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by Brearmstrong
Thu Oct 18, 2018 2:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 44
Views: 4093

Re: Update from Rikimaroo

So happy to hear!!!
by Brearmstrong
Thu Oct 18, 2018 8:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried -genetic results are in. KRAS MSS
Replies: 18
Views: 1299

Re: Worried -genetic results are in. KRAS MSS

I too am KRAS and MSS. Have had folfiri and folfox so future lines of chemo or treatments are unlikely. BUTT, here's to hoping I stay NED forever.

-Brenda
by Brearmstrong
Tue Oct 16, 2018 12:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about necessity of CEA labwork
Replies: 31
Views: 2404

Re: Question about necessity of CEA labwork

Heiders33- my story is that I was 4.6 at diagnoses with a 4 cm tumor and 8 positive nodes at the time. After surgery went down to .5 (yay) but with recurrence it jumped from 3.6 to 8 in a few weeks. CT was clear but nodes lit up in distant area on a PET and turned out 1 enlarged node turned into 5 p...
by Brearmstrong
Mon Oct 15, 2018 12:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADAPT and Celebrex - What happened?
Replies: 20
Views: 3558

Re: ADAPT and Celebrex - What happened?

Thank you Donna and great news on being able to come off of adapt. I wish you NED forever!!! How did you get approval for it? Did you ask you oncologist or did they just put you on it? I'm taking 2000mg of xeloda a day but just not convinced it's doing enough to keep me NED.

Thanks!

-Brenda
by Brearmstrong
Fri Oct 12, 2018 7:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Internal Iliac Node involvement??
Replies: 18
Views: 1699

Re: Internal Iliac Node involvement??

Hi Punky, I am also sorry to hear what is going on. I am one of those Stage IV due to distant nodes that warriorspouse mentioned. In my case with the tumor in my cecum, my spread to para aortic nodes deemed me stage IV. I never had a PET scan before my initial surgery so it’s hard to know if it was ...
by Brearmstrong
Wed Oct 10, 2018 6:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADAPT and Celebrex - What happened?
Replies: 20
Views: 3558

Re: ADAPT and Celebrex - What happened?

Good to hear that you are both doing well. StevieB, how did you get it approved? Where you part of a trial? Thanks!

-Brenda
by Brearmstrong
Mon Oct 08, 2018 7:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADAPT and Celebrex - What happened?
Replies: 20
Views: 3558

Re: ADAPT and Celebrex - What happened?

Bumping this up. Wondering how those on Adapt are doing? How do you convince your oncologist to give this a try? I'm fearing that just xeloda is not enough to keep me long term NED. Thanks for chiming in!

Brenda
by Brearmstrong
Tue Oct 02, 2018 2:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH had surgery consult yesterday for para aortic nodes
Replies: 17
Views: 4292

Re: DH had surgery consult yesterday for para aortic nodes

If you can, please see if you can get a second opinion. MSK reviewed my case( mine were shining bright with 12 suv on Pet scan so they knew there was more than one) and said they wouldn’t remove but then my original surgeon at Smilow in CT said he’d try and he got 8 out, 5 of which were cancerous. I...
by Brearmstrong
Mon Oct 01, 2018 11:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH had surgery consult yesterday for para aortic nodes
Replies: 17
Views: 4292

Re: DH had surgery consult yesterday for para aortic nodes

Gringo, why did MSK say surgery is off the table? Location?
by Brearmstrong
Thu Sep 13, 2018 9:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH had surgery consult yesterday for para aortic nodes
Replies: 17
Views: 4292

Re: DH had surgery consult yesterday for para aortic nodes

I had para-aortic nodes at diagnosis and as of my last PET scan in April they are no longer showing up (I'm overdue for a scan now). 5Fu infusions are starting to wear me down so I'm thinking of switching to Xeloda as I want to keep this going as long as possible. If they come back and it is in a l...
by Brearmstrong
Tue Sep 04, 2018 11:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH had surgery consult yesterday for para aortic nodes
Replies: 17
Views: 4292

Re: DH had surgery consult yesterday for para aortic nodes

Brearmstrong, Dr. Bartlett did not use the word cure, but he said with surgery, " it could go away and never come back or it could come back again." So I guess that's the best we could hope for anyhow. My husband's oncologist said if his scans are clean after he completes chemo he would b...
by Brearmstrong
Sun Sep 02, 2018 7:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH had surgery consult yesterday for para aortic nodes
Replies: 17
Views: 4292

Re: DH had surgery consult yesterday for para aortic nodes

cLD Sounds like a good plan is in place. My journey is similar and I was fortunate to find a surgeon who would remove the nodes. So far so good as it’s been 3 1/2 months and I am currently on xeloda pills for maintenance. The surgery can be tricky given the location so I am happy that they will go a...
by Brearmstrong
Wed Aug 22, 2018 12:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with Kras G12V or G12D, NIH trial needs you
Replies: 19
Views: 4597

Re: Anyone with Kras G12V or G12D, NIH trial needs you

This sounds wonderful. I'm currently stage IV NED (well just had a CT scan this morning so we shall see) and I'm G12D. I will give them a call. Thank you for letting us know!
by Brearmstrong
Sun Jul 08, 2018 5:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT scan report and PARA-AORTIC Lymph Nodes!
Replies: 7
Views: 666

Re: CT scan report and PARA-AORTIC Lymph Nodes!

Hi, try not to panic. I was stage 3C but had a quick recurrence after 12 rounds of folfox. My tumor was on the right side so when it came back to the para aortic lymph nodes I was then stage IV. It does mean that it is now through out his blood stream but don’t give up hope that it can be treated! I...

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