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by Rikimaroo
Tue Mar 24, 2020 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I hate CEA Test
Replies: 3
Views: 357

Re: I hate CEA Test

Thanks NHMike. Yes I have 3 months surveillance plan at the moment. Next tests in May, so hopefully it does go down. Is there any recommendations on things to take perhaps to help? Natural stuff? :P
by Rikimaroo
Mon Mar 23, 2020 1:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I hate CEA Test
Replies: 3
Views: 357

I hate CEA Test

Hello All, I hope everyone is staying safe and practicing social distancing if possible. I have the luxury of working from home, but still concerned about the business I support. So far since surgery on October 2019 for recurrence all is clear with last pet scan done in February. CEA was 3.1 in Janu...
by Rikimaroo
Wed Feb 19, 2020 8:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions for those with a Colostomy
Replies: 3
Views: 353

Questions for those with a Colostomy

So it's been about 4 months since I have my colostomy and overall I am happy with it, versus going the old fashion way and dealing with LARs... Couple questions/suggestions for me. 1. Sometimes my colostomy is super active in the middle of the night, like from 1am to 6am and I can't sleep, I get con...
by Rikimaroo
Sun Jan 05, 2020 1:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question on recovery from ULAR ileo reversal
Replies: 14
Views: 1065

Re: Question on recovery from ULAR ileo reversal

Rock, This is what i used for in case of accidents: https://www.amazon.com/gp/product/B008RJV0L4/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1 Everyone is different, I know Gravelguy has had issue and posted as such. I have been up and down, most days are not great. Yes I can go places and do ...
by Rikimaroo
Sun Jan 05, 2020 1:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice - new ileostomy reversal
Replies: 11
Views: 1025

Re: Advice - new ileostomy reversal

after a year of dealing with no rectum and ileostomy reversal and pooping the normal way, I decided to get a permanent colostomy. I never been happier. No worries about pooping myself while I driving, or frequent pooping that seem to never end, or painful bum, or annoying back pain...I will say ther...
by Rikimaroo
Tue Dec 03, 2019 8:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfiri and Nausea
Replies: 15
Views: 2087

Re: Folfiri and Nausea

Hi Tater, I am currently doing 5 rounds of FolFIRI. I get the infusion on a Wednesday and get disconnected from the Pump on Friday. On the first day of infusion when I get home I throw up twice, 2nd day throw up twice or once, Friday throw up once and Saturday maybe throw up, but most likely not. I ...
by Rikimaroo
Sat Nov 30, 2019 2:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sorry another question about chemo but side effects
Replies: 3
Views: 714

Re: Sorry another question about chemo but side effects

I never had nausea with folfox, but i did have stomach cramps. Atropine seems to help alot with that. Ask the oncologist about stomach cramp medication. Chemo sucks no matter which one your on. I am doing FOLFIRI and everyday I talk to my wife about quitting. FOLFIRI causes nausea, I vomit at least ...
by Rikimaroo
Thu Nov 07, 2019 10:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Monday 7th 2019 Salvage Resection Surgery
Replies: 14
Views: 1520

Re: Surgery Monday 7th 2019 Salvage Resection Surgery

Started FolFiri yesterday. Of course when I got home later in the evening threw up. It is always guaranteed I am going to throw up, at least twice. The 2nd time is always worse, because its harder to breathe cause its more liquid. Nothing I have tried will stop the vomiting from happening. I will ta...
by Rikimaroo
Mon Nov 04, 2019 8:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Birthday to me!!
Replies: 14
Views: 836

Re: Happy Birthday to me!!

Happy Birthday. I start Chemo on 6th 5 rounds to make a total of 12, folfiri. Definitely not looking forward to it, but expecting it to once and for all kill any micro cells.
by Rikimaroo
Sun Nov 03, 2019 10:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Monday 7th 2019 Salvage Resection Surgery
Replies: 14
Views: 1520

Re: Surgery Monday 7th 2019 Salvage Resection Surgery

Thanks for the input. I am going to hold off on stool softener for now. It is outputting and I think at a normal range. I guess my main issue now is that the stuff just doesn't fall down into the bag which is super annoying, I use lubricant deodarant, and it doesn't work LOL... I just lift the bag w...
by Rikimaroo
Fri Nov 01, 2019 9:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Monday 7th 2019 Salvage Resection Surgery
Replies: 14
Views: 1520

Re: Surgery Monday 7th 2019 Salvage Resection Surgery

Hello Guys, Update - So Oncologist wants me to do 5 more rounds of FolFiri to make it a total of 12 from where I left off. He said this was the recommendation from the Tumor Board in CC OH after my procedure. Even though 0/7 lymph nodes were clean and they got all the cancer, I guess its just precau...
by Rikimaroo
Mon Oct 21, 2019 3:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Monday 7th 2019 Salvage Resection Surgery
Replies: 14
Views: 1520

Re: Surgery Monday 7th 2019 Salvage Resection Surgery

Sitting here waiting to get staples out, even though I have done this before still nervous as hell. Doctor called this morning after tumor board netting an again reiterated how glad I went to CC OH and did the surgery with him with intraoperative radiation. He got everything and the radiation got an...
by Rikimaroo
Sun Oct 20, 2019 9:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Monday 7th 2019 Salvage Resection Surgery
Replies: 14
Views: 1520

Re: Surgery Monday 7th 2019 Salvage Resection Surgery

Hello Folks, It's been almost 2 weeks since surgery. Everything went excellent per the doctor. I woke up with catheter and stents in my penis (UGH!!) a mushroom plug in my butt, and they stabbed me on the side for a drain. So the first day I was attached to everything. The next day I walked a little...
by Rikimaroo
Sat Oct 05, 2019 4:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 3995

Re: CRC Veteran Check-In! LAR Syndrome question

Lee do you use a stealth belt for your colostomy, or just leave it under your clothes? Also does the bag not come with it's own built in wafer? With the Ileo bag I never had to buy any wafer, just the barrier ring.
by Rikimaroo
Fri Oct 04, 2019 11:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Monday 7th 2019 Salvage Resection Surgery
Replies: 14
Views: 1520

Surgery Monday 7th 2019 Salvage Resection Surgery

Well my insurance finally approved the procedure for Cleveland Clinic Ohio. The surgery is a resection of the left seminal vesicle where the lesion has recurred. SUV uptake at 9.1 with this week pet scan, so definitely malignancy. I also asked for Colostomy bag back, looking forward to take control ...

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