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by MegTayMcc
Mon Jan 22, 2018 9:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 198
Views: 80064

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I often wonder why there isn’t more similarities when it comes to treatment across the board. Even with CCR after chemo rad I opted for the permanent colostomy (proved to be PCR) and then went on to have 8 treatments of Folfox, removing oxaliplatin after 4 cycles due to being extremely sick. Why not...
by MegTayMcc
Mon May 15, 2017 6:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation induced menopause
Replies: 31
Views: 10982

Re: Radiation induced menopause

Ahh, how I wish my radiation onc wasn't such an asshat. I didn't discover this forum until after diagnosis and treatment had started before I knew of the option to move my baby parts out of the line of fire. I remember him telling me I wouldn't be able to have anymore children and I broke down cryin...
by MegTayMcc
Sun May 14, 2017 9:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo / Radiation "breaks"?
Replies: 4
Views: 876

Re: Chemo / Radiation "breaks"?

Hi G! I too was scheduled to have 28 total treatments of chemoradiation. After week 4, due to bad burns and much pain my doctor "delayed" treatments for 1 week. That week off landed me back in hospital due to excruciating pain while attempting to have a bowel movement, after a few good pai...
by MegTayMcc
Fri May 12, 2017 4:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 91, Folfox Done, Now What?
Replies: 5
Views: 990

Re: 91, Folfox Done, Now What?

Your poor mother in law, what a trooper. I'm 32, and just had my 5th treatment yesterday. #2 made me very weak, I felt as though I hadn't eaten in days. 3 & 4 were even harder and left me so sick I couldn't lift my head out of bed to vomit. This time around we completely cut the oxali and went o...
by MegTayMcc
Sat May 06, 2017 5:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 198
Views: 80064

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

SMH Toronto, storry about W&W apptoach: Some patients have such a dramatic response to chemotherapy and radiation that there is no detectable tumour at the time of surgery, said Dr. Fahima Dossa, the study’s lead author and a surgical resident at St. Michael’s Hospital. These patients, termed c...
by MegTayMcc
Fri Apr 28, 2017 9:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Five years....and lung nodule
Replies: 48
Views: 7623

Re: Five years....and lung nodule

Oh Dan.. I'm very sorry. I don't have any advice, but I'm praying for you and your family.
by MegTayMcc
Thu Apr 20, 2017 2:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox.. ugh
Replies: 11
Views: 1488

Re: Folfox.. ugh

The cold sensitivity is kinda cool. I pick up an ice pack and feel like my hand is charging energy that, with luck, I can fire off like a lightening bolt. Hilarious! Thanks for the laugh.. every time I stick my hand in the freezer I'm gonna see lightening bolts. Lol ALL of you guys are awesome.. I ...
by MegTayMcc
Wed Apr 19, 2017 6:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox.. ugh
Replies: 11
Views: 1488

Folfox.. ugh

Hi friends! I'm looking for some advice on Folfox. I've searched many threads, but none are really answering my questions.. I'm hoping you can help. I'm just "coming back" from round 3. By coming back I mean, feeling somewhat normal, not extremely exhausted, emotional, nauseous, mood swing...
by MegTayMcc
Wed Mar 29, 2017 10:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP RC post APR Bladder dysfuction
Replies: 3
Views: 606

Re: HELP RC post APR Bladder dysfuction

Hi Mario, I'm not sure if I can be of much help, but I've found myself in a similar situation as your mom. I had my apr surgery January 25th, so many complications with wound infection and draining. It delayed my chemo (folfox) start date by 4 weeks. My onc wasn't worried, and stressed how important...
by MegTayMcc
Sun Mar 19, 2017 8:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Some post APR questions..
Replies: 6
Views: 1127

Re: Some post APR questions..

Thank you both for replying! Janie, can you explain what you mean by irrigating the wound? Initially, my surgeon delayed chemo until the wound was clearing up. After 4 weeks the drainage was nearly gone, ok'd, folfox, back again all within a week. I do go back in for another follow up in 2 weeks, an...
by MegTayMcc
Thu Mar 16, 2017 12:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Some post APR questions..
Replies: 6
Views: 1127

Some post APR questions..

Hi guys! I'm wondering if anyone out there can help me with some questions, or provide some details of their own regarding some post op issues that won't seem to go away. I'm sorry, there may be some yucky details ahead. I had APR surgery on 1/25, incisions were laparoscopic, everything went as plan...
by MegTayMcc
Mon Feb 27, 2017 4:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 198
Views: 80064

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hello again! I'm back, after my apr surgery. My biopsy did confirm I had complete response. There was nothing to be found, and the cancer was gone. Even today, dealing with many little complications, a great deal of pain and battling a brutal perineal infection, I can very comfortably say I wouldn't...
by MegTayMcc
Sun Jan 01, 2017 6:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 198
Views: 80064

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Wow! Thank you everyone, so much for your replies. I spent much of today thinking and talking with family about my options. I believe I have decided to go ahead with surgery. I just don't believe I could live comfortably with the worry and doubt that has consumed me the past 4 months. The what ifs a...
by MegTayMcc
Sun Jan 01, 2017 10:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 198
Views: 80064

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi friends! I'm new to the page.. so please excuse me for not understanding all the lingo. :) After much research, I'm still on the fence. I hoped to make my decision this week whether I will proceed with surgery or watch and wait. I've had complete response after 28 radiation treatments, combined w...

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