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by Beckster
Sun Jul 16, 2017 7:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Will my BM's ever return to normal?
Replies: 11
Views: 460

Re: Will my BM's ever return to normal?

44 months since bowel cancer surgery, about half of it removed. Sometimes normal but often soft and/or explosive still. I take a teaspoon of Konsyl D each day as a fibre supplement. At times the urge becomes urgent and nobody should get in my way and certainly not be using the toilet when they hear...
by Beckster
Tue Jul 11, 2017 1:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O'Keeffe's Working Hands or Udderly Smooth for hand foot syndrome
Replies: 9
Views: 333

Re: O'Keeffe's Working Hands or Udderly Smooth for hand foot syndrome

Kobe wrote:I'm curious - why 8 cycles, not 12?


Xeloda is given in 8 cycles. 14 days taking pills and 7 days off. IV 5/FU is given every other week for a total of 12 cycles. Hope this answers your question.
by Beckster
Tue Jul 11, 2017 1:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-FU dose reduction after 5 treatments
Replies: 6
Views: 291

Re: 5-FU dose reduction after 5 treatments

Kobe wrote:I'm guessing switching to the oral version won't be a an option since h/f syndrome is usually worse with Xeloda than 5-FU.


Yes, but maybe the dr will have a better way of controlling the dosage. Doesn't hurt to ask...
by Beckster
Tue Jul 11, 2017 8:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O'Keeffe's Working Hands or Udderly Smooth for hand foot syndrome
Replies: 9
Views: 333

Re: O'Keeffe's Working Hands or Udderly Smooth for hand foot syndrome

For those who had dose reduction because of h/f syndrome was that your only side effect? When did the dose reduction start and do you remember what it was. It looks like for me dose reduction will be 20% starting with treatment #6 of 5-FU. I've been using castor oil with gloves at night, compressio...
by Beckster
Mon Jul 10, 2017 3:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-FU dose reduction after 5 treatments
Replies: 6
Views: 291

Re: 5-FU dose reduction after 5 treatments

I'm so frustrated. I'm Stage 2bT4aN0MO - my treatment is Leucovorin and 5-FU. The first 5 rounds were okay. HFS started at round 4 and was worse at round 5 especially my hands - its grade 2. They opted to hold chemo a week and test for DPD enzyme mutation. My counts were good - ANC was 1600 and for...
by Beckster
Thu Jul 06, 2017 4:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Eye Dr and dentist before chemo start (?)
Replies: 4
Views: 275

Re: Eye Dr and dentist before chemo start (?)

Hello! My husband is overdo for both his eye appt and his dental check up....I suggested that he go prior to starting chemo on 7/17... he kind of blew it off, but I know he will go if I push him. How important is it to have these check ups prior to starting treatment? I've read especially about the...
by Beckster
Wed Jul 05, 2017 3:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O'Keeffe's Working Hands or Udderly Smooth for hand foot syndrome
Replies: 9
Views: 333

Re: O'Keeffe's Working Hands or Udderly Smooth for hand foot syndrome

Hi all! My mother will start Xeloda next week. Was wondering what worked with for you guys for the hand foot syndrome side effect from the chemo? So far, I have bought Udderly Smooth hand cream and and regular cream. I have read about the "Working hands" working well too. Also, I also was...
by Beckster
Fri Jun 30, 2017 3:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda for Stage II - did you work?
Replies: 10
Views: 779

Re: Xeloda for Stage II - did you work?

Just registered with Colon Club today, I'm a newbie. But I'm already thankful for the info I've gleaned from this site. I am a week post-op from lap sigmoid colectomy with final Path T3N0M0, Stage IIA. I am planning for adjuvant chemotherapy with Xeloda monotherapy because that 3-4% benefit is wort...
by Beckster
Fri Jun 30, 2017 11:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally some awesome news!!!!
Replies: 17
Views: 1248

Re: Finally some awesome news!!!!

Well there is finally a plan for Larry's eviction!!!! 2 more months of treatment, a ct scan, and surgery in September!!! It is so nice to finally have an idea of when surgery is going to happen. No more will it be this time? And then finding out nope, not yet. I feel like there is finally a light a...
by Beckster
Wed Jun 28, 2017 12:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Interesting article about survivorship
Replies: 2
Views: 1022

Re: Interesting article about survivorship

weisssoccermom wrote:https://uk.news.yahoo.com/cancer-survivors-apos-fears-relapse-130707438.html



Thank you for sharing....
by Beckster
Tue Jun 27, 2017 5:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things people say or don't say but it's okay
Replies: 82
Views: 4887

Re: Things people say or don't say but it's okay

That's an interesting quote from your surgeon, beckster. Do you have a genetic mutation that isn't listed in your signature? No.... My surgeon is a colon rectal specialist and co director of the MD Anderson Gastrointestinal Center in our area. He said that there is always a genetic component. He no...
by Beckster
Tue Jun 27, 2017 3:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things people say or don't say but it's okay
Replies: 82
Views: 4887

Re: Things people say or don't say but it's okay

I will be very curious when he gets his RAS mutation test results back. I would think that his CC has been primarily diet/lifestyle influenced, but it would still be unfortunate to have any genetic predisposition. I don't understand genetics all that well, but if cancer genes are anything like CVD, ...
by Beckster
Fri Jun 23, 2017 3:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just got post-surgery results and they aren't good
Replies: 59
Views: 5578

Re: Just got post-surgery results and they aren't good

[quote="mpbser"]So, we had an appointment with husband's oncologist yesterday and I was rather taken aback by her new treatment recommendation. NOW, all of a sudden, she recommends Xelox (Xeloda plus oxaliplatin which is an IV infusion) and is claiming that Xeloda is "inferior." ...
by Beckster
Thu Jun 22, 2017 10:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda stomach pains
Replies: 2
Views: 219

Re: Xeloda stomach pains

Has anyone else had problems with severe stomach pains on xeloda ? We switched over to xeloda and avastin 3 weeks ago instead of doing the 5-fu infusions. So it being the first go with xeloda our onc started us at 2500mg a day for 2 weeks with one week off. Everything was fine for the first week to...
by Beckster
Tue Jun 20, 2017 11:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3A Rectal Adenocarcinoma, age 77
Replies: 3
Views: 250

Re: Stage 3A Rectal Adenocarcinoma, age 77

Hi all, I am writing on behalf of my mother who is 77 recently diagnosed last May 9, 2017. I am so glad there are support blogs on here cause I am learning new things each day, such as what time to take the meds, hand/mouth sore, etc. My mom got diagnosed two months ago by colonoscopy after 8 -9 ye...

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