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by James65
Fri Aug 07, 2020 12:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SBRT
Replies: 8
Views: 2042

Re: SBRT

Hi, I had SBRT to my left lung around the same time you did and wondering how you are doing. I'm about six months out and just went for my second follow up CT scan and of course very nervous. What's your experience been like? For me, mostly fatigue, winded a bit easier, a tiny bit of soreness in the...
by James65
Mon Feb 10, 2020 12:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SBRT Side Effects?
Replies: 1
Views: 578

SBRT Side Effects?

Hi All, I completed my last SBRT treatment for a smallish lung met in the upper left lobe. I'm wondering what side effects others have experienced and how long they got worse before they got better. Right now I'm exhausted most of the time and have some raspy breathing (nothing too bad). But if I go...
by James65
Tue Dec 17, 2019 2:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Done SBRT to the Lung?
Replies: 7
Views: 773

Re: Anyone Done SBRT to the Lung?

Yeah Claudine, I'm with you. Burn it to cinders.

Oncologists should talk like this more, "We're going to kick the s**t out of that thing."
by James65
Tue Dec 17, 2019 10:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Done SBRT to the Lung?
Replies: 7
Views: 773

Re: Anyone Done SBRT to the Lung?

Hi Claudine,
Thanks so much for the reply. Very helpful.

Best,
James
by James65
Tue Dec 17, 2019 10:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Done SBRT to the Lung?
Replies: 7
Views: 773

Anyone Done SBRT to the Lung?

Hi All, It's been a while, but my cancer seems to be fairly persistent. I have a small (about 1cm) tumor in my upper left lung lobe along the incision scar from a previous resection. My radiation oncologist said that when lung resections recur it is often along the incision scar. I am going to do SB...
by James65
Thu Dec 12, 2019 6:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1749
Views: 460557

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Howdy Mike, been a while.

I was wondering if you've tried Senna? That's what I use and it works for constipation and helps me have relatively predictable bowel movements.

I'm also wondering about the slippery elm. Anybody have success with that for constipation?
by James65
Mon Apr 16, 2018 9:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Repeated Bowel Blockages After Surgery
Replies: 4
Views: 1197

Repeated Bowel Blockages After Surgery

Hello All, I have a friend who had surgery for a low rectal tumor where they were able to save the rectal stump and perform a surgery to reattach things. He had a tough time with recovery from the first surgery and some issues with the second, but over the past year to 1.5 years he has had five bowe...
by James65
Mon Mar 05, 2018 11:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: All Lung Nodule Experiences
Replies: 36
Views: 19963

Re: All Lung Nodule Experiences

Hi, I had a lung nodule in the up0per left lobe removed 1.5 years ago and then before Christmas they found a 4mm nodule that in the last scan was 2mm (really small) in the same lobe. So I am doing the follow up 3/20. I would like to hope that it turns out to be nothing, but not really sure that's re...
by James65
Wed Feb 07, 2018 9:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1749
Views: 460557

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

We have the same forecast out here in the Seacoast. I hate this middling weather. I liked the cold and when it's warm, but 30 to 40 degrees gets in my bones. Do you have United Healthcare through Medicare? I think that's what I have for prescription coverage too. One person to touch base with is the...
by James65
Wed Feb 07, 2018 9:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1749
Views: 460557

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I wonder if your oncologist's office or the hospital s/he is in or connected to would be able to get the drug more cheaply and reliably for you?
by James65
Mon Feb 05, 2018 9:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1749
Views: 460557

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

PS

With the disposable bags, you can pour the product into the toilet and wrap the bag in a plastic bag and toss in the trash. Way better than drianable pouches.
by James65
Mon Feb 05, 2018 9:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1749
Views: 460557

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

What has helped the most is the Cavilon Spray. There are also barrier wipes by Smith & Nephew that work very well for protecting the skin and adhesion. They have some alcohol in them, too, and that helps with any skin issues (a bit stingy, but works). I also use a Convatec convex wafer with dis...
by James65
Mon Feb 05, 2018 9:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1749
Views: 460557

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

That's a good sign that you return to 100 percent relatively soon after an infusion, or during a break. My neuropathy took a long time to dissipate--I still have some in my feet--so hopefully when you get to the end of the marathon you can recover quickly. Also, exercises that get blood flowing are ...
by James65
Fri Feb 02, 2018 12:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1749
Views: 460557

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Hi Mike, Glad that you are keeping moving. It helps with the neuropathy and just feeling better. As to the wafer and back adhering, I make sure the bag is empty (important as even a little bit of product can cause pulling and irritation from the wafer) and I tuck it into my shorts to keep it from bo...
by James65
Mon Jan 29, 2018 10:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1749
Views: 460557

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I've always thought that if there was one thing I would want people to know it's that cancer and the treatments affect everyone uniquely. There isn't a single cancer experience, though many shared experiences.

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