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by Basil
Wed Jan 29, 2020 9:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking out of my mind...CEA climb and specks on lungs
Replies: 41
Views: 4788

Re: Freaking out of my mind...CEA climb and specks on lungs

My CEA was 1.4 after treatment and has fluctuated between 2 and 2.8 thereafter. At my last checkup my lab results weren't back yet but he sent me on my way. I was all like, "what about my CEA?" He said he wasn't concerned no matter what it was, unless it was something super, crazy high. It...
by Basil
Wed Jan 01, 2020 10:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Transcendental bowel movement
Replies: 5
Views: 720

Re: Transcendental bowel movement

My wife (no cancer for her) bought in of these. I was like WTF is that? She explained. I tried it but it didn’t do anything for me. And I lost 90% of my rectum in LAR.
by Basil
Tue Dec 17, 2019 8:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 597
Views: 164298

Re: NEW-Need some positivity here.

I like reading these stories. Had my six month blood draw and checkup (no scans) and all was well. In and out in 29 minutes. That’s 2.5 years from stage 3. Hope you all are doing well.
by Basil
Sat Nov 02, 2019 11:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy question
Replies: 4
Views: 537

Re: Neuropathy question

Weather just turned here as well. I’ll chalk it up to that for now.
by Basil
Fri Nov 01, 2019 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy question
Replies: 4
Views: 537

Neuropathy question

My last folfox infusion was summer 2017 and my neuropathy completely resolved by early 2018. Over the last week or so I’ve had minor numbness on and off in my feet. Nothing to write home about but it’s gotten to become noticeable. Has anyone heard of neuropathy resolving for the better part of two y...
by Basil
Fri Nov 01, 2019 6:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Daily Enema Therapy for LARS
Replies: 23
Views: 4338

Re: Daily Enema Therapy for LARS

Don’t know if this will work for you but it’s probably worth a try. I work a standard M-F, 8-5 schedule. In the early days after reversal when things were wonky, I’d drink 10-12 ounces of prune juice about 6 p.m. and by 8:30 or so my system was completely flushed out and the next day there would be ...
by Basil
Mon Oct 07, 2019 8:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1668
Views: 387586

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Good to see you’re still doing well all things considered.
by Basil
Fri Jun 28, 2019 8:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 777
Views: 306928

Re: For Stage III's: NED for how long now?

Had my two year scans this week - all clear.
by Basil
Fri Jun 28, 2019 8:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 year scan
Replies: 17
Views: 2656

Re: 2 year scan

Congrats. I just got the two year all clear today. Scanxiety was kicking my butt.
by Basil
Fri Jun 28, 2019 8:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Whole rectum removed
Replies: 12
Views: 2805

Re: Whole rectum removed

My tumor was 7 cm from the AV and I lost 90% of my rectum. I did not have radiation. I’m closing in on two years NED (learned today that I am still Ned after ct and butt probing) and my bowel function is great. It’s probably 90% of what it once was but much better than when I was diagnosed.
by Basil
Sat Mar 09, 2019 10:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Describing LAR surgery
Replies: 4
Views: 655

Re: Describing LAR surgery

I’m not the norm but I lost 90% of my rectum in LAR/TME and I’m basically the same as before cancer some 18 months later. Lucky, with “tight sphincter elasticity” (dr. word) and no radiation.
by Basil
Sat Mar 09, 2019 6:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just can't let it go
Replies: 31
Views: 3431

Re: Just can't let it go

Shoooot, I researched my adenocarcinoma like a maniac. At my one year colonoscopy. They removed a couple of polyps but otherwise said I was good to go. I didn’t follow up or ask any questions and haven’t given it a second thought.
by Basil
Wed Nov 21, 2018 9:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No chemoradiation before surgery
Replies: 12
Views: 1656

Re: No chemoradiation before surgery

I skipped radiation when it was standard of care for rectal cancer. All went well, so far. My unprofessional, biased advise is to avoid radiation if possible. It can mess you up permanently.
by Basil
Wed Nov 14, 2018 8:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adenocarcinoma PT3,PN2
Replies: 5
Views: 1073

Re: Adenocarcinoma PT3,PN2

If it’s t3n2m0, they cure the hell out of it in most cases. Gone; never to return. But if you have mets (m1 or above) it’s a much harder fight.
by Basil
Mon Nov 12, 2018 8:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To share my “ghost” story
Replies: 9
Views: 1456

Re: To share my “ghost” story

Good luck fellow ghost-want-to-be.

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