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by Basil
Fri Oct 13, 2017 6:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Thread
Replies: 70
Views: 1682

Re: Reversal Thread

I have mentioned this before but should also reiterate that I was on a trial that skipped all radiation. Surgery and chemo only. From the beginning my docs mentioned this should help with post-reversal bowel function but nobody really knew to what extent. I still don't know either but it's a variabl...
by Basil
Fri Oct 13, 2017 6:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Thread
Replies: 70
Views: 1682

Re: Reversal Thread

Well, I'm closing in on three weeks post reversal and things have been going very well. My bowel function is not as "normal" as it was pre-LAR, but it's not all that different either. I was suffering from mild constipation after surgery, which is certainly common, so I introduced fiber sup...
by Basil
Fri Oct 13, 2017 10:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileo Reversal - Input?
Replies: 5
Views: 184

Re: Ileo Reversal - Input?

I am 2 and 1/2 weeks from reversal and just now getting my appetite back. Surgical pain is gone except for minor discomfort when I cough or sneeze. I'm back to work and having one prune juice-induced movement a day. So far, so good.
by Basil
Fri Oct 13, 2017 10:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Doctors disagree on rectal cancer treatment
Replies: 10
Views: 350

Re: Doctors disagree on rectal cancer treatment

I had six rounds of FOLFOX, surgery, path complete response and the remaining six rounds of FOLFOX cancelled.
by Basil
Sat Oct 07, 2017 10:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Thread
Replies: 70
Views: 1682

Re: Reversal Thread

Still very little going on bowel wise.
by Basil
Fri Oct 06, 2017 9:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Thread
Replies: 70
Views: 1682

Re: Reversal Thread

Weirdness continues. I've been starting to get worried about the lack of BMs 10 days out from surgery. Had much fewer than before surgery. NOTE: my bowel function was pretty eradic before diagnosis and then beautiful once FOLFOX killed the tumor. Now learning a new normal. Had three smallish ones to...
by Basil
Thu Oct 05, 2017 10:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Thread
Replies: 70
Views: 1682

Re: Reversal Thread

Still little movement on the BM front. From my research here and elsewhere on the web, I expected to be going a dozen times a day (although I recognize there is a bit of selection bias in that effort). It's been quite the opposite. I've been eating very little for no other reason than I'm not hungry...
by Basil
Wed Oct 04, 2017 7:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Where I am now
Replies: 10
Views: 719

Re: Where I am now

Congrats!

Weird thing for me. I was being treated for high blood pressure before cancer. After LAR, I've been off bp meds and my numbers have been normal. No idea where that came from.
by Basil
Wed Oct 04, 2017 7:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 259
Views: 9339

Re: NEW-Need some positivity here.

I didn't want a port, either. I felt like, on some small or subconscious level, I would be a cancer cyborg, with strange medical devices implanted in me to get me through treatment. To each his own and all that, but ports are a whole lot of not a big deal. The "surgery" to install mine was...
by Basil
Wed Oct 04, 2017 7:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Thread
Replies: 70
Views: 1682

Re: Reversal Thread

And if anyone is checking this thread because they're anticipating reversal and have interest in another traveler's journey, let me know. I'm happy to update but won't do so if it's not going to help out anyone else.
by Basil
Wed Oct 04, 2017 6:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Thread
Replies: 70
Views: 1682

Re: Reversal Thread

So Monday I got worried and took an enema in the morning. That cleared a lot out. Tuesday went three times, noon, five and midnight, with minor clustering. The midnight bout cleared everything out. Today, nothing, but all I've had to eat is a piece of toast. I took a fall yesterday and have had pain...
by Basil
Sun Oct 01, 2017 7:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just told I have a mass in rectum
Replies: 42
Views: 5172

Re: Just told I have a mass in rectum

That's me. I had six rounds of chemo, path complete response at LAR and remaining treatment was cancelled. I think PROSPECT is a stage iii trial but I would ask about it.
by Basil
Sun Oct 01, 2017 6:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Thread
Replies: 70
Views: 1682

Re: Reversal Thread

And nothing today. Had a couple of small BMs late last night. I can hear gurgling like normal but no output. Obviously no clustering or urges. Just . . . quiet. Not sure if this is a positive sign or there's a storm a brewin.
by Basil
Sat Sep 30, 2017 7:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Thread
Replies: 70
Views: 1682

Re: Reversal Thread

Well, went to the bathroom twice yesterday. Otherwise, all silent and normal. No urges or emergencies. We'll note it as a good day and soldier on.
by Basil
Fri Sep 29, 2017 3:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy results not in a good place
Replies: 8
Views: 843

Re: Colonoscopy results not in a good place

Could be worse. I suffer from anxiety disorder as well. It was the main reason I demanded a colonoscopy when my PCP wasn't concerned. When I woke up I was flat out told I had cancer; it was just a matter of how far it had spread. That sucked. You should be in a good place. If the guy whose professio...

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