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by Rikimaroo
Tue Jul 16, 2019 11:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: daily enema HELP
Replies: 18
Views: 641

Re: daily enema HELP

Nate is it safe to use laxatives daily? When does he use it?
by Rikimaroo
Tue Jul 16, 2019 11:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo has caught up to me yall
Replies: 21
Views: 1023

Re: Chemo has caught up to me yall

FOLFOX was horrible but I think FOLFIRI is just as worse only different side effects. My neuropathy from FOLFOX has subsided in my hands, but I still get it in my feet, but at nighttime. It's kind of annoying.
by Rikimaroo
Tue Jul 16, 2019 11:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 42
Views: 1615

Re: CLUSTERINGGGGGGGGG!!!!!!!

Thanks Susie I really appreciate your time and effort to help with this. I don't think your pushing enemas on everyone, you just found a solution that works or you. I am so nervous to try it lol...I need to give it a try though because I rather not get the bag back. I too felt the pressure of poopin...
by Rikimaroo
Mon Jul 15, 2019 7:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 42
Views: 1615

Re: CLUSTERINGGGGGGGGG!!!!!!!

I been slacking on Metamucil every night before I go to bed. Has anyone taking it and things are better? Sometimes I think it makes me cluster, but I have not consistently taking it every night. I am going to try to take it every night to see if it keeps everything together. Today is another day of ...
by Rikimaroo
Mon Jul 15, 2019 3:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1499
Views: 310089

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Mike i can't believe your still having such a rough time this long out, makes me wonder if the bag is the best options when people lose there rectum. It just sucks
by Rikimaroo
Mon Jul 15, 2019 10:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 42
Views: 1615

Re: CLUSTERINGGGGGGGGG!!!!!!!

Honestly my butthole. Thats about it. And the stool is not watery or diarrhea is just normal stool. Maybe its because I did chemo June 22nd. Sometimes it makes it harder to heal sooner so I get that burn when I am pooing. I hate this, I want to try the enema but I am so intimidated. susie one thing ...
by Rikimaroo
Sun Jul 14, 2019 11:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 42
Views: 1615

Re: CLUSTERINGGGGGGGGG!!!!!!!

I don't think I have LARS. My issue is that sometimes I have pooping 4-5 times a day, then someday its one time. The problem is it starts to burn sometimes when I go 4-5 times a day, also the unpredictability of it all makes it hard to do a job, or meet with clients, or do uber/lyft.etcc...I have my...
by Rikimaroo
Sun Jul 14, 2019 10:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo has caught up to me yall
Replies: 21
Views: 1023

Re: Chemo has caught up to me yall

Chemo sucks, it just sucks!! I hate it and debating if I want to do it anymore. It is ridiculously hard, makes you super tired, vomitting (FOLFIRI) and just overall just feeling crappy. Sometimes I wonder if its worth it. Taking natural stuff might help, but no statistics on that helping :(...I Just...
by Rikimaroo
Sun Jul 14, 2019 9:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 42
Views: 1615

Re: CLUSTERINGGGGGGGGG!!!!!!!

Susie, thank you and I know you mentioned it several times before. I think I will try it before making any rash decisions. Can you provide links to what you buy from amazon?
by Rikimaroo
Sun Jul 14, 2019 1:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 42
Views: 1615

Re: CLUSTERINGGGGGGGGG!!!!!!!

I have seriously considered getting my bag back. This just suck without a rectum it is just a up and down roller coaster. Somem day your fine and other days its just a clustering burning nonsense
by Rikimaroo
Fri Jul 12, 2019 9:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 42
Views: 1615

Re: CLUSTERINGGGGGGGGG!!!!!!!

Yesterday was worse then normal. I clustered and I don't know what caused it maybe it was the Jambalaya I made, My wife was craving it. I use the Zatarain's® Jambalaya Rice Mix - 8oz. Either way I hate Clustering, its burns the butt and It's annoying. Your day is pretty much shot. I miss my Ileostom...
by Rikimaroo
Sun Jul 07, 2019 6:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 42
Views: 1615

Re: CLUSTERINGGGGGGGGG!!!!!!!

Eleda, if your eating beans, don't eat it anymore. It causes major gas and clustering. Also are you taking Metamucil at night with a lomotil/atropine? Try that and it might help, also how far out from your reversal are you?
by Rikimaroo
Sun Jul 07, 2019 6:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did anyone ever decide to go back to ileostomy after reversal
Replies: 25
Views: 2469

Re: Did anyone ever decide to go back to ileostomy after reversal

Haha right Mike. I love beans with my Spanish food :(, oh well, don't want to cluster anymore. Things have been going better. I pooped once today it was kind of a blowout. But I stay on the toilet for at least 40 minutes to make sure everything comes out. I took a Lomotil/atropine right after. I hop...
by Rikimaroo
Fri Jul 05, 2019 12:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did anyone ever decide to go back to ileostomy after reversal
Replies: 25
Views: 2469

Re: Did anyone ever decide to go back to ileostomy after reversal

Just a quick update. I am taking a minor break from chemo, until July 22nd when I get my next pet scan. I just did a FOLFIRI treatment Wednesday June 26th. So I should be fine. Doc is cool with the break, its been hard, the nausea, taste bud loss, makes everything so difficult. Enjoying life sucks w...
by Rikimaroo
Wed Jun 26, 2019 4:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo question
Replies: 7
Views: 650

Re: Mop op chemo question

You get 12 if the oncologist suggested chemo prior to surgery so six before surgery and six after surgery of FOLFOX typically. at least that is how mine went. I would do mop up chemo just to play it safe. six rounds should do the trick.

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