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by Basil
Mon Jan 29, 2018 9:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer - Standard of Care Approach or Neoadjuvant Chemo approach???
Replies: 30
Views: 1171

Re: Rectal Cancer - Standard of Care Approach or Neoadjuvant Chemo approach???

My signature tells my story. No radiation has been great for me. Just got to get through the years of waiting for a recurrence.

BTW, my bowel function has been excellent after losing 90% of my rectum. Docs attribute that to not having radiation.
by Basil
Mon Jan 29, 2018 9:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 176
Views: 43060

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Per the below I was dx’d t3,n1,m0. After six rounds of folfox I was t0,n0,m0 - path complete response. Only one datapoint, sure, but there may be some changes on the horizon if the data is good.
by Basil
Mon Jan 29, 2018 9:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Control
Replies: 9
Views: 588

Re: Control

Lotta free space in Alaska. Should be prime grounds for popping a squat in nature whenever the need may occur.
by Basil
Sun Jan 28, 2018 9:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What's In a Name
Replies: 11
Views: 702

Re: What's In a Name

Awesome. Enjoy it.
by Basil
Sat Jan 20, 2018 1:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR June 20 2017 passing blood now!!
Replies: 5
Views: 439

Re: LAR June 20 2017 passing blood now!!

Never thought I would congratulate someone with that diagnosis, but congrats!
by Basil
Sat Jan 20, 2018 1:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tumor gone, cea level of 1
Replies: 28
Views: 1100

Re: Tumor gone, cea level of 1

If you are stage iii, chemo significantly decreases tour chance of a recurrence. I’d do it 100 out of 100 times.
by Basil
Tue Jan 16, 2018 7:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Goblet Cell Carcinoid
Replies: 7
Views: 509

Re: Goblet Cell Carcinoid

I would echo the above and get a second opinion at a major cancer treatment center. That’s rare and you’ll want the best expertise in figuring out a “patch work” chemo protocol. The major centers have the expertise.
by Basil
Sun Jan 14, 2018 9:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan timing
Replies: 6
Views: 458

Re: Scan timing

Scan intervals depend on your chances of recurrence. It’s a good thing to have them spread out. It means your docs don’t think you’ll have a recurrence. If you were more at risk they would see you more often. Take solace in that.
by Basil
Sun Jan 14, 2018 12:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery is over!
Replies: 52
Views: 2493

Re: Surgery is over!

KathyLynn, Just my own experience, but I had six rounds of FOLFOX instead of radiation, with the plan being six more rounds of chemo after surgery. I had a path complete response after surgery and my surgeon cancelled the last six rounds of chemo. My case was presented to “conference” after surgery ...
by Basil
Sun Jan 07, 2018 10:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port Removal
Replies: 23
Views: 1092

Re: Port Removal

Congrats. I finished active treatment in late 2017 (NED) but my onc wants to keep the port for a year. All my appointments, cancellations and reappointments were monitored through an MDANDERSON phone app. I’m used to seeing a string of them waiting before me but the only one I have now is “Port remo...
by Basil
Tue Jan 02, 2018 9:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SWF, so many uncertainties NOW!!!!
Replies: 34
Views: 1424

Re: SWF, so many uncertainties NOW!!!!

Adele, after being diagnosed with colorectal cancer, that M0 is the absolute best news you could get. If you were thinking about avoiding surgery because the tumor is low, so it now before you commit to a plan of treatment.
by Basil
Tue Jan 02, 2018 3:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Number of lymph nodes removed excessive?
Replies: 10
Views: 837

Re: Number of lymph nodes removed excessive?

... I’d be interested in knowing if anyone has any thoughts on removing 42 nodes during surgery. That number seems a lot higher than other cases. I’ll ask my onc about it at my next appointment but it’s been something I’ve been wondering about. Basil - There is a 2015 published article that may add...
by Basil
Fri Dec 29, 2017 9:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Number of lymph nodes removed excessive?
Replies: 10
Views: 837

Re: Number of lymph nodes removed excessive?

How many nodes did they resect from you? I would think it would be a comparable number, given the nature of the surgery, unless folks vary widely in number of nodes.
by Basil
Fri Dec 29, 2017 8:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Number of lymph nodes removed excessive?
Replies: 10
Views: 837

Re: Number of lymph nodes removed excessive?

I was rectal, stage iii, with the tumor 7 cm from the verge. My surgeon is the colorectal surgical chief at MDA Houston and his knowledge of my case and treatment recommendations supports his resume. I have no second guesses on what he did, I’ve just been wondering about the high node number. My rec...
by Basil
Thu Dec 28, 2017 7:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal recovery time
Replies: 16
Views: 762

Re: Reversal recovery time

Recovery can be shitty or not a big deal. I fell into the latter category. My plumbing is different but highly manageable. I face no issues on a day-to-day basis. Hope the same for your mom.

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