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by mozart13
Sun Nov 11, 2018 3:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 141
Views: 30388

Re: Surviving radiation for rectal cancer

Hi Susie, I don't think there is any test at present time that is able to pick up micro cells. It is risky, but every thing is risky. Additional chemo is suppose to address any distant or local micro cells. Specially if cancer already responded to initial chemo/rad, there is big chance that disease ...
by mozart13
Sun Nov 11, 2018 1:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 141
Views: 30388

Re: Surviving radiation for rectal cancer

Hi Annie! W&W approach is changing. Used to be only chemo/rad, risk was high, one doesn’t know if any microcell is left in the body, or not. That extra chemo is to wipe out those questionable microcells. California was most advaneced, they have been doing this kind of approach for more than 10 y...
by mozart13
Sat Nov 10, 2018 12:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 141
Views: 30388

Re: Surviving radiation for rectal cancer

I had 25 sessions of chemo/rad(xeloda/radiation), cancer completelly erased. Almost 2 years ago, still negative. Felt tired after those 25 sessions, but overall not bad. Pushed to have folfox after, my surgeon was ok with that. He thought that 10 rounds was a bit over killing. Managed to get 8 in, p...
by mozart13
Fri Sep 21, 2018 3:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 203
Views: 81335

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

That’s great skb. It looks like this approach, now call TNT is working. Might come in different order like chemo than chemo/rad, but it’s the same package. Also people that need operation beneffit from it, as it might be diffucult to start chemo right after operation, and there is time limit when be...
by mozart13
Mon Sep 17, 2018 6:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 44
Views: 4296

Re: Update from Rikimaroo

Hopefully is just dead /scar tissue as per PET scan, but one could never be for sure. Last year I was talking to my onco about lymph nodes, she mentioned that very often after chemo nodes shrink, but remain visible, and don’t create problem as they are no longer source of cancer, basically dead. My ...
by mozart13
Fri Sep 14, 2018 7:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 203
Views: 81335

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Thx prs,
it’s all good. Enjoyed summer and world cup (soccer). Was in Europe during games.
Have recovered from most of the side effects of chemo except neuropathy , but one learns to live with it.
It’s nice to see that this approach has taken off and evolved.
by mozart13
Thu Sep 13, 2018 8:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 203
Views: 81335

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi guys, haven't been here for while. Just got in my email today latest article from Memorial Sloan Kettering Hospital from NY. It's kind of interesting, main subject is : Sidestepping Rectal Cancer Surgery with Total Neoadjuvant Therapy "Our analysis showed that patients in the TNT group recei...
by mozart13
Mon Apr 16, 2018 10:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tattoo during scope?
Replies: 10
Views: 1314

Re: Tattoo during scope?

If anyone can tell me the purpose of the tattoo and if the tattoo (and the scope) is normal protocol at this stage, I would appreciate it. (Does the tattoo tell me anything about what lies ahead?) I look forward (I guess...) to getting more info after this week's tests so I can round out my signatu...
by mozart13
Thu Apr 12, 2018 6:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Completed
Replies: 11
Views: 1438

Re: Surgery Completed

You had rough last few months man.
Wish you speedy recovery.
by mozart13
Mon Apr 09, 2018 7:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon rectal cancer found during routine colonoscopy
Replies: 63
Views: 14076

Re: Colon rectal cancer found during routine colonoscopy

Morning Lotus, first good luck to you today! Yes I didn't have surgery, had so call "complete clinical response". About 25% of people after chemo/rad have complete clinical response. Out of 25%, 18% will never need surgery, remaining 8% will need surgery. There is more to it on this forum:...
by mozart13
Sun Apr 08, 2018 6:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon rectal cancer found during routine colonoscopy
Replies: 63
Views: 14076

Re: Colon rectal cancer found during routine colonoscopy

Hi Lotus, yes dental cavity, eliminate any kind of possible source of infection, as chemo and rad will kill your immunity. Stage 1 usually doesnt get chemo/rad, surgery only, but my initial surgeon is very aggressive when it comes to cancer, I kind knew him personally, thats why he got picked up by ...
by mozart13
Sun Apr 08, 2018 12:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon rectal cancer found during routine colonoscopy
Replies: 63
Views: 14076

Re: Colon rectal cancer found during routine colonoscopy

Lotus, sorry to hear about your resp. infection. Maybe change antibiotic. Couple of weeks won’t make much difference, you are low stage, it took years for cancer to grow. Use the time to boost your immune system, maybe check if you have any cavity, as those could create problem during treatment. Sur...
by mozart13
Fri Apr 06, 2018 9:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 203
Views: 81335

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Recent article about Total neoadjuvent therapy or TNT: “At 12 months, the total complete response rate (including pathologic and sustained clinical complete responses) was 35.7% in the TNT group, compared with 21.3% in the conventional group. ” https://oncology.medicinematters.com/rectal-cancer/neoa...
by mozart13
Fri Apr 06, 2018 8:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 203
Views: 81335

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

It's part of the folfox package, neuropathy, low WBC, low Lukocytes. So much for the package, lol. But it is small price to pay, when treatment is successful. skb you are doing well, I could have worked till about 2nd round of folfox, after that, it would have been difficult, symptoms were just over...
by mozart13
Thu Apr 05, 2018 8:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 203
Views: 81335

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

skb, it's nice to see that you doing well. During folfox I managed to gain 6,7 kg's, all that is gone since chemo is finished. Going to gym 3-4 times/week, socializing, went on vacation down to Varadero, that felt good, long sandy beach, warm ocean water. My Hemoglobin dropped to 115 after chemo fin...

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