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by cynthia_b
Sat Apr 01, 2017 7:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: strong neurological reaction-frightened
Replies: 6
Views: 1652

Re: strong neurological reaction-frightened

The Craziest thing is it hurts to cry. My eyes go into spasms. I can't even cry. Guess I j
ust better stop feeling down and scared. Alternatives?
by cynthia_b
Thu Mar 30, 2017 8:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: strong neurological reaction-frightened
Replies: 6
Views: 1652

strong neurological reaction-frightened

I had my first infusion yesterday of Oxilatin. Was doing great until the last fifteen minutes but I started feeling "wonky" in my brain and felt muscle spasms, intense tingling and "paralysis" in hands, face, legs. Difficulty talking, swallowing and fast onset of the "cold&q...
by cynthia_b
Wed Mar 29, 2017 6:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long until you see light at the end of the tunnel?
Replies: 27
Views: 5452

Re: How long until you see light at the end of the tunnel?

Today I start my first tx of Xeloda with infusion and oral drugs. The now knowing how things will go is stressful. I want the day to be over so I can start "dealing with it" rather than thinking about it. While I know everyone is different with reactions and side effects I am sorry Judi th...
by cynthia_b
Wed Mar 29, 2017 6:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long until you see light at the end of the tunnel?
Replies: 27
Views: 5452

Re: How long until you see light at the end of the tunnel?

What is a PKS supplement? Thx,
Cynthia

Eventually I got my mom a PSK supplement (with our onc's agreement) which worked like a charm in terms of relieving side effects. She tolerated the remaining sessions better.
by cynthia_b
Mon Mar 13, 2017 10:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coloring hair during Chemo
Replies: 20
Views: 27958

Re: Coloring hair during Chemo

Thank you for this discussion even though it is now dated. Still relevant for me. I have a very public job and (must be) vain enough to worry about this. Always wondered what I would like naturally at this point. Maybe a very short haircut and let my gray/white shine through. Hope you are all well. ...
by cynthia_b
Fri Mar 10, 2017 5:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New DX, Realistic Expectations
Replies: 13
Views: 5046

Re: New DX, Realistic Expectations

So helpful all! I appreciate the different points of view and the help on supplements. I bought a book by Quillan, Beating Cancer with Nutrition and your suggestions validate many of what is suggested in my reading. I do have a supportive school district - I know they will accept what ever happens. ...
by cynthia_b
Wed Mar 08, 2017 9:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New DX, Realistic Expectations
Replies: 13
Views: 5046

New DX, Realistic Expectations

I am so thankful to have found this site. I am two weeks post surgery with a laparoscopic resection of sigmoid region of colon. Despite some frequent and painful BM's I feel good and am fully functional. New language but tumor got an unfortunate T4 rating and there was 1 of 18 nodes affected. Facing...
by cynthia_b
Tue Mar 07, 2017 8:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newbie...just started Folfox
Replies: 30
Views: 5407

Re: Newbie...just started Folfox

Hi Newbie, I am very early into this process as having just had a colon resection in late Feb and now healing before meeting oncologists to start chemo. I am more fearful of chemo than surgery. I am hopeful you will feel better in upcoming rounds. Wondering how often you will be receiving treatment?...

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