Search found 436 matches

Go to advanced search

by Rikimaroo
Thu Dec 08, 2022 11:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Riki's Wife
Replies: 56
Views: 28688

Re: Update from Riki's Wife

Good morning guys, So in the process of "cleaning up" i'm having a hard time figuring out what to do with all the medical supplies my husband was given from hospice. He had a colostomy bag & so we got A LOT of supplies. I would love to help someone out by shipping out these supplies.. ...
by Rikimaroo
Mon Dec 05, 2022 7:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Riki's Wife
Replies: 56
Views: 28688

Re: Update from Riki's Wife

Thank you all, really I thank you so much for your words. As I've read my updated post to you all, I've cried, really really cried bcuz that last week was really tough in all sorts of ways. He knew it hurt me so much to see him the way his frail body was, to know his mind was breaking down & fal...
by Rikimaroo
Sat Dec 03, 2022 1:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Riki's Wife
Replies: 56
Views: 28688

Update from Riki's Wife

Hello everyone... This is Riki's wife posting this, Ruth. It is with great sadness & tears that I post this but he did wanted me to update this forum when I was strong enough. He passed away at 4 AM on the 18th of November. His last weigh-in was 90 lbs & I'm pretty sure he weighed even less ...
by Rikimaroo
Sat Oct 15, 2022 10:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Braf
Replies: 5
Views: 1608

Re: Stage 4 Braf

Keep it going Saltie Girl you’re doing the right thing
by Rikimaroo
Wed Oct 05, 2022 10:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Riki's Wife
Replies: 56
Views: 28688

Re: Update after 2nd opinion discussion

Thank you guys so much for the posts it’s very very touching I really appreciate it just so y’all know I’m not dying this minute lol but the decision to stop everything is just so I can be comfortable I’m so tired of it. Last night was the first time I actually went to bed at 12 and woke up at seven...
by Rikimaroo
Tue Oct 04, 2022 3:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Riki's Wife
Replies: 56
Views: 28688

Re: Update after 2nd opinion discussion

Hello All Update: I basically signed up for Hospice care. I am done guys tired of it all. I Just got nephrostomy bags put in because I was going into renal failure because of tumor pressing on my ureter. Bottom line the Immunotherapy doesn't work for me or my type of cancer I knew this going in MSS ...
by Rikimaroo
Tue Sep 20, 2022 9:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Riki's Wife
Replies: 56
Views: 28688

Re: Update after 2nd opinion discussion

Hello, Everyone, where too start. So after my first immunotherapy session the next day (Saturday) I needed to get a blood transfusion because I was low. Then later that night I was bleeding from my bottom again alot and honestly it most likely was mixture of blood and mucus and drainage stuff....So ...
by Rikimaroo
Sat Sep 10, 2022 6:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Riki's Wife
Replies: 56
Views: 28688

Re: Update after 2nd opinion discussion

Everyone just wanted to give an update I got my first immunotherapy yesterday and all went well no issues whatsoever Only issue I have right now is the fact that I’m bleeding through my bottom because of a tumor which most likely made a fistula will wait for the doctor to let me know we have to do a...
by Rikimaroo
Sat Sep 03, 2022 4:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Riki's Wife
Replies: 56
Views: 28688

Re: Update after 2nd opinion discussion

Thank you everyone kindly for all the lovely comments. PCCR it’s a good question to ask after I do my first PET scan with UM. We can review then any plans.

That would be great for any lung Mets I presume.

Thanks
Riki
by Rikimaroo
Fri Sep 02, 2022 11:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Riki's Wife
Replies: 56
Views: 28688

Update from Riki's Wife

Hello Guys, I got some good news and I want to just ball out in tears while typing this. I have been approved for Pembrolizumab Ipiliumab Nivolumab, my tumor mutation burden has increased significantly since May and I don't know why Cleveland Clinic never checked, i just feel like they checked out o...
by Rikimaroo
Wed Aug 31, 2022 5:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 151
Views: 84730

Re: Beginning TIL Therapy at NIH Next Week

Glad to hear this. SOC sucks. I hope this works for you
by Rikimaroo
Tue Aug 23, 2022 1:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thinking of Hospice Care
Replies: 12
Views: 3182

Re: Thinking of Hospice Care

I don't think it is because my oncologist would of brought it up, but I will ask him when I see him on 9/7.
by Rikimaroo
Tue Aug 23, 2022 11:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thinking of Hospice Care
Replies: 12
Views: 3182

Re: Thinking of Hospice Care

Currently no surgical options. The plan was to do 6 rounds (did 4 so far), the good news is I do eat and gain some weight back after the chemo wears off. I do have an appetite. I also have low energy, strength so we working on getting a wheelchair even though I have no issue walking, my wife insists...
by Rikimaroo
Tue Aug 23, 2022 9:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thinking of Hospice Care
Replies: 12
Views: 3182

Re: Thinking of Hospice Care

Thanks so much for the lovely inputs, I appreciate and love you all. It's so strange because these last 4 rounds of Folfiri seems to have helped a bit with the primary local tumor. I am still trying to figure things out and work with my 2nd opinion doctor and maybe get me in a trial, I don't want to...
by Rikimaroo
Mon Aug 22, 2022 5:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thinking of Hospice Care
Replies: 12
Views: 3182

Thinking of Hospice Care

Hello Everyone, It's been a long journey alot of fighting and just overwall rough living. There have been good times, great times, sad times, cancer symptom times. At this point I am debating quitting chemo, my cea was 175 and just jumped up to 308, means cancer getting more resistant to the chemo. ...

Go to advanced search