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by jep
Mon Aug 05, 2019 8:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Olymphians w/ surgery advice/experiences??
Replies: 20
Views: 1086

Re: Olymphians w/ surgery advice/experiences??

Siti wrote:Hey Jep — did you guys consider proton beam or SBRT (Cyberblade)?


No, this is the first time I’m hearing these terms....I did look them up and I will share this info with my husband.
Thank you,
jep
by jep
Fri Aug 02, 2019 9:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Intro, and please give your feedback
Replies: 62
Views: 2989

Re: Intro, and please give your feedback

All great advice. Thank you so much. I hope no one ever feels like their advice isn't welcome by me. My life is at stake here - I am so lucky to have you kind people taking time out of your day to help me. I will definitely be seeing a hepatobiliary surgeon for his/her opinion. I sent you a PM....y...
by jep
Fri Aug 02, 2019 8:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Intro, and please give your feedback
Replies: 62
Views: 2989

Re: Intro, and please give your feedback

Great advice from both Rob and Jacques . . . my husband and I have learned so much from this forum, but a really important point is that the surgeon should be advising on surgical decisions (not just the oncologist). My husband's surgeon does work closely with his oncologist, but when it comes to th...
by jep
Fri Aug 02, 2019 8:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Olymphians w/ surgery advice/experiences??
Replies: 20
Views: 1086

Re: Olymphians w/ surgery advice/experiences??

Hi jep I believe I responded to you before on a thread about para-aortic lymph nodes/olymphians. I just had a major surgery in early June where they went in and got what tissue they could along my aorto/common illiacs as there were several 'hot spots' on scans that were persistent, even after a lot...
by jep
Fri Aug 02, 2019 8:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Olymphians w/ surgery advice/experiences??
Replies: 20
Views: 1086

Re: Olymphians w/ surgery advice/experiences??

Hello Jep, This is my first post. My husband is in a similar situation. He had his colon resection done via laparoscopy 10 days ago. Recovering very well and will start chemo mid-August. His PET-CT Scan shows a few distant lymph nodes (para-aorta, neck and hip). We consulted 2 oncologists — one fro...
by jep
Thu Aug 01, 2019 8:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Olymphians w/ surgery advice/experiences??
Replies: 20
Views: 1086

Re: Olymphians w/ surgery advice/experiences??

Thank you WS....I too will keep you posted as we move toward this 8/21 surgery date....we are waiting to hear from MSK, as we had my husband’s most recent notes, scans, reports sent to his doc there....hoping that they agree with our local surgeon (or if not, have a better option for him)....wishing...
by jep
Wed Jul 31, 2019 9:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Intro, and please give your feedback
Replies: 62
Views: 2989

Re: Intro, and please give your feedback

Yes, I believe Dr. Kemeny specializes in the HAI pump to directly treat liver mets .....I’m sure you can find a great doc/center in Cali (if you end up looking for another opinion). My husband has his primary onc, but we also send all his records to MSK, and visit his onc there as needed....it’s not...
by jep
Wed Jul 31, 2019 10:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Olymphians w/ surgery advice/experiences??
Replies: 20
Views: 1086

Olymphians w/ surgery advice/experiences??

Just checking to see if any Olymphians here might have any advice or experiences to share with my husband who is scheduled for a 2nd surgery on August 21st. His only spread is to 2 distant nodes (the more troubling one being a para-aortic), and his surgeon is planning to remove my husband's entire r...
by jep
Wed Jul 31, 2019 9:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Intro, and please give your feedback
Replies: 62
Views: 2989

Re: Intro, and please give your feedback

Hi TinaFish . . . I'm sorry that you are struggling and feeling so scared right now. My husband has stage 4 colon cancer and has been fighting since May 2017. I think you have a lot of reasons to be hopeful . . . I'm not sure where you're being treated, but it sounds like your docs are doing the rig...
by jep
Wed Jul 24, 2019 6:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Irinotecan tips?
Replies: 6
Views: 317

Re: Irinotecan tips?

Has he been on Vectibix yet? He should ask to treat the rash prophylactically with Doxycycline and a steroid cream for his face. It appears in 90% of patients and best practice is to treat before it shows up although very few doctors seem to. It’s definitely the worst side effect I’ve had to deal w...
by jep
Fri Jul 19, 2019 11:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member Having Surgery on Friday
Replies: 13
Views: 857

Re: New Member Having Surgery on Friday

Hi, I was told and my dad had a tough time recovering after surgery. My dad had issues with small intestine ileus (not waking up). My suggestion 1.) Only take pain med if needed because it can slow down recovery. 2.) Ask for an xray of your intestines to see if it wake up. If your intestine is swol...
by jep
Wed Jul 10, 2019 8:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 559
Views: 137617

Re: NEW-Need some positivity here.

Hi Nate33, My husband is also a teacher and he did work through Folfox....he did have to take a day off every 2 weeks for treatment, but he did it and only had to take a handful of other days off due to symptoms. Of course everyone reacts differently....are you able to get FMLA in place as a back up...
by jep
Mon Jul 08, 2019 12:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 56
Views: 3181

Re: CLUSTERINGGGGGGGGG!!!!!!!

Eleda wrote:
jep wrote:Thank you Eleda..... I am going to share this with my husband, as he has really been struggling with this post radiation....

Do not leave the house for at least an hour after
I REPETE
"DO NOT LEAVE THE HOUSE" LOL

ADELE X


Got it!! Thank you LOL :D
by jep
Sun Jul 07, 2019 8:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 56
Views: 3181

Re: CLUSTERINGGGGGGGGG!!!!!!!

Thank you Eleda..... I am going to share this with my husband, as he has really been struggling with this post radiation....
by jep
Sun Jul 07, 2019 8:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Problems with port
Replies: 13
Views: 839

Re: Problems with port

I’m sorry you are having trouble with your port....my husband has consistently had issues having blood drawn from his port....they have tried everything, and even did a “port study” to make sure that he was able to receive through the port....no problems there. Now he just has his blood drawn from h...

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