Such Great News!! Happy for your Mum!!

Hi Beach, Hang in there, we are in the same boat, sometimes wondering if our paddle will fall in the water, or it tries to fall in the water and we grab it right before it does and keep on moving. The struggle is definitely real!! LOL... I also have my ups and downs. There are times when I am watchi...

Nicolina, I have abdominal pain with Xeloda. It has been ups and down of severe pain to whirring in my stomach/abdomen. The Whirring is what tells me that I know I have trapped gas. Usually it follows with pebble like poop coming out of my ostomy. If I lie on my right side gas does come out after a ...

That is an awesome early Christmas Present Gina!! Very happy things are looking great.

Lee thank you so much for being there for us with colostomies. Your experience is so valuable. I avoid straws. Things have gotten a lot better with the oregano tea daily and papaya pills for digestion. I am picking up some probiotics as well. I also think pfccr is trolling, it makes no sense the ada...

prayingforccr, at this point I think that everyone knows how you feel, and it is less than helpful to tell someone bravely soldiering on that you would RATHER BE DEAD than be them! Could I kindly request that you put a sock in it? Rickimaroo, I'm sorry that I have no experience to share with you. W...

Beach, That is such valuable information and its funny you mentioned beano, cause my Onc did too. Beach, i been thinking about you, how are you doing overall? Still on the Xeloda? I am on break right now, start up again next week Wednesday. My biggest side effect has been hand and foot syndrome, lik...

Honestly its not that bad. The colostomy has been amazing. I don't mind it at all, and the gas pains are getting better, just got to figure the new me better. Praying not sure what's wrong, but I am remembering maybe your the fella that doesn't want a perm bag and rather die, its not bad at all. I a...

For those with Colostomies, not iloeostomies, do you get recurrent once a week gas pains that are painful and just discomforting? I think what happens to me if I don't go for the whole day, the same day i get whirring noises in my stomach and I know its gas, because I feel like it farts or releases ...

Some pre Christmas good news. My CEA is now 12.9 from 16.1, so down and I hope this begins a downward trend. This is big relief, I hope it keeps going down. Will continue to take the Xeloda. I skipped a day sometimes, and sometimes take less pills, does anyone else do this? Stu did you Mum do this? ...

i had cancer spread to my liver, one solid tumor and never had a biopsy. Went straight to chemo then surgery to remove the tumor from liver.

Zephyr, Claudine, Thanks for the posts gives me hope. I just finished my sixth cycle, the 7th starts this Wednesday. I think pills are slower and given that my Scans didn't show anything, I shouldn't be too concerned. Will wait for PET and hope things go down cause CEA is really stressful. Claudine ...

They don't like to do scans so close to each other. I think recommended is 3 months. He switched to Cat Scans because he knew Pet scans wouldn't find anything at the time my CEA was lower. I am not 100% clear if a pet scan would see something the cat wouldn't, because I would assume the cat scan wou...

Sixth cycle starts today.

CEA is 16....WTF.

CT scans clear NED. Doctor is not concerned by CEA but we do a pet scan maybe next time in February.

MSS is usually open to Immunotherapy, TMB only plays a role on those with MSI Isn't it actually the opposite? MSS = micro satellite stable = not a good candidate for immunotherapy, unless you've got a high tumor burden. So your husband would not benefit from it. But I concur with Riki that being BR...