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by Brearmstrong
Wed Oct 18, 2017 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda induced pancolitis (help me please!)
Replies: 10
Views: 254

Re: Keytruda induced pancolitis (help me please!)

Veckon, My 19 year old son has ulcerative colitis and so the last two years we were working on foods that helped when he had a flare. If you google, "diets for Chron's or UC" you will get great information and recipes. Kefir is awesome because it's full of probiotics and also soothing to y...
by Brearmstrong
Wed Oct 18, 2017 9:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question on pains few weeks after end of Folfox
Replies: 0
Views: 74

Question on pains few weeks after end of Folfox

I realize that i just kinda barged in on this forum several months ago without introducing myself. How rude :shock: BUTT, I read everyone's responses several times a day as I go blindly through this fight; you all make it so much easier and education is the key! So I know AJQ posted similar question...
by Brearmstrong
Thu Oct 12, 2017 1:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Upcoming Scans
Replies: 28
Views: 1034

Re: Upcoming Scans

Great news!! Susie, I too have my post chemo first scan on Monday!! Good luck to both of us!!
by Brearmstrong
Thu Oct 12, 2017 6:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T...Sort Of...Things Come In 4's - Appendiceal (Appendix) Cancer - Not Me
Replies: 9
Views: 436

Re: O/T...Sort Of...Things Come In 4's - Appendiceal (Appendix) Cancer - Not Me

So sorry to hear of your BFF's diagnoses... heavy heart here... I too have appendix cancer (mucinous adenocarcinoma) and the tumor started in my appendix and invaded into the colon wall. You can see the rest in my signature. Because mucin or peritoneal mets weren't yet found during surgery or after ...
by Brearmstrong
Sun Oct 08, 2017 7:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Right side pain --mets?
Replies: 13
Views: 713

Re: Right side pain --mets?

:( AJ, I also have lots of right side pain and pain here and there throughout my abdomen. No connection to types of food or anything that I can figure out. It too has me scared of spread given my T4 tumor. I have my next CT scan on the 16th. My oncologist also thinks it is from my surgery but that w...
by Brearmstrong
Fri Oct 06, 2017 12:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 267
Views: 10055

Re: NEW-Need some positivity here.

teacher2017 Please don't be afraid of the port. It is really very easy and while sounds horrifying, it's so doable! Believe me, you are way way stronger than you think you are. It's painless going in and just a little sore for a couple of days. When they access it, I put on numbing cream an hour bef...
by Brearmstrong
Mon Sep 18, 2017 6:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any experience with cannabis oil?
Replies: 20
Views: 1726

Re: Any experience with cannabis oil?

I live in a state where it is legal and I have a medical prescription for it from my oncologist. I can't say enough about how much it has helped me. The anti nausea pills have never worked for me and just made me constipated. The key is to get a CBD oil that also has THC. It helps with my appetite, ...
by Brearmstrong
Wed Sep 06, 2017 10:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer scared!
Replies: 13
Views: 2484

Re: Colon cancer scared!

I also had three CT scans before surgery that did not pick up the tumor that grew through the colon walk from the base of my appendix. It was over 2cm but only the colonoscopy found it.

Brenda
by Brearmstrong
Wed Sep 06, 2017 10:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hot flushes
Replies: 1
Views: 383

Re: Hot flushes

I am currently in session #11 of folfox. It has pushed me into menopause the last three months (45 years old) but I get terrible hot flashes. The steroids also can cause this which might be what is happening with you. My face and neck turn beet red during pump days.


Brenda
by Brearmstrong
Wed Aug 23, 2017 6:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New, anxious and seeking opinions
Replies: 15
Views: 1514

Re: New, anxious and seeking opinions

So happy for although my son has ulcerative colitis at 17 and it has not been a walk in the park and he now has scarring started on his bile ducts a year later. His heptalogist says liver transplant in 7-10 years. Get a good GI to help you through this noncancerous but not fun journey. Glad you got ...
by Brearmstrong
Sun Aug 13, 2017 7:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FamiIy and friends on a bad week
Replies: 3
Views: 587

Re: FamiIy and friends on a bad week

You are never whining and you'd be surprised to know that I doubt anyone would consider that to be the case. I usually just answer their texts or emails with the words,"feeling terrible but will bounce back in a few days". Seems to work for me. You will get through this! I am recovering fr...
by Brearmstrong
Wed Aug 02, 2017 1:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting Treatment soon-have some ?
Replies: 12
Views: 947

Re: Starting Treatment soon-have some ?

I also get my treatments starting on Tuesday with pump off on Thursdays. The first few treatments I was able to work Wednesdays and Thursdays and then felt horrible on Fridays and Saturdays. Now that the treatments are racking up (I have 9th one next Tuesday) I start feeling tired and terrible on We...
by Brearmstrong
Sat Jul 29, 2017 6:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When did you get your first scan after starting chemo?
Replies: 5
Views: 640

Re: When did you get your first scan after starting chemo?

I had CT scan 1/2 through chemo and will have another when I finish. After that though, not again for 6 months which has me a bit freaked out.
by Brearmstrong
Mon Jul 24, 2017 8:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Sept/2017
Replies: 142
Views: 32889

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ July/2017

I am so sorry. I am relatively new here but read every post and was so impressed by the people on here who take the time almost daily to respond to posts. You guys are heroes to me. You are among them and I am so so sad to read this. His bike riding inspired me and I just am speechless. I didn't kno...
by Brearmstrong
Sun Jul 23, 2017 7:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I heart FOLFOX
Replies: 21
Views: 4454

Re: I heart FOLFOX

Hi Basil, can I ask how they ruled out the spot on your lung as harmless? I ask because I am 1/2 through my 12 rounds of folfox and the CT scan I just had shows a 4mm lung nodule in my upper quadrant. I have never had a full chest scan until now so not sure how long it has been there. My oncologist ...

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