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by Rikimaroo
Sun Jan 05, 2020 1:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question on recovery from ULAR ileo reversal
Replies: 14
Views: 576

Re: Question on recovery from ULAR ileo reversal

Rock, This is what i used for in case of accidents: https://www.amazon.com/gp/product/B008RJV0L4/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1 Everyone is different, I know Gravelguy has had issue and posted as such. I have been up and down, most days are not great. Yes I can go places and do ...
by Rikimaroo
Sun Jan 05, 2020 1:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice - new ileostomy reversal
Replies: 11
Views: 671

Re: Advice - new ileostomy reversal

after a year of dealing with no rectum and ileostomy reversal and pooping the normal way, I decided to get a permanent colostomy. I never been happier. No worries about pooping myself while I driving, or frequent pooping that seem to never end, or painful bum, or annoying back pain...I will say ther...
by Rikimaroo
Tue Dec 03, 2019 8:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfiri and Nausea
Replies: 15
Views: 1603

Re: Folfiri and Nausea

Hi Tater, I am currently doing 5 rounds of FolFIRI. I get the infusion on a Wednesday and get disconnected from the Pump on Friday. On the first day of infusion when I get home I throw up twice, 2nd day throw up twice or once, Friday throw up once and Saturday maybe throw up, but most likely not. I ...
by Rikimaroo
Sat Nov 30, 2019 2:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sorry another question about chemo but side effects
Replies: 3
Views: 508

Re: Sorry another question about chemo but side effects

I never had nausea with folfox, but i did have stomach cramps. Atropine seems to help alot with that. Ask the oncologist about stomach cramp medication. Chemo sucks no matter which one your on. I am doing FOLFIRI and everyday I talk to my wife about quitting. FOLFIRI causes nausea, I vomit at least ...
by Rikimaroo
Thu Nov 07, 2019 10:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Monday 7th 2019 Salvage Resection Surgery
Replies: 14
Views: 1229

Re: Surgery Monday 7th 2019 Salvage Resection Surgery

Started FolFiri yesterday. Of course when I got home later in the evening threw up. It is always guaranteed I am going to throw up, at least twice. The 2nd time is always worse, because its harder to breathe cause its more liquid. Nothing I have tried will stop the vomiting from happening. I will ta...
by Rikimaroo
Mon Nov 04, 2019 8:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Birthday to me!!
Replies: 14
Views: 616

Re: Happy Birthday to me!!

Happy Birthday. I start Chemo on 6th 5 rounds to make a total of 12, folfiri. Definitely not looking forward to it, but expecting it to once and for all kill any micro cells.
by Rikimaroo
Sun Nov 03, 2019 10:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Monday 7th 2019 Salvage Resection Surgery
Replies: 14
Views: 1229

Re: Surgery Monday 7th 2019 Salvage Resection Surgery

Thanks for the input. I am going to hold off on stool softener for now. It is outputting and I think at a normal range. I guess my main issue now is that the stuff just doesn't fall down into the bag which is super annoying, I use lubricant deodarant, and it doesn't work LOL... I just lift the bag w...
by Rikimaroo
Fri Nov 01, 2019 9:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Monday 7th 2019 Salvage Resection Surgery
Replies: 14
Views: 1229

Re: Surgery Monday 7th 2019 Salvage Resection Surgery

Hello Guys, Update - So Oncologist wants me to do 5 more rounds of FolFiri to make it a total of 12 from where I left off. He said this was the recommendation from the Tumor Board in CC OH after my procedure. Even though 0/7 lymph nodes were clean and they got all the cancer, I guess its just precau...
by Rikimaroo
Mon Oct 21, 2019 3:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Monday 7th 2019 Salvage Resection Surgery
Replies: 14
Views: 1229

Re: Surgery Monday 7th 2019 Salvage Resection Surgery

Sitting here waiting to get staples out, even though I have done this before still nervous as hell. Doctor called this morning after tumor board netting an again reiterated how glad I went to CC OH and did the surgery with him with intraoperative radiation. He got everything and the radiation got an...
by Rikimaroo
Sun Oct 20, 2019 9:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Monday 7th 2019 Salvage Resection Surgery
Replies: 14
Views: 1229

Re: Surgery Monday 7th 2019 Salvage Resection Surgery

Hello Folks, It's been almost 2 weeks since surgery. Everything went excellent per the doctor. I woke up with catheter and stents in my penis (UGH!!) a mushroom plug in my butt, and they stabbed me on the side for a drain. So the first day I was attached to everything. The next day I walked a little...
by Rikimaroo
Sat Oct 05, 2019 4:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 3496

Re: CRC Veteran Check-In! LAR Syndrome question

Lee do you use a stealth belt for your colostomy, or just leave it under your clothes? Also does the bag not come with it's own built in wafer? With the Ileo bag I never had to buy any wafer, just the barrier ring.
by Rikimaroo
Fri Oct 04, 2019 11:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Monday 7th 2019 Salvage Resection Surgery
Replies: 14
Views: 1229

Surgery Monday 7th 2019 Salvage Resection Surgery

Well my insurance finally approved the procedure for Cleveland Clinic Ohio. The surgery is a resection of the left seminal vesicle where the lesion has recurred. SUV uptake at 9.1 with this week pet scan, so definitely malignancy. I also asked for Colostomy bag back, looking forward to take control ...
by Rikimaroo
Wed Oct 02, 2019 9:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 3496

Re: CRC Veteran Check-In! LAR Syndrome question

Cool Lee. Thanks so much for the information. How often did you change the bag itself?
by Rikimaroo
Wed Oct 02, 2019 9:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 218
Views: 20446

Re: Newly diagnosed rectal cancer

My doctor is calling in a prescription but I forgot the name. Procto-something. He said it will help with inflammation and to use that I think three times a day and the other creams when I wasn't using that one. I asked if over the counter pain pills like acetaminophen would help and he said it can...
by Rikimaroo
Mon Sep 30, 2019 9:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help with bowels
Replies: 69
Views: 8566

Re: Help with bowels

No I don't think he would do well with that. He didn't need one after his low anterior resection. He is so ready to give up and is so frustrated it's hard to watch him and hear him. It breaks my heart to see him struggling. I think if he had to have a colostomy he would give up. I wish I knew other...

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