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by StDrogo
Sun Apr 21, 2019 12:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversals Any positives?
Replies: 31
Views: 2375

Re: Reversals Any positives?

My wife never had any issues with her reversal, despite the extended right hemicolectomy. She has not had to modify her diet in any way, nor does she take metamucil.
by StDrogo
Tue Apr 02, 2019 6:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan – Still NED
Replies: 1
Views: 488

CT Scan – Still NED

For the sake of the community here, I thought I should update. My wife remains free of any evidence of disease. This is naturally a great boon to us, but these scans take a lot out of us now after all we've been through—basically, she was (falsely) diagnosed with diffuse peritoneal carcinomatosis ab...
by StDrogo
Wed Jan 16, 2019 2:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still No Recurrence . . .
Replies: 1
Views: 564

Still No Recurrence . . .

Not sure what this is worth after we've lost everything, but my wife is still fine and apparently without disease. Should feel great—particularly after having to fight our oncologist eight months ago when he grossly misread a scan and falsely insisted that my wife had diffuse carcinomatosis (which r...
by StDrogo
Tue Oct 16, 2018 6:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NED for now
Replies: 2
Views: 858

NED for now

Just a brief update. I looked over scans with surgeon from last week today. There's nothing there, so that's good—might be enough of an impetus to lay off on the drinking for the the next six months' reprieve that we've got. The cancer really ought to be back by now, and in a dreadful way, so I'm te...
by StDrogo
Mon Sep 17, 2018 3:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3b with ovarian met recurrence and healthy now
Replies: 14
Views: 3541

Re: Stage 3b with ovarian met recurrence and healthy now

New to all this. Diagnosed in late May with large masses on rectum and left ovary. Sigmoidoscopy showed almost completely filled sigmoid with cancer cells, and so was diagnosed with colon cancer. Put on FOLFOX for 12 weeks. Told there was not a cure, and the goal was to decrease the size of the mas...
by StDrogo
Mon Sep 10, 2018 5:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Two-Month Postop Update
Replies: 4
Views: 1129

Re: Two-Month Postop Update

Australia is the godforsaken country in question, although we feel similarly about Germany. I know I shouldn't be fatalistic; four major surgeries in fifteen months takes its toll. On the upside, my wife was recovered almost completely within nine days of the last one; they were rather surprised tha...
by StDrogo
Sun Sep 09, 2018 12:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Two-Month Postop Update
Replies: 4
Views: 1129

Two-Month Postop Update

So, wife had surgery on June 29. Other ovary ostensibly had cancer, but nothing else. Having evaluated the CT scans and PET beforehand, that is precisely what I expected; oncologist was certain she had diffuse peritoneal carcinomatosis and insisted that surgery was futile (only was willing to recomm...
by StDrogo
Sat Aug 18, 2018 1:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Isolated Retroperitoneal Metastases with Unelevated Markers
Replies: 7
Views: 2206

Re: Isolated Retroperitoneal Metastases with Unelevated Markers

I’ll update. PET on June 6 revealed what HIPEC surgeon considered mets in liver segments 2 and 3; based on lack of morphological abnormalities in that area—apart from obvious incisional scar tissue from benign foreign body granuloma in December—I was virtually certain that the increased FDG uptake (...
by StDrogo
Sat Jun 16, 2018 1:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have a little drinky drink during chemo?
Replies: 16
Views: 5019

Re: Does anyone have a little drinky drink during chemo?

Well, I did—and in herculean quantities—but I wasn't the one technically on chemo. My wife usually had a glass every night with dinner; whether it's good for you or not, teetotalism just doesn't seem human. She fasted, however, for five days out of every two weeks, during which time she would only d...
by StDrogo
Fri Jun 08, 2018 11:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Isolated Retroperitoneal Metastases with Unelevated Markers
Replies: 7
Views: 2206

Re: Isolated Retroperitoneal Metastases with Unelevated Markers

I’ll update, for what it’s worth. The onc claims, contra information previously relayed from radiologist, that the mass is ovarian and my wife has diffuse carcinomatosis. HIPEC surgeon is much more willing to entertain a benign etiology (e.g., a peritoneal inclusion cyst and foreign body granulomato...
by StDrogo
Thu May 17, 2018 10:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Isolated Retroperitoneal Metastases with Unelevated Markers
Replies: 7
Views: 2206

Re: Isolated Retroperitoneal Metastases with Unelevated Markers

I'm a bit confused about the relevance of your response. While there are certainly some notable lacunae, the panels I have are relatively extensive. I have extensive, sometimes daily records of my wife's LDH, liver function, vitamin D levels, CBC, CRP, and a number of endocrinological panels from th...
by StDrogo
Thu May 17, 2018 7:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Isolated Retroperitoneal Metastases with Unelevated Markers
Replies: 7
Views: 2206

Isolated Retroperitoneal Metastases with Unelevated Markers

I had previously posted about our situation in a different thread, but it may be more à propos to start a discrete thread. Essentially, my wife had a CT scan a couple of weeks ago. We didn't hear any results for a week, despite several calls. Finally, I pushed through the ER to get ahold of someone,...
by StDrogo
Mon May 14, 2018 3:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Shoulder Pain
Replies: 4
Views: 1299

Re: Shoulder Pain

Results are confusing . . . First, CEA remains less than 1 (Dx was 10), CA 19-9 is 8 (Dx 36) and CA 125 is 10 (Dx was 99, then elevated to 180). Lungs, liver, spine/pelvic bones, spleen, right ovary all clear. No suspicious nodes. However, there's allegedly a 9 cm (!) complex mass in the upper right...
by StDrogo
Tue May 08, 2018 4:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Path report - kras and tp53
Replies: 4
Views: 752

Re: Path report - kras and tp53

With the current state of genomics, there's not much to interpret. KRAS (which controls cell proliferation) mutations generally have an unfavorable prognosis (which is obvious on the face of it since the cell has lost the ability to switch off multiplication, which is really bad for a eukaryotic org...
by StDrogo
Tue May 08, 2018 3:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Shoulder Pain
Replies: 4
Views: 1299

Re: Shoulder Pain

The very mild pain completely abated a week after I posted, consistent with a rhomboid strain. My wife had a CT scan and blood work on Friday. I left a message yesterday and the colorectal nurse texted me this morning (Tuesday) informing me that the referring surgeon (our oncologist dropped us a few...

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