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by skb
Fri Apr 06, 2018 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer
Replies: 44
Views: 8648

Re: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer

When I visited the Mayo Clinic in Rochester, Minnesota last year, they offered proton beam therapy. It was advertised as less harmful to surrounding tissues.

Just letting people know of another medical facility that offers it.
by skb
Thu Apr 05, 2018 9:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 186
Views: 48038

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

skb, it's nice to see that you doing well. During folfox I managed to gain 6,7 kg's, all that is gone since chemo is finished. Going to gym 3-4 times/week, socializing, went on vacation down to Varadero, that felt good, long sandy beach, warm ocean water. My Hemoglobin dropped to 115 after chemo fi...
by skb
Wed Apr 04, 2018 9:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 186
Views: 48038

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Anyone gone this route? Watch and wait? If so what was your stage? What was the treatment order? And where did you find a team to agree to do it? Just diagnosed a couple of months ago and getting ready to start treatment. T3 N1 M0 Please see my post below from 8/15/2017. It lists centers in US that...
by skb
Fri Mar 23, 2018 8:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: colonoscopy results question
Replies: 2
Views: 624

Re: colonoscopy results question

:shock:
Mama Mia Stoma Mia!
by skb
Mon Jan 08, 2018 4:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemotherapy Journey
Replies: 59
Views: 3554

Re: Chemotherapy Journey

Rikimaroo, My WBC and ANC counts were plummeting when oxaliplatin was part of the regimen. So I had Neulasta shorts for few months. They were not terrible but my bones ached two to three days after its administration. Regarding pooping pellets: The first few days after every chemo dose, I had consti...
by skb
Wed Dec 13, 2017 11:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 186
Views: 48038

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Rikimaroo, I am feeling sorry, sad, scared almost freaking out hearing your local recurrence and high CEA. I am praying and wishing the best for you. I was put on wait and watch too in August 2017 after showing complete response (absence of primary tumor, just scar tissue left and no mets identified...
by skb
Wed Sep 27, 2017 2:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 186
Views: 48038

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Thanks for all the articles mozart13.

And for those who are not familiar with the word intraluminal like me, it means, within the GI tract. So the regrowth mostly occurs within the rectum /colon and not in lymph nodes. The article says endoscopy is very important to detect regrowths
by skb
Tue Sep 19, 2017 11:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda/IMRT Radiation Side Effetcs? Rectal Cancer
Replies: 8
Views: 1282

Re: Xeloda/IMRT Radiation Side Effetcs? Rectal Cancer

I had absolutely no side effects from 25 days of Xeloda (3600 mg per day). Maybe I was not watching closely what they were, I was busy trying to work, lead a normal life. Radiation did have some effect on me. I was urinating more frequently. It could also be because of the high amount of water I was...
by skb
Tue Sep 05, 2017 11:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 186
Views: 48038

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

My second chemo infusion (post 'complete response') that was scheduled for Friday 9/1/17 had to be rescheduled to the next Friday due to low neutrophil count. The oncologist has reduced the dose for 5FU for all subsequent infusions by 25%!! That is a dramatic reduction. When there is a reduction in ...
by skb
Fri Aug 25, 2017 2:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port side of neck tender - Should I be concerned about blood clot?
Replies: 15
Views: 2017

Re: Port side of neck tender - Should I be concerned about blood clot?

I had the port placement surgery last week (8/17/17 Thu) and the first infusion the same day. My right side of the neck also felt tender earlier this week. I ignored it thinking it is must be from the port and the incision they made to watch the procedure through a scope. It is not bothering me now....
by skb
Fri Aug 25, 2017 2:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda VS 5-FU
Replies: 37
Views: 6456

Re: Xeloda VS 5-FU

I have done both Xeloda (oral pills for 25 days) and 5FU infusion (only one infusion so far). The side effects will vary from person to person, I can narrate mine. I had ZERO side effects from Xeloda. No finger peeling, no fatigue. From 5FU+oxaliplatin infusion, I am experiencing many side effects b...
by skb
Wed Aug 23, 2017 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 186
Views: 48038

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Vivian, Your post gives me hope. Because I am also on Habr-Gama. Could you please tell us how long has it been since your diagnosis and the completion of neoadjuvant chemotherapy? How long have you been cancer-free? It is not uncommon for treatment plans to vary within the same hospital. It varies f...
by skb
Wed Aug 23, 2017 11:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: More chemo?
Replies: 36
Views: 4336

Re: More chemo?

I am a patient who started on the adjuvant chemo after having a 'complete response' and deferring surgery indefinitely. My images showed no trace of primary tumor. Biopsy from the area showed no cancer. However I did not want to even debate with my doctor regarding additional chemo because I thought...

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