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by Basil
Wed Aug 23, 2017 9:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: More chemo?
Replies: 21
Views: 312

Re: More chemo?

The oxi definitely worked. Based on the path report, I wax NED even before surgery. The question is whether it's worth risking further neuropathy for adjuvant treatment.
by Basil
Wed Aug 23, 2017 8:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Journal -- just had the surgery this morning.
Replies: 68
Views: 1779

Re: Reversal Journal -- just had the surgery this morning.

Where do you live in Houston? Just wondering as a fellow mostly rectumless traveler who, despite reading this thread, is counting the days until my reversal. I absolutely freaking hate the bag. I'm at the Katy freeway and Beltway 8. I work downtown and am already anticipating lovely moments sitting...
by Basil
Wed Aug 23, 2017 7:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Been bleeding from colon for 10 years..
Replies: 6
Views: 183

Re: Been bleeding from colon for 10 years..

Everyone here is going to advise you to get a colonoscopy, largely because most were in some variation of your shoes at some point (although not for ten freaking years). I will point out two things, and take them or leave them; I'm not a doctor and not qualified to give you medical advice: 1. Likely...
by Basil
Wed Aug 23, 2017 7:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: More chemo?
Replies: 21
Views: 312

Re: More chemo?

Thank you everyone for your responses. My oncologist does want to talk next week about further chemo. Don't know if it would be FOLFOX or something else. I had neuropathy after round two and it's annoying/uncomfortable day-to-day. I understand it's standard to have adjuvant chemo, but I had three mo...
by Basil
Tue Aug 22, 2017 9:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: More chemo?
Replies: 21
Views: 312

Re: More chemo?

That's very unlikely. PROSPECT results have been very good from what I've been told. More importantly, the path complete response I had was statistically only about 4% likely and (obviously) the best result you can get from a post-surgery path report. Bottom line is they could never find evidence of...
by Basil
Tue Aug 22, 2017 9:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: More chemo?
Replies: 21
Views: 312

Re: More chemo?

Thanks - I will almost certainly do what the onc says but the surgeon, who has a slew of titles and credentials in addition to being a cutter, appears to be the Godfather of this whole operation. If push were to come to shove (and it won't) I'd probably do what he says. I had one medical provider at...
by Basil
Tue Aug 22, 2017 8:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: More chemo?
Replies: 21
Views: 312

Re: More chemo?

My surgeon is definitely running the show but I do not think that is the norm. He's a research dr., listed as my primary doctor and is much more involved than just doing the cutting. I think the confusion has to do with the recent study that found 6 rounds of chemo was nearly as effective as 12 for ...
by Basil
Tue Aug 22, 2017 8:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fever and Chills
Replies: 8
Views: 162

Re: Fever and Chills

He should be experiencing pain and tenderness at the port site if there is an infection from surgery. But I'm no doctor and can only tell you that 104 is a very high fever. I'm generally not in favor of rushing to an ER but that 104 number is pretty scary. Sorry I can't tell you anything more concre...
by Basil
Tue Aug 22, 2017 7:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: More chemo?
Replies: 21
Views: 312

More chemo?

Well, I'm annoyed and a bit apprehensive. Per my signature line, I had a complete response to six rounds FOLFOX. Still had a LAR and am sporting a temp ostomy. My surgeon, who is also my PCP at MDAnderson, told me directly that I am "low risk" for recurrence and, not only do I not need fur...
by Basil
Mon Aug 21, 2017 10:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 110
Views: 6145

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I had Ativan in my infusion and slept through 95% of six rounds of oxi. I'm convinced that is the way to go. I had to look that one up. I guess that Ativan is an anti-anxiety medication. In general, I try to avoid medication if I can but it's nice to know that there are options. There good reasons ...
by Basil
Mon Aug 21, 2017 7:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 110
Views: 6145

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I had Ativan in my infusion and slept through 95% of six rounds of oxi. I'm convinced that is the way to go.
by Basil
Mon Aug 21, 2017 7:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Yearly ct scan moved up
Replies: 15
Views: 312

Re: Yearly ct scan moved up

My spidey-sense is telling me this is not not worrisome. If the doc had reason to panic, which is unlikely to begin with, you would be moved up until tomorrow or next week. This smells like a scheduling issue on the medical side.
by Basil
Sun Aug 20, 2017 8:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-fu pump disconnect question
Replies: 13
Views: 258

Re: 5-fu pump disconnect question

I was in a trial at MDA so I had to see my onc every two weeks. It was part of the trial protocol but mostly a waste of time. He told me he didn't need to see me that often. We would spend a few minutes chatting, mostly about non-cancer stuff. I had two infusions at the Katy satellite office, which...
by Basil
Sun Aug 20, 2017 8:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Journal -- just had the surgery this morning.
Replies: 68
Views: 1779

Re: Reversal Journal -- just had the surgery this morning.

Where do you live in Houston? Just wondering as a fellow mostly rectumless traveler who, despite reading this thread, is counting the days until my reversal. I absolutely freaking hate the bag. I'm at the Katy freeway and Beltway 8. I work downtown and am already anticipating lovely moments sitting ...
by Basil
Sun Aug 20, 2017 7:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband broke down last night
Replies: 25
Views: 1075

Re: Husband broke down last night

Oxi sucks, no doubt. There were times when I didn't think I could take anymore. But it can do wonders. It killed my tumor in three months. I can't blame your husband for whatever decision he makes but my advice is to bitch, complain, get drunk and yell at God. And then go get that oxi infusion.

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