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by mozart13
Sun Jul 28, 2019 6:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 413
Views: 129559

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

That's excellent Jolene.
Oxy does mess up with brain and few other things, part of the package.

Have a great summer !
by mozart13
Mon May 20, 2019 12:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 413
Views: 129559

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Dear WW-ers, In my first Xelox cycle, I experienced a 2 day constipation in the first week of my first cycle. I took Duphlac syrup and was prescribed Domeperidone and it was resolved immediately. I had same problem, it was most likely caused by all those extra meds that you getting, like anti nause...
by mozart13
Sat Apr 06, 2019 5:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 413
Views: 129559

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

8 cycles of folfox make significant difference : "For overall survival (OS) of colorectal cancer patients (Fig. 1), the trend is apparent. A significant difference was noted when comparing groups of patients that received at least 8 cycles and those that received less than 8 cycles. When differ...
by mozart13
Mon Mar 25, 2019 9:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling ALL Colorectal CANUCKS !
Replies: 344
Views: 106643

Re: Calling ALL Colorectal CANUCKS !

Hi I am from Canada currently living in Newfoundland. Sorry to hear Jen, when it comes to diagnosis, MRI would be good idea, to get proper staging. Surgeon is the one that initiate whole process. Onco comes once surgeon decide to proceed with chemo, and if radiation is involved, then they make comb...
by mozart13
Sun Mar 10, 2019 7:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 413
Views: 129559

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Original W&W approach included only chemo/rad, it has evolved since than, now is call TNT (total neoadjuvant chemotherapy), includes chemo than chemo/rad, or chemo/rad than chemo, not sure which order is better. There was big study at Memorial Sloan, I think it finished back in Nov/2018 Here is ...
by mozart13
Fri Feb 22, 2019 6:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 413
Views: 129559

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

He had to really look around to find the tattoos. He remarked how everything looked good. That is great news lakeswim lady. When they did sigmoidoscopy on me after chemo/rad, was hard to find the spot, if it wasn't for tattoo they wouldn't be able to find it. Looked like brand new. W&W approach...
by mozart13
Thu Feb 07, 2019 8:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 413
Views: 129559

Re: Achiness after radiation

Hi. I am posting this question here to this group (the watch & wait group) as they may have noticed this more due to the fact they have not had surgery. I am 10-12 weeks out of radiation and I felt GREAT (more energy than I had in years and my body felt good) until 2 weeks ago. Now I have aches...
by mozart13
Thu Jan 31, 2019 2:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 413
Views: 129559

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

That's great lakeswim lady, the approach you had seem to be the choice with better results, first chemo than chemo/rad.
12 weeks is good period to give therapy to work, radiation works for years, when combined with chemo, it's like turbo, so I was told.

Good luck to you, and keep us updated!!!
by mozart13
Wed Jan 30, 2019 10:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 413
Views: 129559

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Wonder why my surgeon mentioned that he wil be doing another colonoscopy in due time if I receive a complete clinical response ? :?: Hi Jolene, first one is to see what response you had, second one , in my case 2 months after to see progress, if still CCR, peak of the radiation is about 2 1/2 month...
by mozart13
Wed Jan 30, 2019 9:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 413
Views: 129559

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I'm so confused Mozart I had CCR at top hospital The Christie with top surgeon and onco looking after me and MDT team he took 8 biopsies under anaesthetic to check and then no cancer cells so said W &W but no extra chemo as he says why when no evidence .. he did say I could speak to onco but se...
by mozart13
Thu Dec 20, 2018 6:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Percentage That Have A Complete Clinical Response To Chemo/Radiation
Replies: 12
Views: 3443

Re: Percentage That Have A Complete Clinical Response To Chemo/Radiation

depend's on the stage: "Patients with stage II tumors had a higher complete response rate of 54 percent (23 of 43 patients) compared to 33 percent (87 of 265 patients) with clinical stage III tumors. Pathological complete response rates were in line with previous results from a multicenter stud...
by mozart13
Sun Nov 11, 2018 3:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 271
Views: 71136

Re: Surviving radiation for rectal cancer

Hi Susie, I don't think there is any test at present time that is able to pick up micro cells. It is risky, but every thing is risky. Additional chemo is suppose to address any distant or local micro cells. Specially if cancer already responded to initial chemo/rad, there is big chance that disease ...
by mozart13
Sun Nov 11, 2018 1:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 271
Views: 71136

Re: Surviving radiation for rectal cancer

Hi Annie! W&W approach is changing. Used to be only chemo/rad, risk was high, one doesn’t know if any microcell is left in the body, or not. That extra chemo is to wipe out those questionable microcells. California was most advaneced, they have been doing this kind of approach for more than 10 y...
by mozart13
Sat Nov 10, 2018 12:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 271
Views: 71136

Re: Surviving radiation for rectal cancer

I had 25 sessions of chemo/rad(xeloda/radiation), cancer completelly erased. Almost 2 years ago, still negative. Felt tired after those 25 sessions, but overall not bad. Pushed to have folfox after, my surgeon was ok with that. He thought that 10 rounds was a bit over killing. Managed to get 8 in, p...

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