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by Beckster
Wed Oct 31, 2018 5:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colvera testing after primary resection
Replies: 4
Views: 398

Re: Colvera testing after primary resection

I just had my second draw for Colvera today, 5 weeks post resection. Very interesting test looking at remnants of colon cancer dna. I'll have another draw in a couple of months I believe. It is very interesting....is your onc giving you this test every 3 months with CEA? Are you Stage II and this i...
by Beckster
Wed Oct 31, 2018 2:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colvera testing after primary resection
Replies: 4
Views: 398

Re: Colvera testing after primary resection

Deb m wrote:Being care giver for over 7 years now, I thought I was pretty educated on all tests related to colorectal cancer. I've never heard of that!

deb m



Me too! I heard about some having this test on a facebook group page. Apparently it is new.
by Beckster
Tue Oct 30, 2018 12:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colvera testing after primary resection
Replies: 4
Views: 398

Colvera testing after primary resection

Hi everyone... Wondering if there are any Stage II or III colon cancer patients that had the Colvera blood test done. Apparently this blood test is more specific than CEA to detect recurrence. This is the clinical study I am in, but my onc never suggested giving me this bloodwork. https://clinicalge...
by Beckster
Wed Oct 17, 2018 11:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In the name of science- NOVA study participate
Replies: 2
Views: 338

In the name of science- NOVA study participate

My oncologist reached out to me a couple of weeks ago and asked if I was interested in participating in a clinical research study for Stage II and III colon cancer patients within 2 years of resection. So in the name of science, today I met with him, signed the consent forms and had my blood drawn. ...
by Beckster
Sun Oct 14, 2018 3:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to the forum ...
Replies: 19
Views: 5484

Re: New to the forum ...

Most of my time this past Thursday was spent at Memorial Sloan Kettering in New York—a truly remarkable place. I met with Dr. Leonard Saltz and a few members of his team who explained that their pathologists analyzed my tumor specimen and arrived at a very different diagnosis. They identified sever...
by Beckster
Sat Oct 06, 2018 10:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Robino1 has left us today at 6:40pm.
Replies: 25
Views: 2862

Re: Robino1 has left us today at 6:40pm.

Oh my...I am devastated. We had many discussions and found her to be a positive force on the forum. My thoughts and prayers go out to her family. She will be truly missed.
by Beckster
Sat Oct 06, 2018 3:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OFF TOPIC - HAVE A GREAT WEEKEND!
Replies: 8
Views: 724

Re: OFF TOPIC - HAVE A GREAT WEEKEND!

I remember your initial posts, which showed your frustration and advocating for the correct treatment. Getting second opinions, third opinions, and arguing with oncologists. Yes, you indeed had a tumultuous year! Well deserved a couple of days of relaxation... Happy Anniversary. I wish you both many...
by Beckster
Sat Oct 06, 2018 12:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about necessity of CEA labwork
Replies: 31
Views: 2362

Re: Question about necessity of CEA labwork

I am a Stage IIA, received chemo and had multiple CEA testing. CEA was done before surgery, before starting chemo and now during surveillance (every 3 months for 3 years and every 6 months for years 4 and 5). In addition, before surgery, I had extensive bloodwork, CT scan and Chest XRay. So, no....I...
by Beckster
Thu Oct 04, 2018 4:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For stage 2's Ned for how long?
Replies: 38
Views: 5528

Re: For stage 2's Ned for how long?

Stage IIA with surgery in Nov 2016.....2 years out from surgery in 4 weeks. So far...so good!
by Beckster
Wed Oct 03, 2018 5:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My experience with right colectomy (first 7 days)
Replies: 3
Views: 597

Re: My experience with right colectomy (first 7 days)

Had a right hemicolectomy in November 2016. Loose bowels off and on for about 6 months. Now I can eat everything and have no problems. I feel as if I never had surgery.
by Beckster
Mon Oct 01, 2018 5:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to the forum ...
Replies: 19
Views: 5484

Re: New to the forum ...

JMM... I realize your concern and the need to advocate for yourself. There are high risks that dictate chemo: perforation, obstruction, LVI, PNI, Grade 3/4, less than 12 lymph nodes. The only thing that I can suggest is getting a second pathology on your tumor. Was your pathology done at a Designate...
by Beckster
Sat Sep 29, 2018 7:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 476
Views: 101428

Re: NEW-Need some positivity here.

Update- Onc said no chemo needed! She says my Cea is 1.5 and the committee said no chemo at this time. Next scan in December. Surgeon had clear margins and my blood work is good. I’m terrified. Not sure to be happy or waiting for the show to drop. I will now do anything and everything to keep this ...
by Beckster
Thu Sep 27, 2018 12:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: On going side effects of Right Hemicolectomy 4yrs post surgery
Replies: 5
Views: 556

Re: On going side effects of Right Hemicolectomy 4yrs post surgery

Hello all, I’m new to this forum. Looking for some info/support from people who might be going through the same thing as me. I’m now 4yrs post right hemicolectomy op after being diagnosed with stage 3 bowel cancer in Aug 2014. I feel that my stools are still quite loose (all the time, every day) an...
by Beckster
Mon Sep 17, 2018 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety and missing Bev!
Replies: 16
Views: 1663

Re: Scanxiety and missing Bev!

I read this post while waiting to leave for my 3 month onc appt. When I get lab work, I check to see when it is available online. If it is 2:00am, I will get up to check my bloodwork....especially my CEA numbers. Between the lab work and scans, I get majorly stressed! It doesn't matter how long or w...

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