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by NeVadasMitis
Fri Jan 12, 2018 2:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for Canadians re genomic testing
Replies: 20
Views: 1748

Re: Question for Canadians re genomic testing

Thank you so much for sharing this! Our hospital is actually one of the locations listed!
by NeVadasMitis
Sun Jan 07, 2018 2:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for Canadians re genomic testing
Replies: 20
Views: 1748

Re: Question for Canadians re genomic testing

Thank you NHMike for this info! I had no idea of these distinctions. It's hard to advocate for your loved ones when you don't even know what questions to ask! As the original tumour was removed in 2012,I imagine the biopsy material is likely long gone, but, according to what you're saying, at least ...
by NeVadasMitis
Wed Jan 03, 2018 1:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for Canadians re genomic testing
Replies: 20
Views: 1748

Re: Question for Canadians re genomic testing

Thank you for your responses. We're in Ontario. So it sounds like we'll have to fight for it. And if I understand correctly, we'll definitely need this knowledge for applying to clinical trials.
Hurry up, private sector testing labs!
Thanks again.
by NeVadasMitis
Tue Jan 02, 2018 5:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for Canadians re genomic testing
Replies: 20
Views: 1748

Question for Canadians re genomic testing

Hi there, I was wondering what have been the experiences of my fellow Canadians when it comes to requesting and obtaining genomic testing to determine the specific characteristics of their cancer. We brought it up with the oncologist once at the beginning (when we were still hopeful that surgery wou...
by NeVadasMitis
Wed Dec 13, 2017 9:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Met to hepatic lymph node?
Replies: 2
Views: 542

Re: Met to hepatic lymph node?

Thanks, Jennamarie10. Best of luck with your surgical consult. I hope you get good news.
by NeVadasMitis
Tue Dec 12, 2017 10:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Met to hepatic lymph node?
Replies: 2
Views: 542

Met to hepatic lymph node?

Hello, We just found out that my dad's recent PET scan shows metastasis in one lymph node of his liver. This after a liver resection and lung wedge earlier this year. The oncologist is talking to the surgeon, but he's already said that he doesn't think it's operable (or wouldn't be worth it, given t...
by NeVadasMitis
Tue Mar 28, 2017 9:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No chemo after liver resection?!
Replies: 12
Views: 2082

Re: No chemo after liver resection?!

Thanks for sharing your thoughts and experiences. It's good to know it's not unheard of to NOT follow up with chemo, and maybe even a good thing to still have it unused in the arsenal it in case it is needed down the road. Instead of freaking out about possible micromets, I will try to focus on the ...
by NeVadasMitis
Tue Mar 28, 2017 3:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No chemo after liver resection?!
Replies: 12
Views: 2082

No chemo after liver resection?!

Well, I've just received a bit of a surprise. My dad went for his liver resection post-op appointment today. He is doing fine: liver and abdomen good. Still a thingy on his lung, but it's only slightly bigger than at Christmas. The bit I wasn't expecting is that his oncologist (who is a respected on...
by NeVadasMitis
Tue Mar 28, 2017 1:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help for my dear cousin
Replies: 3
Views: 826

Re: Help for my dear cousin

Interesting.
Does anyone know of anywhere that offers immunotherapy as a treatment option for MSI cancer? Or is it only through clinical trials that it is possible to do this.....yet?
by NeVadasMitis
Tue Mar 28, 2017 12:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer is a crap shoot 50/50
Replies: 7
Views: 1291

Re: Cancer is a crap shoot 50/50

LMighty, I hear you. My dad was stage 1, and supposedly 90% likely to be "cured". My mom was the one we were more worried about recurrence for, having had Stage II. While I am extremely grateful my mom is still okay 10 years on, the fact that my dad is now Stage IV really threw me for a lo...
by NeVadasMitis
Mon Mar 27, 2017 12:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clincial Trial searching: what medical info do you need?
Replies: 3
Views: 569

Clincial Trial searching: what medical info do you need?

Hi there, I have done enough reading around the forum to know that MSS vs MSI is a big consideration these days when looking at trials. Can anyone tell me what other info one should know about one's cancer, in order to be better equipped when researching? (Other than the obvious, more general stuff ...
by NeVadasMitis
Tue Mar 21, 2017 3:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Seeking advice
Replies: 4
Views: 711

Re: Seeking advice

Nothing helpful to add, unfortunately, but I was wondering if you had any place in mind for HAI, if you decide to pursue it? Unfortunately, I think Sunnybrook is the only place that does it in Canada, and I've only seen it there in the context of a specific trial.
by NeVadasMitis
Thu Feb 16, 2017 3:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: We lost our "a" :(
Replies: 3
Views: 972

Re: We lost our "a" :(

Thanks for your encouraging responses, Lee and Stu. Very much appreciated!
In fact, it's so small right now that they can't even biopsy it, so hopefully the adjuvant post-op chemo will get it.

: )
by NeVadasMitis
Thu Feb 16, 2017 3:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling ALL Colorectal CANUCKS !
Replies: 325
Views: 84247

Re: Calling ALL Colorectal CANUCKS !

Dr. Jonker is my dad's oncologist :) . I heard he was good - nice to have that confirmed!

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