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by jep
Mon Mar 16, 2020 8:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear scans!
Replies: 20
Views: 1160

Re: Clear scans!

That’s so great Rob!! Congrats and thank you for lifting my spirits with this news! Awesome :)))
by jep
Mon Mar 16, 2020 3:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scary times . . .
Replies: 40
Views: 2587

Scary times . . .

Hey everyone . . . since my husband's diagnosis nearly 3 years ago, I have been a ball of worry and anxiety. He is currently undergoing chemo again, and the Corona Virus seriously has me on edge. We are both school teachers, and we have 2 young children. Schools are all closed here, but I can't stop...
by jep
Wed Feb 05, 2020 6:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vince Lombardi
Replies: 1
Views: 954

Re: Vince Lombardi

Wow, I did not know this....thank you for sharing Mr. Lombardi’s story....
by jep
Wed Jan 01, 2020 4:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adventures in Immunotherapy - Hopeful beginnings
Replies: 10
Views: 2099

Re: Adventures in Immunotherapy - Hopeful beginnings

Best of luck Trevor. 4 Infuisions may be too few to assess. Be wary of pseudoprogression. I am sure it will work out for you. Hi Henry123.....can you tell me more about your warning to beware of pseudo progression? My husband was just taken off of a clinical trial after 3 infusions due to “progress...
by jep
Sun Dec 29, 2019 8:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox (AGAIN) + Panatumumab
Replies: 11
Views: 1024

Re: Folfox (AGAIN) + Panatumumab

Wow Stu . . . that story is incredible . . . will you share the title please?
by jep
Sat Dec 28, 2019 7:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox (AGAIN) + Panatumumab
Replies: 11
Views: 1024

Re: Folfox (AGAIN) + Panatumumab

My views are there is nothing to be lost on returning to more standard treatment at this juncture as he seems to have positive results . However I hear what you are saying about the trial . I can understand an oncologist wanting to use a treatment that they are familiar with which has also done a g...
by jep
Fri Dec 27, 2019 1:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox (AGAIN) + Panatumumab
Replies: 11
Views: 1024

Re: Folfox (AGAIN) + Panatumumab

Hi jep, Two questions that might help with answering: 1. how long since his last dose of the previous chemo regime he is considering rechallenging? 2. why did he stop this regime previously? (eg progression, surgery, side effects) Thanks Rob Hi Rob! So, my husband ended his 6 months of folfox in Ja...
by jep
Fri Dec 27, 2019 7:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox (AGAIN) + Panatumumab
Replies: 11
Views: 1024

Folfox (AGAIN) + Panatumumab

Good morning! So my husband's brief stint (3 infusions) on the Phase 1 Clinical Trial has come to an end. We met with 2 different oncologists and they both agree that he should go back to more standard types of chemo (ones that he responded to in the past). He has been on both Folfox and Panatumumab...
by jep
Wed Dec 18, 2019 6:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still at the hospital :(
Replies: 34
Views: 4377

Re: Still at the hospital :(

Hey everyone....so sorry that I haven’t been on with an update....my husband did come home on Sunday (which we are all thrilled about!!). It’s been a busy week though with 2 separate trips to Yale. First he had a CT scan on Monday, and today we met with his oncologist. He feels that it will not bene...
by jep
Thu Dec 12, 2019 3:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still at the hospital :(
Replies: 34
Views: 4377

Re: Still at the hospital :(

Hey everyone . . . just wanted to give a quick update on my husband . . . today is day 14 in the hospital . . . he is doing well (despite blood clots in both legs that have lengthened his stay). The surgeon is confident that the blood clots are under control, and my husband is now down to only 2 IVs...
by jep
Mon Dec 09, 2019 10:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still at the hospital :(
Replies: 34
Views: 4377

Re: Still at the hospital :(

Hey jep sending MEGA POSI +++++++ vibes yours and hubby's way !!!! Any day some kinda tube comes OUT ... is a great day SO ... here's to moving forward with good results and lotsa' Harmony on the Journey Best wishes CRguy Thank you CRguy! Totally agree....each tube that comes out is a victory! Read...
by jep
Mon Dec 09, 2019 9:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still at the hospital :(
Replies: 34
Views: 4377

Re: Still at the hospital :(

Thank you all for your responses...my husband is doing well today....both the foley and the NG tube were removed....he has been walking the halls and was allowed to have water, apple juice, and jello tonight....yes, the phase 1 clinical trial is a combo of 2 immunotherapies....hoping they will let h...
by jep
Sat Dec 07, 2019 5:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still at the hospital :(
Replies: 34
Views: 4377

Re: Still at the hospital :(

Siti, I’m sorry for the confusion, but the tumor is not out....the surgeon created a bypass so that my husband’s bowel function will not be impeded by the partial blockage....curative surgery is not really an option at this point (because of the problematic nodes near and around the vena cava)....th...
by jep
Sat Dec 07, 2019 2:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still at the hospital :(
Replies: 34
Views: 4377

Re: Still at the hospital :(

Last night his surgeon mentioned 5 days....we’ll see....
by jep
Sat Dec 07, 2019 12:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still at the hospital :(
Replies: 34
Views: 4377

Re: Still at the hospital :(

Well, the surgery did happen yesterday, and my husband is now recovering in the ICU....turns out the partial blockage in his colon was the culprit....he was so bloated because his colon was full....they got everything out and created a bypass and placed a colostomy bag.... We’ve been thinking a lot ...

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