Search found 117 matches

Go to advanced search

by Achilles Torn
Wed Aug 07, 2019 10:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Olymphians w/ surgery advice/experiences??
Replies: 26
Views: 1799

Re: Olymphians w/ surgery advice/experiences??

My lymph node spread is more extensive, but I did meet with a surgeon who seemed confident he could remove para aortic nodes if the spread were limited to that region. It sounds like this is the case for your husband which is good news. All surgical procedures carry risk so it's normal to worry. Bas...
by Achilles Torn
Fri Jun 14, 2019 4:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV parents with young child(ren)
Replies: 11
Views: 1812

Re: Stage IV parents with young child(ren)

Hi Windswept, I'm sorry to hear about your diagnosis. As an incurable Stage IV patient with 3 young children I was devastated and did patient counselling at my cancer center. I was after a while able to live in the moment and I try not to think about what will happen in the future. Sometimes I do an...
by Achilles Torn
Sat May 25, 2019 12:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Totally in Shock Stage 2 to Stage 4 in 9 Months
Replies: 25
Views: 3850

Re: Totally in Shock Stage 2 to Stage 4 in 9 Months

It is a horrible thing to face and there is no way to sugar coat it. That said it doesn’t have to be a death sentence. There are many treatment options that you haven’t tried that may work. It’s a bad hand to be dealt but it ain’t close to being over yet.
by Achilles Torn
Thu Jan 17, 2019 9:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: This chemo is knocking me down
Replies: 13
Views: 1137

Re: This chemo is knocking me down

Sorry to hear it sounds like a rough one. Chemo just sucks.

I had some rough cycles on FolFox (number 4 particularly stands out for me) and susbequent ones were sometimes better. Hope that helps.

AT
by Achilles Torn
Mon Dec 10, 2018 4:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Test results
Replies: 10
Views: 1430

Re: Test results

Sounds like great news. I remember hearing that chemo was working at it was like the first thing that went right on this terrifying journey. May you have more positive news in the future !
by Achilles Torn
Sun Dec 09, 2018 8:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question About Staging
Replies: 3
Views: 708

Re: Question About Staging

I can't answer definitively as everyone has a unique medical profile. Generally if it has only spread to lymph nodes in proximity to the colon that is stage 3. If it has spread to any other organs or distant lymph nodes that is considered stage 4. This can be a little tricky depending on how far the...
by Achilles Torn
Thu Dec 06, 2018 11:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Im mentally breaking
Replies: 21
Views: 2268

Re: Im mentally breaking

Hey Trying, I just wanted to say this is horrible and sucks...words can’t even describe how scared and angry I get. You aren’t alone in feeling like this and we often put on a brave face here. (I’m regularly reduced to a quivering mess when I think of my kids). Seeing a counselor at my Cancer Agency...
by Achilles Torn
Sun Nov 25, 2018 10:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tropical travel after FOLFOX?
Replies: 8
Views: 981

Re: Tropical travel after FOLFOX?

I don’t know about other vaccines but you may find this interesting

https://www.ncbi.nlm.nih.gov/m/pubmed/28923497/

Dukoral use may be linked to a survival benefit for Colon cancer.

AT
by Achilles Torn
Sat Nov 10, 2018 2:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda + Avastin Maintenance for NED people
Replies: 7
Views: 1016

Re: Xeloda + Avastin Maintenance for NED people

I am on maintenance chemo. I did over a year of 5FU pump and Avastin. The pump started making me sick and I am now doing Xeloda (3200mg reduced from 4000mg due to sore feet) and Avastin. I'm on the third 3 week cycle and so far seems so good (knock on wood). Everything I've read leads me to believe ...
by Achilles Torn
Sat Oct 20, 2018 12:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quality of life on Folfox and others
Replies: 20
Views: 5024

Re: Quality of life on Folfox and others

I did 12 rounds of FolFox and Bevicuzimab and about 15 more of 5FU and Bev (now on round 2 of Xeloda and Bev). Side effects sucked but I would describe my quality of life as good. While on full FolFox I was knocked down for a few days every 2 weeks but after that I was just a bit more tired than nor...
by Achilles Torn
Sat Oct 20, 2018 12:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung nodule question
Replies: 5
Views: 925

Re: Lung nodule question

Sounds stable to me. I’ve sat with a radiologist while he remeasured one of my scans and his measure was 1mm different from the doc who authored the first report. That’s on the same scan so imagine the margin of error between scans.

Congrats on your long term NED !

AT.
by Achilles Torn
Fri Oct 19, 2018 12:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New plan for para aortic lymph nodes. No surgery, radiation instead
Replies: 4
Views: 714

Re: New plan for para aortic lymph nodes. No surgery, radiation instead

Thanks so much for the update and the helpful information. This sounds like it has a good chance to provide long term remission. It also seems through anecdotes on this board that chemo can wipe or suppress those micro mets if they are present in other nodes. If you want a great story about radiatio...
by Achilles Torn
Wed Oct 10, 2018 1:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lymph node tested positive :(
Replies: 14
Views: 2353

Re: lymph node tested positive :(

There is every reason to have hope for a positive outcome for your husband. Surgery still may be an option and if not, then systemic treatments may be very effective. There are several examples on this board of people with lymph node mets that have been going strong for many years and tolerating tre...
by Achilles Torn
Sun Sep 30, 2018 11:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need a pep talk
Replies: 14
Views: 1635

Re: I need a pep talk

Hi Trying, There is plenty of reason to hope. One option for BC patients is the POG trial. Which has seen some success in at least one stage 4 colon cancer patient. I’m from the Vancouver area. Another stage 4 patient from chilliwack and I get together for a coffee from time to time. If you ever wan...
by Achilles Torn
Wed Sep 12, 2018 12:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH had surgery consult yesterday for para aortic nodes
Replies: 17
Views: 5140

Re: DH had surgery consult yesterday for para aortic nodes

Sounds like you have a good plan ! Anytime surgery can remove the cancer you have a great chance for a positive outcome. I had para-aortic nodes at diagnosis and as of my last PET scan in April they are no longer showing up (I'm overdue for a scan now). 5Fu infusions are starting to wear me down so ...

Go to advanced search