I know you mentioned it before and is sounds intimidating. There are days I am perfectly well and have maybe 1 bowel movement in the morning and 1 at night what I call blow outs. Sometimes I have one a day, then there are the days when I have multiple and it is really annoying as it hampers your lif...

Just thinking about it but not sure

Today I think I went to the bathroom at least 8 times I think its my fault though cause I did eat some Jamaican food curry etc...and such, but still even when I eat fine this happens but not as bad. . Some days I go 2 times. It's rather frustrating and I am 6 months out. I take Metamucil at night be...

Has anyone ever had local recurrent cancer after lower anterior resection (LAR) and had to do salvage surgery? What was your outlook and if you were NED after salvage surgery, or next steps..

Scary ? Sorry, I thought I'd read you had blood again etc in stools ? Xxx annie xxx Sorry I misread your post. Yes after chemo radiation which was done in Feb 2017, I thought all was well. I had scopes for 6 months twice and nothing. Then the same bleeding starting happening again and thats how I k...

Stu your mother’s journey is very encouraging. God Bless you Mum and May she continue to live a long life. If your oncologist think you don’t need chemo maybe because of clear margins then you are good. These guys are very good at what they do. Continue to pray that God gives these doctors the knowl...

My cea is now 8 from 16, from 22..so the chemo is working. It is hard doing chemo, sometimes I just want to give up. One more treatment on May 1st then I will schedule scan (PET) to see what the next steps are. I really need to cure this thing. Chemo really causes your butt (anus) to not heal after ...

Caat55 wrote:Rikki,
Glad to see your numbers are turning back down. I can't imagine the frustration of tackling this again. Heading into my reversal on Thursday. Wishing you good luck with final doses.
S

How is your reversal surgery and how are you doing?

Hi Rikamaroo
Did you feel any symptoms before recurrence ? So was it about 6 months after you had stopped chemo rad or more ? Thanks for help xxx Annie ccx

No symptoms. I just went for my 3 month follow-ups and scans and blood work and that is how they saw recurrence.

Caat, Good luck on your reversal. With all the stress of recurrence dealing with unpredictable bathroom runs it’s been quite stressful. Sometimes I wish I had my bag back because it was easy and I can do anything. Now I feel tied to the bathroom and am afraid to go anywhere worrying I will be stuck ...

Thanks guys. I am doing FOLFIRI not FOLFOX, but when on FOLFOX my hair thinned. FOLFIRI makes you actually lose a lot of hair, possibly all. Yes I am responding to the treatment, but it makes me very sad that I am going through this again, even though I know people have been through and got cured. S...

Well my hair is officially falling out all over the place. this didn't happen much on FOLFOX. It thinned mostly. I guess I will keep it on and not shave it off yet. I have 2 more treatments. Pyro (The devil's lettuce is hilarious)... I don't really care at this point regarding hair, I just want to g...

I am taking six of these daily and will let you guys know how it goes with my next blood work. Granted I am doing chemo now two rounds left but it’s not gonna hurt to take this going forward. I also drink a tea my Mom makes me from guanabana tree leaves. She boils the leaves and drops a drop of cina...

My grandmother is in her 80s. She had breast cancer in her 70s. She did everything and was good until recently somethings popped up in her lungs. To be honest at 80+ years old it is not worth the impact that chemotherapy does to the quality of life. She decided not to do anymore chemo. However she i...

Hi Guys, Things have been moving along. CEA went from 22.9 to 16 after first treatment. I just did 2nd one Wednesday. yeah I am mostly tired and nauseous. I actually vomited for the first time since being on this cancer journey. I hate the feeling. I tried some marijuana which I never touched in my ...