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by Achilles Torn
Mon Dec 10, 2018 4:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Test results
Replies: 10
Views: 582

Re: Test results

Sounds like great news. I remember hearing that chemo was working at it was like the first thing that went right on this terrifying journey. May you have more positive news in the future !
by Achilles Torn
Sun Dec 09, 2018 8:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question About Staging
Replies: 3
Views: 249

Re: Question About Staging

I can't answer definitively as everyone has a unique medical profile. Generally if it has only spread to lymph nodes in proximity to the colon that is stage 3. If it has spread to any other organs or distant lymph nodes that is considered stage 4. This can be a little tricky depending on how far the...
by Achilles Torn
Thu Dec 06, 2018 11:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Im mentally breaking
Replies: 21
Views: 864

Re: Im mentally breaking

Hey Trying, I just wanted to say this is horrible and sucks...words can’t even describe how scared and angry I get. You aren’t alone in feeling like this and we often put on a brave face here. (I’m regularly reduced to a quivering mess when I think of my kids). Seeing a counselor at my Cancer Agency...
by Achilles Torn
Sun Nov 25, 2018 10:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tropical travel after FOLFOX?
Replies: 8
Views: 390

Re: Tropical travel after FOLFOX?

I don’t know about other vaccines but you may find this interesting

https://www.ncbi.nlm.nih.gov/m/pubmed/28923497/

Dukoral use may be linked to a survival benefit for Colon cancer.

AT
by Achilles Torn
Sat Nov 10, 2018 2:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda + Avastin Maintenance for NED people
Replies: 7
Views: 440

Re: Xeloda + Avastin Maintenance for NED people

I am on maintenance chemo. I did over a year of 5FU pump and Avastin. The pump started making me sick and I am now doing Xeloda (3200mg reduced from 4000mg due to sore feet) and Avastin. I'm on the third 3 week cycle and so far seems so good (knock on wood). Everything I've read leads me to believe ...
by Achilles Torn
Sat Oct 20, 2018 12:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quality of life on Folfox and others
Replies: 19
Views: 2154

Re: Quality of life on Folfox and others

I did 12 rounds of FolFox and Bevicuzimab and about 15 more of 5FU and Bev (now on round 2 of Xeloda and Bev). Side effects sucked but I would describe my quality of life as good. While on full FolFox I was knocked down for a few days every 2 weeks but after that I was just a bit more tired than nor...
by Achilles Torn
Sat Oct 20, 2018 12:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung nodule question
Replies: 5
Views: 539

Re: Lung nodule question

Sounds stable to me. I’ve sat with a radiologist while he remeasured one of my scans and his measure was 1mm different from the doc who authored the first report. That’s on the same scan so imagine the margin of error between scans.

Congrats on your long term NED !

AT.
by Achilles Torn
Fri Oct 19, 2018 12:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New plan for para aortic lymph nodes. No surgery, radiation instead
Replies: 4
Views: 403

Re: New plan for para aortic lymph nodes. No surgery, radiation instead

Thanks so much for the update and the helpful information. This sounds like it has a good chance to provide long term remission. It also seems through anecdotes on this board that chemo can wipe or suppress those micro mets if they are present in other nodes. If you want a great story about radiatio...
by Achilles Torn
Wed Oct 10, 2018 1:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lymph node tested positive :(
Replies: 14
Views: 1728

Re: lymph node tested positive :(

There is every reason to have hope for a positive outcome for your husband. Surgery still may be an option and if not, then systemic treatments may be very effective. There are several examples on this board of people with lymph node mets that have been going strong for many years and tolerating tre...
by Achilles Torn
Sun Sep 30, 2018 11:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need a pep talk
Replies: 14
Views: 1018

Re: I need a pep talk

Hi Trying, There is plenty of reason to hope. One option for BC patients is the POG trial. Which has seen some success in at least one stage 4 colon cancer patient. I’m from the Vancouver area. Another stage 4 patient from chilliwack and I get together for a coffee from time to time. If you ever wan...
by Achilles Torn
Wed Sep 12, 2018 12:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH had surgery consult yesterday for para aortic nodes
Replies: 17
Views: 4414

Re: DH had surgery consult yesterday for para aortic nodes

Sounds like you have a good plan ! Anytime surgery can remove the cancer you have a great chance for a positive outcome. I had para-aortic nodes at diagnosis and as of my last PET scan in April they are no longer showing up (I'm overdue for a scan now). 5Fu infusions are starting to wear me down so ...
by Achilles Torn
Wed Jul 25, 2018 12:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Results 15 months post surgery. NDED vs NED?
Replies: 26
Views: 6550

Re: Scan Results 15 months post surgery. NDED vs NED?

I read it as a good scan. I’ve had close to 10 CT or PET scans since diagnosis and noticed how each radiologist writes differently. I’ve had a few that read like this and I think they just have a “hedgy”style as it is somewhat subjective. If they saw something suspicious they would definitely note i...
by Achilles Torn
Mon Jul 09, 2018 4:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT scan report and PARA-AORTIC Lymph Nodes!
Replies: 7
Views: 704

Re: CT scan report and PARA-AORTIC Lymph Nodes!

All this means is that the nodes are likely reactive. While there is still good reason to think they may be benign my advice is to be vigilant. I had prominent nodes noted on my Stage 3 scan which were later revealed by follow-up PET scans to be cancer (only a biopsy would be certain but the PET num...
by Achilles Torn
Mon Jul 09, 2018 4:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bizarre results, please help!
Replies: 3
Views: 682

Re: Bizarre results, please help!

Hi CLD, Sorry to hear about the possible bad news this scan has brought. While it does seem rare, lymph node and bone spread is not unheard of and there are a few examples from this board. That being said you are right that PET scans can show false positives especially when there are signs of infect...
by Achilles Torn
Tue Jun 12, 2018 10:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 support?
Replies: 12
Views: 921

Re: Stage 4 support?

I’m with you ! There are lots of stage 4 survivors doing great and it’s always nice to hear from them.

Stay positive !

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