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by scohow66
Tue Aug 28, 2018 9:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Enemas - HELP
Replies: 10
Views: 810

Re: Enemas - HELP

Thanks everyone...I am going to try to cut back on water. On most days I have need to use bathroom midday and usually at night with some minor clustering of stool. Not having many days of full relief so must be something driving this. I have basically no rectum, not sure how much colon, but it was a...
by scohow66
Wed Aug 08, 2018 2:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Enemas - HELP
Replies: 10
Views: 810

Re: Enemas - HELP

thanks! Yes, I have researched this extensively, but now that I am doing it just looking for some input as I find results are not consistent and still have some challenges as a result.

Tx
by scohow66
Tue Aug 07, 2018 12:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectum cancer
Replies: 34
Views: 9593

Re: Newly diagnosed rectum cancer

Hang in there, not easy at first. Get as much info as possible to understand where the tumor is, what stage is it (i.e. TxNxMx), and what options exist from a surgical and chemo/rad standpoint. Make sure you have someone with you at each dr. appt so to provide another set of ears and to take notes. ...
by scohow66
Tue Aug 07, 2018 11:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Enemas - HELP
Replies: 10
Views: 810

Enemas - HELP

Hi - I have been doing for about 3 weeks or so and have mixed results. i use a clear silicone bag with about 2 qts warm water. I do it while on a mat/towel on bathroom floor and most times the fluid goes in fairly quickly and then comes out the same way...overall about 45 mins or so for the full pro...
by scohow66
Wed Jul 25, 2018 11:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Results 15 months post surgery. NDED vs NED?
Replies: 26
Views: 5868

Re: Scan Results 15 months post surgery. NDED vs NED?

Hi - I too just had scans am about 15 months post LAR. They identified two small nodules on lung (2mm and 4mm). Dr. said they could have been missed on last scans done a year or so ago, but is having me rescanned in 4 months to see if any change. Too small now to do anything and could be nothing. I ...
by scohow66
Wed Jul 25, 2018 11:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Enemas & Colon Transit Time - help
Replies: 1
Views: 232

Enemas & Colon Transit Time - help

Quick question...been doing enemas for a week or so (large bag, 1-2 quarts) and overall good results, but have had a few days where I get some clustering at night. Seems like I have fast transit time thru the colon as I am feeling like each morning I do a pretty good clean out. Wondering if I should...
by scohow66
Tue Jul 24, 2018 11:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A month after takedown/ reversal-a few questions
Replies: 5
Views: 438

Re: A month after takedown/ reversal-a few questions

Hi - I too had a very low T2N0M0 cancer in rectum. Had LAR and temp ileo with clear margins and no lymph involvement. Been 15 post LAR and about 8 months from takedown of ileo. I have definitely suffered from LARS probably in a major way if looking at the definitions. 13-20 BM's a day, clustering, f...
by scohow66
Tue Jul 24, 2018 10:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 15 Months Post LAR - fluid and 2 lung nodules
Replies: 5
Views: 513

Re: 15 Months Post LAR - fluid and 2 lung nodules

Thanks for the feedback everyone, appreciate it. Will wait and see and hope no change when rescans done in November!
by scohow66
Mon Jul 23, 2018 3:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 15 Months Post LAR - fluid and 2 lung nodules
Replies: 5
Views: 513

15 Months Post LAR - fluid and 2 lung nodules

Hi - had first annual scans after LAR and reversal. Small fluid collection identified which may mean some leakage at connection site, but not having any issues (fever, pain, etc.). Dr. is suggesting I watch and wait...go antibiotics route if problems occur. I guess its common with very low tumors to...
by scohow66
Mon Jul 23, 2018 3:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Daily Enema Therapy for LARS
Replies: 7
Views: 664

Re: Daily Enema Therapy for LARS

Thanks everyone. I have been doing them for a little over a week. Using about half the 2Q bag with warm tap water and seems to be the right volume. Most of the time it removes LARS for a good 24 hours, but on a few days I have had some minor clustering or early evening needs to use the bathroom. Bee...
by scohow66
Wed Jul 11, 2018 7:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Daily Enema Therapy for LARS
Replies: 7
Views: 664

Daily Enema Therapy for LARS

Hi all - I am just about a year out from my Ileo reversal (October) and have been suffering with LARS. Not much improvement and am all over the map in terms of symptoms. Pretty much at wits end and Dr. won't address any conversation on approaches until we get to the 1 year mark, but I am seeing him ...
by scohow66
Tue Mar 20, 2018 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post LAR - 6 mo's post Ileo - LARS
Replies: 1
Views: 495

Post LAR - 6 mo's post Ileo - LARS

Hi folks - I am 6 months post ileo and still struggling a bit with LARS symptoms. Have kept a food diary and BM log and find on average going about 15x/day with some days at 25-30. Taking fiber 2x/day and immod as needed. Some days just tough though regardless and can't find any specific triggers fo...
by scohow66
Wed Oct 11, 2017 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileo Reversal - Input?
Replies: 5
Views: 765

Ileo Reversal - Input?

HI folks - had ileo reversal last week and unfortunately developed an ileus. Surgery went well and day one post op was fine until the bowels stalled out. Was inpatient for 6 nights and now finally home and coming thru the fog of pain, gas, bloating, etc. Interested in thoughts about when appetites r...
by scohow66
Thu Jul 27, 2017 4:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colorectal Surgery (Rectal) post op?
Replies: 12
Views: 3370

Re: Colorectal Surgery (Rectal) post op?

Hi Stacy - I had robotic LAR in April. Was for very low tumor (6 cm from anal verge). Was a T2N0M0. Surgery took about 4-5 hours and I was inpatient for 3 nights. Was up out of bed within few hours after surgery and walked a lot in hospital. Had catheter and a drain tube in stomach, all came out pri...
by scohow66
Thu Jul 27, 2017 3:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 226392

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Mike, I also went thru treatment at B & Wo's boston as well as DFCI (south shore location). I did the 28 radiation treatments (IMRT) along with 24x7 5FU via portable infusion pump. Finished all that end of January and had Robotic LAR end of April with temp ileostomy. Scheduled for take down in O...

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