Lee do you use a stealth belt for your colostomy, or just leave it under your clothes? Also does the bag not come with it's own built in wafer? With the Ileo bag I never had to buy any wafer, just the barrier ring.

Well my insurance finally approved the procedure for Cleveland Clinic Ohio. The surgery is a resection of the left seminal vesicle where the lesion has recurred. SUV uptake at 9.1 with this week pet scan, so definitely malignancy. I also asked for Colostomy bag back, looking forward to take control ...

Cool Lee. Thanks so much for the information. How often did you change the bag itself?

My doctor is calling in a prescription but I forgot the name. Procto-something. He said it will help with inflammation and to use that I think three times a day and the other creams when I wasn't using that one. I asked if over the counter pain pills like acetaminophen would help and he said it can...

No I don't think he would do well with that. He didn't need one after his low anterior resection. He is so ready to give up and is so frustrated it's hard to watch him and hear him. It breaks my heart to see him struggling. I think if he had to have a colostomy he would give up. I wish I knew other...

For my ileo I mainly used 8805 - Hollister Adapt CeraRing™ Barrier Ring, Standard, 4.5mm Thick, 2" OD and I use 507760 - Hollister Universal Remover Wipe For Adhesive and Barrier and they worked great. I have the powder that you sprinkle after cleaning the adhesive. You sprinkle it first then y...

Hi Lee, Yes I have been on it a few times. I had an ileostomy before so I am aware of how this works. The ostomy nurse told me that it will be less active then the ileostomy. She also mentioned something called a 2 piece system, which I actually heard of, but with the ileo, I would just open the bot...

It's sounds just like what I go through. It's sounds normal. The discomfort and pain is normal. It doesn't happen all the time and then there are days your perfectly fine. I was on the toilet last night from 12-3 am, it was frustrating, but mainly me pushing to get the poop out. No diarrhea typicall...

Mike, Your comment alone makes me even want the bag more. For you to even have 27 bowel movements at this timeframe of your journey really makes me wonder if it will get better. The most bowel movements I have now is probably 12 max one bad days. 27 just doesn't seem right, perhaps food? I know you ...

Sounds like he is having major clustering. It means you go drop a few and not much at all, maybe small piece leave and then go again multiple times. And then it sounds like he is constipated, but not the constipation we are use to when we have everything intact. I have my entire colon, but they took...

I have the same pain, dull intermittent pain and all around frustration and aggravating type pain. It's not painful, its more of a sensation of uncomfortable feeling of a dull pain. It's tolerable but miserable. I am going back for surgery on the 7th to remove a pelvic recurrence and I told the doct...

I don't want to scare you but my CEA gradually went up from .8 to 22. Over a course of six months and the pet scan showed clear, then after six months the pet scan showed something in the pelvic region. My CEA has been a good indicator for me. They put me back on Chemo FOLFIRI and now my CEA is 1.5,...

This place from what I heard is one of the top institutions around the world and big on cancer treatment. https://www.heidelberg-university-hospital.com/home/ I am not sure how far you live from there, but I would assume there are other places. Give them a call and as about colorectal surgery, neoad...

Your right Stu and I agree wholeheartedly. I sent a message to my oncologist and he said it like this bluntly, rikimaroo stop going off on tangents and messing around this is your life we are talking about and you already made a mistake before don't make it again. He is right, these guys know what t...

Update - So currently the pelvic recurrence based on MRI states lesion with Fibrotic Signal. Typically that means dying tissue, or nothing. However Cleveland Clinic here in Weston is referring me to the CC in Ohio and I spoke to there Dr. Scott Steele. He suggested I do surgery with Intraoperative R...