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by inorganic8
Wed Oct 23, 2019 1:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Emergency HIPEC, possible?
Replies: 5
Views: 583

Re: Emergency HIPEC, possible?

Can you get HIPEC within a few weeks? I expect so. Is it an option for you? There's no way for me to know. Selecting patients is very complicated. My husband had his done by an amazing and compassionate surgeon at the Moffitt Cancer Center in Tampa, Florida. His name is Dr. Sean Dineen. Dr. Dineen i...
by inorganic8
Wed Oct 23, 2019 1:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Joe Rogers (1974-2019)
Replies: 10
Views: 559

Joe Rogers (1974-2019)

I lost my beloved husband of 21 years this June. You were all here with me at the start, whether you realize it or not. Thank you for your support and friendship. My Joe was a big Dr. Who fan, so I have his ashes in a ceramic Tardis. Sure, it was supposed to be a cookie jar, but it works and the coo...
by inorganic8
Fri May 31, 2019 7:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things Not to Say and the Responses I want to Make (Rant)
Replies: 128
Views: 29843

Re: Things Not to Say and the Responses I want to Make (Rant)

I don't know how this site feels about thread resurrection, but I just had to share some more venting. My DH is now in hospice, and is resting comfortably. For that I am grateful. However, it is still amazing the things people think are ok to say to me right now. You would think, that if you are 45 ...
by inorganic8
Fri May 31, 2019 7:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: On a Clinical Trial but I Think We're Reaching the End
Replies: 17
Views: 2048

Re: On a Clinical Trial but I Think We're Reaching the End

And one more thing, because I need to vent a little: You would think, that if you are 45 years old and facing losing your husband of 21 years, that if people can't be helpful, they can at least not burden you with additional bull-spit. You would be wrong. Thus far, I have managed to keep my internal...
by inorganic8
Fri May 31, 2019 7:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: On a Clinical Trial but I Think We're Reaching the End
Replies: 17
Views: 2048

Re: On a Clinical Trial but I Think We're Reaching the End

Thank you all for your kindness. We have enrolled Joe in hospice. He did everything he could to fight, and outlived many a doctor's predictions, but it's time for him to be comfortable and at peace. He sleeps most of the time and with the medications, he is pain free. That's the first time in a long...
by inorganic8
Fri May 31, 2019 7:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: On a Clinical Trial but I Think We're Reaching the End
Replies: 17
Views: 2048

Re: On a Clinical Trial but I Think We're Reaching the End

Sorry to hear about your story. I had a similar diagnosis in Jan 2017 (tough month). I’m sure you and/or your doctors have already looked into it, but have you confirmed that he doesn’t have mutations for some of the new (highly effective) targeted therapies? Was an NGS completed that looked for NT...
by inorganic8
Thu May 23, 2019 12:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: On a Clinical Trial but I Think We're Reaching the End
Replies: 17
Views: 2048

On a Clinical Trial but I Think We're Reaching the End

Hi. It's been a while since I stopped in here. I've been in hiding ever since I revealed BigCarrot. Unfortunately, DH is not doing well. He fought long and hard for the last 2.5 years, and I'm still hoping for a miracle. I'll try to summarize our journey. DH was diagnosed with stage 4 colon cancer i...
by inorganic8
Wed May 16, 2018 2:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peritoneal CA secondary to Colon CA
Replies: 5
Views: 1240

Re: Peritoneal CA secondary to Colon CA

HIPEC surgeons? Dr. Sean Dineen at the Moffitt Cancer Center in Tampa Florida. He did my husbands surgery in January. DH was full of cancer. Now, he is not.

I’ll start another thread with more details, but to answer your question, get thee to Tampa.
by inorganic8
Wed Dec 06, 2017 1:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 and Progressing - Advice Appreciated
Replies: 1
Views: 888

Stage 4 and Progressing - Advice Appreciated

Hey, DH has stage 4 cancer in his sigmoid colon. It has spread to the peritoneal cavity. He has been on folfirinox and folfiri. The folfirinox worked for a while, but his disease is now progressing. We spoke with a HIPEC surgeon today and he was hesitant, but will do a laparoscopic inspection before...
by inorganic8
Wed Nov 15, 2017 4:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3547
Views: 657148

Re: Wives of husbands with Stage IV Colon Freaking Cancer

IlovemyFrenchie,

I’m not around too often and just saw this in two threads. I think I can help you. Email me. Use my forum name at gmail. You are not alone.
by inorganic8
Wed Nov 15, 2017 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Exploring HIPEC Surgery and How to Choose A Surgeon
Replies: 5
Views: 1556

Re: Exploring HIPEC Surgery and How to Choose A Surgeon

Email me. Use my handle followed by gmail. We have lots to talk about. It sounds like I can help.
by inorganic8
Wed Oct 18, 2017 2:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GOOD NEWS ON BEANSMAMA
Replies: 122
Views: 21376

Re: GOOD NEWS ON BEANSMAMA

Beansmama, I think about you every day. This is such amazing, fantastic, awesome, insert other adjectives, news. I am so, so, so happy for you. May your recovery continue at a rapid pace. You inspire us all.
by inorganic8
Wed Aug 16, 2017 7:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm officially separated
Replies: 8
Views: 1890

Re: I'm officially separated

You are both in my heart. You have experienced such cruelty when you deserve kindness and love. I'm so sorry this has happened to you. I am so glad you are removing yourself from that toxic behavior. Your feelings are valid. You deserve kindness, respect, and love. You are strong. Keep going and don...
by inorganic8
Wed Aug 16, 2017 7:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo Ports
Replies: 5
Views: 1223

Chemo Ports

DH has a lot of trouble with ports. He had one installed that never worked right. The replaced it with a power port. It worked great for about six months. Now, they can't get bloody return from it. Anyone else have port problems?

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