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by mhf1986
Fri Aug 10, 2018 7:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3535
Views: 539464

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Hi Kim, If the Doctors agree, and if your DH feels up to it, do what you/he want. We don't have hounds or kids: DH likes to work, I work anyway, and we like to travel. So when he's feeling good, we do weekend trips and we've done longer trips too. The two week trip was a bit much but the 1 week ones...
by mhf1986
Tue Jul 31, 2018 6:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3535
Views: 539464

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Sending you hugs Carlotta! I've often told my DH that WE have to be the advocates and ask the questions. Often, doctors don't recommend treatments because they don't know or they don't have it at their hospital. We were told Pallative too because of numerous liver mets. Here we are 22 months later. ...
by mhf1986
Tue Jul 24, 2018 7:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please pass your positivity/wisdom today
Replies: 19
Views: 1433

Re: Please pass your positivity/wisdom today

Vectibix (aka p-mab per the oncologist and nurse) ROCKS! Really doing a number on DH's liver mets. DH has the face rash (his nose looks like he's been in a fight with all the scabs) and chest/back rash. Nurse called it stable looking but we didn't get a grade. We were told heavy duty lotion (he's us...
by mhf1986
Tue Jul 24, 2018 7:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I have less than a year to live
Replies: 9
Views: 1374

Re: I have less than a year to live

Totally get not wanting to be ill all the time. FOLFOX was a chore for DH, bone tired, ill feeling, diarrhea, etc. He started Vectabix aka p-mab (an EGFR therapy) in May and the only side effect is the face/chest rash. He looks like he's 16 again with zits but I don't care what he looks like. The nu...
by mhf1986
Sun Jul 22, 2018 1:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PERMANENT COLOSTOMY/VS RESTRUCTURE
Replies: 9
Views: 337

Re: PERMANENT COLOSTOMY/VS RESTRUCTURE

DH has had his colostomy for almost 2 years now. The restructure failed a week after the surgery, resulting in sepsis. Surgeon said the intestines were just too weak to hold but he wanted to give DH a chance at it. I wish we had chosen the ostomy going in because the sepsis delayed treatment by at l...
by mhf1986
Sat Jul 21, 2018 7:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon Cancer with mets to liver
Replies: 10
Views: 611

Re: Colon Cancer with mets to liver

People surprise doctors all the time. That's why it's called 'practicing medicine.' :lol: According to the first oncology group my DH saw, he wasn't supposed to be here right now! Highly second the "Get to a major cancer center." They have all the bells and whistles. There are other treatm...
by mhf1986
Thu Jul 19, 2018 5:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need any suggestions
Replies: 13
Views: 660

Re: I need any suggestions

We have met with Dr. Marshall as a consult...very easy to talk with him. Totally recommend. As DH has learned, SHE has to be her OWN advocate.
by mhf1986
Wed Jul 18, 2018 4:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I have less than a year to live
Replies: 9
Views: 1374

Re: I have less than a year to live

DH is on Vectabix and getting a great response...I don't see that in your sig...did you try it?
by mhf1986
Sun Jul 01, 2018 12:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mom is dying
Replies: 24
Views: 2669

Re: My mom is dying

Sending you electronic prayers.
by mhf1986
Tue Jun 26, 2018 4:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: G-Tube placed
Replies: 11
Views: 564

Re: G-Tube placed

Sending prayers.
by mhf1986
Tue Jun 19, 2018 7:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is the day that chemo treatment ...
Replies: 17
Views: 796

Re: Is the day that cheno treatment ...

DH had "nap day" on his "unplug day". He'd get up, eat a little, nap, get disconnected, nap, shower, nap...by dinner time he was better. Next day he was tired but managed to work 1/2 day. I will second the drink a lot of liquids...water, flavored water, tea, lemonade, etc. If you...
by mhf1986
Sat Jun 16, 2018 8:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pizza
Replies: 21
Views: 971

Re: Pizza

DH avoids the pepperoni toppings with casings (he also avoids hot dogs with casings, I found skinless ones). But he eats the crumbled sausage and mushroom pizza made at Wegman's and Papa John's, etc, just fine.
by mhf1986
Fri Jun 15, 2018 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Immunotherapy Consultation at UCSF
Replies: 4
Views: 340

Re: My Immunotherapy Consultation at UCSF

S, can you do the OX without the 5FU...just the oxyalplatin? I don't know that 5FU did much for DH but OX was helpful. DH did FOLFOX+Avastin then just 5FU but had to go back to the full FOLFOX after a few months. His blood counts dropped too and he skipped a few rounds along the way. Fingers crossed...
by mhf1986
Fri Jun 15, 2018 4:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Immunotherapy Consultation at UCSF
Replies: 4
Views: 340

Re: My Immunotherapy Consultation at UCSF

Hi Shana, thanks for the post. Always good to know what's out there. Have you had FOLFOX yet? DH started with that. Did wonders for about 14 months.

M
by mhf1986
Wed Jun 13, 2018 6:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU pump
Replies: 9
Views: 450

Re: 5FU pump

DH often took his pump out of the bag and tucked it in his pants pocket during the day. And at night, he simply tucked it in bed with us. Was a lot easier to manage than managing the bag it came in.

Agreeing with running it under the shirt, do that and it's easier to change clothes.

M

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