26, 2019 7:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: para-aortic node surgeon rec at MSK??
Replies: 4
Views: 381

para-aortic node surgeon rec at MSK??

Can anyone recommend a surgeon at MSK (or Smilow) with expertise in the removal of para-aortic lymph nodes? My husband is looking for a skilled surgeon to see once he finishes his chemo . . .
Thank you!
jep
by jep
Tue Feb 26, 2019 5:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Stable ?
Replies: 7
Views: 1809

Re: Stage 4 Stable ?

Hey everyone, Just want to chime in here, as my husband is currently in a similar situation. We just met with his surgeon today, and he feels that surgery is doable, but very risky given the nodes close proximity to his aorta. I was not happy to hear the work "risky" . . . I know that all ...
by jep
Mon Feb 11, 2019 2:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back to MSK on Monday!
Replies: 4
Views: 643

Re: Back to MSK on Monday!

So, my husband's MSK oncologist got back to him last Friday . . . she met with her MSK colorectal surgeon and reviewed all of his records/scans, etc. They want him to have a colonoscopy to double check some hot spots on his PET scan . . . if the scan is clean, they suggest moving forward with surger...
by jep
Tue Feb 05, 2019 8:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back to MSK on Monday!
Replies: 4
Views: 643

Re: Back to MSK on Monday!

Hey Lee, thanks for checking in! It was a pretty positive experience overall....the MSK doc approves of the new chemo regiment that my husband is on and after reviewing his scans, she feels it is working. She, like our local onc, does not currently have an answer regarding the lymph nodes....they bo...
by jep
Sat Feb 02, 2019 10:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back to MSK on Monday!
Replies: 4
Views: 643

Back to MSK on Monday!

Hey everyone....so it's been nearly 2 yrs since we first visited MSK....my husband's onc there agreed that he should be treated locally, as their suggested regiments were the same....she did tell us to come back if we hit a crossroad...we'll here we are with some node involvement and uncertainty wit...
by jep
Sat Nov 10, 2018 8:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda + Avastin Maintenance for NED people
Replies: 7
Views: 786

Re: Xeloda + Avastin Maintenance for NED people

My husband's onc had talked about this exact maintenance regiment (as my husband is stage 4), but after 6 months of folfox, everything seemed good and he backed off the maintenance. I wanted my husband to do it anyway, but there didn't seem to be any reason to . . . now he has had a recurrence (node...

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