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by sdino
Mon Oct 01, 2018 7:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 160538

Re: TIL Immunotherapy at NCI

I was at NIH on Thursday and receive some great news everything is the same. although they think the tumor in my lung may have once again shrank they definitely believe that it is fading. I was shocked when the doctor told me it was my 18th month since I received my TILs. wow how fast time goes by....
by sdino
Tue Sep 25, 2018 7:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 160538

Re: TIL Immunotherapy at NCI

Sleen wrote:Checking in to report that follow-up FOURTEEN was all good. I am still NED. :) :) :)
Next follow-up in six months.

Celine


Great News !
by sdino
Wed Aug 22, 2018 2:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Math Wizards-Xeloda (pills) vs 5FU (pump)
Replies: 3
Views: 423

Math Wizards-Xeloda (pills) vs 5FU (pump)

Ok so standard care on Xeloda is 2 weeks on and 1 week off. Say if you take Xeloda from Monday and end 2 weeks later on a Monday, How long does it take during the off week that Xeloda vacates your system ? 5FU pump half life is just a few hours, BUT how long is the pill form remain in your system ? ...
by sdino
Wed Aug 22, 2018 1:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with Kras G12V or G12D, NIH trial needs you
Replies: 19
Views: 4337

Re: Anyone with Kras G12V or G12D, NIH trial needs you

Hi JacknKatieMom - I would still reach out to NCI/NIH and get the ball rolling with inquires and get your name in front of them.
by sdino
Sun Aug 19, 2018 3:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back from NIH good news kind of about TIL trial
Replies: 4
Views: 450

Re: Back from NIH good news kind of about TIL trial

Yes Teri3, I think the longer we can hold out, the better their technology is getting. Proof in April when we went from the original TIL trial to the newer Younger TIL trial and vaccines offered). Of course you/they have to weigh the options as not to put you at risk. Exciting times with Dr Rosenber...
by sdino
Sun Aug 19, 2018 1:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back from NIH good news kind of about TIL trial
Replies: 4
Views: 450

Re: Back from NIH good news kind of about TIL trial

Same here, Til infusion scheduled in April 2018, new TIL trial offered to us then. Stable CT scans in Mar-May-July 2018. On hold, then.... my Wife was offered in June - 4 NIH trials, 2 TILs and 2 Vaccines. We had 2nd infusion of TILs or vaccine's slated for Aug 2018. Then they decided on 2 trials (T...
by sdino
Wed Aug 08, 2018 11:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NIH trial update .. my T cells are growing!!
Replies: 20
Views: 3947

Re: NIH trail update .. my T cells are growing!!

Great news teri3 ! Cells are growing ! Has NCI/NIH determined Reactivity of your cells ? Best wishes !
by sdino
Fri Jun 08, 2018 10:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signs of travelling to lungs?
Replies: 10
Views: 913

Re: Signs of travelling to lungs?

when my Wife had her first Colonoscopy, they found the cancerous tumor in Sigmoid Colon. Our GI Dr. ordered an abdominal CT scan. Most abdominal CT scans catch the lower portion of your lungs, hence that's where they found some nodules. Also, I just had an abdominal CT scans last week for some urine...
by sdino
Fri Jun 08, 2018 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: anyone here with Kras T53 mutation
Replies: 16
Views: 3218

Re: anyone here with Kras T53 mutation

Here is my take on the TP53's: So... Healthy P53’s fight cancerous DNA. But when they get sick or mutated they stop fighting the bad cells. So there is efforts to boost the healthy P53’s to fight harder but years of testing, nothing has made it to the Market. Researchers are trying to restore the P5...
by sdino
Wed May 09, 2018 8:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Path report - kras and tp53
Replies: 4
Views: 482

Re: Path report - kras and tp53

Here is my take on a article I read on TP53: So... Healthy P53’s fight cancerous DNA. But when they get sick or mutated they stop fighting the bad cells. So there is efforts to boost the healthy P53’s to fight harder but years of testing, nothing has made it to the Market. Researchers are trying to ...
by sdino
Wed May 09, 2018 6:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Teri's TIL trial at NCI
Replies: 10
Views: 674

Re: Teri's TIL trial at NCI

Great news !
by sdino
Mon Apr 23, 2018 11:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL trial at NIH going for initial testing
Replies: 8
Views: 1352

Re: TIL trial at NIH going for initial testing

Hi teri3 - In my general laymen terms - Typically the NCI Team will review all your results, they have a meeting the following Monday and make a decision if you’re a good candidate for the trial or not. Also, If it’s a go, they will request you to be off Chemo at least 30 days prior to surgery. Surg...
by sdino
Tue Apr 10, 2018 7:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New TIL Trial NIH/NCI NCT03412877
Replies: 4
Views: 835

Re: New TIL Trial NIH/NCI NCT03412877

Thanks DH2, Great explanation. and yes, it does take longer to develop these Young TILs, so NCI reviews your disease progress very closely to ensure they do not put you at risk.
by sdino
Mon Apr 09, 2018 1:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New TIL Trial NIH/NCI NCT03412877
Replies: 4
Views: 835

New TIL Trial NIH/NCI NCT03412877

New TIL trial at NCI/NIH with Dr. Rosenberg as lead investigator opened this month. https://clinicaltrials.gov/ct2/show/NCT03412877
by sdino
Mon Mar 12, 2018 7:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 160538

Re: TIL Immunotherapy at NCI

Hi Sharijohn - We are still awaiting word from NCI/NIH if her TIL cells are reactive in the lab. Should know something within the next 2 weeks or so... Steps and timelines after TIL harvest Surgery: 1. After TIL Harvest Surgery = 2 to 3 weeks if cells are growing by the billions. 2. After TIL Harves...

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