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by mozart13
Mon Apr 16, 2018 10:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tattoo during scope?
Replies: 10
Views: 908

Re: Tattoo during scope?

If anyone can tell me the purpose of the tattoo and if the tattoo (and the scope) is normal protocol at this stage, I would appreciate it. (Does the tattoo tell me anything about what lies ahead?) I look forward (I guess...) to getting more info after this week's tests so I can round out my signatu...
by mozart13
Thu Apr 12, 2018 6:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Completed
Replies: 11
Views: 1197

Re: Surgery Completed

You had rough last few months man.
Wish you speedy recovery.
by mozart13
Mon Apr 09, 2018 7:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon rectal cancer found during routine colonoscopy
Replies: 64
Views: 7374

Re: Colon rectal cancer found during routine colonoscopy

Morning Lotus, first good luck to you today! Yes I didn't have surgery, had so call "complete clinical response". About 25% of people after chemo/rad have complete clinical response. Out of 25%, 18% will never need surgery, remaining 8% will need surgery. There is more to it on this forum:...
by mozart13
Sun Apr 08, 2018 6:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon rectal cancer found during routine colonoscopy
Replies: 64
Views: 7374

Re: Colon rectal cancer found during routine colonoscopy

Hi Lotus, yes dental cavity, eliminate any kind of possible source of infection, as chemo and rad will kill your immunity. Stage 1 usually doesnt get chemo/rad, surgery only, but my initial surgeon is very aggressive when it comes to cancer, I kind knew him personally, thats why he got picked up by ...
by mozart13
Sun Apr 08, 2018 12:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon rectal cancer found during routine colonoscopy
Replies: 64
Views: 7374

Re: Colon rectal cancer found during routine colonoscopy

Lotus, sorry to hear about your resp. infection. Maybe change antibiotic. Couple of weeks won’t make much difference, you are low stage, it took years for cancer to grow. Use the time to boost your immune system, maybe check if you have any cavity, as those could create problem during treatment. Sur...
by mozart13
Fri Apr 06, 2018 9:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 191
Views: 54648

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Recent article about Total neoadjuvent therapy or TNT: “At 12 months, the total complete response rate (including pathologic and sustained clinical complete responses) was 35.7% in the TNT group, compared with 21.3% in the conventional group. ” https://oncology.medicinematters.com/rectal-cancer/neoa...
by mozart13
Fri Apr 06, 2018 8:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 191
Views: 54648

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

It's part of the folfox package, neuropathy, low WBC, low Lukocytes. So much for the package, lol. But it is small price to pay, when treatment is successful. skb you are doing well, I could have worked till about 2nd round of folfox, after that, it would have been difficult, symptoms were just over...
by mozart13
Thu Apr 05, 2018 8:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 191
Views: 54648

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

skb, it's nice to see that you doing well. During folfox I managed to gain 6,7 kg's, all that is gone since chemo is finished. Going to gym 3-4 times/week, socializing, went on vacation down to Varadero, that felt good, long sandy beach, warm ocean water. My Hemoglobin dropped to 115 after chemo fin...
by mozart13
Sat Mar 31, 2018 9:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 191
Views: 54648

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Total neoadjuvant therapy or TNT is the term for chemo/rad than chemo. It looks like this is becoming standard approach: https://jamanetwork.com/journals/jamaoncology/article-abstract/2675911?utm_source=TWITTER&utm_medium=social_&utm_term=1435018935&utm_content=content_engagement%7cartic...
by mozart13
Fri Mar 30, 2018 4:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon rectal cancer found during routine colonoscopy
Replies: 64
Views: 7374

Re: Colon rectal cancer found during routine colonoscopy

Radiation/chemotherapy is standard approach to shrink cancer, and maybe completely erase it. Chemotherapy combined with radiation is usually in form of pills called xeloda. You will not get full dose, as you would if you do only chemotherapy. I did it, it was fairly easy for me, hardlly any symptoms...
by mozart13
Thu Mar 29, 2018 8:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving Stage IV Colon Cancer after Failed Surgery/Chemo/Radiation
Replies: 7
Views: 1378

Re: Surviving Stage IV Colon Cancer after Failed Surgery/Chemo/Radiation

Wow, what a story.
Congrats!
I know from studies that cbd and chemo could kill the cancer, but this story is exceptional.
by mozart13
Mon Mar 26, 2018 3:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 157
Views: 15602

Re: Mop up chemo experiences

Evening of my first day of folfox, crampes kicked in, took Magnesium, it worked.
After that on my day of therapy, would take Magnesium as soon as got home, never had cramps again.
by mozart13
Wed Feb 21, 2018 8:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda vs. 5FU
Replies: 27
Views: 1854

Re: Xeloda vs. 5FU

Pump gets disconected in clinic, I had it on Tuesday, off on Thursday, somthing like 46 hrs after start. It would be hard for you to disconnect it unless you have health proffesional to do it. Yours is gonna be disconected on Saturday. Sunday you will feel it, more than any other day, side effects o...
by mozart13
Wed Feb 21, 2018 8:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda vs. 5FU
Replies: 27
Views: 1854

Re: Xeloda vs. 5FU

For the purpose of working during chemo, pump for 2 days might be interfiring with daily abilities to perform the job. You will need pic line or port. PIC lines sometimes get infected, about 40%. I had redness around pic line, managed to resolve it with some heavy duty antibiotic cream. The question...
by mozart13
Tue Feb 20, 2018 2:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer - Standard of Care Approach or Neoadjuvant Chemo approach???
Replies: 30
Views: 2721

Re: Rectal Cancer - Standard of Care Approach or Neoadjuvant Chemo approach???

I already see great insights here and welcome others - Thanks! I started with 25 rounds of chemo/rad, plan was surgery after that than folfox. They checked me 2 weeks after chemo/rad,had hard time finding the spot, thanks to ink mark, they found it, was cCR at that time. It’s been year since than. ...

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