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by skb
Mon Jan 08, 2018 4:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemotherapy Journey
Replies: 27
Views: 1008

Re: Chemotherapy Journey

Rikimaroo, My WBC and ANC counts were plummeting when oxaliplatin was part of the regimen. So I had Neulasta shorts for few months. They were not terrible but my bones ached two to three days after its administration. Regarding pooping pellets: The first few days after every chemo dose, I had consti...
by skb
Wed Dec 13, 2017 11:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 164
Views: 40562

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Rikimaroo, I am feeling sorry, sad, scared almost freaking out hearing your local recurrence and high CEA. I am praying and wishing the best for you. I was put on wait and watch too in August 2017 after showing complete response (absence of primary tumor, just scar tissue left and no mets identified...
by skb
Wed Sep 27, 2017 2:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 164
Views: 40562

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Thanks for all the articles mozart13.

And for those who are not familiar with the word intraluminal like me, it means, within the GI tract. So the regrowth mostly occurs within the rectum /colon and not in lymph nodes. The article says endoscopy is very important to detect regrowths
by skb
Tue Sep 19, 2017 11:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda/IMRT Radiation Side Effetcs? Rectal Cancer
Replies: 8
Views: 1048

Re: Xeloda/IMRT Radiation Side Effetcs? Rectal Cancer

I had absolutely no side effects from 25 days of Xeloda (3600 mg per day). Maybe I was not watching closely what they were, I was busy trying to work, lead a normal life. Radiation did have some effect on me. I was urinating more frequently. It could also be because of the high amount of water I was...
by skb
Tue Sep 05, 2017 11:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 164
Views: 40562

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

My second chemo infusion (post 'complete response') that was scheduled for Friday 9/1/17 had to be rescheduled to the next Friday due to low neutrophil count. The oncologist has reduced the dose for 5FU for all subsequent infusions by 25%!! That is a dramatic reduction. When there is a reduction in ...
by skb
Fri Aug 25, 2017 2:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port side of neck tender - Should I be concerned about blood clot?
Replies: 15
Views: 1573

Re: Port side of neck tender - Should I be concerned about blood clot?

I had the port placement surgery last week (8/17/17 Thu) and the first infusion the same day. My right side of the neck also felt tender earlier this week. I ignored it thinking it is must be from the port and the incision they made to watch the procedure through a scope. It is not bothering me now....
by skb
Fri Aug 25, 2017 2:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda VS 5-FU
Replies: 37
Views: 5705

Re: Xeloda VS 5-FU

I have done both Xeloda (oral pills for 25 days) and 5FU infusion (only one infusion so far). The side effects will vary from person to person, I can narrate mine. I had ZERO side effects from Xeloda. No finger peeling, no fatigue. From 5FU+oxaliplatin infusion, I am experiencing many side effects b...
by skb
Wed Aug 23, 2017 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 164
Views: 40562

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Vivian, Your post gives me hope. Because I am also on Habr-Gama. Could you please tell us how long has it been since your diagnosis and the completion of neoadjuvant chemotherapy? How long have you been cancer-free? It is not uncommon for treatment plans to vary within the same hospital. It varies f...
by skb
Wed Aug 23, 2017 11:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: More chemo?
Replies: 36
Views: 3745

Re: More chemo?

I am a patient who started on the adjuvant chemo after having a 'complete response' and deferring surgery indefinitely. My images showed no trace of primary tumor. Biopsy from the area showed no cancer. However I did not want to even debate with my doctor regarding additional chemo because I thought...
by skb
Sat Aug 19, 2017 2:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 164
Views: 40562

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Mike NH, If I were you and if I were interested in non operative management, I would request the provider to have the MRI taken at 8 weeks after completion of chemoradiation or even ten. Eight weeks was the time used in the landmark Habr Gama study. For some people, tumor regression stops after some...
by skb
Sat Aug 19, 2017 12:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 164
Views: 40562

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Yes, the wait period between neoadjuvant chemoradiation and surgery now ranges between 4 weeks and 8 weeks across the US. (based on information posted by patients here). Not any longer. This is because the intent of chemoradiation does not seem to be to cure or kill the tumor completely but only to ...
by skb
Fri Aug 18, 2017 11:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Two Years Ago and a Thank You
Replies: 14
Views: 1359

Re: Two Years Ago and a Thank You

Nice encouraging post. You are right on when you say that being diagnosed changes your life for ever!
by skb
Fri Aug 18, 2017 11:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: We need some laughs here!
Replies: 859
Views: 60221

Re: We need some laughs here!

I am not good with jokes. Just trying to contribute to this thread. :D One of the challenges of having a long ethnic name is that you need to spell it out letter by letter over the phone to the many health professionals who are trying to help you. In my case it goes like, S as in Sam, R as in Romeo,...

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