I didn't get the barbie butt and I have mucus discharge. I regret not doing it. Permanent Colostomy has given me my life back, LARS was horrible I dealt with it for 1 year and I couldn't do it anymore. I think doing the full APR is the right thing. I don't know why I decided not to do the barbie but...

Hoping for clear scan!! Good Luck!!

Hi Trying, Your lucky that your Colostomy worked like that. Mine does what you are describing where it will periodically go all day, and I just snap off bag clean it and snap it back on. Sometimes I do get the nice go once for the day, but that is very rare. It sound normal to me lol...Sorry I could...

Roadrunner, It is definitely the unknown and something we are not use to that puts us on edge and sometimes our thoughts are unclear on how to proceed. Who would of thought you can poop through your stomach. It's just amazing what doctors can do to save your life. This is why you have people like me...

"I am PRAYING for a complete response as I have decided after much reflection that I would rather end my life than undergo a surgery that would leave me with a bag." I really hope everything works out for you, but I wanted to pull this statement out of your post. When I first got diagnosed...

Cynthia, That is awesome news. Very happy things are working and your here for a long time to enjoy your beautiful family. So the side effects Fatigue is nothing like being on FolFIRI? not even close right? How long does the fatigue last for? That CEA at .8 is the most wonderful number. I was there ...

This is great news. My Onc mentioned something about FDA approved something, not sure if it was Keytruda, but will talk to him. My TMB is 8, but I want him to do a new test from my last surgery, will talk to him about it. So when you say your Cancer free, are you not doing any regimen at the moment?...

Rock did you get the vertical stealth or the one that you have to move your bag horizontal? How are you doing Rock since Ileo reversal? Glad to see your 6 months scans are good as well. I am debating getting the stealth belt. I just want to conceal it a bit more, just this particular bag brand stick...

I assuming on the ostomy wraps you wear it only when your going out? Doesn't it feel constricting when your stoma is going to be active obviously this is unpredictable, so how do you work around that?

I think I wrap is a good idea as well. I just don't want the thing to show lol.

Hello All, Question regarding this pouch. I love the pouch and how easy it is to remove and snap back on. My only question is I feel this pouch is much more bulky in regards to sticking out. I know Lee uses it and not sure who else, but what have you done to make it less noticeable. I don't have a b...

Sorry to hear this. CEA always makes me nervous and causes so much anxiety. My CEA was once 600 and went down doing FolFox. Eventually my oncologist decided that FolFiri is the next step for me and put me on that and it made a big impact on reducing my CEA. Has your husband Oncologist tried FolFiri ...

Great news buddy!! You have been very knowledgeable and helpful to a lot and I am glad good news for you. How are you doing post reversal?

Thanks everyone for the replies. Most informative CRG.

I am going to continue on as normal as right now I am not at the point for I have no options. Yes it is regarding Fenbendazole.

Have you guys heard of this? I was wondering for some of those who are running out of options, or in a position to perhaps try the drug for a few months to see if it does something and report back, that would be something welcomed. Obviously a MD is not going to support this, because it is not somet...

He won't return to Cleveland clinic. For anything I feel like he's looking for and excuse to quit now I am sorry this is happening. Like your husband my cancer keeps coming back and now I am going to have to be on maintenance chemo for life. Excuse to quit or not, no one knows how hard and difficul...