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by sdino
Sun Aug 20, 2017 4:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Inspirational Sayings
Replies: 80
Views: 15315

Re: Inspirational Sayings

As my Great Grand-pappy always said... " Taint no sense getting drunk unless you can show it". :wink:
by sdino
Sun Aug 20, 2017 4:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ANY Pros/Cons Vitamin D3 ?
Replies: 19
Views: 1832

Re: ANY Pros/Cons Vitamin D3 ?

Thanks for the input gang, I think my next step is to include my wife's blood makeup to include VD3 results. Then I can speak with some intelligence to our ONC . Cheers ! sdino
by sdino
Sun Aug 20, 2017 9:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband broke down last night
Replies: 79
Views: 6068

Re: Husband broke down last night

Hi mb - Sorry for the turmoil and brain wracking you guys are going thru. I can only talk about my experience. We did FOLFOX+Avastin for 12 rnds. Only got to 8 rounds with OXi-. We seen a decent reduction in colon/lung mets with that cocktail. That being said, Both ONCs (Roswell n Sloan) were very v...
by sdino
Sun Aug 20, 2017 8:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ANY Pros/Cons Vitamin D3 ?
Replies: 19
Views: 1832

ANY Pros/Cons Vitamin D3 ?

Just looking for some input on taking Vitamin D. We reside in Western, NY 15 miles from Lake Erie which equals a lot of "dank days" here. Currently on a 3 month tour of duty of 5FU (pill)+Avastin. Has anybody seen any advantages of taking VD3 ? Ive read numerous online articles and our ONC...
by sdino
Wed Aug 02, 2017 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: At Slight Crossroads and NCT01174121
Replies: 4
Views: 690

Re: At Slight Crossroads and NCT01174121

Quick update from NIH/NCI on 8/2/2017: 8/2/17 - Spoke w/Dr Rosenberg’s Nurse. Here are NIH/NCI recommendations moving forward: • Last CT scan 7/26/17 shows enough of a lung met for them to resect. However their Surgeon is not available until Mid Sept 2017. This is too long to wait since we have seen...
by sdino
Sun Jul 30, 2017 1:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Maintenance Chemo or No ?
Replies: 17
Views: 1961

Re: Maintenance Chemo or No ?

If I had a redo.... I would take the maint. chemo. My wife seen some shrinkage of tumor and lung mets w/12 rnds of Folfox+Avastin. She then had a 2.5 month chemo break, we enjoyed the summer went to OBX, NC for vaca. Last weeks CT scan revealed progression in Colon/Mets. All shrinkage was evaporated...
by sdino
Sun Jul 30, 2017 1:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Wife Passed Away Today
Replies: 29
Views: 3249

Re: My Wife Passed Away Today

Peace to you and your Family
by sdino
Fri Jul 28, 2017 3:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 rectal cancer with single lung met
Replies: 6
Views: 898

Re: Stage 4 rectal cancer with single lung met

Hi cbbb. Let me say I'm relatively new to this battle (End of 2016). If any seasoned veterans on here see if my advise or if I'm incorrect on a subject matter, please feel free to speak up. Here are some ideas: My wife's situation is alittle different, but these are just some general ideas. 1. Has a...
by sdino
Thu Jul 27, 2017 3:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: At Slight Crossroads and NCT01174121
Replies: 4
Views: 690

Re: At Slight Crossroads and NCT01174121

Hi Sleen and SleenDH2. Thank you for your timely responses. It is uncanny how close the Genetics match up is between us, First and foremost Sleen, I wish you the continue positive success you are seeing on this trial ! Fantastic ! I will review your blog and threads to educate myself more on your Jo...
by sdino
Thu Jul 27, 2017 11:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: At Slight Crossroads and NCT01174121
Replies: 4
Views: 690

At Slight Crossroads and NCT01174121

Well – Might be at a minor crossroads here. Wife was doing 12 rnds of FolFox+Avastin+Oxi and seen decent results during the chemo regiment. Coming off a Chemo break of 2.5 months, yesterday’s CT scan showed progression of disease in Colon/Lungs. CEA up from 0.6 to 2.6. Essentially we are at the star...
by sdino
Wed Jul 26, 2017 6:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TECENTRIQ (atezolizumab) + COTELLIC (cobimetinib) for Stage IV, starting 11/7/2017
Replies: 31
Views: 5525

Re: TECENTRIQ (atezolizumab) + COTELLIC (cobimetinib) for Stage IV, starting 11/7/2017

Good news LMighty ! I could not access your link. Maia Is this for only Kras Wild type ? My wife is Kras Mutant. We have a CT scan today @ Roswell after a 3 month chemo break with some success with FolFox. As u can imagine I'm nervous as hell. Wishing everyone the best ! thx.
by sdino
Fri Jul 14, 2017 8:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Time to decide whether to do chemo or just observe
Replies: 11
Views: 2665

Re: Time to decide whether to do chemo or just observe

Hi DanInMN – When we first found out about my Wife’s CRC, we of coarse were under the impression to go after it full throttle and throw the kitchen sink at it (Newbies). But over 6 months into this deal and conversations with 2 Oncs (Roswell & Sloan), that may not be the best approach for right ...
by sdino
Thu Jun 29, 2017 4:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 529
Views: 77346

Re: TIL Immunotherapy at NCI

Das43, can u supply more info ? Are u MSS/MSI, or kras mutant or not ? A little morphology would help us all.

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