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by Tdubz
Wed Oct 03, 2018 7:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET Scan results?
Replies: 13
Views: 887

Re: PET Scan results?

That’s the hope, and I think that’s why my onc wanted to wait a bit before rushing to surgery when for all he knows it could be benign.
by Tdubz
Wed Oct 03, 2018 8:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET Scan results?
Replies: 13
Views: 887

Re: PET Scan results?

Still in limbo basically. Mri showed a 4-5mm mass on the liver, but it only showed up on one of the slides. Onc said it’s too small to biopsy at this point so he wanted to wait for 6 weeks and do another mri to see if there have been any changes. That happens at the end of October so still have a fe...
by Tdubz
Fri Sep 07, 2018 8:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SUV?
Replies: 3
Views: 409

Re: SUV?

Awesome thanks!
by Tdubz
Fri Sep 07, 2018 8:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SUV?
Replies: 3
Views: 409

SUV?

do any of you know what a high number is for SUV on a pet scan? I found my results online today and it said the spot on my liver had an suv max of 3.3. I understand that suv stands for standardized uptake values but I can’t seem to find anything about the number. What’s a bad number to have? Is 3.3 ...
by Tdubz
Fri Aug 31, 2018 9:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: With apologies to the Bare Naked Ladies, but...
Replies: 9
Views: 978

Re: With apologies to the Bare Naked Ladies, but...

One to two months after chemo is when my neuropathy was the worst, and while it might not completely go away, it will get better. It got so bad my wife had to button my shirts and tie my shoes. Driving was fun because I couldn’t feel the gas or break pedals. I’m almost a year out from my last chemo ...
by Tdubz
Tue Aug 28, 2018 8:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET Scan results?
Replies: 13
Views: 887

Re: PET Scan results?

Thanks gravelyguy, that’s good to know. Now I just gotta worry about being in the mri tube for an hour. I’m not worried about the tight spaces, but it never fails when I have to keep super still, I’ll get an itch on my face or have to sneeze. Then the fact that I gotta keep my arms behind my head fo...
by Tdubz
Tue Aug 28, 2018 2:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET Scan results?
Replies: 13
Views: 887

Re: PET Scan results?

I did keto too. It was great and easy to do. I wasn’t hardcore with it though. I eliminated breads and anything with added sugar. Upped my vegetable intake and my meats were only organic cagefree and grass fed.I made sure I was in ketosis with the strips but I never did the macros or anything.
by Tdubz
Tue Aug 28, 2018 1:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET Scan results?
Replies: 13
Views: 887

Re: PET Scan results?

Hey benben, I had one pet scan before chemo. It showed some inflamed lymph nodes where my surgery was but that’s it. My ast and alt were both in normal ranges but my ggt was 148 when normal is 15-73 and my alkaline phosphatase was 161 when normal is 38-126. I didn’t even ask what my cea was at the l...
by Tdubz
Tue Aug 28, 2018 9:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET Scan results?
Replies: 13
Views: 887

PET Scan results?

I recently went to the doctor for a physical and he noticed my liver numbers were high. He spoke with my oncologist and they agreed I should have a pet scan. I received a call today from the nurse who said the results of the pet showed a faint spot on my liver but the ct didn’t show anything. The nu...
by Tdubz
Tue Aug 28, 2018 7:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic Testing?
Replies: 20
Views: 4626

Re: Genetic Testing?

GINA only protects against discrimination in health insurance and employment and that’s all, it does not protect against discrimination for life insurance. This was explained to me by my oncologist as well and there are a ton of articles about it you can find on the Internet. I already had a life in...
by Tdubz
Thu Aug 02, 2018 9:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The end of chemo
Replies: 5
Views: 575

Re: The end of chemo

I finished chemo at the end of September and had my port out in December. For me, having to take off work to go get my port flushed was more hassle than I wanted to deal with. Also, I had already met my out of pocket max on insurance so as long as I had it removed before the new year started, it wou...
by Tdubz
Tue Jul 31, 2018 7:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tips for a Folfox newbie – starting Tuesday
Replies: 31
Views: 5977

Re: Tips for a Folfox newbie – starting Tuesday

Good luck today! Lets us know how it went.
by Tdubz
Sun Jul 29, 2018 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tips for a Folfox newbie – starting Tuesday
Replies: 31
Views: 5977

Re: Tips for a Folfox newbie – starting Tuesday

Make sure you have someone come with you at least on your fisrt infusion. I never felt like I could drive safely for the few days after infusions. Bring something to do. You will be there for 5-6 hrs. Some people could sleep but I never could. I’d read a book or watch a movie on my phone. I didn’t g...
by Tdubz
Wed Jul 25, 2018 9:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Results 15 months post surgery. NDED vs NED?
Replies: 26
Views: 5871

Re: Scan Results 15 months post surgery. NDED vs NED?

Hey benben, sounds like a good scan to me! My last scan in April showed I had a small lung nodule with no change from the previous scan. Similar to your situation, it was never mentioned in the notes of any of my previous scans. My onc didn’t even mention it to me either so I guess it’s nothing to w...
by Tdubz
Fri Jun 22, 2018 5:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is the day that chemo treatment ...
Replies: 17
Views: 3740

Re: Is the day that cheno treatment ...

Days 2 through 4 seemed to be the worst for me. I don’t remember ever feeling bad on a weekend (Monday was infusion and wed was disconnect). Take into consideration what days you will be working. My employer let me take off all of the infusion weeks, so I chose to do Monday as my infusion day. This ...

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