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by Green Tea
Sun Apr 11, 2021 1:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 30 and scared
Replies: 20
Views: 3007

Re: 30 and scared

mamaof31991 wrote:.... He said the only way to know for sure would be a colonscopy but at the moment all the beds were full due to covid...

So, have you managed by now to get an appointment to have a colonoscopy? What are the doctor's plans for you?
by Green Tea
Sun Apr 11, 2021 6:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on daily Xeloda?
Replies: 9
Views: 1980

Re: Anyone on daily Xeloda?

My husband was on xeloda 2 weeks on, 1 week off. He suffered very bad HFS and occasional tummy cramps/ diarrhoea so he has switched to Teysuno. Side effects are much milder but still present. Is Teysuno available in the US ? or is it only in the UK? Teysuno is the trade name for a combination chemo...
by Green Tea
Sat Apr 10, 2021 7:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ctDNA test pros and cons?
Replies: 8
Views: 1059

Re: ctDNA test pros and cons?

I am also wondering....Why isn’t this test offered before you undergo preventative chemo? I had a surgery that supposedly took the tumors out, and I am currently undergoing CAPOX “just in case” there are any wandering cancer cells. Well, why is the test being offered while I am in the middle of che...
by Green Tea
Fri Apr 09, 2021 6:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need help
Replies: 4
Views: 477

Re: I need help

... I got black stool that was still thin and in broken particles. I ran to the Ed and they did a blood work and said everything is fine and that I should just wait for the coloncsopy. I am very worried. If people had similar symptoms please let me know. There are foods (e.g., licorice) and meds (e...
by Green Tea
Wed Apr 07, 2021 1:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stool Antigen Test and colonoscopy
Replies: 2
Views: 228

Re: Stool Antigen Test and colonoscopy

... Does anyone have any experience with H Pylori and if so what were your symptoms? A number of members here have had experiences with H Pylori. You can do a search here with keywords HELICOBACTER PYLORI to see what they have to say. If you are going to do a Stool Antigen Test, be sure to follow t...
by Green Tea
Fri Apr 02, 2021 6:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update Well its time for a CT Scan
Replies: 11
Views: 661

Re: Update Well its time for a CT Scan

Hello Just wondering if anyone has had a reoccurrence and went and got surgery and was NED for the rest of their life. thanks guys https://coloncancersupport.colonclub.com/memberlist.php?mode=viewprofile&u=1025 https://coloncancersupport.colonclub.com/memberlist.php?mode=viewprofile&u=4239 ...
by Green Tea
Sat Mar 27, 2021 2:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to the Club
Replies: 14
Views: 2963

Re: Some FOLFOX and adjuvant chemo/radiation resources

Good luck on your upcoming FOLFOX regimen! ⋅ Here are some resources that you might find useful in your conversations with your medical oncologist: Questions to ask the doctor https://health.usnews.com/conditions/cancer/articles/questions-to-ask-your-oncologist-at-your-first-cancer-appoint...
by Green Tea
Fri Mar 26, 2021 10:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cyberknife or SBRT for lung mets
Replies: 3
Views: 524

Re: Cyberknife or SBRT for lung mets

Annajane wrote:...
Any other options? I wondered about laser lung surgery, but I'm not sure if it's available in the UK...

https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=59269&p=474232#p474232
by Green Tea
Thu Mar 25, 2021 11:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK Liver Surgeon and FOLFIRI question
Replies: 7
Views: 708

Re: MSK Liver Surgeon and FOLFIRI question

... she didn't recommend any specific surgeon at MSK. Is there a recommended surgeon? I thought there was a post about this but couldn't find it.... MSK liver surgeons: https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=65247&p=507453#p507453 https://coloncancersupport.colonclub.c...
by Green Tea
Thu Mar 25, 2021 8:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to the Club
Replies: 14
Views: 2963

Re: New to the Club

Does anyone had any experience with adjunctive treatment for rectal cancer? I have an appointment with my oncologist and surgeon on Thursday and am trying to figure out what to expect and prepaid some good questions. Since the Initial staging was T1 N0 M0 the treatment path was surgery and done. No...
by Green Tea
Tue Mar 23, 2021 12:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Terrified of rising trend (another CEA post)
Replies: 6
Views: 1598

Re: Terrified of rising trend (another CEA post)

The first and most important thing to do is find out which test was used at each time you've had your levels tested. A few years back, the main test used was the Bayer/Seimens testing method (can't remember which company bought the other out....the two names are used interchangably). Then around Se...
by Green Tea
Sun Mar 21, 2021 1:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice on Clinical Trials - Peritoneal Mets
Replies: 3
Views: 1392

Re: Advice on Clinical Trials? - Peritoneal Mets?

You're welcome! If you want to elicit personal-experience replies for the other two concerns that you mentioned in your first post, I would suggest that you post two additional NewTopic messages with Subject lines like: ⋅  Anyone with experience with IV Vitamin C? ⋅  Anyone manag...
by Green Tea
Sat Mar 20, 2021 3:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IIA: Chemo or not?
Replies: 46
Views: 10984

Re: Stage IIB: Chemo or not?

Hi, Sunnycd - Perfect. It's good to hear from you and to hear that you have finally launched your CAPOX regimen under MSK. It sounds like you are in good hands and all set now with a good oncologist and good support team. Keep in mind that there are always options during treatment for dealing proact...
by Green Tea
Sat Mar 20, 2021 12:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IIA: Chemo or not?
Replies: 46
Views: 10984

Re: Stage IIA: Chemo or not?

.. I am starting my chemo today. In fact, I took 3 xeloda pills at 8AM, going to MSK at noon for my oxali. infusion, and then taking another 3 xeloda tonight for the next 14 days, one week off, start again, for 3 months. Sunnycd - It's good that you finally managed to start chemo. You will feel muc...
by Green Tea
Wed Mar 17, 2021 11:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice on Clinical Trials - Peritoneal Mets
Replies: 3
Views: 1392

Re: Any advice on Clinical Trials - Peritoneal Mets ?

Hello, This is my first post to this forum. I am reaching out for any advice anyone may have on navigating the clinical trial process. ... His MDA team recommended that we reach out to other institutes too, so we are also in touch with NCI about some potential trials, and they've suggested a few......

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