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by SarahS
Tue May 08, 2018 10:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and it's EVERYWHERE...what to do now??
Replies: 24
Views: 1804

Re: Just diagnosed and it's EVERYWHERE...what to do now??

First off, don't panic! . Easier said than done, I know. My husband also had extensive metastatic spread at diagnosis in Nov 2016 and he;s still here fighting today. We are also in Atlanta Georgia. If you are not already I would go to Emory university hospital, they have access to some of the latest...
by SarahS
Tue Apr 10, 2018 12:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New TIL Trial NIH/NCI NCT03412877
Replies: 4
Views: 644

Re: New TIL Trial NIH/NCI NCT03412877

Thank you DH2Sleen for that comprehensive explanation. This is one to watch for sure
by SarahS
Mon Apr 09, 2018 7:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New TIL Trial NIH/NCI NCT03412877
Replies: 4
Views: 644

Re: New TIL Trial NIH/NCI NCT03412877

Thanks for posting about this sdino

Can anyone explain how this differs from the trial that Sleen had success on?
by SarahS
Mon Mar 26, 2018 12:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 years war
Replies: 20
Views: 2688

Re: 8 years war

Thank you rp1954 for sharing this intimate account of your ongoing "war" You must be rather tired, becasue it is indeed a war. Since the very first time I started reading this forum you have been a huge inspiration to me . My husband was stage 4 at diagnosis, with widespread metastases and...
by SarahS
Sat Jan 20, 2018 2:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking For Hope DH Stage IV CRC
Replies: 3
Views: 511

Re: Looking For Hope DH Stage IV CRC

I think my husband has a very similar mutational situation as your

This is a clinical trial I would be looking into. I don;t know if there is a center near you that is running it


https://clinicaltrials.gov/ct2/show/NCT02753127
by SarahS
Fri Jul 07, 2017 7:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3523
Views: 525522

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Melissa, I am so sorry to hear about you being upset, I know all about the hiding of tears :cry: I also know that both my husband and myself have our good and our bad days, days of hope, days of optimism, days of despair and the occasional rare days of normalcy when we don't think about the cancer a...
by SarahS
Tue Jun 27, 2017 9:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3523
Views: 525522

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Jess, I am so sorry to hear you are having such a hard time, believe me I know how you feel. I just wanted to let you know that all those feelings are of course perfectly normal, even the nightmares unfortunately, butt--- it does get better As the chemo starts to work on the tumors and you get into ...
by SarahS
Tue Jun 27, 2017 9:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things people say or don't say but it's okay
Replies: 82
Views: 14381

Re: Things people say or don't say but it's okay

I love this, being also open minded and maybe just a little bit crazy. If I wasn't already crazy the whole cancer/care giver thing has driven me that way :wink: I'm very much into nutrition and supplements, always have been even before hubby got his diagnosis. Now to try and get him to eat a few mor...
by SarahS
Thu Jun 22, 2017 7:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is it ok to share good reports while getting chemo treatment
Replies: 9
Views: 1651

Re: Is it ok to share good reports while getting chemo treatment

Yes please do share good news here, I love hearing other people's good news We're all in this stupid cancer boat together so hearing someone made it safely to shore or at least some of the way there is ALWAYS encouraging To me anyway, maybe not everyone feels that way, I even like hearing others goo...
by SarahS
Wed Jun 21, 2017 9:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda stomach pains
Replies: 2
Views: 847

Xeloda stomach pains

Has anyone else had problems with severe stomach pains on xeloda ? We switched over to xeloda and avastin 3 weeks ago instead of doing the 5-fu infusions. So it being the first go with xeloda our onc started us at 2500mg a day for 2 weeks with one week off. Everything was fine for the first week to ...
by SarahS
Mon Jun 19, 2017 5:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trial at NIH for G12V KRAS mutant
Replies: 6
Views: 1158

Re: Trial at NIH for G12V KRAS mutant

By the way: this trial is closely related to the TIL trial our Celine underwent, and had success with :)

Yes indeed, which is why I am interested :)

Thank you again Maia, you are fantastic
by SarahS
Mon Jun 19, 2017 2:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3523
Views: 525522

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Kim- I have been meaning to respond to your last post for days now, but I am sure you know how it is when you are dealing with a loved one with cancer, nothing quite goes as planned Yes , I don't know exactly what I was expecting at MSK, maybe that the doc would bring a bottle of the shelf and say, ...
by SarahS
Mon Jun 19, 2017 2:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trial at NIH for G12V KRAS mutant
Replies: 6
Views: 1158

Re: Trial at NIH for G12V KRAS mutant

Thanks for this Maia

I am always keeping an eye open for promising and relevant sounding trials

I am fairly sure my husband has the G12 K Ras mutation, but how would we go about finding out about the HLA-A 1101 positive part?
by SarahS
Thu Jun 15, 2017 12:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3523
Views: 525522

Re: Wives of husbands with Stage IV Colon Freaking Cancer

That's fantastic news Lena

Here's to many more good scans

Enjoy that wedding :)
by SarahS
Wed Jun 14, 2017 8:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3523
Views: 525522

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Best wishes Lena,

All the very best positive vibes coming your way :D

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