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by skb
Wed Nov 08, 2023 7:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung recurrence update- good news
Replies: 37
Views: 19965

Re: Lung recurrence update- good news

Roadrunner,
Very helpful and encouraging.
Thank you,
skb
by skb
Tue Nov 07, 2023 10:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung recurrence update- good news
Replies: 37
Views: 19965

Re: Lung recurrence update- good news

Hi roadrunner, Thanks for your detailed answer. The oncologist's preference for Xeloda might be because of past success with it (initial diagnosis) and my recent challenges with Folfiri (was harder to tolerate, full hair loss, was off work). The four nodules are reported in four lobes and therefore ...
by skb
Tue Nov 07, 2023 8:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung recurrence update- good news
Replies: 37
Views: 19965

Re: Lung recurrence update- good news

Hi, My latest CT scans shows a lower right bilobed nodule that grew from 3mm in June 2023 to to 7-8mm in Oct 2023. Three other nodules are mentioned in the scan- all below 5 mm. two are located at the edge - peripheral/juxta-pleural. My oncologist has has asked me to start Xeloda and continue for 6 ...
by skb
Tue Jan 24, 2023 3:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Riki's Wife
Replies: 56
Views: 28726

Re: Update from Riki's Wife

Ruth,
I am really sorry for your loss. Riki was a source of hope and inspiration to me. I used to read all his posts . Both he and I were diagnosed at the same time. I still can't believe he is gone. Hugs
Sree
by skb
Tue Aug 02, 2022 12:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA again
Replies: 16
Views: 4685

Re: CEA again

Having a PET scan is the right approach and I am glad it has already been scheduled. During recurrence of cancer, usually the CEA rises continuously. It is of some comfort to know that in the case of your sister, it has not been continuously increasing but kind of fluctuating and staying around 5. C...
by skb
Thu Jul 28, 2022 9:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence after 5 years
Replies: 3
Views: 1636

Re: Recurrence after 5 years

I had a lymph node met after almost five years of the initial diagnosis
by skb
Wed Jul 27, 2022 11:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rise in CEA
Replies: 43
Views: 13721

Re: Rise in CEA

CRC mets to lungs without any metastasis to liver are not uncommon. This usually happens when the primary tumor is in the rectum, not colon. There are several. people in this forum who had lung met and no liver met. I am an example. So is the user Atoq I think it is important to verify whether your ...
by skb
Wed Jul 27, 2022 11:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rise in CEA
Replies: 43
Views: 13721

Re: Rise in CEA

It grew 1-1.5 mm since April. Then it was very small, less than 1mm if I remember. MD Anderson is using a different CT scan, and a lot better of one than the previous oncologist. I don’t know if this better scan just picked it up better when comparing it to previous scan. So sorry for any confusion...
by skb
Tue Jul 26, 2022 11:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rise in CEA
Replies: 43
Views: 13721

Re: Rise in CEA

Thank you for your reassurances, roadrunner. It was not the Mayo oncologist but the one at University at Minnesota (my primary oncologist) who made the 'I told you so' comment. I was upset by it because in 2019, he had given me the option to decide whether I wanted to do chemo or not after lung VATS...
by skb
Tue Jul 26, 2022 9:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Solitary lymph node metastasis: treatment options
Replies: 52
Views: 20243

Re: Solitary lymph node metastasis: treatment options

rp, I have answered your questions to the best of my ability. I'm working on a long answer of cumulative experiences. Could you fill in some of the story gaps running up to surgery and chemo? What kind of direct conversations and outside consults did you have with various surgeons before surgery. Di...
by skb
Tue Jul 26, 2022 9:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rise in CEA
Replies: 43
Views: 13721

Re: Rise in CEA

Hi, After my VATS surgery to remove a solitary lung nodule in August 2019, I did not do a follow up radiation or chemo. Mayo said that some chemo is recommended but my oncologist at University of Minnesota was not insistent upon it. Fortunately I had no lung issues since then. However, two years lat...
by skb
Mon Jul 25, 2022 11:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rise in CEA
Replies: 43
Views: 13721

Re: Rise in CEA

I was in a similar situation in 2019. A solitary lung spot was growing 1 to 2 mm every few months. I had it biopsied, confirmed it was cancer and had it removed through a VATS wedge resection. By the time it was removed, the lung nodule was 1.2 cm in diameter. However my CEA did not rise at all duri...
by skb
Mon Jul 25, 2022 6:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Increasing CEA
Replies: 31
Views: 9114

Re: Increasing CEA

Dennyp wrote:My CEA today stayed the same, I assume that’s a good sign. My oncologist doesn’t seem too concerned so we’ll do a PET scan for my next routine scan.


Good idea waiting out and measuring CEA before doing any drastic surgery.
by skb
Mon Jul 25, 2022 5:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Solitary lymph node metastasis: treatment options
Replies: 52
Views: 20243

Re: Solitary lymph node metastasis: treatment options

Dennyp, Thanks for your concern, Dennyp. A biopsy was done on lymph node which was positive. But when lymph nodes were removed during surgery, they were negative for adenocarcinoma. Something is off. Either the biopsy was wrong. Or the pathology study of lymph nodes removed during surgery was wrong....
by skb
Mon Jul 25, 2022 2:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy 18 year Cancerversary to me!!!
Replies: 8
Views: 3038

Re: Happy 18 year Cancerversary to me!!!

Congrats.
It is always good to hear about people who survived cancer for so long. Especially Stage 4.

Dr. Edward Greeno is still practicing here in Minnesota. One of my friends is being treated by him and she is all praises about him.

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