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by mpbser
Mon May 20, 2019 9:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 27
Views: 1326

Re: Anyone pass out after abdominal cramping??? ER time

radnyc, Yeah, well, the only scans there are that I am aware of between the time of the catheter dislodge and now are those from our local hospital in Vermont and Albany Med. I do not know what scans may have been done when he was in interventional radiology Tuesday night at MSK. I do not believe th...
by mpbser
Mon May 20, 2019 6:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 27
Views: 1326

Re: Anyone pass out after abdominal cramping??? ER time

I have been reading about aneurysms and pseudo-aneurysms (which is how I would characterize what happened) of the gastroduodenal artery and apparently the mortality rate is 40%. He is so very lucky to be alive. My logical side has a very hard time believing in God or a Higher Power, whatever one wan...
by mpbser
Mon May 20, 2019 6:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 27
Views: 1326

Re: Anyone pass out after abdominal cramping??? ER time

I started a new thread titled "HAI pump nightmare" that has received not one comment. Interesting. So, there is far too much to type if I was to provide an update on this forum now. I don't have the time at the moment as there has been so many events and developments. The one major concern...
by mpbser
Fri May 17, 2019 5:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 27
Views: 1326

Re: Anyone pass out after abdominal cramping??? ER time

Hi Gina, Indeed I had many a concern, not only about the pump being investigatory but about the pump generally in terms of the risks of HAI FUDR. If I am correct that the particular Codman catheter used in this adaptation is the same model that MSK has used for many years with the old Codman pump, t...
by mpbser
Thu May 16, 2019 2:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI PUMP NIGHTMARE
Replies: 0
Views: 245

HAI PUMP NIGHTMARE

May 13, 2019 My husband went to the SVMC ER after he woke me at 1:00 am concerned about the severe abdominal cramping he was having. He said that it was in the area of his incision, mid belly-ish, and worse when lying down (much better when up, walking around). We had called the on-call doctor at MS...
by mpbser
Thu May 16, 2019 1:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 27
Views: 1326

Re: Anyone pass out after abdominal cramping??? ER time

It's a shitstorm that seems to have no end. At least that is how it feels. What had actually happened was that the catheter dislodged from my husband’s artery. (We had been emphatically assured that that was a very, very rare event by Dr. D'Angelica. Ugh.) He is so very lucky to be alive as usually ...
by mpbser
Tue May 14, 2019 6:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 27
Views: 1326

Re: Anyone pass out after abdominal cramping??? ER time

Thank you. At MSK now finally. They brought him into interventional radiology to do possible embolization depending on what they find. They will also maybe put a stent around the catheter because it looks like the catheter is leaking. I honestly don't know if I'm separating things or mixing things u...
by mpbser
Mon May 13, 2019 9:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 27
Views: 1326

Re: Anyone pass out after abdominal cramping??? ER time

EMT friend, Who is with him right now, says that our local hospital is transferring him down to New York City (MSK). I don’t know why but I assume it has to do with the results of the CT scan.
by mpbser
Mon May 13, 2019 8:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 27
Views: 1326

Re: Anyone pass out after abdominal cramping??? ER time

No answers. I had to call back this afternoon because he was still symptomatic with lightheadedness and was unsteady on his feet. I wanted to let them know about this even though I had no clue how important it was or not. Dr K did not like how it sounded at all and insisted that we get back to a hos...
by mpbser
Mon May 13, 2019 11:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 27
Views: 1326

Re: Anyone pass out after abdominal cramping??? ER time

He had a little sleep. He still is getting lightheaded whenever he stands up from a lying position. Seems odd that this is still happening. No answers from Dr. Kemeny's team. "Stay hydrated and take it easy" is all they said.
by mpbser
Mon May 13, 2019 5:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 27
Views: 1326

Anyone pass out after abdominal cramping??? ER time

What a night! My husband woke me up at 1:00 am this morning telling me that he was concerned about the severe abdominal cramping he was having. He said that it was in the area of his incision, mid belly-ish, and worse when lying down. We called the on-call doctor at MSK who reviewed his symptoms and...
by mpbser
Sun May 12, 2019 8:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly still NED...our story to date
Replies: 124
Views: 13404

Re: Possibly still NED...our story to date

I found this post that I had written here in February of last year and found it eerily prophetic as my husband was diagnosed in December 2018 with recurrence: On another front, I am just about at my wits end with my husband. He just had liver surgery, is supposed to be eating healthy for a speedy re...
by mpbser
Sat May 11, 2019 3:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy in Switzerland
Replies: 40
Views: 1977

Re: Immunotherapy in Switzerland

Again, "pyro70", you are being unfair to rp1954. He has never advised anyone to do anything like: don't do chemo, don't listen to your doctors, do CIM as a sole "cure," etc. yet you keep writing as if he has. When my husband was first diagnosed, I found this forum quickly afterwa...
by mpbser
Sat May 11, 2019 5:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High Monocytes, MCV, & MCHC
Replies: 11
Views: 1363

Re: High Monocytes, MCV, & MCHC

Thanks, gravelyguy. I hope that whatever predictive factor MCV has is just like pretty much every other biomarker there is, e.g. CA19-9, CEA, LD, which don't necessarily tell much for some people.

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