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by Rikimaroo
Tue Aug 13, 2019 5:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions about Health Insurance
Replies: 1
Views: 115

Questions about Health Insurance

So I currently have Myblue HMO with BCBS...Through Healthcare.gov as I own my own business and its more cheaper, but a hell of a good plan, myblue Silver, i pay $200 a month for it. It's actually really great. The only downfall is that it doesn't cover out of state, it doesn't have the bluecard opti...
by Rikimaroo
Sun Aug 11, 2019 1:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ULAR + ileo tips welcome!
Replies: 16
Views: 1113

Re: ULAR + ileo tips welcome!

Rock I never took Imodium with ilestomy. It will get thicker soon, just be patient. You don't need the Imodium, just let it flow naturally and empty it when needed. My output at beginning was watery as well but started to get thicker as the days went along. It becomes really easy to switch out the b...
by Rikimaroo
Sat Aug 10, 2019 1:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick question - chemo and reversal surgery
Replies: 14
Views: 587

Re: Quick question - chemo and reversal surgery

Yeah its the 2mg but prescribed, I will take a look and let you know.
by Rikimaroo
Thu Aug 08, 2019 10:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick question - chemo and reversal surgery
Replies: 14
Views: 587

Re: Quick question - chemo and reversal surgery

Wow that's quite a surgeon. My surgeon is Dr. Steven Wexner Clevenald Clinic. He is the director of the Colorectal Surgery Dept here in South Florida Weston, Cleveland Clinic brand. He is world renowned. Glad you have a capable surgeon. You know I am doing good mostly, have the recurrence MRI schedu...
by Rikimaroo
Thu Aug 08, 2019 3:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick question - chemo and reversal surgery
Replies: 14
Views: 587

Re: Quick question - chemo and reversal surgery

Rock, I waited a month after chemo for surgery. CRguy hit the nail on the head. Risk of infection is very high with low WBC/Neutrophils. Also healing is an issue. Your surgeon is tripping if he thinks a week out of chemo is a good time to do surgery very surprised he said that, but he is not an onco...
by Rikimaroo
Thu Aug 08, 2019 3:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Introducing myself, to a club I didn’t think I’d ever be a member of.
Replies: 9
Views: 571

Re: Introducing myself, to a club I didn’t think I’d ever be a member of.

Mike, get ready for a rollercoaster of pain, annoyances and then recovery and back to your normal self, well close to your normal self. Let me explain. I had rectal cancer 9cm from anal verge. The first thing they do is what they did to you. Biopsy find out if its benign or malignant. Once that is d...
by Rikimaroo
Sun Aug 04, 2019 11:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can we please talk about colostomies/ileostomies?
Replies: 13
Views: 718

Re: Can we please talk about colostomies/ileostomies?

It’s very intimidating the first 2 weeks then after you find it a breeze to change manage and your good to go. I was nervous I had temp ileostomy for six months. I miss my bag cause I didn’t have to worry about unpredictable bathroom trips, 30-40 minutes on toilet only to think your done then boom y...
by Rikimaroo
Sun Aug 04, 2019 11:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared. Blood in my colostomy bag
Replies: 8
Views: 559

Re: Scared. Blood in my colostomy bag

You know it’s tough to say as my only experience was with ileostomy. I already have the scar and a black area around where the surgery was done and reversed. So to make another incision somewhere else is something I would have to think about but at the end of the day my surgeon would tell me what’s ...
by Rikimaroo
Sun Aug 04, 2019 6:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared. Blood in my colostomy bag
Replies: 8
Views: 559

Re: Scared. Blood in my colostomy bag

I will be honest with you I miss my ileostomy bag. Some days suffering from clustering then butt Burn from going so much makes one wonder what the fack did I reverse and go back to not normal lol. I guess it’s a nuisance to have a bag but some days wish I had it. I could do everything with it. Most ...
by Rikimaroo
Sat Aug 03, 2019 10:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1520
Views: 317722

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

That's great information Jolene, truly appreciates, lets pray that is the case for me and Mike. We are some busy folks as you can tell from this thread with Mike he is a busy working dad. I am the same. Got to provide for our families.

All the best!!
by Rikimaroo
Fri Aug 02, 2019 3:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1520
Views: 317722

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Well you are surely more active than I am in regards to exercing. That is great. I need to start doing that. The problem with Nopalina, Metamucil and other fiber supplements is I don't know if sometimes they cause clustering, or not. I been taking the Metamucil and tried Nopalina and I can honestly ...
by Rikimaroo
Fri Aug 02, 2019 2:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1520
Views: 317722

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Mike, I don't think stress or pressure at work is causing your issue. I don't have stress or pressure as I work from home and I still have similar problems as you. Let's take today for example. I pooped once around 11:30ish and then another time at 1:30ish. That is twice, both times I usually strain...
by Rikimaroo
Fri Aug 02, 2019 11:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1520
Views: 317722

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Mike, Have you thought about going back to the bag. It crosses my mind every now and then, because honestly the bag was no issue at all. Yes sometimes I had issues like where it came out from the sides, but that I figured out how to control. Other then that the bag is just weird to have, but to be h...
by Rikimaroo
Thu Jul 25, 2019 10:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did anyone ever decide to go back to ileostomy after reversal
Replies: 28
Views: 3126

Re: Did anyone ever decide to go back to ileostomy after reversal

Hello All, Another update. So I got my pet scan on Monday and it came back that the pelvic recurrent tumor shrunk even more and they think surgery is a possibly. So Doctors are meeting on Monday Tumor Board to discuss my case. I am hoping and praying that I can get the surgery to get this damn thing...
by Rikimaroo
Thu Jul 25, 2019 6:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Irinotecan tips?
Replies: 6
Views: 317

Re: Irinotecan tips?

FOLFIRI, always made me throw up on the first day, twice. Sometimes once on the 2nd day. It's absolutely frustrating to do it.

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