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by sdino
Fri Jan 25, 2019 11:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have any info on TCR trial at NCI?
Replies: 6
Views: 579

Re: Does anyone have any info on TCR trial at NCI?

Well we heard back from NIH today, They want my Wife to start next round of Capecitabine (but they may stop it after only one week) they want her to hold off on Bevacizumab (Avastin) next week, So we have to be getting closer to TIL Infusion. No formal schedule has been determined as of yet.
by sdino
Thu Jan 24, 2019 7:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have any info on TCR trial at NCI?
Replies: 6
Views: 579

Re: Does anyone have any info on TCR trial at NCI?

Hi Teri3 - we have heard crickets from our Fellow. Last week sent CT scan we had in Buffalo and requested an update. This week sent a email asking if we should or not halt chemo for next week, since we have to mail order our Capecitabine which takes several days. Have not heard back from NIH. Last s...
by sdino
Wed Jan 23, 2019 12:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have any info on TCR trial at NCI?
Replies: 6
Views: 579

Re: Does anyone have any info on TCR trial at NCI?

Hi Teri3 - I believe this is the new TIL trial. NCT03412877 Im not sure. We were offered this new trial after we were accepted into the original TIL trial NCT01174121.
by sdino
Wed Nov 07, 2018 9:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: KRAS G12V - anyone with good news?
Replies: 2
Views: 403

Re: KRAS G12V - anyone with good news?

Possible clinical trial at NIH/NCI - Administering Peripheral Blood Lymphocytes Transduced With a Murine T-Cell Receptor Recognizing the G12V Variant of Mutated RAS in HLA-A*1101 Patients. link to trial here : https://clinicaltrials.gov/ct2/show/NCT03190941
by sdino
Mon Oct 01, 2018 7:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 608
Views: 178244

Re: TIL Immunotherapy at NCI

I was at NIH on Thursday and receive some great news everything is the same. although they think the tumor in my lung may have once again shrank they definitely believe that it is fading. I was shocked when the doctor told me it was my 18th month since I received my TILs. wow how fast time goes by....
by sdino
Tue Sep 25, 2018 7:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 608
Views: 178244

Re: TIL Immunotherapy at NCI

Sleen wrote:Checking in to report that follow-up FOURTEEN was all good. I am still NED. :) :) :)
Next follow-up in six months.

Celine


Great News !
by sdino
Wed Aug 22, 2018 2:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Math Wizards-Xeloda (pills) vs 5FU (pump)
Replies: 3
Views: 666

Math Wizards-Xeloda (pills) vs 5FU (pump)

Ok so standard care on Xeloda is 2 weeks on and 1 week off. Say if you take Xeloda from Monday and end 2 weeks later on a Monday, How long does it take during the off week that Xeloda vacates your system ? 5FU pump half life is just a few hours, BUT how long is the pill form remain in your system ? ...
by sdino
Wed Aug 22, 2018 1:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with Kras G12V or G12D, NIH trial needs you
Replies: 19
Views: 5137

Re: Anyone with Kras G12V or G12D, NIH trial needs you

Hi JacknKatieMom - I would still reach out to NCI/NIH and get the ball rolling with inquires and get your name in front of them.
by sdino
Sun Aug 19, 2018 3:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back from NIH good news kind of about TIL trial
Replies: 4
Views: 682

Re: Back from NIH good news kind of about TIL trial

Yes Teri3, I think the longer we can hold out, the better their technology is getting. Proof in April when we went from the original TIL trial to the newer Younger TIL trial and vaccines offered). Of course you/they have to weigh the options as not to put you at risk. Exciting times with Dr Rosenber...
by sdino
Sun Aug 19, 2018 1:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back from NIH good news kind of about TIL trial
Replies: 4
Views: 682

Re: Back from NIH good news kind of about TIL trial

Same here, Til infusion scheduled in April 2018, new TIL trial offered to us then. Stable CT scans in Mar-May-July 2018. On hold, then.... my Wife was offered in June - 4 NIH trials, 2 TILs and 2 Vaccines. We had 2nd infusion of TILs or vaccine's slated for Aug 2018. Then they decided on 2 trials (T...
by sdino
Wed Aug 08, 2018 11:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NIH trial update .. my T cells are growing!!
Replies: 20
Views: 4757

Re: NIH trail update .. my T cells are growing!!

Great news teri3 ! Cells are growing ! Has NCI/NIH determined Reactivity of your cells ? Best wishes !
by sdino
Fri Jun 08, 2018 10:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signs of travelling to lungs?
Replies: 10
Views: 1251

Re: Signs of travelling to lungs?

when my Wife had her first Colonoscopy, they found the cancerous tumor in Sigmoid Colon. Our GI Dr. ordered an abdominal CT scan. Most abdominal CT scans catch the lower portion of your lungs, hence that's where they found some nodules. Also, I just had an abdominal CT scans last week for some urine...
by sdino
Fri Jun 08, 2018 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: anyone here with Kras T53 mutation
Replies: 16
Views: 3656

Re: anyone here with Kras T53 mutation

Here is my take on the TP53's: So... Healthy P53’s fight cancerous DNA. But when they get sick or mutated they stop fighting the bad cells. So there is efforts to boost the healthy P53’s to fight harder but years of testing, nothing has made it to the Market. Researchers are trying to restore the P5...
by sdino
Wed May 09, 2018 8:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Path report - kras and tp53
Replies: 4
Views: 663

Re: Path report - kras and tp53

Here is my take on a article I read on TP53: So... Healthy P53’s fight cancerous DNA. But when they get sick or mutated they stop fighting the bad cells. So there is efforts to boost the healthy P53’s to fight harder but years of testing, nothing has made it to the Market. Researchers are trying to ...
by sdino
Wed May 09, 2018 6:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Teri's TIL trial at NCI
Replies: 10
Views: 1021

Re: Teri's TIL trial at NCI

Great news !

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