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by benben
Thu Sep 13, 2018 7:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T...Post Your Pics Here
Replies: 131
Views: 12618

Re: O/T...Post Your Pics Here

They are fantastic and once again I feel transported . Stu, you were transported across the Pacific Ocean to the High Desert area of Central Oregon, USA. A very popular area for recreation w/approx 300 days of sunshine. Parts of Central Oregon rich in fossils, lava beds from volcanic activity estim...
by benben
Thu Sep 13, 2018 6:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Final Chemo Anniversary
Replies: 8
Views: 464

Re: Final Chemo Anniversary

Congrats. May you take up permanent residence on NED st.
by benben
Thu Sep 13, 2018 6:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Side effects after colon resection? ??????
Replies: 3
Views: 256

Re: Side effects after colon resection? ??????

Hi all, On the 5th September I had my colon resection and now I have a few side effects like constipation, flatulence etc..but I have also a "sex problem" I'm suffering of a retrograde ejaculation!!.....anyone in the same condition? Tnx Dude, you're 8 days out of resection and you're even...
by benben
Thu Sep 13, 2018 6:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy October 5th, Age 30. Freaked out.
Replies: 6
Views: 364

Re: Colonoscopy October 5th, Age 30. Freaked out.

Hey mate, you're on the ball with the scope. And your doctors are GOOD to double check. It should be standard in my opinion. Unfortunately I was in your shoes about the same age and my docs took the other method. 3 GI docs in 7 year period told me the rectal bleeding was most likely just roids and f...
by benben
Mon Sep 10, 2018 1:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T...Post Your Pics Here
Replies: 131
Views: 12618

Re: O/T...Post Your Pics Here

Finally got around to dloading images off my Note 8 from our South Sister climb - July 21/22 All images are hyperlinked - you can click and expand for full view. Coming into Lake Moraine, where we camped http://i.imgur.com/PI8jZcEl.jpg On the bank of the lake http://i.imgur.com/VAc13FQl.jpg South Si...
by benben
Thu Sep 06, 2018 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Results 15 months post surgery. NDED vs NED?
Replies: 24
Views: 1977

Re: Scan Results 15 months post surgery. NDED vs NED?

Congrats to you on yourCEA decrease benben... that must be a big relief for you! Mine was up in the 6 range during chemo and it was back down to 2 with my first ct scan after treatment. My anxiety level waiting for results was through the roof as I understand it is for all of us through this whole ...
by benben
Thu Sep 06, 2018 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1283
Views: 116939

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Mike, what they are probably doing is comparing your photo to all of the other profile photos on Facebook to make sure it doesn’t match any other ones. The way you have it set up is also the way that most hackers do and phishing attempts are done. People will create a duplicate profile of someone e...
by benben
Fri Aug 31, 2018 1:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Results 15 months post surgery. NDED vs NED?
Replies: 24
Views: 1977

Re: Scan Results 15 months post surgery. NDED vs NED?

Well I Did a laundry list of things differently these past 30 days. I don't know if any of them contributed to the sharp decrease in CEA or it's just part of the normal fluctuation, but I shed 2 points from 4.6 to 2.6. This is the lowest reading in over 1 year for me. AST was back down to normal ran...
by benben
Tue Aug 28, 2018 1:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life ins. policy...critical illness rider
Replies: 5
Views: 534

Re: Life ins. policy...critical illness rider

Just a heads up in case you weren't aware. After being diagnosed I called my insurance agent to check on my life insurance policy. He informed me that I had a terminal illness rider where I could pull out $100,000. He called me back later that day and informed me I also had a critical illness rider...
by benben
Tue Aug 28, 2018 1:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET Scan results?
Replies: 9
Views: 507

Re: PET Scan results?

Hey benben, I had one pet scan before chemo. It showed some inflamed lymph nodes where my surgery was but that’s it. My ast and alt were both in normal ranges but my ggt was 148 when normal is 15-73 and my alkaline phosphatase was 161 when normal is 38-126. I didn’t even ask what my cea was at the ...
by benben
Tue Aug 28, 2018 1:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1283
Views: 116939

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Horrible time yesterday and today. Constant bathroom trips and quite a bit of pain this morning. I had a look at my sleep chart and it's 6 hours of sleep getting up every ten to fifteen minutes to go to the bathroom. A fair amount of blood on the pads. So my problems: - I had some very dark thought...
by benben
Tue Aug 28, 2018 12:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET Scan results?
Replies: 9
Views: 507

Re: PET Scan results?

Hey Tdubz. I'm sorry to hear about the pet findings. While I can't really comment from experience, I do believe that sometimes even benign lesions/tumors can indicate PET activity. Was this your first PET? I'm asking cause I know we are like 1 or 2 weeks apart in our treatments and I've never had a ...
by benben
Sun Aug 12, 2018 8:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need help understanding CEA
Replies: 10
Views: 1123

Re: I need help understanding CEA

I've read a recent report on CEA and it's overall accuracy for correlation with tumors. It's really not all that accurate especially if your lab judges levels of 2.5< as normal. The study suggested 80% false positive rates. This vastly was reduced to less than 25% false positives with the 5.0< norma...
by benben
Sun Aug 12, 2018 7:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: L-Glutamine
Replies: 10
Views: 901

Re: L-Glutamine

BenBen - What is CBC and THC and how did it help? Also, I see your Ox was reduced. Mine was reduced to 50% after Round 3 b/c my hand and leg cramping was so extreme. I am now back up to 65%. Hi Lakeswim. CBD and THC are extracts from the marijuana plant. I used edible forms of these so as not to in...
by benben
Sun Aug 12, 2018 6:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: L-Glutamine
Replies: 10
Views: 901

Re: L-Glutamine

I took L-Glutamine along with a handful of other supps and small doses of CBD and THC during my entire chemotherapy treatment. So I can't say for certain whether any one thing did anything or whether or not they did anything at all - HAH. But I am 9 months out of therapy and have virtually ZERO neur...

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