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by mpbser
Sun Mar 24, 2019 6:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung specialist at MSK or MDA? Advice, please.
Replies: 15
Views: 423

Re: Lung specialist at MSK or MDA? Advice, please.

David R Jones MD has his very own lab at MSK. From what I had read about him, he is a genius indeed. https://www.mskcc.org/research-areas/labs/david-jones
by mpbser
Sun Mar 24, 2019 6:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Getting liquid biopsy for surveillance and treatment monitoring
Replies: 3
Views: 268

Re: Getting liquid biopsy for surveillance and treatment monitoring

No, not yet. I hadn't thought about that. Do you have any specific suggestions?
by mpbser
Sat Mar 23, 2019 2:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 swollen nodes in abdomen...
Replies: 24
Views: 2954

Re: 2 swollen nodes in abdomen...

Good luck with those scans and the upcoming decision-making. Do you trust these surgeons with the para-aortic node surgeries? I read that this can be done laparoscopically, so that's good.
by mpbser
Sat Mar 23, 2019 5:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Getting liquid biopsy for surveillance and treatment monitoring
Replies: 3
Views: 268

Getting liquid biopsy for surveillance and treatment monitoring

It has been an insanely busy week but I managed to get the following letter two of my husband's local doctors on Friday: Dear Dr. *** and Dr. ***: Please accept my apologies for this last minute request but, as explained below, exigent circumstances warrant the urgency. This letter is being sent to ...
by mpbser
Sat Mar 23, 2019 5:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 swollen nodes in abdomen...
Replies: 24
Views: 2954

Re: 2 swollen nodes in abdomen...

jep,

Have you received the results of the biopsy? You mentioned possible surgery on a different thread. What's the latest?
by mpbser
Sat Mar 23, 2019 5:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hai pump leak into lymph nodes
Replies: 7
Views: 586

Re: Hai pump leak into lymph nodes

jep, would that surgery be for the nodes mentioned in your signature? Where are they located? Abdomen?

EDITED: I just saw your thread about this and see, yes, they are abdominal. Good luck with the surgery and everything! Please keep me/us posted!
by mpbser
Fri Mar 22, 2019 3:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hai pump leak into lymph nodes
Replies: 7
Views: 586

Re: Hai pump leak into lymph nodes

So, Dr. Kemeny is not convinced that there is a leak into the two nodes that the radiologist says has extrahepatic tracer activity: portocaval node and periportal node. She thinks that it may just be the slice/angle of the particular images they are looking at. She said that the radiologists reading...
by mpbser
Thu Mar 21, 2019 1:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly still NED...our story to date
Replies: 97
Views: 6985

Re: Possibly still NED...our story to date

He went back to work a week after surgery.
by mpbser
Thu Mar 21, 2019 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly still NED...our story to date
Replies: 97
Views: 6985

Re: Possibly still NED...our story to date

Yesterday was especially hard because we had not gotten much sleep that morning due to lots of commotion at the place we stayed the night before. We were woken up at 4:45am and didn't get much sleep after that. It was a very long, tiring day, but thankfully we both slept well last night and this mor...
by mpbser
Thu Mar 21, 2019 8:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly still NED...our story to date
Replies: 97
Views: 6985

Re: Possibly still NED...our story to date

First, upon discharge, he was instructed to resume all of his supplements by the medical professionals. Second, all the rest of his blood work is phenomenal, including his liver enzymes. Third, the aetiology of these particular elevated labs is either infection or stress. Fourth, supplements did not...
by mpbser
Thu Mar 21, 2019 7:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Drinking very hot tea almost doubles risk of cancer, new study says
Replies: 10
Views: 388

Re: Drinking very hot tea almost doubles risk of cancer, new study says

I love my cuppa tea. That’s the Anglophile in me! I actually learned about this around three years ago when I started drinking Morning Thunder tea which is a combination of black tea and mate. I wanted to make sure mate was not harmful, and there was research done about the prevalence of esophageal ...
by mpbser
Thu Mar 21, 2019 6:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly still NED...our story to date
Replies: 97
Views: 6985

Re: Possibly still NED...our story to date

My husband’s 12:30 bloodwork results yesterday included elevated platelets, white blood cells, carbon dioxide, and neutrophils. At around 5:30, we finally got in to see oncologist for his 1:15 appointment. We had to ask about this as it was overlooked. Oncologist’s assistant was more concerned about...
by mpbser
Sun Mar 17, 2019 5:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Discharged with abnormal ECG
Replies: 11
Views: 399

Re: Discharged with abnormal ECG

Thanks, rock! That's super helpful. The SPECT-CT flow scan that showed the atelectasis with mild pleural effusion four days after surgery said there was only trace fluid in my husband's abdo. All in all, he did extremely well. His surgeon is amazing. Curious why your GR was concerned about pulmonary...
by mpbser
Sat Mar 16, 2019 5:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly still NED...our story to date
Replies: 97
Views: 6985

Re: Possibly still NED...our story to date

I guess, if you can do deep breathing without the guidance. I personally know that I find apps such as Calm very useful for working on my breathing which tends to be very shallow.

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