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by Brearmstrong
Sun Jul 07, 2019 8:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Should we move the scan up?
Replies: 11
Views: 1445

Re: Should we move the scan up?

Hi Jp,

How did your mom’s scan turnout? I am also in the same situation as my CEA jumped from 1.0 to 2.3 in three months and my next CT scan isn’t until Aug 15th. I know that worrying doesn’t help but my CEA is a good marker. I am very scared. Hope her scan went well.

Brenda
by Brearmstrong
Fri May 31, 2019 9:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: On a Clinical Trial but I Think We're Reaching the End
Replies: 17
Views: 1708

Re: On a Clinical Trial but I Think We're Reaching the End

Inorganic8, I wanted to reach out and reply to your message. My situation is reversed in that I am watching the strain on my husband (also married 21 years) and my children and how this impacts them. You hear all the blah blah blah on how caregivers have it tough but somehow most of society doesn't ...
by Brearmstrong
Wed May 29, 2019 11:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Potential Kras G12C inhibitor.
Replies: 7
Views: 634

Re: Potential Kras G12C inhibitor.

Promising news! Thanks for sharing. I'm KRAS G12D so will be watching this closely.
by Brearmstrong
Tue May 28, 2019 4:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It has come back...in the LNs...
Replies: 15
Views: 1650

Re: It has come back...in the LNs...

Hi there. Sorry to hear your news but wanted to reach out. I am one of those that had high SUV uptake in para aortic nodes and had them removed. I have been NED since last May but also on chemo for life. It is doable!
by Brearmstrong
Tue Apr 30, 2019 2:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mild ascites and jaundice - cancer spread to liver?
Replies: 18
Views: 2216

Re: Mild ascites and jaundice - cancer spread to liver?

Great News! I too had elevated bilirubin for about 4 months. They couldn't figure it out but last month is was down to low end of normal. I think chemo and meds can really do a number on your liver functions. Hope your Dad's ascites clear up next!
by Brearmstrong
Tue Apr 30, 2019 2:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 - liver mets disappeared
Replies: 36
Views: 4895

Re: Stage 4 - liver mets disappeared

Timely post as I've been struggling with this same question the last few weeks. I've been NED for almost a year but have been on xeloda. My onc also says no to Avastin if no active disease and it caused a nasty pulmonary embolism when I was on it so I'm ok with his stance. However, xeloda has been i...
by Brearmstrong
Wed Apr 24, 2019 1:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV, what happens after surgery?
Replies: 21
Views: 1491

Re: Stage IV, what happens after surgery?

It tends to depend on different factors.. 1) your oncologist 2) your cancer center protocol 3) you threat of recurrence, where it was removed from, tumor mutations, etc. I know that MSKK told me that they don't offer any chemo if you are NED even if stage IV. My oncologist believes differently and b...
by Brearmstrong
Mon Mar 25, 2019 8:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 swollen nodes in abdomen...
Replies: 25
Views: 4209

Re: 2 swollen nodes in abdomen...

Jep, Any chance you are able to get in to talk to Dr. Charles Cha at Smilow? I think I mentioned in another post that he was my original surgeon and then also did my para aortic node dissection. Mine were massed together (not good) and 12.5 SUV uptake on PET. I trust him 100% and he ended up getting...
by Brearmstrong
Tue Mar 05, 2019 9:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: smallest tumors that turned up on your PET, PET/CT or PET/MRI ??
Replies: 15
Views: 1485

Re: smallest tumors that turned up on your PET, PET/CT or PET/MRI ??

I had nodes that were 1cm on a CT scan but never noted on my report (angry about that) and then my CEA went up slightly and they gave me a PET scan. PET showed high activity in the nodes with suv of 12 which is HIGH! They knew then that they were mets. The next CT scan showed one grew to 1.3 cm. So ...
by Brearmstrong
Wed Feb 27, 2019 11:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: para-aortic node surgeon rec at MSK??
Replies: 4
Views: 494

Re: para-aortic node surgeon rec at MSK??

Jep, I had para aortic node removal at Smilow (MSK said no although I didn't pursue too deeply due to insurance issues) by Dr. Charles Cha. He did my original surgery at Smilow and said that my node dissection was easy for him for some reason as I'm very thin and he could find them easily. It will a...
by Brearmstrong
Tue Jan 29, 2019 3:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High biluribin ?!
Replies: 4
Views: 563

Re: High biluribin ?!

I too have high biluribin issues since starting xeloda pills. My liver enzyme numbers are in normal range but that dang bilirubin keeps going up. My oncologist is not too concerned but when I asked him could it be a tumor pressing on the bile duct and not showing up on CT scan, he said it might be b...
by Brearmstrong
Sat Dec 22, 2018 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung mets 2mm
Replies: 7
Views: 1358

Re: Lung mets 2mm

2mm is very tiny. I had 3 pop up from one CT scan to another but my oncologist and radiologist have never thought they were Mets and believe they are just old scarring and so small that they just weren’t picked up by earlier CT scans. Vigilant in keeping an eye out but yours may be nothing. Are they...
by Brearmstrong
Fri Dec 21, 2018 11:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Stable ?
Replies: 9
Views: 2446

Re: Stage 4 Stable ?

Hey there Alreadyhere, I have only distant node spread as well but I had them surgically removed. Even with them removed (5 of the 8 were cancerous and thus made me stage IV) I am still on chemo likely forever or until something new pops up and then who knows what the plan will be as I'll be out of ...
by Brearmstrong
Sun Dec 02, 2018 7:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX failed
Replies: 14
Views: 1685

Re: FOLFOX failed

Sorry to hear and I have similar path if you look at my signature. Folfox failed for me and folfiri only kept me stable but I was lucky to find a surgeon who took them out. I went into surgery knowing that it is likely to come back and then out of treatment options via chemo or immunotherapy options...
by Brearmstrong
Sun Dec 02, 2018 7:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 26/2019
Replies: 262
Views: 106131

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Dec/2018

So happy to read this! We need you around and I have to say, your posts always make me feel better even when you are responding to someone else here. Onward!

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