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by mhf1986
Sun Jul 22, 2018 1:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PERMANENT COLOSTOMY/VS RESTRUCTURE
Replies: 9
Views: 204

Re: PERMANENT COLOSTOMY/VS RESTRUCTURE

DH has had his colostomy for almost 2 years now. The restructure failed a week after the surgery, resulting in sepsis. Surgeon said the intestines were just too weak to hold but he wanted to give DH a chance at it. I wish we had chosen the ostomy going in because the sepsis delayed treatment by at l...
by mhf1986
Sat Jul 21, 2018 7:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon Cancer with mets to liver
Replies: 6
Views: 258

Re: Colon Cancer with mets to liver

People surprise doctors all the time. That's why it's called 'practicing medicine.' :lol: According to the first oncology group my DH saw, he wasn't supposed to be here right now! Highly second the "Get to a major cancer center." They have all the bells and whistles. There are other treatm...
by mhf1986
Thu Jul 19, 2018 5:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need any suggestions
Replies: 13
Views: 519

Re: I need any suggestions

We have met with Dr. Marshall as a consult...very easy to talk with him. Totally recommend. As DH has learned, SHE has to be her OWN advocate.
by mhf1986
Wed Jul 18, 2018 4:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I have less than a year to live
Replies: 7
Views: 851

Re: I have less than a year to live

DH is on Vectabix and getting a great response...I don't see that in your sig...did you try it?
by mhf1986
Sun Jul 01, 2018 12:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mom is dying
Replies: 18
Views: 1166

Re: My mom is dying

Sending you electronic prayers.
by mhf1986
Tue Jun 26, 2018 4:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: G-Tube placed
Replies: 11
Views: 498

Re: G-Tube placed

Sending prayers.
by mhf1986
Tue Jun 19, 2018 7:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is the day that chemo treatment ...
Replies: 17
Views: 696

Re: Is the day that cheno treatment ...

DH had "nap day" on his "unplug day". He'd get up, eat a little, nap, get disconnected, nap, shower, nap...by dinner time he was better. Next day he was tired but managed to work 1/2 day. I will second the drink a lot of liquids...water, flavored water, tea, lemonade, etc. If you...
by mhf1986
Sat Jun 16, 2018 8:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pizza
Replies: 21
Views: 860

Re: Pizza

DH avoids the pepperoni toppings with casings (he also avoids hot dogs with casings, I found skinless ones). But he eats the crumbled sausage and mushroom pizza made at Wegman's and Papa John's, etc, just fine.
by mhf1986
Fri Jun 15, 2018 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Immunotherapy Consultation at UCSF
Replies: 4
Views: 302

Re: My Immunotherapy Consultation at UCSF

S, can you do the OX without the 5FU...just the oxyalplatin? I don't know that 5FU did much for DH but OX was helpful. DH did FOLFOX+Avastin then just 5FU but had to go back to the full FOLFOX after a few months. His blood counts dropped too and he skipped a few rounds along the way. Fingers crossed...
by mhf1986
Fri Jun 15, 2018 4:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Immunotherapy Consultation at UCSF
Replies: 4
Views: 302

Re: My Immunotherapy Consultation at UCSF

Hi Shana, thanks for the post. Always good to know what's out there. Have you had FOLFOX yet? DH started with that. Did wonders for about 14 months.

M
by mhf1986
Wed Jun 13, 2018 6:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU pump
Replies: 9
Views: 366

Re: 5FU pump

DH often took his pump out of the bag and tucked it in his pants pocket during the day. And at night, he simply tucked it in bed with us. Was a lot easier to manage than managing the bag it came in.

Agreeing with running it under the shirt, do that and it's easier to change clothes.

M
by mhf1986
Tue Jun 12, 2018 8:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have a little drinky drink during chemo?
Replies: 16
Views: 920

Re: Does anyone have a little drinky drink during chemo?

DH asked this question today: dr. said it would probably increase quality of life! So they discussed martinis and wine for awhile. As long as DH's liver function is OK, dr. said he could have something on occasion. Bilirubin is down to 2 from 6.4 a month ago and other numbers are improving so a mart...
by mhf1986
Thu Jun 07, 2018 4:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Symptom management at home
Replies: 14
Views: 760

Re: Symptom management at home

Hey RObin, We asked DH's oncologist the same question...why not drain? The response was to see if Vectabix does its job (so far it's been doing something because his belly is shrinking and the liver function tests are improving) and then maybe do some diurectics later. I've also read that the pocket...
by mhf1986
Thu Jun 07, 2018 8:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ASCO Annual Meeting 2018 (Abstracts)
Replies: 5
Views: 390

Re: ASCO Annual Meeting 2018 (Abstracts)

Any medical or scientific person on the forum who can tell us which ones are most promising or most interesting? My head is about to explode trying to read these . :?

M
by mhf1986
Tue Jun 05, 2018 2:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hand and foot syndrome
Replies: 9
Views: 371

Re: Hand and foot syndrome

Hi Cyn,

I've seen the socks at Bed Bath Beyond over near the hairdryers and such. Some places call them "spa socks". Amazon calls them moisturizing socks.

M

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