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by mozart13
Fri Sep 21, 2018 3:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 198
Views: 77723

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

That’s great skb. It looks like this approach, now call TNT is working. Might come in different order like chemo than chemo/rad, but it’s the same package. Also people that need operation beneffit from it, as it might be diffucult to start chemo right after operation, and there is time limit when be...
by mozart13
Mon Sep 17, 2018 6:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 14
Views: 1085

Re: Update from Rikimaroo

Hopefully is just dead /scar tissue as per PET scan, but one could never be for sure. Last year I was talking to my onco about lymph nodes, she mentioned that very often after chemo nodes shrink, but remain visible, and don’t create problem as they are no longer source of cancer, basically dead. My ...
by mozart13
Fri Sep 14, 2018 7:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 198
Views: 77723

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Thx prs,
it’s all good. Enjoyed summer and world cup (soccer). Was in Europe during games.
Have recovered from most of the side effects of chemo except neuropathy , but one learns to live with it.
It’s nice to see that this approach has taken off and evolved.
by mozart13
Thu Sep 13, 2018 8:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 198
Views: 77723

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi guys, haven't been here for while. Just got in my email today latest article from Memorial Sloan Kettering Hospital from NY. It's kind of interesting, main subject is : Sidestepping Rectal Cancer Surgery with Total Neoadjuvant Therapy "Our analysis showed that patients in the TNT group recei...
by mozart13
Mon Apr 16, 2018 10:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tattoo during scope?
Replies: 10
Views: 1168

Re: Tattoo during scope?

If anyone can tell me the purpose of the tattoo and if the tattoo (and the scope) is normal protocol at this stage, I would appreciate it. (Does the tattoo tell me anything about what lies ahead?) I look forward (I guess...) to getting more info after this week's tests so I can round out my signatu...
by mozart13
Thu Apr 12, 2018 6:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Completed
Replies: 11
Views: 1329

Re: Surgery Completed

You had rough last few months man.
Wish you speedy recovery.
by mozart13
Mon Apr 09, 2018 7:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon rectal cancer found during routine colonoscopy
Replies: 63
Views: 13404

Re: Colon rectal cancer found during routine colonoscopy

Morning Lotus, first good luck to you today! Yes I didn't have surgery, had so call "complete clinical response". About 25% of people after chemo/rad have complete clinical response. Out of 25%, 18% will never need surgery, remaining 8% will need surgery. There is more to it on this forum:...
by mozart13
Sun Apr 08, 2018 6:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon rectal cancer found during routine colonoscopy
Replies: 63
Views: 13404

Re: Colon rectal cancer found during routine colonoscopy

Hi Lotus, yes dental cavity, eliminate any kind of possible source of infection, as chemo and rad will kill your immunity. Stage 1 usually doesnt get chemo/rad, surgery only, but my initial surgeon is very aggressive when it comes to cancer, I kind knew him personally, thats why he got picked up by ...
by mozart13
Sun Apr 08, 2018 12:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon rectal cancer found during routine colonoscopy
Replies: 63
Views: 13404

Re: Colon rectal cancer found during routine colonoscopy

Lotus, sorry to hear about your resp. infection. Maybe change antibiotic. Couple of weeks won’t make much difference, you are low stage, it took years for cancer to grow. Use the time to boost your immune system, maybe check if you have any cavity, as those could create problem during treatment. Sur...
by mozart13
Fri Apr 06, 2018 9:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 198
Views: 77723

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Recent article about Total neoadjuvent therapy or TNT: “At 12 months, the total complete response rate (including pathologic and sustained clinical complete responses) was 35.7% in the TNT group, compared with 21.3% in the conventional group. ” https://oncology.medicinematters.com/rectal-cancer/neoa...
by mozart13
Fri Apr 06, 2018 8:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 198
Views: 77723

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

It's part of the folfox package, neuropathy, low WBC, low Lukocytes. So much for the package, lol. But it is small price to pay, when treatment is successful. skb you are doing well, I could have worked till about 2nd round of folfox, after that, it would have been difficult, symptoms were just over...
by mozart13
Thu Apr 05, 2018 8:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 198
Views: 77723

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

skb, it's nice to see that you doing well. During folfox I managed to gain 6,7 kg's, all that is gone since chemo is finished. Going to gym 3-4 times/week, socializing, went on vacation down to Varadero, that felt good, long sandy beach, warm ocean water. My Hemoglobin dropped to 115 after chemo fin...
by mozart13
Sat Mar 31, 2018 9:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 198
Views: 77723

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Total neoadjuvant therapy or TNT is the term for chemo/rad than chemo. It looks like this is becoming standard approach: https://jamanetwork.com/journals/jamaoncology/article-abstract/2675911?utm_source=TWITTER&utm_medium=social_&utm_term=1435018935&utm_content=content_engagement%7cartic...
by mozart13
Fri Mar 30, 2018 4:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon rectal cancer found during routine colonoscopy
Replies: 63
Views: 13404

Re: Colon rectal cancer found during routine colonoscopy

Radiation/chemotherapy is standard approach to shrink cancer, and maybe completely erase it. Chemotherapy combined with radiation is usually in form of pills called xeloda. You will not get full dose, as you would if you do only chemotherapy. I did it, it was fairly easy for me, hardlly any symptoms...
by mozart13
Thu Mar 29, 2018 8:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving Stage IV Colon Cancer after Failed Surgery/Chemo/Radiation
Replies: 7
Views: 1758

Re: Surviving Stage IV Colon Cancer after Failed Surgery/Chemo/Radiation

Wow, what a story.
Congrats!
I know from studies that cbd and chemo could kill the cancer, but this story is exceptional.

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