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by mhf1986
Sat Jun 16, 2018 8:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pizza
Replies: 19
Views: 428

Re: Pizza

DH avoids the pepperoni toppings with casings (he also avoids hot dogs with casings, I found skinless ones). But he eats the crumbled sausage and mushroom pizza made at Wegman's and Papa John's, etc, just fine.
by mhf1986
Fri Jun 15, 2018 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Immunotherapy Consultation at UCSF
Replies: 4
Views: 196

Re: My Immunotherapy Consultation at UCSF

S, can you do the OX without the 5FU...just the oxyalplatin? I don't know that 5FU did much for DH but OX was helpful. DH did FOLFOX+Avastin then just 5FU but had to go back to the full FOLFOX after a few months. His blood counts dropped too and he skipped a few rounds along the way. Fingers crossed...
by mhf1986
Fri Jun 15, 2018 4:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Immunotherapy Consultation at UCSF
Replies: 4
Views: 196

Re: My Immunotherapy Consultation at UCSF

Hi Shana, thanks for the post. Always good to know what's out there. Have you had FOLFOX yet? DH started with that. Did wonders for about 14 months.

M
by mhf1986
Wed Jun 13, 2018 6:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU pump
Replies: 9
Views: 234

Re: 5FU pump

DH often took his pump out of the bag and tucked it in his pants pocket during the day. And at night, he simply tucked it in bed with us. Was a lot easier to manage than managing the bag it came in.

Agreeing with running it under the shirt, do that and it's easier to change clothes.

M
by mhf1986
Tue Jun 12, 2018 8:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have a little drinky drink during chemo?
Replies: 10
Views: 367

Re: Does anyone have a little drinky drink during chemo?

DH asked this question today: dr. said it would probably increase quality of life! So they discussed martinis and wine for awhile. As long as DH's liver function is OK, dr. said he could have something on occasion. Bilirubin is down to 2 from 6.4 a month ago and other numbers are improving so a mart...
by mhf1986
Thu Jun 07, 2018 4:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Symptom management at home
Replies: 14
Views: 643

Re: Symptom management at home

Hey RObin, We asked DH's oncologist the same question...why not drain? The response was to see if Vectabix does its job (so far it's been doing something because his belly is shrinking and the liver function tests are improving) and then maybe do some diurectics later. I've also read that the pocket...
by mhf1986
Thu Jun 07, 2018 8:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ASCO Annual Meeting 2018 (Abstracts)
Replies: 5
Views: 308

Re: ASCO Annual Meeting 2018 (Abstracts)

Any medical or scientific person on the forum who can tell us which ones are most promising or most interesting? My head is about to explode trying to read these . :?

M
by mhf1986
Tue Jun 05, 2018 2:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hand and foot syndrome
Replies: 9
Views: 284

Re: Hand and foot syndrome

Hi Cyn,

I've seen the socks at Bed Bath Beyond over near the hairdryers and such. Some places call them "spa socks". Amazon calls them moisturizing socks.

M
by mhf1986
Mon Jun 04, 2018 7:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hand and foot syndrome
Replies: 9
Views: 284

Re: Hand and foot syndrome

DH used a lotion with Urea...Eucerin or another good name brand works well to soften the skin which seemed to relieve things. Check the ingredient label. He had bad HFS during Xeloda and finally switched back to infusions. I spread lotion on his feet every evening before bed. You could put the lotio...
by mhf1986
Sat Jun 02, 2018 10:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Symptom management at home
Replies: 14
Views: 643

Re: Symptom management at home

Does she have edema in the feet/legs? Try compression socks. Really work. Nurse saw DH wearing them on Tuesday and said she wished all her patients wore them. They come in many different levels of compression. You may have to help get them on. Also leg massage, gently stroking up the leg. Google &qu...
by mhf1986
Tue May 29, 2018 10:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stoma Reversal or Not
Replies: 23
Views: 686

Re: Stoma Reversal or Not

DH has a permanent stoma after the reconnect failed a week after the tumor removal. He has switched from emptying/cleaning pouches to 1-time use system called Mio Click. Yes, you still have to find a bathroom but you just remove the pouch, put it in a special ziploc disposal bag, and throw it out. T...
by mhf1986
Sun May 20, 2018 1:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A Question for Caregivers
Replies: 20
Views: 666

Re: A Question for Caregivers

Abso-freaking-lutely. At the oddest times and the weirdest places. I get jealous watching old couples plod around the grocery. I cry in the shower. I despair because I can't fix this.
by mhf1986
Wed May 16, 2018 7:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda, Avastin, post nasal drip and a cough
Replies: 5
Views: 244

Re: Xeloda, Avastin, post nasal drip and a cough

DH has the same drip. We were told it's because of the decreased nose hairs, everything just flows out.
by mhf1986
Tue May 15, 2018 7:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sustol Injection Pain
Replies: 4
Views: 173

Re: Sustol Injection Pain

DH had zofran and steroids as pre-meds in his IV, and zofran and compezine pills to take at home. He never even used the pills.
by mhf1986
Sun May 13, 2018 1:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newbie here: gallbladder or recurrence? Anyone know if gallbladder issues are common after folofox?
Replies: 6
Views: 285

Re: Newbie here: gallbladder or recurrence? Anyone know if gallbladder issues are common after folofox?

I"m thinking DH has similar issue...CT scan last week showed gallstones and bilirubin is up to 6.5. He's not jaundiced looking. We meet with the oncologist on Tuesday and I am going to request an ultrasound. I wonder if there is something blocking the flow from the liver like a gallbladder full...

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