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by mhf1986
Tue Mar 27, 2018 7:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo opitions
Replies: 12
Views: 767

Re: Chemo opitions

If you try Xeloda and don't like it, ask to switch to 5FU. DH was on 5fu and switched to Xeloda after a year. He got such bad diarrhea and hand/foot syndrome that he asked to switch back to 5fu after 2 months.

M
by mhf1986
Thu Mar 15, 2018 5:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Emergency Room Trip
Replies: 5
Views: 824

Re: Emergency Room Trip

Infusion went fine today. Dr. ordered a CA 19-9 test today, first time for it. He normally just orders a CEA every month.
by mhf1986
Tue Mar 13, 2018 8:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Emergency Room Trip
Replies: 5
Views: 824

Emergency Room Trip

Well that was fun...DH was complaining about shortness of breath Sunday evening. He also seemed warm. Temp showed 101.3 at 8:45 p.m. Up to 101.7 at 9:15...call dr. He says get to the emergency room and prepare to stay overnight. He called ahead and they saw us almost immediately. Temp over 102. Bloo...
by mhf1986
Fri Mar 09, 2018 6:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible for long term remission with only chemo?
Replies: 31
Views: 2163

Re: Possible for long term remission with only chemo?

Yes, questions need to be asked! What makes this cancer so tough, so different? Why can we put other types into remission or cure and not this one YET? What is being done to move research forward more quickly? Is there a cure waiting around the corner but it will just take a west coast doctor and an...
by mhf1986
Sun Mar 04, 2018 10:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Alcohol use since diagnosis
Replies: 28
Views: 2141

Re: Alcohol use since diagnosis

DH had a few margaritas last weekend while we were on vacation in Florida. Even had the permission of his oncologist! Perhaps a dozen a day isn't the way to go because it would too much pressure on liver.
by mhf1986
Wed Feb 21, 2018 8:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda vs. 5FU
Replies: 27
Views: 1035

Re: Xeloda vs. 5FU

Susan, YES, in response to your question. DH found the side effects from the Xeloda much worse than the 5fu. He was taking 8 Imodium a day and I thought we were going to have to ask for the prescription stuff. I was grateful he had a colostomy pouch! He lost 3 pounds in 7 weeks which isn't much but ...
by mhf1986
Wed Feb 21, 2018 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mr Ziggy has passed away
Replies: 17
Views: 1670

Re: Mr Ziggy has passed away

Sending you some hugs and prayers. Cuddle your kitty.

M
by mhf1986
Wed Feb 21, 2018 6:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda vs. 5FU
Replies: 27
Views: 1035

Re: Xeloda vs. 5FU

DH did 5FU for 12 months and switched to Xeloda. He was on 3000mg a day. Diarrhea for most of the time, peeling hands and feet. Bilirubin went up so the onc delayed treatment for 7 weeks. He has now switched back. Yes, it was nice not carrying around the pump and it was nice going every 3 weeks (for...
by mhf1986
Sat Feb 17, 2018 2:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Black
Replies: 8
Views: 860

Re: Black

I"m not a nurse, just a caregiver, but I did read that Zofran can also play havoc with depression/moods. DH has chemo on alternate Tuesdays and we've dubbed those following Thursdays "nap day" because he is so sleepy and dark. Usually, I can talk him into the car around lunch after th...
by mhf1986
Sat Feb 17, 2018 9:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 185
Views: 9642

Re: any peeps with BRAF mutation on here?

Mrs. Zig, my deepest condolences to you. Prayers, thoughts, hugs, more prayers too.

M
by mhf1986
Thu Feb 15, 2018 4:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Health Insurance Help
Replies: 13
Views: 802

Re: Health Insurance Help

Couple of ideas: Nurse navigator or advocate at the hospital may be able to look over his work's FMLA policy and have ideas. Can he work from home? Work longer days on "off weeks"? I"m able to work 2 days a week at home (like today) during chemo weeks to help out DH. But I did have to...
by mhf1986
Wed Feb 14, 2018 7:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 185
Views: 9642

Re: any peeps with BRAF mutation on here?

Mrs. Z, Sending you hugs and prayers. Am at a loss for words. Well, I will say do what feels right for you and for him, that's all that matters. As far as scheduling goes, DH has blood work on Friday or Saturday, maybe Monday, at a local lab; results are ready either the day before treatment or the ...
by mhf1986
Tue Feb 13, 2018 8:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 185
Views: 9642

Re: any peeps with BRAF mutation on here?

Hi Mrs Z! Did you all go to the hospital today to get Mr Z checked out? We went up for FOLOX+A, first treatment since Dec 26. Sort of glad to be back into the routine. New scheduling system causing problems for us (a 3 hour wait between Dr and infusion? no thanks) but perhaps they will get it worked...
by mhf1986
Sun Feb 11, 2018 6:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 185
Views: 9642

Re: any peeps with BRAF mutation on here?

I'm not claiming I'm amazing...Any supportive spouse, friend, relative, or buddy of a patient is a rockstar.

The patients are the real heroes.
by mhf1986
Fri Feb 09, 2018 5:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 185
Views: 9642

Re: any peeps with BRAF mutation on here?

Sending you some hugs Mrs Z and hope you are doing well. And you too RobinO. We just got back from blood draw; hopefully back on the treatment path Tuesday. Lab people couldn't find the Dr's orders but I happened to have his email and since DH is at that lab every other week, they did them! Then, su...

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