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by Tdubz
Thu Aug 02, 2018 9:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The end of chemo
Replies: 5
Views: 382

Re: The end of chemo

I finished chemo at the end of September and had my port out in December. For me, having to take off work to go get my port flushed was more hassle than I wanted to deal with. Also, I had already met my out of pocket max on insurance so as long as I had it removed before the new year started, it wou...
by Tdubz
Tue Jul 31, 2018 7:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tips for a Folfox newbie – starting Tuesday
Replies: 31
Views: 1094

Re: Tips for a Folfox newbie – starting Tuesday

Good luck today! Lets us know how it went.
by Tdubz
Sun Jul 29, 2018 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tips for a Folfox newbie – starting Tuesday
Replies: 31
Views: 1094

Re: Tips for a Folfox newbie – starting Tuesday

Make sure you have someone come with you at least on your fisrt infusion. I never felt like I could drive safely for the few days after infusions. Bring something to do. You will be there for 5-6 hrs. Some people could sleep but I never could. I’d read a book or watch a movie on my phone. I didn’t g...
by Tdubz
Wed Jul 25, 2018 9:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Results 15 months post surgery. NDED vs NED?
Replies: 19
Views: 759

Re: Scan Results 15 months post surgery. NDED vs NED?

Hey benben, sounds like a good scan to me! My last scan in April showed I had a small lung nodule with no change from the previous scan. Similar to your situation, it was never mentioned in the notes of any of my previous scans. My onc didn’t even mention it to me either so I guess it’s nothing to w...
by Tdubz
Fri Jun 22, 2018 5:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is the day that chemo treatment ...
Replies: 17
Views: 792

Re: Is the day that cheno treatment ...

Days 2 through 4 seemed to be the worst for me. I don’t remember ever feeling bad on a weekend (Monday was infusion and wed was disconnect). Take into consideration what days you will be working. My employer let me take off all of the infusion weeks, so I chose to do Monday as my infusion day. This ...
by Tdubz
Thu Jun 21, 2018 7:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Better news, Neuropathy & questions
Replies: 31
Views: 1644

Re: Better news, Neuropathy & questions

I’m 9 months out from my last chemo. I had 11 rounds of oxi. After I finished, neuropathy was so bad I couldn’t button my shirts, tie my shoes or type on the computer. Now it’s just a slight constant tingle. Sometimes I don’t notice it at all if I’m focusing on something else, but it’s always there....
by Tdubz
Tue Jun 19, 2018 9:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What should I expect for port placement???
Replies: 26
Views: 972

Re: What should I expect for port placement???

I was knocked out when I had my port inserted and removed. I didn’t use any pain killers and I was fine. I iced it down the first two days or so. The skin in that part of the body doesn’t really move or stretch much so you don’t get much pain from movement. The worst part of the port for me was just...
by Tdubz
Wed Jun 13, 2018 8:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU pump
Replies: 9
Views: 435

Re: 5FU pump

I slept on my back when I had the pump. I’d wear it like a satchel and while laying on my back, it would just lay right next to me on the bed. If for some reason I moved around while I was sleeping, it was still strapped to me so it wouldn’t fall off the bed. As for showers, I just skipped them too.
by Tdubz
Wed May 30, 2018 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer screening at 45 - New guidelines
Replies: 15
Views: 766

Re: Colon cancer screening at 45 - New guidelines

Definitely a step in the right direction, but needs to be 30 or 35. What would really help is educating the doctors that it’s ok to send someone in their 20’s or 30’s to get a colonoscopy. I’ve read countless stories exactly like mine where we go to the doctor describing our symptoms and the doctor ...
by Tdubz
Fri Apr 06, 2018 7:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety: Anyone else having testing now?
Replies: 60
Views: 5932

Re: Scanxiety: Anyone else having testing now?

I just finished all the tests for the one year mark, colonoscopy/blood/ct scan and all were clear! I didn’t have scanxiety for this first year, but that was probably due to the fact that I was getting labs every 3 months and scans every 6. Now my onc said I’ll just do labs and scans every six months...
by Tdubz
Sat Mar 31, 2018 8:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fainted during prep
Replies: 5
Views: 1128

Re: Fainted during prep

This has happened to me both times I’ve done the prep. They both happened at the same time too. I had taken the second does of Miralax around midnight, then went to sleep. I woke up a couple of hours later to go to the bathroom and then the fun started. On my first colonoscopy prep I got really ligh...
by Tdubz
Sat Mar 17, 2018 8:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Burning pain after reversal
Replies: 6
Views: 738

Re: Burning pain after reversal

I’m not sure if you have the same thing I did but the “stretching out the stomach” comment stood out to me. I had a pain in my incision after my resection and it always felt let it needed to be stretched out to make it feel better, kinda like a really bad cramp at the incision. I explained that to m...
by Tdubz
Wed Mar 14, 2018 8:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: First Post Surgery/Chemo Scope
Replies: 7
Views: 752

Re: First Post Surgery/Chemo Scope

Congrats man! Great news! Hope I get the same news tomorrow
by Tdubz
Sun Mar 11, 2018 2:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Done with chemo
Replies: 6
Views: 919

Re: Done with chemo

Congrats on finishing chemo!
by Tdubz
Sun Mar 11, 2018 10:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Are followup colonoscopies counted as preventative?
Replies: 5
Views: 715

Are followup colonoscopies counted as preventative?

Hey guys, I have my first post chemo colonoscopy this week and I was curious if it counts as preventative care. I had to pay for a portion of the colonoscopy that diagnosed my cancer and now I’m wondering if I should have had to pay anything at all for that one. Preventative care is supposed to be f...

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