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by James65
Mon Apr 16, 2018 9:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Repeated Bowel Blockages After Surgery
Replies: 4
Views: 650

Repeated Bowel Blockages After Surgery

Hello All, I have a friend who had surgery for a low rectal tumor where they were able to save the rectal stump and perform a surgery to reattach things. He had a tough time with recovery from the first surgery and some issues with the second, but over the past year to 1.5 years he has had five bowe...
by James65
Mon Mar 05, 2018 11:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: All Lung Nodule Experiences
Replies: 35
Views: 12200

Re: All Lung Nodule Experiences

Hi, I had a lung nodule in the up0per left lobe removed 1.5 years ago and then before Christmas they found a 4mm nodule that in the last scan was 2mm (really small) in the same lobe. So I am doing the follow up 3/20. I would like to hope that it turns out to be nothing, but not really sure that's re...
by James65
Wed Feb 07, 2018 9:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 226190

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

We have the same forecast out here in the Seacoast. I hate this middling weather. I liked the cold and when it's warm, but 30 to 40 degrees gets in my bones. Do you have United Healthcare through Medicare? I think that's what I have for prescription coverage too. One person to touch base with is the...
by James65
Wed Feb 07, 2018 9:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 226190

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I wonder if your oncologist's office or the hospital s/he is in or connected to would be able to get the drug more cheaply and reliably for you?
by James65
Mon Feb 05, 2018 9:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 226190

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

PS

With the disposable bags, you can pour the product into the toilet and wrap the bag in a plastic bag and toss in the trash. Way better than drianable pouches.
by James65
Mon Feb 05, 2018 9:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 226190

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

What has helped the most is the Cavilon Spray. There are also barrier wipes by Smith & Nephew that work very well for protecting the skin and adhesion. They have some alcohol in them, too, and that helps with any skin issues (a bit stingy, but works). I also use a Convatec convex wafer with dis...
by James65
Mon Feb 05, 2018 9:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 226190

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

That's a good sign that you return to 100 percent relatively soon after an infusion, or during a break. My neuropathy took a long time to dissipate--I still have some in my feet--so hopefully when you get to the end of the marathon you can recover quickly. Also, exercises that get blood flowing are ...
by James65
Fri Feb 02, 2018 12:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 226190

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Hi Mike, Glad that you are keeping moving. It helps with the neuropathy and just feeling better. As to the wafer and back adhering, I make sure the bag is empty (important as even a little bit of product can cause pulling and irritation from the wafer) and I tuck it into my shorts to keep it from bo...
by James65
Mon Jan 29, 2018 10:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 226190

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I've always thought that if there was one thing I would want people to know it's that cancer and the treatments affect everyone uniquely. There isn't a single cancer experience, though many shared experiences.
by James65
Sun Jan 28, 2018 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 226190

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Hi Mike, James here. We spoke when you first started on this journey. I live in Exeter and not sure how far that is from you, but if you need anything feel free to ask. I had a very difficult time with chemo too, especially oxalyplatin. I went through this treatment in 2006 so I imagine some things ...
by James65
Mon Jan 22, 2018 8:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: those of you with a colostomy
Replies: 14
Views: 1198

Re: those of you with a colostomy

Hi, I had a full APR in 2006 and with that a colostomy. There was a lot to get used to and it took a while. In some ways I'm still working through some things, but the two things I did that made a difference were irrigating and being physically active, which is mostly trail running, but could be any...
by James65
Sun Dec 31, 2017 3:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation for Lung Met
Replies: 6
Views: 749

Re: Radiation for Lung Met

Ana,
Thank you so much.

Best in the New Year,
James
by James65
Sun Dec 31, 2017 11:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation for Lung Met
Replies: 6
Views: 749

Re: Radiation for Lung Met

Ana123,
Thanks so much for all of this info. I didn't know there is a SBRT and RFA. Do you know what the difference is? Did your father have side effects for RFA?

My node is upper left near the middle as well.

Best to you,
James
by James65
Fri Dec 08, 2017 12:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help with Disability please! UPDATED
Replies: 10
Views: 1362

Re: Help with Disability please!

For my first treatment--for the primary rectal cancer--I had private disability insurance. They made me apply for SSDI when it transitioned to long-term disability, which is normal and as expected SSDI turned me down because I had private disability insurance. Your private insurer will then continue...
by James65
Thu Dec 07, 2017 2:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation for Lung Met
Replies: 6
Views: 749

Re: Radiation for Lung Met

Hi Claudia,
Thanks for the thoughts. Much appreciated.

I hope yours turns out to be okay, too. My last met was 8mm in the lung and that turned out to be the easiest one to treat that I've been through.

Best,
James

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