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by Rikimaroo
Tue Oct 23, 2018 6:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Time from dx to first treatment?
Replies: 9
Views: 119

Re: Time from dx to first treatment?

I was diagnosed December 19th 2016, start Chemo/Radiation February 2017. I didn't do surgery which was scheduled for June 2017. When I had recurrence and liver metastasis In october of 2017, i started Folfox December 2017 thru February 2018. Then Surgery April 2018 and chemo again from June 2018 to ...
by Rikimaroo
Tue Oct 23, 2018 6:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post surgical changes. Reoccurrence?
Replies: 12
Views: 232

Re: Post surgical changes. Reoccurrence?

These were my MRI results recently on September 7th. RESULT: Image quality: Adequate. TUMOR * There are new postsurgical changes of proctectomy with coloanal anastomosis. No distal colonic wall thickening or abnormal enhancement. * 1.1 x 0.9 cm enhancing soft tissue nodule in the right deep pelvis (...
by Rikimaroo
Tue Oct 23, 2018 5:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Robino1 has left us today at 6:40pm.
Replies: 25
Views: 1782

Re: Robino1 has left us today at 6:40pm.

Very shocked and sad to hear this news. I was expecting her to be here a very long time. She was so positive and gave everyone hope and strength to push forward. I am so sad to read stuff like this. May she rest in peace.
by Rikimaroo
Mon Oct 22, 2018 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Internal Iliac Node involvement??
Replies: 16
Views: 836

Re: Internal Iliac Node involvement??

From what I understand and at the time, i went to Cleveland Clinic they never said I was stage four. This is what my MRI results showed: LYMPH NODES Mesorectal lymph nodes and tumor deposits: * Suspicious mesorectal lymph nodes/tumor deposits: N+: Short axis 5-9 mm and round shape / irregular contou...
by Rikimaroo
Mon Oct 22, 2018 9:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 29
Views: 1836

Re: Update from Rikimaroo

Finally decided to get some depends since I had a few accidents. It just comes out fast and furious. It's not a ton of poo, but its just not controllable just yet. Couple things I have noticed since reversal are, its harder to pee without worrying about pooping yourself while you try to pee. Legs hu...
by Rikimaroo
Fri Oct 19, 2018 10:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 29
Views: 1836

Re: Update from Rikimaroo

It’s open looks like a little butthole on my stomach. They said heals from inside out and just shower with guaze off and then put new gauze on. No need to pack it.
by Rikimaroo
Fri Oct 19, 2018 7:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 29
Views: 1836

Re: Update from Rikimaroo

Finally pooped this morning nothing huge. Went 4 times so far each time more poop came out. There going to release me. I am
Nervous about 1 hour trip home
by Rikimaroo
Thu Oct 18, 2018 9:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 29
Views: 1836

Re: Update from Rikimaroo

I came out of surgery yesterday and all went well. I had clear liquid diet on day of surgery and today soft food. Had pancakes for breakfast and eggs then chicken Parmesan for lunch then turkey for dinner I am a little cramped or gassed up and have that full feeling. I have been walking a lot and bu...
by Rikimaroo
Tue Oct 16, 2018 2:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 29
Views: 1836

Re: Update from Rikimaroo

Biopsy went well not painful at all. Came back negative for cancer :o

Getting ileostomy reverse tomorrow. Looking forward to it but very nervous.
by Rikimaroo
Mon Sep 24, 2018 9:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 29
Views: 1836

Re: Update from Rikimaroo

CT Guided Biospy scheduled for tomorrow. I am so nervous but I am ok. If the results come back to where it is cancer and I need an APR then I can live with a permanent bag. Will they transfer the ileostomy to a colostomy? I was wondering if that would stay, because why ignore the entire colon... I r...
by Rikimaroo
Fri Sep 21, 2018 9:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal bleeding 7 months after a clear colonoscopy
Replies: 5
Views: 536

Re: Rectal bleeding 7 months after a clear colonoscopy

Eating a lot of spicy food can cause inflammation and bleeding when pooping just as you described. If you do not eat spicy food and your exhibiting this issue then you should see a doctor.
by Rikimaroo
Tue Sep 18, 2018 1:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 29
Views: 1836

Re: Update from Rikimaroo

It so crazy every time you speak to your doctor you have several questions then when he hangs up and you think about it more you think of more questions. Now thinking about this the MRI I did in March 2018 was what they used to compare to the MRI I did in September 2018 which showed the soft tissue ...
by Rikimaroo
Tue Sep 18, 2018 10:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 29
Views: 1836

Re: Update from Rikimaroo

Thanks for the replies everyone. It helps alot. I spoke to my Onc this morning and he said it is something in the rectum so that cleared things up about it being somewhere else int he pelvic region. I really hope its nothing, but the Onc did say the pet didn't light up but it wasn't far from the num...
by Rikimaroo
Mon Sep 17, 2018 4:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 29
Views: 1836

Update from Rikimaroo

I have not been on for a little. I finished 6 rounds of FOLFOX on 8/15/2018. My neuropathy still there and its annoying but tolerable. I did a pet scan and a mri on Friday the 7th and got result last Wednesday. Dr. said PET SCAN looks good, nothing. MRI came back with 1.1 cm soft tissue implant in t...
by Rikimaroo
Mon Jul 09, 2018 1:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 6 years NED after stage IV
Replies: 23
Views: 5798

Re: 6 years NED after stage IV

Thanks Ehut, Thats awesome information and really appreciate it. I only had one liver met, but always and still nervous about recurrence. I pray that I have your luck. I have 3 little ones that need there Dad around.

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