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by Basil
Thu Apr 19, 2018 3:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help dealing with Health Anxiety/Panic
Replies: 7
Views: 309

Re: Help dealing with Health Anxiety/Panic

This may seem obvious but I rely on Xanax. Never taken it before being diagnosed but I've had a couple of panic attacks in the last year and sometimes feel one coming on. The Xanax does the trick. I also take it before going into MDA for surveillance appointments.
by Basil
Thu Apr 05, 2018 9:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is the Chemo Working?
Replies: 6
Views: 456

Re: Is the Chemo Working?

My onc told me side effects have no correlation to the effectiveness of the chemo.

I did have greatly improved bowel function at about round three. As I hadn’t had surgery yet, my onc said that was a great sign. It was.
by Basil
Sat Mar 03, 2018 8:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety
Replies: 19
Views: 1063

Re: Scanxiety

Before cancer (2017 dx) I had never taken an anti anxiety med before. For scanxiety or other random cancer issues, I lean on Xanax. It works, at least for me. Only issue is it makes me really tired about three hours later. I have Ativan left over from all the anti nausea drugs I got last year. I ne...
by Basil
Fri Mar 02, 2018 9:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal is Over
Replies: 67
Views: 3652

Re: Reversal is Over

To those facing (should be IMO looking forward to) surgery - I was reversed last September. Bowel function is great. No issues day-to-day. Live, work and play without any concern about bathrooms. A lot of folks turn out well.
by Basil
Fri Mar 02, 2018 9:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety
Replies: 19
Views: 1063

Re: Scanxiety

Before cancer (2017 dx) I had never taken an anti anxiety med before. For scanxiety or other random cancer issues, I lean on Xanax. It works, at least for me. Only issue is it makes me really tired about three hours later.
by Basil
Mon Jan 29, 2018 9:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer - Standard of Care Approach or Neoadjuvant Chemo approach???
Replies: 30
Views: 1682

Re: Rectal Cancer - Standard of Care Approach or Neoadjuvant Chemo approach???

My signature tells my story. No radiation has been great for me. Just got to get through the years of waiting for a recurrence.

BTW, my bowel function has been excellent after losing 90% of my rectum. Docs attribute that to not having radiation.
by Basil
Mon Jan 29, 2018 9:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 186
Views: 47349

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Per the below I was dx’d t3,n1,m0. After six rounds of folfox I was t0,n0,m0 - path complete response. Only one datapoint, sure, but there may be some changes on the horizon if the data is good.
by Basil
Mon Jan 29, 2018 9:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Control
Replies: 9
Views: 743

Re: Control

Lotta free space in Alaska. Should be prime grounds for popping a squat in nature whenever the need may occur.
by Basil
Sun Jan 28, 2018 9:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What's In a Name
Replies: 11
Views: 926

Re: What's In a Name

Awesome. Enjoy it.
by Basil
Sat Jan 20, 2018 1:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR June 20 2017 passing blood now!!
Replies: 5
Views: 563

Re: LAR June 20 2017 passing blood now!!

Never thought I would congratulate someone with that diagnosis, but congrats!
by Basil
Sat Jan 20, 2018 1:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tumor gone, cea level of 1
Replies: 28
Views: 1463

Re: Tumor gone, cea level of 1

If you are stage iii, chemo significantly decreases tour chance of a recurrence. I’d do it 100 out of 100 times.
by Basil
Tue Jan 16, 2018 7:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Goblet Cell Carcinoid
Replies: 7
Views: 684

Re: Goblet Cell Carcinoid

I would echo the above and get a second opinion at a major cancer treatment center. That’s rare and you’ll want the best expertise in figuring out a “patch work” chemo protocol. The major centers have the expertise.
by Basil
Sun Jan 14, 2018 9:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan timing
Replies: 6
Views: 580

Re: Scan timing

Scan intervals depend on your chances of recurrence. It’s a good thing to have them spread out. It means your docs don’t think you’ll have a recurrence. If you were more at risk they would see you more often. Take solace in that.
by Basil
Sun Jan 14, 2018 12:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery is over!
Replies: 52
Views: 3168

Re: Surgery is over!

KathyLynn, Just my own experience, but I had six rounds of FOLFOX instead of radiation, with the plan being six more rounds of chemo after surgery. I had a path complete response after surgery and my surgeon cancelled the last six rounds of chemo. My case was presented to “conference” after surgery ...
by Basil
Sun Jan 07, 2018 10:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port Removal
Replies: 23
Views: 1567

Re: Port Removal

Congrats. I finished active treatment in late 2017 (NED) but my onc wants to keep the port for a year. All my appointments, cancellations and reappointments were monitored through an MDANDERSON phone app. I’m used to seeing a string of them waiting before me but the only one I have now is “Port remo...

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