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by Green Tea
Tue Jul 16, 2019 2:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 142
Views: 15980

Re: Quick intro -- diagnosed Friday

Zackattack wrote:... I have three colorectal surgeons scheduled over the next 2 weeks for consults. One of them being @ Sloane Kettering. What questions should I ask?

https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=60707&p=480762#p480762
by Green Tea
Sun Jul 14, 2019 7:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radial margin involved
Replies: 6
Views: 924

Re: Radial margin involved

I would recommend downloading this document and discussing all of the sections on radial margins with your surgeon, and ask for complete explanation. http://surgpathcriteria.stanford.edu/gitumors/colorectal-adenocarcinoma/printable.html Also, you can access rp1954's comments about peri-operative Cim...
by Green Tea
Sat Jul 06, 2019 1:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T How do I post photos?
Replies: 6
Views: 566

Re: O/T How do I post photos?

Need some instructions, please :oops: I use Tinypic . It’s free and easy for people like me who are not so good with technology. You pic a file from your photos , then select message board . You sometimes have to fill out a security word to make sure you are real . Then press upload . Copy from you...
by Green Tea
Fri Jul 05, 2019 4:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bucket List
Replies: 43
Views: 3189

Re: Bucket List

Pyro - This was two years ago. When I see that line-up again, without my dad this time, I’ll think of you in that background, and that the thrill up there was merely a glimpse of Heaven. Just prayed for a miracle for you and my husband and the “BrokenWings” writer on here. We need miracles. https:/...
by Green Tea
Tue Jul 02, 2019 3:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bucket List
Replies: 43
Views: 3189

Re: Bucket List

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by Green Tea
Mon Jul 01, 2019 5:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What do you think?
Replies: 34
Views: 2887

Re: What do you think?

Paola - You said before that you "don't trust chemo". I noticed that there is a published computed index (mCOREP) that is supposed to indicate the extent to which chemo can help with peritoneal mets. In this scoring system, any score above 11 indicates that chemo is not likely to be of muc...
by Green Tea
Sun Jun 30, 2019 1:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What do you think?
Replies: 34
Views: 2887

Re: What do you think?

brokenwings wrote: ...
Scan + laparoscopy next week...

Hugs to all of you.

Paola

Paola -

Good luck on your Wednesday scan and your Thursday laparoscopy. We'll be thinking about you then. Let us know what you find out.
07/03: peritoneography
07/04: exploratory laparoscopy
by Green Tea
Sat Jun 29, 2019 10:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What do you think?
Replies: 34
Views: 2887

Re: What do you think?

Dear friends, As my psychological state keeps deteriorating, I've been put on an antidepressant. I hope I'll be feeling better the next days and I'll be able to answer your questions. Right now I'm going through my 4th round of chemo... Scan + laparoscopy next week... Hugs to all of you. Paola Hi P...
by Green Tea
Sat Jun 29, 2019 2:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Here we go. Xeloda dosage question
Replies: 13
Views: 1426

Re: Here we go. Xeloda dosage question

Thank you, Green Tea. I don’t know why I don’t have any paperwork!! So, I signed into the cancer center’s patient portal - as of yesterday, nothing is entered. I think I’ll write down all those items you mentioned and call nurses in both oncology and radiation. Thank you. I dont even have bloodwork...
by Green Tea
Thu Jun 27, 2019 2:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice - Sick and sleep round the clock by Day 4 of chemorad
Replies: 3
Views: 617

Re: Advice - Sick and sleep round the clock by Day 4 of chemorad

I didn't do neodjuvant chemo/radiation, but I do have a few comments: (1) Sleeping is OK, but don't let your husband sleep through any meals or miss any pill-taking sessions. He has to have two good, balanced meals a day, and two pill-taking sessions a day. Check with your nutritionist there if you ...
by Green Tea
Thu Jun 27, 2019 12:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo question
Replies: 7
Views: 976

Re: Mop up chemo question

I think the general opinion is that if the patient has any high risk factors in the pathology report, then some sort of adjuvant chemotherapy is indicated. In your husband's case, there are at least two high risk factors in the path report: (1) Lymphovascular invasion, and (2) less than 12 nodes eva...
by Green Tea
Wed Jun 26, 2019 9:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Partial radiation
Replies: 12
Views: 1967

Re: Partial radiation

NHMike wrote:... I'd recommend getting the okay from your husband's radiologist before using any of the creams.

I agree with NHMike. This is because Calmoseptine contains 20% zinc oxide. The radiologist should know whether this is OK or not.
by Green Tea
Wed Jun 26, 2019 2:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon Camp finishes today, June 30th. UPDATE
Replies: 0
Views: 772

Colon Camp finishes today, June 30th. UPDATE

...The winners of this year's "OnThe Rise" model competition have been selected and announced. They include 11 survivors and 2 caregivers: https://pbs.twimg.com/profile_banners/110474390/1554168312/1500x500 They are the ones who are heading off to Colon Camp (June 26 - June 30). If it's l...
by Green Tea
Wed Jun 26, 2019 10:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What do you think?
Replies: 34
Views: 2887

Re: What do you think?

I'm sorry to hear that you're feeling so down. I think I can understand given the situation, and now especially since there is a severe heat wave both in Paris and in Lyon, just when you have to show up for your chemo sessions. (I sure hope that they have good air-con in the Infusion Centre) I was w...
by Green Tea
Tue Jun 25, 2019 11:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Here we go. Xeloda dosage question
Replies: 13
Views: 1426

Re: Here we go. Xeloda dosage question

SilverWedding - Would you be able to update your signature so that it contains all of the recent important information that you have learned from your doctors and from the written reports that you have now received? Right now there are a number of data items missing from your signature for a patient...

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