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by Brearmstrong
Thu Nov 18, 2021 6:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A series of unfortunate events
Replies: 18
Views: 6786

Re: A series of unfortunate events

Hi Norseman,
Checking in to see how your 3 month scan went? I’ve followed your story as I am now dealing with potential new liver lesions described like yours and likely needing a biopsy. Hoping you got good news?
by Brearmstrong
Sat Oct 09, 2021 7:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda med concerns and timing
Replies: 24
Views: 6455

Re: Xeloda med concerns and timing

Sorry to hear this and that tech had no business saying anything. That is frustrating. Hopefully your onc puts you on Folfiri and it knocks it back. Keep on moving forward.

-Brenda
by Brearmstrong
Mon Oct 04, 2021 6:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda med concerns and timing
Replies: 24
Views: 6455

Re: Xeloda med concerns and timing

I was on Xeloda for two years and echo everyone’s responses. I had to be very careful to eliminate all folic acid as hfs was brutal and dosage still had to be lowered as I couldn’t even walk (I was a long distance runner prior). If you live in Europe, much easier but the US puts folic acid in way to...
by Brearmstrong
Fri Sep 10, 2021 7:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vats for lung nodules
Replies: 16
Views: 3469

Re: Vats for lung nodules

I had 8 para aortic nodes removed laparoscopically despite a dangerous location. 5 ended up positive. Was then NED for two years before back on ovary. Another years NED and now spread to lung and removed by vats. Currently pursuing a clinical trial as I won’t do more chemo. Has never done much for m...
by Brearmstrong
Thu Jul 22, 2021 6:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vats for lung nodules
Replies: 16
Views: 3469

Re: Vats for lung nodules

I just had vats surgery two weeks ago. One small met but was in an area in between my upper and middle lobe so they had to take more tissue than hoped. It’s my 5 major surgery and I was thinking it was going to be much easier than the abdominal ones but to be honest, recovery has been just as long, ...
by Brearmstrong
Wed Jun 16, 2021 9:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signatera Test Came out positive
Replies: 16
Views: 3981

Re: Signatera Test Came out positive

From my experience, I had been NED for two years while on Xeloda for maintenance and my oncologist wanted to see if the signatera was negative then I could take a break. Of course the day of the blood draw I had an elevated CEA and PET confirmed it was back and on my ovary. So it coming back positiv...
by Brearmstrong
Wed Jun 16, 2021 3:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signatera Test Came out positive
Replies: 16
Views: 3981

Re: Signatera Test Came out positive

I have had two signatera test. My understanding is that a profile of your initial tumor is created from original tissue. Then blood is drawn in present time and it compares it to your original profile. It does not note mutations or changes in genetic profile but only reports out positive or negative...
by Brearmstrong
Fri Jun 11, 2021 5:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?
Replies: 33
Views: 8360

Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

Hi there, I don’t think you mentioned it but how is your CEA? Is that hinting that something is going on? You said MSK confirmed disease. Based on shape, appearance?

Brenda
by Brearmstrong
Sat Jun 05, 2021 9:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung Metastisis Testing
Replies: 3
Views: 1222

Re: Lung Metastisis Testing

I am dealing with this now. Has your spot just shown up or has it grown? Usually needs to be at least 8 mm to biopsy. Mine grew (has been there 4 years on CT scan but I was also on chemo until 10 months ago). It grew from 5mm to 8mm in 3 months. Scared to death but will tackle this new issue if need...
by Brearmstrong
Sun May 02, 2021 4:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-fu 200ml push - should I keep it?
Replies: 8
Views: 1820

Re: 5-fu 200ml push - should I keep it?

I had to drop it after 7 rounds but it was because of low white blood counts even with nuelasta. Did it make a difference? Who knows but I did have a recurrence 2 months after finishing folfox. Hopefully you can get the nausea under control. Medical marijuana was a life saver for me and I dropped al...
by Brearmstrong
Wed Apr 28, 2021 7:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COVID Vaccine and CEA Increase?
Replies: 13
Views: 3411

Re: COVID Vaccine and CEA Increase?

That sounds like a great oncologist and a solid plan. Hope all goes well.
by Brearmstrong
Tue Apr 27, 2021 6:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COVID Vaccine and CEA Increase?
Replies: 13
Views: 3411

Re: COVID Vaccine and CEA Increase?

Sorry to hear and I know the anxiety can be crippling. Any talk about getting a possible PET scan? My recurrences are always found by increasing CEA but clear CT scans. I keep pushing and get a PET scan that shows what the CEA is telling us, recurrence. I hope it turns out to be nothing but maybe pu...
by Brearmstrong
Sun Jan 31, 2021 7:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Solitary common iliac recurrence
Replies: 13
Views: 4620

Re: Solitary common iliac recurrence

Thank you for responding. I am in the same situation although had a positive signatera test after surgery so I am on a watch and wait that unfortunately is just that, not if but when it shows up. Best of luck to you!
by Brearmstrong
Wed Jan 27, 2021 5:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Solitary common iliac recurrence
Replies: 13
Views: 4620

Re: Solitary common iliac recurrence

Congrats on a successful surgery. I too had distant nodes in my first recurrence but in more than one. Wondering if your team is suggesting any follow up treatment or just scans? Thanks for your feedback.

Brenda
by Brearmstrong
Wed Jan 06, 2021 8:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Chemo Break??
Replies: 6
Views: 3413

Re: Stage 4 Chemo Break??

I have also been on chemo break since last surgery in August. Microscopic cancer cells were found in the wash during surgery but I had been on chemo for four years so my oncologist has me on a break to regain strength and weight, etc. i also was lucky to have Signatera testing but after surgery was ...

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