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by mpbser
Sun Dec 22, 2019 8:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: After HAI
Replies: 17
Views: 2082

Re: After HAI

"You are preaching to the choir Juliej you can't tell him anything he has to fallon his face to 'get it'"

omg....sounds just like my husband... only he has to fall again and again and again before he gets it. Exasperating.
by mpbser
Sun Dec 22, 2019 8:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED and other news from Mayo
Replies: 9
Views: 754

Re: Still NED and other news from Mayo

Great news! Have a wonderful holiday!
by mpbser
Sun Dec 22, 2019 8:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still at the hospital :(
Replies: 34
Views: 3563

Re: Still at the hospital :(

I hope that the lung procedure went well and that you have a restful holiday.

Sending positive vibes.
by mpbser
Sun Dec 01, 2019 5:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 Years and Counting
Replies: 30
Views: 3289

Re: 10 Years and Counting

I love seeing this. Thank you so much for sharing!
by mpbser
Mon Nov 04, 2019 5:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What, besides, tumor burden causes elevated CEA?
Replies: 7
Views: 638

Re: What, besides, tumor burden causes elevated CEA?

My husband's CEA was recently 2.9 which was a jump from 2.2 three months ago. We were concerned until we read that hyperglycemia positively correlates with CEA. When my husband gets extremely stressed, e.g. morning of surgery, recent scanxiety on day of scan review during a time of enormous work str...
by mpbser
Mon Nov 04, 2019 5:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SCAN QUESTIONS
Replies: 9
Views: 788

Re: SCAN QUESTIONS

I vacillate between wanting to have an explanation for these statements in question and just letting it be. As some people here already know, I have reviewed images myself from the CDs in the past. My husband always gets liver MRIs (at least since 2017 when his Mass General oncologist dropped the ba...
by mpbser
Sun Nov 03, 2019 12:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SCAN QUESTIONS
Replies: 9
Views: 788

Re: SCAN QUESTIONS

Wish we could do this. However, we have to travel and get the scans within 18 hours of the oncologist consult the following day. The reports never get released until at least 48 hours after the scan and that's when they are on weekdays. Because we come from out of town and my husband's schedule is s...
by mpbser
Sun Nov 03, 2019 12:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SCAN QUESTIONS
Replies: 9
Views: 788

Re: SCAN QUESTIONS

Someone responded elsewhere that this could be a good layperson's interpretation: 1) There is a section of the sigmoid colon that is now visible without distention (enlargement). There is no mass in this section. 2) There is a feature in the caudate resected zone that appears to be on the surface bu...
by mpbser
Sun Nov 03, 2019 10:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SCAN QUESTIONS
Replies: 9
Views: 788

SCAN QUESTIONS

I really don't like how we get these reports AFTER our oncologist appointment to review the results. I always have questions like this that I cannot possibly ask at the appointment. What do you guys think these passages from the CT report mean? 1) Focal nondistended region of the sigmoid colon is ne...
by mpbser
Sun Oct 20, 2019 3:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC
Replies: 74
Views: 13497

Re: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC

"Unfortunately, the initial results from people I’m following are not encouraging. Most people have progression, some have stability. But that’s what we would expect from Regorafenib monotherapy." Can you clarify? Are you saying that the results of most people you are following who are tak...
by mpbser
Fri Oct 11, 2019 1:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 301
Views: 48272

Re: My CRC with liver mets journey

Best of luck next week. Keep us posted!
by mpbser
Thu Oct 10, 2019 4:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fewer mutations in liver met - a good sign?
Replies: 2
Views: 632

Re: Fewer mutations in liver met - a good sign?

Thanks, gravelguy. Actually, he is NED. Has been since March surgery (liver #2). I really hope that the one pesky met that popped up after his first liver surgery (Jan 2018 surgery, found met Dec 2018) was just a micromet that was missed. His Mass General docs did not have him do mop-up chemo which ...
by mpbser
Wed Oct 09, 2019 6:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fewer mutations in liver met - a good sign?
Replies: 2
Views: 632

Fewer mutations in liver met - a good sign?

My husband and I went to Weill-Cornell last week and went over the genomic testing (“Oncomine”) results from the metastasis that was removed in March. I found it very interesting that the “met” that was tested had only two (tp53 and apc) of the three mutations that the primary tumor (tp53, apc, and ...

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