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by jep
Tue Jun 30, 2020 8:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET scan after CEA rise...
Replies: 4
Views: 388

Re: PET scan after CEA rise...

Yes Ginabeewell!! Great advice!
by jep
Mon Jun 29, 2020 5:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 649
Views: 108362

Re: If you want prayer stop in here!

Thank you!! I spoke with his surgeon and the bypass went really well . . . it turns out the blockage in not inside the colon . . . the colon in that area looks good, but that damn lymph node is getting bigger and pushing against everything (ureter, junction b/w small and large intestine) . . . time ...
by jep
Mon Jun 29, 2020 3:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET scan after CEA rise...
Replies: 4
Views: 388

Re: PET scan after CEA rise...

My husband has been on panitumumab (or vectibix) twice and he’s had good responses, but the skin rash is really harsh...ask his oncologist to front load the meds that help with the skin....I can’t remember the name of the meds, but it’s good to start them before first treatment.... Best of luck with...
by jep
Mon Jun 29, 2020 2:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 649
Views: 108362

Re: If you want prayer stop in here!

My beautiful husband is in surgery right now having another bypass (4th surgery in just over 3 years)....please pray for him and for all of us...
<3
jep
by jep
Fri Jun 26, 2020 10:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH is back in the hospital :(
Replies: 21
Views: 2598

Re: DH is back in the hospital :(

So it's been only 23 days since my husband was released from the hospital and he's back in with another blockage :( The doctors have given him a few choices at this point: 1. another bypass (chemo delayed for at least a month) 2. a release valve that will allow him to drain in the event of a blockag...
by jep
Thu Jun 25, 2020 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bloated But Hungry . . .
Replies: 5
Views: 1067

Re: Bloated But Hungry . . .

Thank you for that post CRGuy....I didn’t realize how much theory/philosophy is out there regarding the spleen....and how connected it is to so many parts of our body’s functioning....unfortunately I had to bring my husband to the ER this morning....his stomach cramping got a lot worse and he began ...
by jep
Tue Jun 23, 2020 10:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bloated But Hungry . . .
Replies: 5
Views: 1067

Re: Bloated But Hungry . . .

Hey Phuong....thank you for your response....he has not tried chicken bone broth, but he has tried bone marrow broth....he has been getting sick at least once a day for the past 2 days and told me tonight that I may need to take him to the ER tomorrow....I told him that I would take him NOW, but he ...
by jep
Mon Jun 22, 2020 8:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bloated But Hungry . . .
Replies: 5
Views: 1067

Bloated But Hungry . . .

Hey everyone . . . so my husband has a partial blockage that we are trying to keep at bay . . . he is basically on a liquid diet (smoothies, ensure therapeutics, etc.) . . . Despite the liquid diet, he has been bloated for at least a week . . . he is passing gas and stool, so things are moving, but ...
by jep
Wed Jun 17, 2020 8:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: starting Lonsurf next week (very nervous)
Replies: 6
Views: 1234

Re: starting Lonsurf next week (very nervous)

I’m glad he’s doing ok on the Lonsurf....please keep us updated and take care of yourself as well...
jep
by jep
Tue Jun 09, 2020 1:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: starting Lonsurf next week (very nervous)
Replies: 6
Views: 1234

Re: starting Lonsurf next week (very nervous)

Major change in plans . . . once my husband's docs realized that his disease was progressing more quickly, they switched gears to Folfiri + Avastin . . . he was never able to get Avastin due to surgeries, etc., and his oncologist really wants him to try it . . . so, Lonsurf is on the shelf for now ....
by jep
Fri Jun 05, 2020 7:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH is back in the hospital :(
Replies: 21
Views: 2598

Re: DH is back in the hospital :(

Hi!! Yes, he finally came home on Wednesday :) All tests on the heart were good, and he is doing IV antibiotics at home through his PICC....much easier than TPN, that’s for sure! He even went for his chemo (modified) on Thursday....we’re doing an all liquid diet for now because he’s nervous about th...
by jep
Thu Jun 04, 2020 7:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Meningitis
Replies: 8
Views: 1117

Re: Meningitis

I'm so glad he's been admitted, but it's so hard not to be able to be with him . . . have you been able to call the nurses' station to get updates? My husband just spent a week in the hospital and since I couldn't sleep, I would call the nurses' station at 3:00 AM and other crazy times, but they wer...
by jep
Wed Jun 03, 2020 6:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Meningitis
Replies: 8
Views: 1117

Re: Meningitis

I'm so sorry that you and your husband are going through this . . . it sounds terrifying . . . I agree with Del, and I can't believe they keep sending him home. If there is another hospital near by, that might be an option. We have 2 hospitals near by, and when my husband was first having symptoms o...
by jep
Tue Jun 02, 2020 10:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH is back in the hospital :(
Replies: 21
Views: 2598

Re: DH is back in the hospital :(

Hey everyone . . . just another quick update, as my husband is STILL in the hospital . . . they discovered a staph infection that entered his blood stream . . . they seem to have caught it early and got him on IV antibiotics . . . there was some concern about the infection spreading to his heart, so...
by jep
Fri May 29, 2020 7:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hi again , hoping for opinions
Replies: 18
Views: 2111

Re: Hi again , hoping for opinions

Hi Monimom, I can relate to your frustration, as I am in a similar situation with not being able to attend my husband's visits . . . have you tried having your husband call you during the visit and put you on speakerphone? We did that, and my husband rolls his eyes about it (of course), but his onco...

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