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by jep
Sun Sep 13, 2020 12:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To my CC family
Replies: 21
Views: 1537

Re: To my CC family

I forgot to tell you that today is his birthday....he would have been 51...
by jep
Sun Sep 13, 2020 12:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To my CC family
Replies: 21
Views: 1537

To my CC family

This is the post I never wanted to write....my beautiful, perfect, amazing husband Tim went Home Thursday night after being diagnosed as stage 4 nearly three and a half years ago. I can not articulate what this group has done for me, for my husband, and for my loved ones. Thank you all, and God bles...
by jep
Sat Jul 18, 2020 7:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: starting Lonsurf next week (very nervous)
Replies: 13
Views: 2322

Re: starting Lonsurf next week (very nervous)

Hi johnj . . . my husband ended up not taking Lonsurf, but did start Stivarga this morning :shock: We are pretty nervous about how he will respond . . . I remember searching for info on Lonsurf and not finding much. It sounds good that you will combine the Lonsurf with the Avastin . . . we have alwa...
by jep
Sat Jul 18, 2020 7:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My beautiful father is now my angel
Replies: 3
Views: 637

Re: My beautiful father is now my angel

A strong and brave man....I’m so sorry that he had to go through this, and that you and your entire family had to go through this.....prayers and peace to you all...
jep
by jep
Thu Jul 16, 2020 6:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES
Replies: 146
Views: 63082

Re: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES

Hey everyone . . . just wanted to chime in here, as my husband starts Stivarga (full dose) this weekend . . . the goal is simply to shrink down this para aortic lymph node that is inoperable, but wreaking havoc on his body . . . I will definitely post any thoughts or observations that we have, but I...
by jep
Tue Jun 30, 2020 8:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET scan after CEA rise...
Replies: 4
Views: 629

Re: PET scan after CEA rise...

Yes Ginabeewell!! Great advice!
by jep
Mon Jun 29, 2020 5:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 649
Views: 109721

Re: If you want prayer stop in here!

Thank you!! I spoke with his surgeon and the bypass went really well . . . it turns out the blockage in not inside the colon . . . the colon in that area looks good, but that damn lymph node is getting bigger and pushing against everything (ureter, junction b/w small and large intestine) . . . time ...
by jep
Mon Jun 29, 2020 3:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET scan after CEA rise...
Replies: 4
Views: 629

Re: PET scan after CEA rise...

My husband has been on panitumumab (or vectibix) twice and he’s had good responses, but the skin rash is really harsh...ask his oncologist to front load the meds that help with the skin....I can’t remember the name of the meds, but it’s good to start them before first treatment.... Best of luck with...
by jep
Mon Jun 29, 2020 2:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 649
Views: 109721

Re: If you want prayer stop in here!

My beautiful husband is in surgery right now having another bypass (4th surgery in just over 3 years)....please pray for him and for all of us...
<3
jep
by jep
Fri Jun 26, 2020 10:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH is back in the hospital :(
Replies: 22
Views: 3564

Re: DH is back in the hospital :(

So it's been only 23 days since my husband was released from the hospital and he's back in with another blockage :( The doctors have given him a few choices at this point: 1. another bypass (chemo delayed for at least a month) 2. a release valve that will allow him to drain in the event of a blockag...
by jep
Thu Jun 25, 2020 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bloated But Hungry . . .
Replies: 5
Views: 1307

Re: Bloated But Hungry . . .

Thank you for that post CRGuy....I didn’t realize how much theory/philosophy is out there regarding the spleen....and how connected it is to so many parts of our body’s functioning....unfortunately I had to bring my husband to the ER this morning....his stomach cramping got a lot worse and he began ...
by jep
Tue Jun 23, 2020 10:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bloated But Hungry . . .
Replies: 5
Views: 1307

Re: Bloated But Hungry . . .

Hey Phuong....thank you for your response....he has not tried chicken bone broth, but he has tried bone marrow broth....he has been getting sick at least once a day for the past 2 days and told me tonight that I may need to take him to the ER tomorrow....I told him that I would take him NOW, but he ...
by jep
Mon Jun 22, 2020 8:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bloated But Hungry . . .
Replies: 5
Views: 1307

Bloated But Hungry . . .

Hey everyone . . . so my husband has a partial blockage that we are trying to keep at bay . . . he is basically on a liquid diet (smoothies, ensure therapeutics, etc.) . . . Despite the liquid diet, he has been bloated for at least a week . . . he is passing gas and stool, so things are moving, but ...
by jep
Wed Jun 17, 2020 8:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: starting Lonsurf next week (very nervous)
Replies: 13
Views: 2322

Re: starting Lonsurf next week (very nervous)

I’m glad he’s doing ok on the Lonsurf....please keep us updated and take care of yourself as well...
jep

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