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by mhf1986
Sun May 20, 2018 1:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A Question for Caregivers
Replies: 20
Views: 506

Re: A Question for Caregivers

Abso-freaking-lutely. At the oddest times and the weirdest places. I get jealous watching old couples plod around the grocery. I cry in the shower. I despair because I can't fix this.
by mhf1986
Wed May 16, 2018 7:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda, Avastin, post nasal drip and a cough
Replies: 5
Views: 208

Re: Xeloda, Avastin, post nasal drip and a cough

DH has the same drip. We were told it's because of the decreased nose hairs, everything just flows out.
by mhf1986
Tue May 15, 2018 7:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sustol Injection Pain
Replies: 4
Views: 131

Re: Sustol Injection Pain

DH had zofran and steroids as pre-meds in his IV, and zofran and compezine pills to take at home. He never even used the pills.
by mhf1986
Sun May 13, 2018 1:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newbie here: gallbladder or recurrence? Anyone know if gallbladder issues are common after folofox?
Replies: 6
Views: 241

Re: Newbie here: gallbladder or recurrence? Anyone know if gallbladder issues are common after folofox?

I"m thinking DH has similar issue...CT scan last week showed gallstones and bilirubin is up to 6.5. He's not jaundiced looking. We meet with the oncologist on Tuesday and I am going to request an ultrasound. I wonder if there is something blocking the flow from the liver like a gallbladder full...
by mhf1986
Fri May 11, 2018 12:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADAPT - Dr. Lin ONGOING Thread
Replies: 94
Views: 11747

Re: ADAPT - Dr. Lin ONGOING Thread

Could you elaborate on "extra stress to liver markers"? DH's bilirubin is up to 4.5 and he is extremely fatigued. I don't want to impact it further. I thought about buying a box of Tagamet but haven't so far. Have been giving him extra Vitamin D along with regular vitamins and extra juice....
by mhf1986
Wed May 09, 2018 7:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back to hospital for ascites
Replies: 11
Views: 796

Re: Back to hospital for ascites

Yep...us too...about 1.5 L drained Monday and again on Tuesday from lungs. Breathing much better but appetite not much. CT scan also revealed 2 cm growth in 2 liver tumors and also growth of lung nodes since January. FOLFOX done but it worked 18 months. Oncologist called this afternoon and said DH c...
by mhf1986
Wed May 09, 2018 5:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Teri's TIL trial at NCI
Replies: 10
Views: 456

Re: Teri's TIL trial at NCI

Thank you for doing this! I will wave at you tomorrow as I drive by NIH every day to get to my office. I say prayers each time I go past the staff entrance that the doctors are successful there.
by mhf1986
Sun May 06, 2018 9:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CAR-T Immunotherapy Eliminates Metastatic Colorectal Cancer in Mice
Replies: 5
Views: 658

Re: CAR-T Immunotherapy Eliminates Metastatic Colorectal Cancer in Mice

Is this the same type of study as the one we read about at Stanford a few months ago? I seem to remember they starting recruiting for the trial but only for Leukemia patients?
by mhf1986
Tue Mar 27, 2018 7:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo opitions
Replies: 12
Views: 1142

Re: Chemo opitions

If you try Xeloda and don't like it, ask to switch to 5FU. DH was on 5fu and switched to Xeloda after a year. He got such bad diarrhea and hand/foot syndrome that he asked to switch back to 5fu after 2 months.

M
by mhf1986
Thu Mar 15, 2018 5:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Emergency Room Trip
Replies: 5
Views: 1058

Re: Emergency Room Trip

Infusion went fine today. Dr. ordered a CA 19-9 test today, first time for it. He normally just orders a CEA every month.
by mhf1986
Tue Mar 13, 2018 8:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Emergency Room Trip
Replies: 5
Views: 1058

Emergency Room Trip

Well that was fun...DH was complaining about shortness of breath Sunday evening. He also seemed warm. Temp showed 101.3 at 8:45 p.m. Up to 101.7 at 9:15...call dr. He says get to the emergency room and prepare to stay overnight. He called ahead and they saw us almost immediately. Temp over 102. Bloo...
by mhf1986
Fri Mar 09, 2018 6:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible for long term remission with only chemo?
Replies: 31
Views: 3147

Re: Possible for long term remission with only chemo?

Yes, questions need to be asked! What makes this cancer so tough, so different? Why can we put other types into remission or cure and not this one YET? What is being done to move research forward more quickly? Is there a cure waiting around the corner but it will just take a west coast doctor and an...
by mhf1986
Sun Mar 04, 2018 10:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Alcohol use since diagnosis
Replies: 28
Views: 3069

Re: Alcohol use since diagnosis

DH had a few margaritas last weekend while we were on vacation in Florida. Even had the permission of his oncologist! Perhaps a dozen a day isn't the way to go because it would too much pressure on liver.
by mhf1986
Wed Feb 21, 2018 8:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda vs. 5FU
Replies: 27
Views: 1680

Re: Xeloda vs. 5FU

Susan, YES, in response to your question. DH found the side effects from the Xeloda much worse than the 5fu. He was taking 8 Imodium a day and I thought we were going to have to ask for the prescription stuff. I was grateful he had a colostomy pouch! He lost 3 pounds in 7 weeks which isn't much but ...
by mhf1986
Wed Feb 21, 2018 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mr Ziggy has passed away
Replies: 17
Views: 2249

Re: Mr Ziggy has passed away

Sending you some hugs and prayers. Cuddle your kitty.

M

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