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by Green Tea
Sat Apr 10, 2021 7:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ctDNA test pros and cons?
Replies: 8
Views: 1008

Re: ctDNA test pros and cons?

I am also wondering....Why isn’t this test offered before you undergo preventative chemo? I had a surgery that supposedly took the tumors out, and I am currently undergoing CAPOX “just in case” there are any wandering cancer cells. Well, why is the test being offered while I am in the middle of che...
by Green Tea
Fri Apr 09, 2021 6:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need help
Replies: 4
Views: 419

Re: I need help

... I got black stool that was still thin and in broken particles. I ran to the Ed and they did a blood work and said everything is fine and that I should just wait for the coloncsopy. I am very worried. If people had similar symptoms please let me know. There are foods (e.g., licorice) and meds (e...
by Green Tea
Wed Apr 07, 2021 1:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stool Antigen Test and colonoscopy
Replies: 2
Views: 174

Re: Stool Antigen Test and colonoscopy

... Does anyone have any experience with H Pylori and if so what were your symptoms? A number of members here have had experiences with H Pylori. You can do a search here with keywords HELICOBACTER PYLORI to see what they have to say. If you are going to do a Stool Antigen Test, be sure to follow t...
by Green Tea
Fri Apr 02, 2021 6:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update Well its time for a CT Scan
Replies: 9
Views: 554

Re: Update Well its time for a CT Scan

Hello Just wondering if anyone has had a reoccurrence and went and got surgery and was NED for the rest of their life. thanks guys https://coloncancersupport.colonclub.com/memberlist.php?mode=viewprofile&u=1025 https://coloncancersupport.colonclub.com/memberlist.php?mode=viewprofile&u=4239 ...
by Green Tea
Sat Mar 27, 2021 2:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to the Club
Replies: 14
Views: 2896

Re: Some FOLFOX and adjuvant chemo/radiation resources

Good luck on your upcoming FOLFOX regimen! ⋅ Here are some resources that you might find useful in your conversations with your medical oncologist: Questions to ask the doctor https://health.usnews.com/conditions/cancer/articles/questions-to-ask-your-oncologist-at-your-first-cancer-appoint...
by Green Tea
Fri Mar 26, 2021 10:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cyberknife or SBRT for lung mets
Replies: 3
Views: 493

Re: Cyberknife or SBRT for lung mets

Annajane wrote:...
Any other options? I wondered about laser lung surgery, but I'm not sure if it's available in the UK...

https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=59269&p=474232#p474232
by Green Tea
Thu Mar 25, 2021 11:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK Liver Surgeon and FOLFIRI question
Replies: 7
Views: 670

Re: MSK Liver Surgeon and FOLFIRI question

... she didn't recommend any specific surgeon at MSK. Is there a recommended surgeon? I thought there was a post about this but couldn't find it.... MSK liver surgeons: https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=65247&p=507453#p507453 https://coloncancersupport.colonclub.c...
by Green Tea
Thu Mar 25, 2021 8:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to the Club
Replies: 14
Views: 2896

Re: New to the Club

Does anyone had any experience with adjunctive treatment for rectal cancer? I have an appointment with my oncologist and surgeon on Thursday and am trying to figure out what to expect and prepaid some good questions. Since the Initial staging was T1 N0 M0 the treatment path was surgery and done. No...
by Green Tea
Tue Mar 23, 2021 12:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Terrified of rising trend (another CEA post)
Replies: 6
Views: 1553

Re: Terrified of rising trend (another CEA post)

The first and most important thing to do is find out which test was used at each time you've had your levels tested. A few years back, the main test used was the Bayer/Seimens testing method (can't remember which company bought the other out....the two names are used interchangably). Then around Se...
by Green Tea
Sun Mar 21, 2021 1:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice on Clinical Trials - Peritoneal Mets
Replies: 3
Views: 1380

Re: Advice on Clinical Trials? - Peritoneal Mets?

You're welcome! If you want to elicit personal-experience replies for the other two concerns that you mentioned in your first post, I would suggest that you post two additional NewTopic messages with Subject lines like: ⋅  Anyone with experience with IV Vitamin C? ⋅  Anyone manag...
by Green Tea
Sat Mar 20, 2021 3:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IIA: Chemo or not?
Replies: 46
Views: 10975

Re: Stage IIB: Chemo or not?

Hi, Sunnycd - Perfect. It's good to hear from you and to hear that you have finally launched your CAPOX regimen under MSK. It sounds like you are in good hands and all set now with a good oncologist and good support team. Keep in mind that there are always options during treatment for dealing proact...
by Green Tea
Sat Mar 20, 2021 12:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IIA: Chemo or not?
Replies: 46
Views: 10975

Re: Stage IIA: Chemo or not?

.. I am starting my chemo today. In fact, I took 3 xeloda pills at 8AM, going to MSK at noon for my oxali. infusion, and then taking another 3 xeloda tonight for the next 14 days, one week off, start again, for 3 months. Sunnycd - It's good that you finally managed to start chemo. You will feel muc...
by Green Tea
Wed Mar 17, 2021 11:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice on Clinical Trials - Peritoneal Mets
Replies: 3
Views: 1380

Re: Any advice on Clinical Trials - Peritoneal Mets ?

Hello, This is my first post to this forum. I am reaching out for any advice anyone may have on navigating the clinical trial process. ... His MDA team recommended that we reach out to other institutes too, so we are also in touch with NCI about some potential trials, and they've suggested a few......
by Green Tea
Sat Mar 13, 2021 2:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still losing weight and hair
Replies: 28
Views: 8254

Re: Still losing weight and hair

Thank you Green Tea! That is very helpful! I was told that I only needed to not take any medications which affect motility. I won't take dicetel or buscopan. Is that list of medications ones I can't take? I can't have anything to eat or drink for 12 hours before the test. So that means nothing afte...

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