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by Aqx99
Fri Sep 22, 2017 3:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: new here and would love some advice
Replies: 3
Views: 165

Re: new here and would love some advice

Sounds standard to me. If you want to read the guidelines set forth by the NCCN, I have provided a link. The NCCN is made up of 27 major cancer centers and sets the standard of care for each type and stage of cancer.

https://www.nccn.org/patients/guideline ... index.html
by Aqx99
Thu Sep 21, 2017 7:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 83
Views: 4646

Re: NEW-Need some positivity here.

Big mistake telling some people at work. I left and everyone was hugging me like I was going to die. I know they are really wishing me well but it was too much. I had to leave. Last night I barely slept. Horrible morbid thoughts. Today is prep day. I need this resection to be over. My nerves can't ...
by Aqx99
Sun Sep 17, 2017 7:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: After radiation side effects?
Replies: 4
Views: 113

Re: After radiation side effects?

Unfortunately, you never know how long it will last. It all depends on your body. Radiation made me constipated. I had to take 2 doses of Miralax a day just to be able to go. I was doing that right up until my surgery.
by Aqx99
Sun Sep 17, 2017 7:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 83
Views: 4646

Re: NEW-Need some positivity here.

So depressed tonight. The waiting for surgery is horrific. I need to stop feeling so hopeless. Your stories help. But I still read all the terrible endings. I feel just lost... I think it would really help if you could see an oncology counselor. Check with your cancer center tomorrow to see if they...
by Aqx99
Sun Sep 17, 2017 4:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here......not a club I planned to join!
Replies: 6
Views: 349

Re: New here......not a club I planned to join!

I third what has already been said. Make sure you see a board certified colorectal surgeon. Also, see your oncologist to discuss chemoradiation before the surgery. When it does come surgery time, make sure you get with an ostomy nurse to learn about the ileostomy and be marked for the surgery. I fel...
by Aqx99
Sat Sep 16, 2017 3:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 83
Views: 4646

Re: NEW-Need some positivity here.

OK surgery set for next Friday. 3-5 hour surgery- 3-5day stay in hospital if everything is ok. Then 3/4 weeks recovery. I'm worried about everything. What if the ctscan was wrong that all looked like it didn't spread? This is laproscopic but of course I'll need staples I'm sure. Then the waiting ga...
by Aqx99
Sat Sep 16, 2017 11:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemoradiation AFTER resection
Replies: 6
Views: 200

Re: Chemoradiation AFTER resection

Your radiation oncologist should have explained better why they want to do the radiation treatments on you. I had mine before my surgery, but it was explained to me that she was going to be treating the organs in my pelvic area as well as my tumor, to prevent possible recurrence. She specifically me...
by Aqx99
Fri Sep 15, 2017 1:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st MRI tomorrow after Neoadjuvant therapy
Replies: 23
Views: 580

Re: 1st MRI tomorrow after Neoadjuvant therapy

Each case is unique based on where the tumor is located, size, etc. Here is my experience. My surgeon removed the upper part of my rectum and part of my sigmoid colon. He then attached the remaining colon to the stump of rectum. The reason they do a temporary ileostomy is to allow this new connectio...
by Aqx99
Thu Sep 14, 2017 5:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to the "Club" - Emotional Process
Replies: 11
Views: 592

Re: New to the "Club" - Emotional Process

Welcome. I'm sorry you had to become a member of the club. We are a friendly bunch, and don't bite that often. Don't worry about the length of time from diagnosis to completing treatment. They finally figured out I had precursor ovarian cancer over a month after my ovaries were removed during my rec...
by Aqx99
Thu Sep 14, 2017 7:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New and husband just diagnosed
Replies: 28
Views: 3172

Re: New and husband just diagnosed

Every person is going to be different, but I will share my experience. I worked all through chemoradiation. I had to take a few hours off each week to go to the treatments every day, of course, but then I came in to work and finished off my shift. My surgeon wrote me out of work for a month when I h...
by Aqx99
Wed Sep 13, 2017 9:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda for Stage II - did you work?
Replies: 14
Views: 2961

Re: Xeloda for Stage II - did you work?

I started hand/foot the same way you describe. It started on about day 9 of my second cycle of CapeOx. By day 10 I could barely walk, so my oncologist's PA had me stop the pills for the last 4 days. When I started cycle 3 last Wednesday, they had me reduce my dose from 4000mg/day to 3500mg/day to se...
by Aqx99
Wed Sep 13, 2017 9:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 83
Views: 4646

Re: NEW-Need some positivity here.

Sounds like you found a surgeon you are comfortable with. That is the most important thing. I was scared too, when I woke up from my colonoscopy and saw the pictures of my tumor. My gastroenterologist told me that he was going to send me to the best colorectal surgeon in town. This was the guy he wo...
by Aqx99
Tue Sep 12, 2017 9:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What was everyone's symptoms of colon cancer
Replies: 20
Views: 2542

Re: What was everyone's symptoms of colon cancer

Persistent diarrhea for months, blood in the bowl and anemia.
by Aqx99
Mon Sep 11, 2017 3:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 83
Views: 4646

Re: NEW-Need some positivity here.

I know most people on here suggest going to one of the big name cancer centers, but I prefer a smaller local one. I feel you get more personalized care at a local cancer center, because they do not have such a huge influx of people from all over the country. They all follow the standard of care base...
by Aqx99
Sat Sep 09, 2017 10:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 83
Views: 4646

Re: NEW-Need some positivity here.

I know how you feel. I'm 39, and when I found out I had a rectal tumor my first thought was, "cut it out now!" It was hard to wrap my head around the fact that I would need 28 chemoradiation treatments, then have to wait for a month after that to finally get surgery. The good thing about t...

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