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by Achilles Torn
Wed Sep 16, 2020 2:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stg 4 para aortic and Iliac Lymph Nodes
Replies: 40
Views: 7781

Re: Stg 4 para aortic and Iliac Lymph Nodes

I’m in recovery from surgery today. The PET scan just before showed the maintenance chemo had held me stable For three months. The surgeon said it went well and they removed a lot of nodes. I was reading up on surgical options for lymph nodes and found this example of a patient with multiple lymph ...
by Achilles Torn
Wed Sep 09, 2020 1:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stg 4 para aortic and Iliac Lymph Nodes
Replies: 40
Views: 7781

Re: Stg 4 para aortic and Iliac Lymph Nodes

I’m in recovery from surgery today. The PET scan just before showed the maintenance chemo had held me stable For three months. The surgeon said it went well and they removed a lot of nodes. I was reading up on surgical options for lymph nodes and found this example of a patient with multiple lymph n...
by Achilles Torn
Tue Sep 08, 2020 12:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stg 4 para aortic and Iliac Lymph Nodes
Replies: 40
Views: 7781

Re: Stg 4 para aortic and Iliac Lymph Nodes

No two of us are the same its true. I can tell you that my spread was the right and left Illiac nodes all the way up to the Para-aortic nodes and chemo worked well on them for years. I also know of people who, given the right systemic chemo treatment have seen many nodes wiped out. Is it the most li...
by Achilles Torn
Mon Sep 07, 2020 2:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stg 4 para aortic and Iliac Lymph Nodes
Replies: 40
Views: 7781

Re: Stg 4 para aortic and Iliac Lymph Nodes

As far as I know 5FU and Xeloda are thought to be equivalent as Xeloda is essentially converted to 5FU after ingestion (at least that’s my understanding). They have a bit different side effect profile but efficacy is supposed to be the same. In terms of extensive lymph node dissection the surgeon to...
by Achilles Torn
Thu Sep 03, 2020 2:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stg 4 para aortic and Iliac Lymph Nodes
Replies: 40
Views: 7781

Re: Stg 4 para aortic and Iliac Lymph Nodes

Hi Internal1, In my case the nodes shrank to normal size after 12 cycles of FolFox. My Oncologist and I agreed it was likely still there but just not visible so kept on going with maintenance chemo of 5FU and Bevicuzimab (Avastin). After a year or so of maintenance I switched the 5FU to Capecitabine...
by Achilles Torn
Tue Jul 21, 2020 1:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADAPT and Celebrex - What happened?
Replies: 28
Views: 8006

Re: ADAPT and Celebrex - What happened?

I've always been interest in Celebrex and recently ran across various versions of this https://pubmed.ncbi.nlm.nih.gov/18725385/ I'm not good at reading science...but seems to indicate a benefit to those with a SMAD3 mutation (which I have) Not sure how common SMAD3 is as its not part of the normal ...
by Achilles Torn
Sun May 17, 2020 1:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer in a lymph node
Replies: 3
Views: 1226

Re: Colon cancer in a lymph node

Lymph nodes can be enlarged for many reasons and sometimes can return to normal size on their own. In my case a PET scan revealed significant lymph spread but chemo shrank them all back to normal on subsequent CT/PET scans. They can’t really tell without a biopsy but i recommend a PET scan. Lots of ...
by Achilles Torn
Sun May 17, 2020 1:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back 2nd time
Replies: 3
Views: 1177

Re: Back 2nd time

Hi there, Sorry to hear you are back but there’s plenty of room for optimism that it will be relatively early. In my case their were some similarities. I had a pre cancerous polyp removed that showed high grade dysplasia. Clean scopes for 5 years and then a Tumor was discovered in that exact spot. I...
by Achilles Torn
Fri Dec 13, 2019 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Para-aortic node recurrence
Replies: 27
Views: 6788

Re: Para-aortic node recurrence

Hi Siti, I had many lymph node mets up to the PALNs at diagnosis. Both Oncologist and Surgeon agreed it was too widespread to attempt surgery and to go on Chemo and re-evaluate. I did FolFox for 6 months which shrank the lymph nodes to virtually normal although my Oncologist and I agree the cancer i...
by Achilles Torn
Wed Aug 07, 2019 10:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Olymphians w/ surgery advice/experiences??
Replies: 37
Views: 4912

Re: Olymphians w/ surgery advice/experiences??

My lymph node spread is more extensive, but I did meet with a surgeon who seemed confident he could remove para aortic nodes if the spread were limited to that region. It sounds like this is the case for your husband which is good news. All surgical procedures carry risk so it's normal to worry. Bas...
by Achilles Torn
Fri Jun 14, 2019 4:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV parents with young child(ren)
Replies: 11
Views: 2626

Re: Stage IV parents with young child(ren)

Hi Windswept, I'm sorry to hear about your diagnosis. As an incurable Stage IV patient with 3 young children I was devastated and did patient counselling at my cancer center. I was after a while able to live in the moment and I try not to think about what will happen in the future. Sometimes I do an...
by Achilles Torn
Sat May 25, 2019 12:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Totally in Shock Stage 2 to Stage 4 in 9 Months
Replies: 25
Views: 5158

Re: Totally in Shock Stage 2 to Stage 4 in 9 Months

It is a horrible thing to face and there is no way to sugar coat it. That said it doesn’t have to be a death sentence. There are many treatment options that you haven’t tried that may work. It’s a bad hand to be dealt but it ain’t close to being over yet.
by Achilles Torn
Thu Jan 17, 2019 9:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: This chemo is knocking me down
Replies: 13
Views: 1620

Re: This chemo is knocking me down

Sorry to hear it sounds like a rough one. Chemo just sucks.

I had some rough cycles on FolFox (number 4 particularly stands out for me) and susbequent ones were sometimes better. Hope that helps.

AT
by Achilles Torn
Mon Dec 10, 2018 4:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Test results
Replies: 10
Views: 1869

Re: Test results

Sounds like great news. I remember hearing that chemo was working at it was like the first thing that went right on this terrifying journey. May you have more positive news in the future !
by Achilles Torn
Sun Dec 09, 2018 8:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question About Staging
Replies: 3
Views: 920

Re: Question About Staging

I can't answer definitively as everyone has a unique medical profile. Generally if it has only spread to lymph nodes in proximity to the colon that is stage 3. If it has spread to any other organs or distant lymph nodes that is considered stage 4. This can be a little tricky depending on how far the...

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