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by Aqx99
Mon Feb 19, 2018 7:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy reversal experience?
Replies: 7
Views: 126

Re: Ileostomy reversal experience?

My reversal surgery was not like the typical ones. Normally, they go in through the stoma to do the reversal. I was told the surgery would take about an hour, mine ended up being 3 hours. I woke up to a huge incision down my belly because I had so much scar tissue in my abdomen and my surgeon punche...
by Aqx99
Sat Feb 17, 2018 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Black
Replies: 8
Views: 533

Re: Black

I know exactly how you feel. I was spiraling downward. With the help of my nurse navigator, I was put in contact with the oncology counselor at my cancer center. She has been helping me. She also set me up with a psychiatric nurse practitioner for medication. You may need to have a dose change on yo...
by Aqx99
Wed Feb 14, 2018 7:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal is Over
Replies: 52
Views: 1567

Re: Reversal is Over

How much time have you taken off work? Has it mainly been to stabilize any bowel issues? I am nervous because my reversal is on March 12, and I have only requested one week off. Should I stay home the second week? I have a key hire to make and need to do some interviews, but am anxious that I won’t...
by Aqx99
Wed Feb 14, 2018 1:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal is Over
Replies: 52
Views: 1567

Re: Reversal is Over

I am thrilled to report that yesterday I only went to the bathroom 6 times! I have noticed that I am going a larger volume in one sitting now that I use the massage. I hardly have any clustering. I am so excited! When I go back to work on the 22nd, I think I just might be able to handle this.
by Aqx99
Wed Feb 14, 2018 1:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: oxaliplatin
Replies: 9
Views: 419

Re: oxaliplatin

I don't know what my actual doses were, but my oxaliplatin dose was reduced twice during treatment due to side effects. My oncologist said that it is still effective, even at the reduced dose.
by Aqx99
Tue Feb 13, 2018 2:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal is Over
Replies: 52
Views: 1567

Re: Abdominal massage for constipation

... No. The massage technique my pelvic physical therapist has me doing focuses on activating the ileocecal valve , then getting the "kinks out of the hose" by massaging the hepatic flexure toward the belly button, then the splenic flexure, and finally the sigmoid colon. My anatomy is a b...
by Aqx99
Mon Feb 12, 2018 8:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OTC Suggestions for Nausea from Oxaliplatin
Replies: 25
Views: 523

Re: OTC Suggestions for Nausea from Oxaliplatin

Do they not have you continuing steroids after your infusion? My oncologist had me take steroids for the three days after each infusion to continue what the steroids they give as premeds were doing to prevent nausea. I only had to take my antinausea meds once during chemo, and I think that may have ...
by Aqx99
Mon Feb 12, 2018 8:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal is Over
Replies: 52
Views: 1567

Re: Abdominal massage for constipation

Is your sheet of massage instructions something like this one? Abdominal massage for constipation https://www.guysandstthomas.nhs.uk/resources/patient-information/gi/abdominal-massage-for-constipation.pdf or this one? Abdomen self massage for constipation http://www.youtube.com/embed/N39GIWquhWg/?r...
by Aqx99
Sun Feb 11, 2018 2:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal is Over
Replies: 52
Views: 1567

Re: Reversal is Over

Atoq wrote:
heiders33 wrote:I'm going to have to learn this massage technique!

Me too! :D

Claudia


PM me your email addresses and I will scan and send you the sheet she gave me detailing the massage.
by Aqx99
Sun Feb 11, 2018 11:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal is Over
Replies: 52
Views: 1567

Re: Reversal is Over

The massage she taught me seems to be working. It will take a while to perfect the technique, but I am getting there. Yesterday I had a much larger movement than normal after I massaged. This morning, I started passing gas while massaging. I'm hoping I can eventually get to where I empty out complet...
by Aqx99
Sat Feb 10, 2018 11:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just got real, y'all
Replies: 19
Views: 1365

Re: Just got real, y'all

I know how you feel. Getting the port was a huge step for me, too. I was nervous until I finished that first infusion. On the upside, if it is a power port, you can use it for the IV contrast when you get a scan.
by Aqx99
Sat Feb 10, 2018 8:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal is Over
Replies: 52
Views: 1567

Re: Reversal is Over

susie0915 wrote:I thought the pelvic floor therapy was very helpful. Did she tell you to get a squatty potty. I found that to be very helpful.


Yeah, she told me to get one or use a stack of books or shoe boxes at my first visit. I bought one for my master bathroom. I was amazed at how it helps open you up.
by Aqx99
Sat Feb 10, 2018 11:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal is Over
Replies: 52
Views: 1567

Re: Reversal is Over

I had a very informative session with my pelvic physical therapist yesterday. She taught me the massage technique to help me have an emptying bowel movement, instead of clustering. It will take some practice to get it right, but I could tell it helped this morning.
by Aqx99
Thu Feb 08, 2018 10:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal is Over
Replies: 52
Views: 1567

Re: Reversal is Over

Does the reversal surgery normally take four days in the hospital or is that due to the loop illeostomy? My surgeon told me beforehand that it is normally a 3 day stay, barring complications. I was there almost exactly 72 hours, even with the extra stuff that happened to me. Surgery was at noon on ...
by Aqx99
Thu Feb 08, 2018 10:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fatigue/Nausea after finishing up with radiation and Xeloda
Replies: 8
Views: 195

Re: Fatigue/Nausea after finishing up with radiation and Xeloda

In my experience, the fatigue from the radiation continued after I was done. Radiation keeps working for a while after the treatments are complete. Hopefully the nausea will subside now that you are done with the chemo. Keep your medical team informed of all your side effects, there are things they ...

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