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by Rikimaroo
Thu Apr 25, 2019 4:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversals Any positives?
Replies: 28
Views: 813

Re: Reversals Any positives?

Today I think I went to the bathroom at least 8 times I think its my fault though cause I did eat some Jamaican food curry etc...and such, but still even when I eat fine this happens but not as bad. . Some days I go 2 times. It's rather frustrating and I am 6 months out. I take Metamucil at night be...
by Rikimaroo
Thu Apr 25, 2019 2:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: local Recurrent Cancer after LAR anyone, experiences
Replies: 0
Views: 85

local Recurrent Cancer after LAR anyone, experiences

Has anyone ever had local recurrent cancer after lower anterior resection (LAR) and had to do salvage surgery? What was your outlook and if you were NED after salvage surgery, or next steps..
by Rikimaroo
Thu Apr 25, 2019 2:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 368
Views: 104792

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Scary ? Sorry, I thought I'd read you had blood again etc in stools ? Xxx annie xxx Sorry I misread your post. Yes after chemo radiation which was done in Feb 2017, I thought all was well. I had scopes for 6 months twice and nothing. Then the same bleeding starting happening again and thats how I k...
by Rikimaroo
Wed Apr 24, 2019 3:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV, what happens after surgery?
Replies: 17
Views: 437

Re: Stage IV, what happens after surgery?

Stu your mother’s journey is very encouraging. God Bless you Mum and May she continue to live a long life. If your oncologist think you don’t need chemo maybe because of clear margins then you are good. These guys are very good at what they do. Continue to pray that God gives these doctors the knowl...
by Rikimaroo
Tue Apr 23, 2019 12:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 85
Views: 7616

Re: CEA Levels

My cea is now 8 from 16, from 22..so the chemo is working. It is hard doing chemo, sometimes I just want to give up. One more treatment on May 1st then I will schedule scan (PET) to see what the next steps are. I really need to cure this thing. Chemo really causes your butt (anus) to not heal after ...
by Rikimaroo
Tue Apr 23, 2019 11:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 85
Views: 7616

Re: CEA Levels

Caat55 wrote:Rikki,
Glad to see your numbers are turning back down. I can't imagine the frustration of tackling this again. Heading into my reversal on Thursday. Wishing you good luck with final doses.
S


How is your reversal surgery and how are you doing?
by Rikimaroo
Tue Apr 23, 2019 11:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 368
Views: 104792

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Rikamaroo
Did you feel any symptoms before recurrence ? So was it about 6 months after you had stopped chemo rad or more ? Thanks for help xxx Annie ccx




No symptoms. I just went for my 3 month follow-ups and scans and blood work and that is how they saw recurrence.
by Rikimaroo
Tue Apr 16, 2019 10:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 85
Views: 7616

Re: CEA Levels

Caat, Good luck on your reversal. With all the stress of recurrence dealing with unpredictable bathroom runs it’s been quite stressful. Sometimes I wish I had my bag back because it was easy and I can do anything. Now I feel tied to the bathroom and am afraid to go anywhere worrying I will be stuck ...
by Rikimaroo
Tue Apr 16, 2019 8:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 85
Views: 7616

Re: CEA Levels

Thanks guys. I am doing FOLFIRI not FOLFOX, but when on FOLFOX my hair thinned. FOLFIRI makes you actually lose a lot of hair, possibly all. Yes I am responding to the treatment, but it makes me very sad that I am going through this again, even though I know people have been through and got cured. S...
by Rikimaroo
Mon Apr 15, 2019 5:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 85
Views: 7616

Re: CEA Levels

Well my hair is officially falling out all over the place. this didn't happen much on FOLFOX. It thinned mostly. I guess I will keep it on and not shave it off yet. I have 2 more treatments. Pyro (The devil's lettuce is hilarious)... I don't really care at this point regarding hair, I just want to g...
by Rikimaroo
Sat Apr 13, 2019 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Berberine
Replies: 13
Views: 804

Re: Berberine

I am taking six of these daily and will let you guys know how it goes with my next blood work. Granted I am doing chemo now two rounds left but it’s not gonna hurt to take this going forward. I also drink a tea my Mom makes me from guanabana tree leaves. She boils the leaves and drops a drop of cina...
by Rikimaroo
Thu Apr 11, 2019 5:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 80 year old mother
Replies: 7
Views: 493

Re: 80 year old mother

My grandmother is in her 80s. She had breast cancer in her 70s. She did everything and was good until recently somethings popped up in her lungs. To be honest at 80+ years old it is not worth the impact that chemotherapy does to the quality of life. She decided not to do anymore chemo. However she i...
by Rikimaroo
Sat Apr 06, 2019 5:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 85
Views: 7616

Re: CEA Levels

Hi Guys, Things have been moving along. CEA went from 22.9 to 16 after first treatment. I just did 2nd one Wednesday. yeah I am mostly tired and nauseous. I actually vomited for the first time since being on this cancer journey. I hate the feeling. I tried some marijuana which I never touched in my ...
by Rikimaroo
Wed Apr 03, 2019 3:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Disconnect & folfiri questions
Replies: 11
Views: 495

Re: Disconnect & folfiri questions

Hello Friend, I had treatment today with Folfiri, the treament started around 10am the actually chemo but I was in the office at 8am. They did blood work, typical premeds, then chemo once all was clear. I have an appointment for Friday at 3pm for disconnect. So yes it is 48 hours typically with pump...
by Rikimaroo
Wed Apr 03, 2019 3:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 368
Views: 104792

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

[quote="lakeswim"]Rikimaroo... I am so sorry to hear you had the local recurrence. I imagine that must have been devastating for you, but you sound like you have a positive attitude. I am missing where you are in the process? Did you have your surgery? And I’m curious why you want a perman...

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