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by Brearmstrong
Sun Dec 03, 2017 12:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling hopeless. Para aortic nodes-inoperable?
Replies: 11
Views: 481

Feeling hopeless. Para aortic nodes-inoperable?

I had a PET scan last week and you can see the history below. Sloane Kettering is reviewing my case as I am starting process to seek second opinions. I meet with my oncologist this week but initial call from him sounds like folfri with avastin for life and now says I am inoperable and incurable. I a...
by Brearmstrong
Mon Nov 27, 2017 3:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question on pains few weeks after end of Folfox
Replies: 9
Views: 661

Re: Question on pains few weeks after end of Folfox

Thank you Lee and BS. Your words do provide comfort to me in a scary time. I made some noise today and moved my MSKCC appointment from Dec 12th to TOMORROW! My PET scan isn't until Wednesday of this week back at Yale cancer center but the Sloan team said let's meet and review what we do know and com...
by Brearmstrong
Sun Nov 26, 2017 9:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question on pains few weeks after end of Folfox
Replies: 9
Views: 661

Re: Question on pains few weeks after end of Folfox

Well pain has continued and my CEA is rising. So devastated that it seems folfox failed and I will be going to Sloane Kettering on Dec. 12th for a second opinion. Waiting to get a PET scan next week but appendix cancer mets can be very hard to pick up on scans. Ultrasound and CT scan shows nothing b...
by Brearmstrong
Sun Nov 26, 2017 9:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Awaiting Pathology
Replies: 9
Views: 472

Re: Awaiting Pathology

Hi Emm, I had a similar experience and a week after lap appendectomy, I was diagnosed with appendix cancer. I had a second surgery and 12 sessions of folfox chemo. That failed as I am dealing with a recurrence just 8 weeks after ending chemo.... so things to ask: If mass is cancer, what type of appe...
by Brearmstrong
Tue Oct 24, 2017 1:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question on pains few weeks after end of Folfox
Replies: 9
Views: 661

Re: Question on pains few weeks after end of Folfox

NBrandt, Your message gave me lots of hope. I'm so happy for you to have passed the 5 year mark. I know too that my survival chances are lower for people in the same situation but with primary in the colon rather than the appendix. I try not to think about it and search for success LONG term surviva...
by Brearmstrong
Mon Oct 23, 2017 6:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question on pains few weeks after end of Folfox
Replies: 9
Views: 661

Re: Question on pains few weeks after end of Folfox

Thanks Lee and BS. My CT scan went well. My spleen is still enlarged and the two lung nodules are stable. Oncologist thinks the pain is just from the Folfox taking it's toll and the surgery but I didn't have any pain the first 1/2 of the folox treatments. We are just on watch and wait for any perito...
by Brearmstrong
Wed Oct 18, 2017 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda induced pancolitis (help me please!)
Replies: 13
Views: 723

Re: Keytruda induced pancolitis (help me please!)

Veckon, My 19 year old son has ulcerative colitis and so the last two years we were working on foods that helped when he had a flare. If you google, "diets for Chron's or UC" you will get great information and recipes. Kefir is awesome because it's full of probiotics and also soothing to y...
by Brearmstrong
Wed Oct 18, 2017 9:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question on pains few weeks after end of Folfox
Replies: 9
Views: 661

Question on pains few weeks after end of Folfox

I realize that i just kinda barged in on this forum several months ago without introducing myself. How rude :shock: BUTT, I read everyone's responses several times a day as I go blindly through this fight; you all make it so much easier and education is the key! So I know AJQ posted similar question...
by Brearmstrong
Thu Oct 12, 2017 1:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Upcoming Scans
Replies: 28
Views: 1328

Re: Upcoming Scans

Great news!! Susie, I too have my post chemo first scan on Monday!! Good luck to both of us!!
by Brearmstrong
Thu Oct 12, 2017 6:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T...Sort Of...Things Come In 5's - Appendiceal + Prostate Cancer - Update
Replies: 23
Views: 1402

Re: O/T...Sort Of...Things Come In 4's - Appendiceal (Appendix) Cancer - Not Me

So sorry to hear of your BFF's diagnoses... heavy heart here... I too have appendix cancer (mucinous adenocarcinoma) and the tumor started in my appendix and invaded into the colon wall. You can see the rest in my signature. Because mucin or peritoneal mets weren't yet found during surgery or after ...
by Brearmstrong
Sun Oct 08, 2017 7:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Right side pain --mets?
Replies: 13
Views: 990

Re: Right side pain --mets?

:( AJ, I also have lots of right side pain and pain here and there throughout my abdomen. No connection to types of food or anything that I can figure out. It too has me scared of spread given my T4 tumor. I have my next CT scan on the 16th. My oncologist also thinks it is from my surgery but that w...
by Brearmstrong
Fri Oct 06, 2017 12:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 379
Views: 16966

Re: NEW-Need some positivity here.

teacher2017 Please don't be afraid of the port. It is really very easy and while sounds horrifying, it's so doable! Believe me, you are way way stronger than you think you are. It's painless going in and just a little sore for a couple of days. When they access it, I put on numbing cream an hour bef...
by Brearmstrong
Mon Sep 18, 2017 6:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any experience with cannabis oil?
Replies: 20
Views: 2026

Re: Any experience with cannabis oil?

I live in a state where it is legal and I have a medical prescription for it from my oncologist. I can't say enough about how much it has helped me. The anti nausea pills have never worked for me and just made me constipated. The key is to get a CBD oil that also has THC. It helps with my appetite, ...
by Brearmstrong
Wed Sep 06, 2017 10:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer scared!
Replies: 13
Views: 2715

Re: Colon cancer scared!

I also had three CT scans before surgery that did not pick up the tumor that grew through the colon walk from the base of my appendix. It was over 2cm but only the colonoscopy found it.

Brenda
by Brearmstrong
Wed Sep 06, 2017 10:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hot flushes
Replies: 1
Views: 468

Re: Hot flushes

I am currently in session #11 of folfox. It has pushed me into menopause the last three months (45 years old) but I get terrible hot flashes. The steroids also can cause this which might be what is happening with you. My face and neck turn beet red during pump days.


Brenda

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