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by mozart13
Thu Feb 07, 2019 8:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 251
Views: 91713

Re: Achiness after radiation

Hi. I am posting this question here to this group (the watch & wait group) as they may have noticed this more due to the fact they have not had surgery. I am 10-12 weeks out of radiation and I felt GREAT (more energy than I had in years and my body felt good) until 2 weeks ago. Now I have aches...
by mozart13
Thu Jan 31, 2019 2:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 251
Views: 91713

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

That's great lakeswim lady, the approach you had seem to be the choice with better results, first chemo than chemo/rad.
12 weeks is good period to give therapy to work, radiation works for years, when combined with chemo, it's like turbo, so I was told.

Good luck to you, and keep us updated!!!
by mozart13
Wed Jan 30, 2019 10:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 251
Views: 91713

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Wonder why my surgeon mentioned that he wil be doing another colonoscopy in due time if I receive a complete clinical response ? :?: Hi Jolene, first one is to see what response you had, second one , in my case 2 months after to see progress, if still CCR, peak of the radiation is about 2 1/2 month...
by mozart13
Wed Jan 30, 2019 9:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 251
Views: 91713

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I'm so confused Mozart I had CCR at top hospital The Christie with top surgeon and onco looking after me and MDT team he took 8 biopsies under anaesthetic to check and then no cancer cells so said W &W but no extra chemo as he says why when no evidence .. he did say I could speak to onco but se...
by mozart13
Thu Dec 20, 2018 6:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Percentage That Have A Complete Clinical Response To Chemo/Radiation
Replies: 12
Views: 2829

Re: Percentage That Have A Complete Clinical Response To Chemo/Radiation

depend's on the stage: "Patients with stage II tumors had a higher complete response rate of 54 percent (23 of 43 patients) compared to 33 percent (87 of 265 patients) with clinical stage III tumors. Pathological complete response rates were in line with previous results from a multicenter stud...
by mozart13
Sun Nov 11, 2018 3:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 203
Views: 47289

Re: Surviving radiation for rectal cancer

Hi Susie, I don't think there is any test at present time that is able to pick up micro cells. It is risky, but every thing is risky. Additional chemo is suppose to address any distant or local micro cells. Specially if cancer already responded to initial chemo/rad, there is big chance that disease ...
by mozart13
Sun Nov 11, 2018 1:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 203
Views: 47289

Re: Surviving radiation for rectal cancer

Hi Annie! W&W approach is changing. Used to be only chemo/rad, risk was high, one doesn’t know if any microcell is left in the body, or not. That extra chemo is to wipe out those questionable microcells. California was most advaneced, they have been doing this kind of approach for more than 10 y...
by mozart13
Sat Nov 10, 2018 12:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 203
Views: 47289

Re: Surviving radiation for rectal cancer

I had 25 sessions of chemo/rad(xeloda/radiation), cancer completelly erased. Almost 2 years ago, still negative. Felt tired after those 25 sessions, but overall not bad. Pushed to have folfox after, my surgeon was ok with that. He thought that 10 rounds was a bit over killing. Managed to get 8 in, p...
by mozart13
Fri Sep 21, 2018 3:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 251
Views: 91713

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

That’s great skb. It looks like this approach, now call TNT is working. Might come in different order like chemo than chemo/rad, but it’s the same package. Also people that need operation beneffit from it, as it might be diffucult to start chemo right after operation, and there is time limit when be...
by mozart13
Mon Sep 17, 2018 6:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 44
Views: 5114

Re: Update from Rikimaroo

Hopefully is just dead /scar tissue as per PET scan, but one could never be for sure. Last year I was talking to my onco about lymph nodes, she mentioned that very often after chemo nodes shrink, but remain visible, and don’t create problem as they are no longer source of cancer, basically dead. My ...
by mozart13
Fri Sep 14, 2018 7:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 251
Views: 91713

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Thx prs,
it’s all good. Enjoyed summer and world cup (soccer). Was in Europe during games.
Have recovered from most of the side effects of chemo except neuropathy , but one learns to live with it.
It’s nice to see that this approach has taken off and evolved.
by mozart13
Thu Sep 13, 2018 8:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 251
Views: 91713

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi guys, haven't been here for while. Just got in my email today latest article from Memorial Sloan Kettering Hospital from NY. It's kind of interesting, main subject is : Sidestepping Rectal Cancer Surgery with Total Neoadjuvant Therapy "Our analysis showed that patients in the TNT group recei...
by mozart13
Mon Apr 16, 2018 10:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tattoo during scope?
Replies: 10
Views: 1515

Re: Tattoo during scope?

If anyone can tell me the purpose of the tattoo and if the tattoo (and the scope) is normal protocol at this stage, I would appreciate it. (Does the tattoo tell me anything about what lies ahead?) I look forward (I guess...) to getting more info after this week's tests so I can round out my signatu...
by mozart13
Thu Apr 12, 2018 6:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Completed
Replies: 11
Views: 1593

Re: Surgery Completed

You had rough last few months man.
Wish you speedy recovery.
by mozart13
Mon Apr 09, 2018 7:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon rectal cancer found during routine colonoscopy
Replies: 63
Views: 14873

Re: Colon rectal cancer found during routine colonoscopy

Morning Lotus, first good luck to you today! Yes I didn't have surgery, had so call "complete clinical response". About 25% of people after chemo/rad have complete clinical response. Out of 25%, 18% will never need surgery, remaining 8% will need surgery. There is more to it on this forum:...

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