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by Aqx99
Wed Nov 22, 2017 12:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 366
Views: 30179

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Three hours is quite a long time to be sitting at the hospital or infusion center. Sounds like something I'd want to do relatively local. Yeah, and they can get longer depending on how you react to the chemo. There is also the waiting time just to get into a chair. My first treatment my appointment...
by Aqx99
Wed Nov 22, 2017 12:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 366
Views: 30179

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Oh I understand. My oncologist allowed me to stop at 6 rounds instead of 7 because we were traveling for my son's wedding and I wanted a month to recover from chemo before the wedding. Of course I told her I would do number 7 if she thought it would be make a difference. Hopefully you will be able ...
by Aqx99
Tue Nov 21, 2017 8:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 366
Views: 30179

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

My oxaliplatin infusion is 3 hours, as well. I was supposed to be finished last week, but my platelets were too low. I tried again this past Monday and my platelets were even lower. I go in this coming Monday to try again. I hope you get to finish Monday. I know you have been looking forward to it....
by Aqx99
Tue Nov 21, 2017 6:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FINANCIAL PLANNING / ADVICE NEEDED
Replies: 6
Views: 212

Re: FINANCIAL PLANNING / ADVICE NEEDED

I'm sorry about your diagnosis. Try your local cancer charity and see if they have somebody who can help you with this.
by Aqx99
Tue Nov 21, 2017 6:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 366
Views: 30179

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

My oxaliplatin infusion is 3 hours, as well. I was supposed to be finished last week, but my platelets were too low. I tried again this past Monday and my platelets were even lower. I go in this coming Monday to try again.
by Aqx99
Tue Nov 21, 2017 10:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ileostomy
Replies: 9
Views: 156

Re: ileostomy

My best suggestion would be to examine your pouch when you remove it. See if you can find exactly where the leak is getting through, then you can work on fixing the issue. I have two places on mine that used to leak. I have creases in my belly at the 3 and 9 o'clock positions on my wafer. My ostomy ...
by Aqx99
Mon Nov 20, 2017 10:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Age 30 (M) Recently Diagnosed, Family History
Replies: 32
Views: 2606

Re: Age 30 (M) Recently Diagnosed, Family History

Thanks for the note on First Bite - first time I've heard of that one. There are a few on here who have had it. I don't think it's a common side effect. The first time was shocking, after that I was ready for it. It is weird though, you have that pain when you take your first bite of something, the...
by Aqx99
Mon Nov 20, 2017 10:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ileostomy
Replies: 9
Views: 156

Re: ileostomy

I typically get 4 days out of my pouches. Have you worked with an ostomy nurse? There a ton of different products and methods of setting it up because every person is different. If you explain a little bit more about your issues, we might be able to brainstorm a solution for you. Sometimes changing ...
by Aqx99
Sun Nov 19, 2017 6:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 2/3 Rectal Cancer Scan Question/Results
Replies: 8
Views: 163

Re: Stage 2/3 Rectal Cancer Scan Question/Results

I was scanned at diagnosis, scanned again after chemoradiation and will be scanned again when chemo is over, before my reversal surgery. I don't think it is unreasonable to ask for another scan. I have 2 nodules in my lungs that we are watching, which so far have been unchanged.
by Aqx99
Sun Nov 19, 2017 9:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Near-complete pathological response !
Replies: 20
Views: 519

Re: Near-complete pathological response !

I keep tape on my vent all the time. It is part of my prep procedure for changing pouches. My ostomy nurse started me on that because sometimes your output can get on the vent and leak through to your clothes. Good to know. Do you put the tape on it when you shower? We learn new things each day. I ...
by Aqx99
Sat Nov 18, 2017 3:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T Need to vent
Replies: 25
Views: 803

Re: O/T Need to vent

susie0915 wrote:So he is now off your policy? So glad you won't have to worry about this. He is probably paying a lot for that insurance with his history.


Yes, he is off my policy. The agent made sure of that. I'm sure his premium is out the roof, but frankly I don't care.
by Aqx99
Sat Nov 18, 2017 12:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Testing on Tuesday
Replies: 11
Views: 319

Re: Testing on Tuesday

I understand your nervousness. I'm due to have my first post-chemo scan shortly. We've been watching a couple of lung nodules that so far have been unchanged.
by Aqx99
Sat Nov 18, 2017 12:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just found out I have cancer
Replies: 15
Views: 618

Re: Just found out I have cancer

First of all, BREATHE. There is a lot of information to process all at once. My gastroenterologist referred me to a colorectal surgeon after finding my rectal cancer. My surgeon was the one who set me up with my medical oncologist and radiation oncologist. There is a standard treatment that they sta...
by Aqx99
Sat Nov 18, 2017 10:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T Need to vent
Replies: 25
Views: 803

Re: O/T Need to vent

OK, now I'm borderline homicidal. He called me yesterday to ask about GAP coverage. I explained to him that you get it at the dealership when you finance the car. He asked me if we had it through our car insurance. Then it dawned on me, he added his new van to my policy instead of getting his own! I...
by Aqx99
Fri Nov 17, 2017 1:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T Need to vent
Replies: 25
Views: 803

Re: O/T Need to vent

Apparently, even though the policy was mine originally, because I added a man he became the primary driver on the policy. I do no believe that this can happen automatically. Was he made a primary driver because of his better/longer driving history? Who is a policyholder? I believe that a policyhold...

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