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by Brearmstrong
Thu Jul 09, 2020 7:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No longer NED- back in right ovary
Replies: 2
Views: 172

No longer NED- back in right ovary

I've searched the archives for this topic but just wanted to fresh input if available. My history is below and just found out that I have a second recurrence, this time a 3 cm tumor on my right ovary. Not surprising since my primary was on my appendix but still devastating. Anyone have this same pre...
by Brearmstrong
Thu Mar 05, 2020 8:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL
Replies: 11
Views: 1793

Re: TIL

Thank you Rob. I get myself worked up quite easily at times and then spiral into pouring through studies that just keep telling me the same thing=poor prognosis. It’s just so disheartening and I then bring myself back reading success stories but never see them with KRASG12D people which upsets me ev...
by Brearmstrong
Thu Mar 05, 2020 8:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL
Replies: 11
Views: 1793

Re: TIL

[quote][/Sleen is now four years cancer free from the infamous "undruggable" mutation. No human had ever been cured of KRas G12D driven metastatic cancer before her, and a doctor told her she had a 2% chance of even getting into the trial. That "expert" was. So, not to interrupt ...
by Brearmstrong
Fri Feb 21, 2020 8:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Biopsy Question
Replies: 8
Views: 971

Re: Biopsy Question

I would want the biopsy and know for certain that it’s not cancer. That way if it is, you can catch it early. A lot can happen in 6 months.
by Brearmstrong
Mon Jan 20, 2020 4:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching to Xeloda, what to expect?
Replies: 7
Views: 1115

Re: Switching to Xeloda, what to expect?

Hi Vana, our stories seem very similar! I was put on Xeloda in May 2018 to present. I had lost all my hair from folfiri and it grew back since May. It grew in slower than normal but it’s now past my shoulders. Hand foot syndrome was brutal for me but lower dose has been much more manageable. Best of...
by Brearmstrong
Tue Dec 10, 2019 12:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Para-aortic node recurrence
Replies: 27
Views: 6674

Re: Para-aortic node recurrence

Tricky situation you are in. I know that some on here (warrior spouse being one of them) had good results on xeloda keeping those PALN's shrunk and then after about 3 years or so they started to grow again and now she's back on chemo. If your husband's PALN's have shrunk then that's great news and I...
by Brearmstrong
Tue Dec 10, 2019 7:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Para-aortic node recurrence
Replies: 27
Views: 6674

Re: Para-aortic node recurrence

Hi Siti, My advice (as always not a dr) is that if they can be surgically removed, then go for the surgery. You are correct that in most studies (so few of them out there) that the only real long term success has been with PALND. Often times surgery is too risky but if it can be successfully done th...
by Brearmstrong
Wed Nov 06, 2019 6:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent significant CEA jump.
Replies: 27
Views: 4089

Re: My recent significant CEA jump.

Have they ever mentioned doing a laparoscopic look around? I say this because appendix cancer is often undetectable on PET, MRI and CT scans as it often causes tiny specks of cancer covering organs. Too small to be seen on scans yet CEA can be elevated. Not saying it to be alarmed but just hoping th...
by Brearmstrong
Wed Oct 23, 2019 2:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Joe Rogers (1974-2019)
Replies: 10
Views: 1206

Re: Joe Rogers (1974-2019)

Kim, I'm so sorry to hear of your husband, Joe and his passing. I just wanted to reach out and say that we will all be thinking of you and hoping you can find some peace in the days to come. I wanted to reach out to say that I was diagnosed on the exact same date as your husband and I'm also KRAS an...
by Brearmstrong
Wed Sep 18, 2019 5:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Insurance denied husband’s genomic testing
Replies: 14
Views: 1137

Re: Insurance denied husband’s genomic testing

Great news! I started to read your chain and was getting upset because as you know, I am being treated at Yale but also work there so I know they would never not do the testing and I was about to get angry for you :D. Hope the results help!
Brenda
by Brearmstrong
Tue Sep 03, 2019 9:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Budwig diet
Replies: 8
Views: 1202

Re: The Budwig diet

I did it daily for about 9 months during folfox. Cancer came raging back. Who knows.
by Brearmstrong
Sun Aug 18, 2019 8:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sigmoid + Distant Lymph Nodes
Replies: 17
Views: 2138

Re: Sigmoid + Distant Lymph Nodes

Jep, I am happy to hear that he will have the surgery. I will be thinking of you both and please let us know how he does.

-Brenda
by Brearmstrong
Sun Jul 07, 2019 8:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Should we move the scan up?
Replies: 11
Views: 2038

Re: Should we move the scan up?

Hi Jp,

How did your mom’s scan turnout? I am also in the same situation as my CEA jumped from 1.0 to 2.3 in three months and my next CT scan isn’t until Aug 15th. I know that worrying doesn’t help but my CEA is a good marker. I am very scared. Hope her scan went well.

Brenda
by Brearmstrong
Fri May 31, 2019 9:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: On a Clinical Trial but I Think We're Reaching the End
Replies: 17
Views: 2562

Re: On a Clinical Trial but I Think We're Reaching the End

Inorganic8, I wanted to reach out and reply to your message. My situation is reversed in that I am watching the strain on my husband (also married 21 years) and my children and how this impacts them. You hear all the blah blah blah on how caregivers have it tough but somehow most of society doesn't ...
by Brearmstrong
Wed May 29, 2019 11:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Potential Kras G12C inhibitor.
Replies: 7
Views: 1009

Re: Potential Kras G12C inhibitor.

Promising news! Thanks for sharing. I'm KRAS G12D so will be watching this closely.

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