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by Rikimaroo
Wed Dec 12, 2018 7:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 5
Views: 209

Re: CEA Levels

Wow Mike, I bet the 3.2 and 4.5 made gave you a bit of anxiety. It is so nerve racking doing these surveillance things. The PET/CT and MRI process and waiting for the results is so stressful. I might be going through the same fluctuations. I have been more active lately but not actually working out,...
by Rikimaroo
Wed Dec 12, 2018 5:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 5
Views: 209

CEA Levels

Hello All, Things have been improving after ileostomy reversal, going much less, still hate the unpredictability when I have to go, but it's been better. Just had my NM PET/CT SKULL-THIGH and MRI done. All came back clear and good. So still NED. My CEA was 1.2 when I did the test in September, This ...
by Rikimaroo
Mon Nov 12, 2018 9:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 44
Views: 4341

Re: Update from Rikimaroo

Things have been a little better still sporadic but more manageable. Doctor asked me to start taking a fiber product. My wife already had Nopalina Flax Seed plus Fiber. Has anyone tried that, I wanted to try before buying Metamucil. Ingredients include psyllium husk and senna leaves and a few more t...
by Rikimaroo
Fri Oct 26, 2018 11:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox - How many Oxaliplatin rounds?
Replies: 10
Views: 678

Re: Folfox - How many Oxaliplatin rounds?

i had 12 rounds and the last 3 of it reduced oxaliplatin to 65% (full dose is 85%) , and the last treatment number 12, it was not administered. My neuropathy is still there, mostly in the feet. My hands are much better since my last treatment on August 15th 2018. Oxi is just such a tough drug to dea...
by Rikimaroo
Fri Oct 26, 2018 9:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 44
Views: 4341

Re: Update from Rikimaroo

Thanks Appletree very informative. My doctor prescribed Questran. Anyone ever tried it? I am going to give it a shot, although today I have not had a bowel movement yet, woke up at 9:50AM and its 10:47AM makes me a bit nervous of constipation, but who knows maybe my body is adjusting, will let you k...
by Rikimaroo
Thu Oct 25, 2018 7:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 44
Views: 4341

Re: Update from Rikimaroo

CRguy thanks so much for the post, that was hilarious. I figured it was clustering and thought perhaps there is a way around it but since I am only 1 week out I guess all this heartaches makes sense NHMike thanks for the insight, i know you just got yours done about 3.5 months ago I hope things are ...
by Rikimaroo
Wed Oct 24, 2018 5:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 44
Views: 4341

Re: Update from Rikimaroo

Today has been crazy. I think I went to the bathroom at least 15 times or more. The poop is coming out but its like droplets of semi formed mushy stuff. My anus is sore and the butt burn is there. I use the calmoseptine then right after I walk back to my desk or sofa, 3-5 minutes and back to the bat...
by Rikimaroo
Tue Oct 23, 2018 6:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Time from dx to first treatment?
Replies: 23
Views: 1426

Re: Time from dx to first treatment?

I was diagnosed December 19th 2016, start Chemo/Radiation February 2017. I didn't do surgery which was scheduled for June 2017. When I had recurrence and liver metastasis In october of 2017, i started Folfox December 2017 thru February 2018. Then Surgery April 2018 and chemo again from June 2018 to ...
by Rikimaroo
Tue Oct 23, 2018 6:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post surgical changes. Reoccurrence?
Replies: 16
Views: 1027

Re: Post surgical changes. Reoccurrence?

These were my MRI results recently on September 7th. RESULT: Image quality: Adequate. TUMOR * There are new postsurgical changes of proctectomy with coloanal anastomosis. No distal colonic wall thickening or abnormal enhancement. * 1.1 x 0.9 cm enhancing soft tissue nodule in the right deep pelvis (...
by Rikimaroo
Tue Oct 23, 2018 5:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Robino1 has left us today at 6:40pm.
Replies: 25
Views: 3072

Re: Robino1 has left us today at 6:40pm.

Very shocked and sad to hear this news. I was expecting her to be here a very long time. She was so positive and gave everyone hope and strength to push forward. I am so sad to read stuff like this. May she rest in peace.
by Rikimaroo
Mon Oct 22, 2018 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Internal Iliac Node involvement??
Replies: 18
Views: 1788

Re: Internal Iliac Node involvement??

From what I understand and at the time, i went to Cleveland Clinic they never said I was stage four. This is what my MRI results showed: LYMPH NODES Mesorectal lymph nodes and tumor deposits: * Suspicious mesorectal lymph nodes/tumor deposits: N+: Short axis 5-9 mm and round shape / irregular contou...
by Rikimaroo
Mon Oct 22, 2018 9:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 44
Views: 4341

Re: Update from Rikimaroo

Finally decided to get some depends since I had a few accidents. It just comes out fast and furious. It's not a ton of poo, but its just not controllable just yet. Couple things I have noticed since reversal are, its harder to pee without worrying about pooping yourself while you try to pee. Legs hu...
by Rikimaroo
Fri Oct 19, 2018 10:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 44
Views: 4341

Re: Update from Rikimaroo

It’s open looks like a little butthole on my stomach. They said heals from inside out and just shower with guaze off and then put new gauze on. No need to pack it.
by Rikimaroo
Fri Oct 19, 2018 7:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 44
Views: 4341

Re: Update from Rikimaroo

Finally pooped this morning nothing huge. Went 4 times so far each time more poop came out. There going to release me. I am
Nervous about 1 hour trip home
by Rikimaroo
Thu Oct 18, 2018 9:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 44
Views: 4341

Re: Update from Rikimaroo

I came out of surgery yesterday and all went well. I had clear liquid diet on day of surgery and today soft food. Had pancakes for breakfast and eggs then chicken Parmesan for lunch then turkey for dinner I am a little cramped or gassed up and have that full feeling. I have been walking a lot and bu...

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