Thanks NHMike. Yes I have 3 months surveillance plan at the moment. Next tests in May, so hopefully it does go down. Is there any recommendations on things to take perhaps to help? Natural stuff?

Hello All, I hope everyone is staying safe and practicing social distancing if possible. I have the luxury of working from home, but still concerned about the business I support. So far since surgery on October 2019 for recurrence all is clear with last pet scan done in February. CEA was 3.1 in Janu...

So it's been about 4 months since I have my colostomy and overall I am happy with it, versus going the old fashion way and dealing with LARs... Couple questions/suggestions for me. 1. Sometimes my colostomy is super active in the middle of the night, like from 1am to 6am and I can't sleep, I get con...

Rock, This is what i used for in case of accidents: https://www.amazon.com/gp/product/B008RJV0L4/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1 Everyone is different, I know Gravelguy has had issue and posted as such. I have been up and down, most days are not great. Yes I can go places and do ...

after a year of dealing with no rectum and ileostomy reversal and pooping the normal way, I decided to get a permanent colostomy. I never been happier. No worries about pooping myself while I driving, or frequent pooping that seem to never end, or painful bum, or annoying back pain...I will say ther...

Hi Tater, I am currently doing 5 rounds of FolFIRI. I get the infusion on a Wednesday and get disconnected from the Pump on Friday. On the first day of infusion when I get home I throw up twice, 2nd day throw up twice or once, Friday throw up once and Saturday maybe throw up, but most likely not. I ...

I never had nausea with folfox, but i did have stomach cramps. Atropine seems to help alot with that. Ask the oncologist about stomach cramp medication. Chemo sucks no matter which one your on. I am doing FOLFIRI and everyday I talk to my wife about quitting. FOLFIRI causes nausea, I vomit at least ...

Started FolFiri yesterday. Of course when I got home later in the evening threw up. It is always guaranteed I am going to throw up, at least twice. The 2nd time is always worse, because its harder to breathe cause its more liquid. Nothing I have tried will stop the vomiting from happening. I will ta...

Happy Birthday. I start Chemo on 6th 5 rounds to make a total of 12, folfiri. Definitely not looking forward to it, but expecting it to once and for all kill any micro cells.

Thanks for the input. I am going to hold off on stool softener for now. It is outputting and I think at a normal range. I guess my main issue now is that the stuff just doesn't fall down into the bag which is super annoying, I use lubricant deodarant, and it doesn't work LOL... I just lift the bag w...

Hello Guys, Update - So Oncologist wants me to do 5 more rounds of FolFiri to make it a total of 12 from where I left off. He said this was the recommendation from the Tumor Board in CC OH after my procedure. Even though 0/7 lymph nodes were clean and they got all the cancer, I guess its just precau...

Sitting here waiting to get staples out, even though I have done this before still nervous as hell. Doctor called this morning after tumor board netting an again reiterated how glad I went to CC OH and did the surgery with him with intraoperative radiation. He got everything and the radiation got an...

Hello Folks, It's been almost 2 weeks since surgery. Everything went excellent per the doctor. I woke up with catheter and stents in my penis (UGH!!) a mushroom plug in my butt, and they stabbed me on the side for a drain. So the first day I was attached to everything. The next day I walked a little...

Lee do you use a stealth belt for your colostomy, or just leave it under your clothes? Also does the bag not come with it's own built in wafer? With the Ileo bag I never had to buy any wafer, just the barrier ring.

Well my insurance finally approved the procedure for Cleveland Clinic Ohio. The surgery is a resection of the left seminal vesicle where the lesion has recurred. SUV uptake at 9.1 with this week pet scan, so definitely malignancy. I also asked for Colostomy bag back, looking forward to take control ...