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by Basil
Wed Aug 05, 2020 8:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1710
Views: 420069

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I have my first appointment at Dana Farber since before the pandemic started tomorrow morning. They called today with a list of COVID questions. I'm planning on driving down around 5:15 AM to get there at 6:15 AM for bloodwork and a 7:30 AM appointment. I'll wear my own mask into the building and t...
by Basil
Thu Jun 04, 2020 9:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just got diagnosed - advice appreciated
Replies: 22
Views: 2692

Re: Just got diagnosed - advice appreciated

I don’t have any specific advice (other than get Ativan in your infusion; they asked if I wanted it and I accepted) - fusions were easy.
by Basil
Tue May 26, 2020 7:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 798
Views: 328560

Re: For Stage III's: NED for how long now?

I’ve got my three year scans coming in early July. Haven’t thought about cancer too much in a while (a great thing) but you everyone here knows how scan time goes. I was diagnosed March 2017, had a path complete response, surgery, and my last all clear (blood and physical exam only) last December. I...
by Basil
Tue May 26, 2020 6:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 82
Views: 23021

Re: Please help, input needed

I remember feeling like I couldn’t do more chemo. I didn’t have that much of it but it hit me pretty hard. When I felt like I couldn’t handle another round, I did the stiff upper lip bit and had another round. Terrible, unhelpful advice, I know. But Just keep going. It ends faster than you think for...
by Basil
Wed May 13, 2020 8:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to the club we never wanted to join...
Replies: 7
Views: 1260

Re: New to the club we never wanted to join...

This was me three years ago. I was stage 3 and treated for 4.5 months with chemo and surgery, summarily discharged from treatment because additional treatment would be “overkill” and have been NED ever since. I will note that one of my favorite cancer nights was dr. Googling and getting hits to this...
by Basil
Wed Jan 29, 2020 9:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking out of my mind...CEA climb and specks on lungs
Replies: 41
Views: 5617

Re: Freaking out of my mind...CEA climb and specks on lungs

My CEA was 1.4 after treatment and has fluctuated between 2 and 2.8 thereafter. At my last checkup my lab results weren't back yet but he sent me on my way. I was all like, "what about my CEA?" He said he wasn't concerned no matter what it was, unless it was something super, crazy high. It...
by Basil
Wed Jan 01, 2020 10:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Transcendental bowel movement
Replies: 5
Views: 845

Re: Transcendental bowel movement

My wife (no cancer for her) bought in of these. I was like WTF is that? She explained. I tried it but it didn’t do anything for me. And I lost 90% of my rectum in LAR.
by Basil
Tue Dec 17, 2019 8:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 609
Views: 181163

Re: NEW-Need some positivity here.

I like reading these stories. Had my six month blood draw and checkup (no scans) and all was well. In and out in 29 minutes. That’s 2.5 years from stage 3. Hope you all are doing well.
by Basil
Sat Nov 02, 2019 11:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy question
Replies: 4
Views: 629

Re: Neuropathy question

Weather just turned here as well. I’ll chalk it up to that for now.
by Basil
Fri Nov 01, 2019 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy question
Replies: 4
Views: 629

Neuropathy question

My last folfox infusion was summer 2017 and my neuropathy completely resolved by early 2018. Over the last week or so I’ve had minor numbness on and off in my feet. Nothing to write home about but it’s gotten to become noticeable. Has anyone heard of neuropathy resolving for the better part of two y...
by Basil
Fri Nov 01, 2019 6:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Daily Enema Therapy for LARS
Replies: 23
Views: 4922

Re: Daily Enema Therapy for LARS

Don’t know if this will work for you but it’s probably worth a try. I work a standard M-F, 8-5 schedule. In the early days after reversal when things were wonky, I’d drink 10-12 ounces of prune juice about 6 p.m. and by 8:30 or so my system was completely flushed out and the next day there would be ...
by Basil
Mon Oct 07, 2019 8:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1710
Views: 420069

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Good to see you’re still doing well all things considered.
by Basil
Fri Jun 28, 2019 8:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 798
Views: 328560

Re: For Stage III's: NED for how long now?

Had my two year scans this week - all clear.
by Basil
Fri Jun 28, 2019 8:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 year scan
Replies: 17
Views: 2920

Re: 2 year scan

Congrats. I just got the two year all clear today. Scanxiety was kicking my butt.
by Basil
Fri Jun 28, 2019 8:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Whole rectum removed
Replies: 12
Views: 3044

Re: Whole rectum removed

My tumor was 7 cm from the AV and I lost 90% of my rectum. I did not have radiation. I’m closing in on two years NED (learned today that I am still Ned after ct and butt probing) and my bowel function is great. It’s probably 90% of what it once was but much better than when I was diagnosed.

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