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by [Ana & Alex]
Wed Jul 11, 2018 12:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Janie passed away in Sept 2017
Replies: 3
Views: 678

Re: Janie passed away in Sept 2017

I'm sorry for your loss.
What a beautiful message from her sister... that one can be grateful for the time that one has, although suffering and loss are so present.
Sending a lot of strength to her loved ones...
Ana
by [Ana & Alex]
Wed Jul 11, 2018 12:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 6 years NED after stage IV
Replies: 21
Views: 887

Re: 6 years NED after stage IV

I'm having days with awful nightmares and I struggle with anxiety - with peaks and then with moments, where I forget that I had cancer... your head really plays tricks on you, even when one is feeling good and trying to move on from cancer. Thank you so much for sharing this. It gives me hope that I...
by [Ana & Alex]
Wed Jun 27, 2018 12:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Watch & Wait Approach?
Replies: 3
Views: 372

Re: Watch & Wait Approach?

Gtafoya please inform yourself really good before you think about refusing surgery. Watch and wait approaches are for people who had local tumors - without linfatic/vascular involvement I.e. without linf nodes affected I.e. without metastases. It is an option to consider when cancer is in an initial...
by [Ana & Alex]
Fri May 11, 2018 11:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 730
Views: 178039

Re: For Stage III's: NED for how long now?

I dreamt about this day so many times, when I could post a victory on this thread. Yesterday was my surgery's and stoma's birthday. My life is going so well. I'm working and having a ball with my baby girl. And I'm doing bloodwork every two months, CTs every six months and a colonoscopy per year. To...
by [Ana & Alex]
Wed Jan 24, 2018 12:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pain control after abdominal and rectal surgery
Replies: 2
Views: 386

Pain control after abdominal and rectal surgery

I've read recently the post from Axq99 after reversal surgery and wanted to chime in. Everyone is different in his or her physiology, and that means of course that everyone experiences pain differently. Surgeons use similar techniques, but there aren't two surgeries which are exactly the same. So ho...
by [Ana & Alex]
Sun Jan 21, 2018 1:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: those of you with a colostomy
Replies: 14
Views: 1078

Re: those of you with a colostomy

Dear betula, I am a 30 year old who had rectal cancer last year and chose to have a permanent colostomy. There are good days and bad days for everything in life. But I must say since I started irrigating I feel very good about my self and about my body image. I have a job where I have lots a meeting...
by [Ana & Alex]
Sat Jan 20, 2018 7:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tumor gone, cea level of 1
Replies: 28
Views: 1800

Re: Tumor gone, cea level of 1

Dear Caat55, Your body, your choice. There are lot of information about radical and wait and see approaches on this forum, if you search for it you will find a wealth of experiences. There are good and bad to both sides. That said, it really comes to the extent in which you are willing to take chanc...
by [Ana & Alex]
Wed Jan 17, 2018 10:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tribute to my dear friend Anne - aka BeansMama
Replies: 39
Views: 4337

Re: Tribute to my dear friend Anne - aka BeansMama

Im so really sorry :( I was acompannying her journey and was so happy for her results with Keytruda and for Larry's eviction surgery. I really though she was out of the woods. I'm really sad for her family, to experience such a loss, when things where finally getting better... I really don't underst...
by [Ana & Alex]
Wed Jan 17, 2018 10:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back in the fight
Replies: 61
Views: 6719

Re: Back in the fight

Dear macpudd, I don't know what to say. You had your treatment 4 years ago and I really hope that you aren't dealing with the C word anymore. Anything that goes on on the brain is a challenge, from a surgical point of view. I hope that they figure out fast what is going on and that they have a treat...
by [Ana & Alex]
Fri Dec 15, 2017 3:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stoma Life - Awsome Life :)
Replies: 8
Views: 895

Stoma Life - Awsome Life :)

Dear Colon Clubbers, After acompanying silently the frustrations and pains of many of you, who are suffering from LARS and poor quality of life - I decided to give you my input about the thing so many dread: a life with a permanent ostomy! From the beginning I must say I had a huge advantage: beeing...
by [Ana & Alex]
Tue Nov 28, 2017 2:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED three years after lung mets surgery
Replies: 12
Views: 1138

Re: Still NED three years after lung mets surgery

I'm so happy for you Sophy... you are an example of resilience for all of us.

I hope you are blessed with a cure and that your courage for seeking out other options outside your comfort zone pays you back with many happy years of a cancer free life.

Here's to NEDville forever!

All the best!
Ana
by [Ana & Alex]
Mon Nov 27, 2017 1:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1 month post CHEMO today!
Replies: 18
Views: 1309

Re: 1 month post CHEMO today!

Dear Benben, I am so happy reading about your conquests and life after chemo, you brought tears to my eyes. We have the same "last chemo"- day :D 27/10 I swallowed my 8 last Capecitabine pills. I cannot say I've bounced back yet, because of neuropathy (which started getting worse in my fee...
by [Ana & Alex]
Sat Nov 25, 2017 9:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pelvic Fluid
Replies: 5
Views: 657

Re: Pelvic Fluid

Thank you so much Marianne and Susie!
You gave me peace of mind for the time being.

Have a happy weekend with your loved ones.

Many thanks!
Ana
by [Ana & Alex]
Sat Nov 25, 2017 7:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pelvic Fluid
Replies: 5
Views: 657

Pelvic Fluid

I had my first CT after surgery and chemo done yesterday.
Everything seemed normal, no signs of local recurrence, no signs of metastatic disease. Except they saw some fluid in the small pelvis.

Can anyone relate?
Can this be normal I.e. be leftover from surgery?

Many thanks in advance!

Love,
Ana
by [Ana & Alex]
Wed Nov 22, 2017 9:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Next Scan--Next Week--Makes me crazy!
Replies: 7
Views: 1124

Re: Next Scan--Next Week--Makes me crazy!

Dear Becky, dear Susi, I feel ya. I have my first scan on Friday and I'm having trouble sleeping since yesterday. I really do enjoy life and the day goes by so fast! I'm enjoying work so much and the time I have with my daughter is so delicious... but at night, when I lay my head to sleep, it all co...

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