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by [Ana & Alex]
Fri Dec 15, 2017 3:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stoma Life - Awsome Life :)
Replies: 5
Views: 212

Stoma Life - Awsome Life :)

Dear Colon Clubbers, After acompanying silently the frustrations and pains of many of you, who are suffering from LARS and poor quality of life - I decided to give you my input about the thing so many dread: a life with a permanent ostomy! From the beginning I must say I had a huge advantage: beeing...
by [Ana & Alex]
Tue Nov 28, 2017 2:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED three years after lung mets surgery
Replies: 10
Views: 336

Re: Still NED three years after lung mets surgery

I'm so happy for you Sophy... you are an example of resilience for all of us.

I hope you are blessed with a cure and that your courage for seeking out other options outside your comfort zone pays you back with many happy years of a cancer free life.

Here's to NEDville forever!

All the best!
Ana
by [Ana & Alex]
Mon Nov 27, 2017 1:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1 month post CHEMO today!
Replies: 18
Views: 571

Re: 1 month post CHEMO today!

Dear Benben, I am so happy reading about your conquests and life after chemo, you brought tears to my eyes. We have the same "last chemo"- day :D 27/10 I swallowed my 8 last Capecitabine pills. I cannot say I've bounced back yet, because of neuropathy (which started getting worse in my fee...
by [Ana & Alex]
Sat Nov 25, 2017 9:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pelvic Fluid
Replies: 5
Views: 351

Re: Pelvic Fluid

Thank you so much Marianne and Susie!
You gave me peace of mind for the time being.

Have a happy weekend with your loved ones.

Many thanks!
Ana
by [Ana & Alex]
Sat Nov 25, 2017 7:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pelvic Fluid
Replies: 5
Views: 351

Pelvic Fluid

I had my first CT after surgery and chemo done yesterday.
Everything seemed normal, no signs of local recurrence, no signs of metastatic disease. Except they saw some fluid in the small pelvis.

Can anyone relate?
Can this be normal I.e. be leftover from surgery?

Many thanks in advance!

Love,
Ana
by [Ana & Alex]
Wed Nov 22, 2017 9:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Next Scan--Next Week--Makes me crazy!
Replies: 6
Views: 458

Re: Next Scan--Next Week--Makes me crazy!

Dear Becky, dear Susi, I feel ya. I have my first scan on Friday and I'm having trouble sleeping since yesterday. I really do enjoy life and the day goes by so fast! I'm enjoying work so much and the time I have with my daughter is so delicious... but at night, when I lay my head to sleep, it all co...
by [Ana & Alex]
Tue Nov 14, 2017 5:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone diagnosed in their 20's?
Replies: 16
Views: 729

Re: Anyone diagnosed in their 20's?

Hey Bina, I was diagnosed when I was 29. Finished chemo now for a couple of weeks and I'm hoping terribly for a long cancer free fully fullfilled life. No one that hasn't a chronic and potentially deadly illness in our age will really understand where we are coming from. I've heard some of the supid...
by [Ana & Alex]
Sat Nov 11, 2017 4:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The First day of the rest of my life...
Replies: 12
Views: 968

Re: The First day of the rest of my life...

Dear Colon Clubers, Thank you so much for your replies. I intend to keep visiting the forum and paying it forward as CRGuy said, but at the moment I really need to take a pause from cancer until I feel I've recovered emotionally. We are having a hard time still with all the side effects and getting ...
by [Ana & Alex]
Sat Oct 28, 2017 3:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The First day of the rest of my life...
Replies: 12
Views: 968

The First day of the rest of my life...

Dear colon clubbers, Just wanted to share with you that yesterday I took my last Chemo after dinner. Once I was put on Xeloda only, my quality of life as no comparison with how it was before, while receiving Oxaliplatin. I still have a number of side effects, but nothing that keeps me from smiling a...
by [Ana & Alex]
Thu Oct 26, 2017 11:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another colonoscopy before surgery?
Replies: 22
Views: 797

Re: Another colonoscopy before surgery?

I second everyone else, when it comes to tissue damage after radiation. I was pretty damaged myself, having suffered a 3 degree burn in my a-hole... You should choose your surgeon wisely, and be aware of the risks involved. I in my case had a sigmoidescopy and a CT scan before surgery. It was import...
by [Ana & Alex]
Thu Oct 05, 2017 4:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What made you drop Oxaliplatin?
Replies: 6
Views: 429

Re: What made you drop Oxaliplatin?

One more thing: If you take steroids and antihistamines for the allergic reaction it will get better. I had dexametason and Benadryl, and they worked wonders. After that I was on steroids for 4 days and I could walk on my own again. If you worry about the blood counts delayed your treatment you coul...
by [Ana & Alex]
Thu Oct 05, 2017 4:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What made you drop Oxaliplatin?
Replies: 6
Views: 429

Re: What made you drop Oxaliplatin?

Dear lovelife789, I have dropped Oxi by my forth treatment after experiencing some major side effects and after reading about the results of the Idea trial. You can read about my journey with oxi here: http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=58115 I had major neuropathy from ...
by [Ana & Alex]
Wed Aug 23, 2017 6:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: More chemo?
Replies: 36
Views: 3548

Re: More chemo?

Dear Basil, I understand your dilema. If I had had a complete response I would also have trouble accepting chemo. Since the Prospect trial is somewhat new it is difficult to make evidence based decisions. But from what I've read in the forum, through the experiences of others, people who've had chem...
by [Ana & Alex]
Tue Aug 22, 2017 6:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer works on the mind
Replies: 13
Views: 1389

Re: Cancer works on the mind

I don't mean to be disrespectful or to downplay the previous comments. Hell, I still didn't had to deal with the anxiety of scans or wating for results post treatment or seeing CEA bouncing and all that crap. But bear with me if you may. I'm lucky to have been stage III when diagnosed, so I'm lucky ...
by [Ana & Alex]
Fri Aug 18, 2017 12:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hellooo Neuropathyiiiiiiiiiii
Replies: 54
Views: 10569

Re: Hellooo Neuropathyiiiiiiiiiii

Thank you so much for the love. It really lifts me up reading your replies. I'm finally being able to be myself a week later after my LAST Oxi infusion. This time, strangely, it wasn't so bad, although nausea and fatigue are pretty worse. I dropped all of the aprepitant, dexamethasone and Dronabinol...

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