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by TXLiz
Tue Jul 04, 2017 8:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Time to decide whether to do chemo or just observe
Replies: 11
Views: 1851

Re: Time to decide whether to do chemo or just observe

How long do they say you should do chemo for, if you choose to take that route?
by TXLiz
Sat Jul 01, 2017 2:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hellooo Neuropathyiiiiiiiiiii
Replies: 51
Views: 6224

Re: Hellooo Neuropathyiiiiiiiiiii

Hello neuropathy my old friend I have come to be infused with you again Because a tumor slowly creeping Obstructed my colon while I was sleeping And the cells, that were planted in my body Still remain Within the sound of a silence Haha the stupid things I did during infusion...making up songs to fi...
by TXLiz
Sat Jul 01, 2017 2:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One thing I learned/for caregivers
Replies: 20
Views: 3151

Re: One thing I learned/for caregivers

What a beautiful post. Thank you for reaching out, as I know this is a very painful subject that hits you at your core. I am conflicted about researching on the internet. I am totally in awe of the extremely knowledgeable people here, and am utterly grateful for this forum and the wisdom contained i...
by TXLiz
Sat Jul 01, 2017 2:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI-high and Folfox
Replies: 4
Views: 551

Re: MSI-high and Folfox

This is an area of interest to me as well. I am MSI high too. I received folfox and finished in March 2017, and am NED. Because I have so many poor prognosticators- perineural and lymphvascular invasion, a very large tumor that obstructed, right sided disease- I am indeed nervous. Both my local onc ...
by TXLiz
Tue Jun 27, 2017 12:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things Not to Say and the Responses I want to Make (Rant)
Replies: 113
Views: 12260

Re: Things Not to Say and the Responses I want to Make (Rant)

I was just talking to a friend, and the subject of how rough chemo can be came up. He went on and on, almost longingly, about how many people come to the realization that getting a few extra months of miserable life through chemo is so much worse than just going and being happy until the end. I jus...
by TXLiz
Tue Jun 27, 2017 12:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 38 yr old wants colonoscopy, doctor declined
Replies: 29
Views: 3463

Re: 38 yr old wants colonoscopy, doctor declined

So glad you got a referral! Prep isn't bad, the procedure wasn't bad, to me. Knowing what I know now...even if it's embarrassing, uncomfortable, etc, it's worth every second. You need to know. I get ultra mad at docs who blow any patient off when requesting a colonoscopy. They know it's not just old...
by TXLiz
Sat Jun 24, 2017 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Products must have list for Chemo
Replies: 17
Views: 2905

Re: Products must have list for Chemo

I liked pretzels during infusion days. Also lemon hard candies.
by TXLiz
Sat Jun 24, 2017 11:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any survivor of 4th stage Metastasis Colorectal Cancer in Lungs of_My husband of age 28 years
Replies: 9
Views: 1915

Re: Any survivor of 4th stage Metastasis Colorectal Cancer in Lungs of_My husband of age 28 years

What about immunotherapy? It's a new treatment option that has shown success in fighting tumors. It's very complicated and I second the suggestion of getting an appointment at a major cancer center. I am so sorry that your young husband has been diagnosed after your marriage. Don't give up yet. Good...
by TXLiz
Sat Jun 24, 2017 11:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pooping in my pants
Replies: 5
Views: 1476

Re: Pooping in my pants

I wore depends after my resection when I went out in public.

I know it's not optimal to wear them for many people, but I was glad to have the help.
by TXLiz
Sat Jun 24, 2017 10:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post-surgery colonoscopy and cimetidine
Replies: 11
Views: 1535

Re: Post-surgery colonoscopy and cimetidine

I have read that sometimes the surgeon will do a colonoscopy on the patient before surgery. If so, I think it is recommended to have another colonoscopy at the one year mark. If not, a colonoscopy is recommended at the 6 month mark. http://www.gastro.org/guidelines/colonoscopy-after-cancer-resection...
by TXLiz
Fri Jun 23, 2017 11:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Why should I feel worse after this treatment
Replies: 5
Views: 1050

Re: Why should I feel worse after this treatment

From my chemo experience, it seemed to me it felt like it was a cumulative effect. Each round got harder. The first 2 or 3 were vaguely irritating. Then, the side effects began to linger and become more pronounced. Instead of a "good" week in between the treatment, it would be a few "...
by TXLiz
Tue Jun 20, 2017 2:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Right hemicolectomy fears
Replies: 26
Views: 4525

Re: Right hemicolectomy fears

Right hemi here. They opened me up so I have a large scar.

I don't have any new day to day issues besides loose stool or diarrhea if I eat greasy food.

Good luck!
by TXLiz
Tue Jun 20, 2017 2:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 38 yr old wants colonoscopy, doctor declined
Replies: 29
Views: 3463

Re: 38 yr old wants colonoscopy, doctor declined

Get a second opinion and don't take no for an answer. Your mom having rectal cancer? You need to be proactive, which you are. Find a doc who will help you take care of your medical needs. I had "IBS," until I had stage 3 CC. Thanks docs. Not trying to scare you. You should have a doc that ...
by TXLiz
Tue Jun 20, 2017 7:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help- signet ring cell & two primary cancers! Rare & scared
Replies: 17
Views: 1512

Re: Please help- signet ring cell & two primary cancers! Rare & scared

I cannot imagine how painful it must be to be pregnant, with another little one by your side, and experiencing the terror and heartbreak of cancer in your husband. I didn't have medical advice, but try to take care of yourself and eat and get rest. I am sure it feels impossible right now to do those...
by TXLiz
Fri Jun 16, 2017 10:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Small update . . . .
Replies: 7
Views: 912

Re: Small update . . . .

Glad things are going well! My two experiences at MDA have been really good. They are on it. It's big and crowded but worth it. In April, they were relocating their pharmacy and it seems always crowded and is a pretty long wait. It's packed! The lab is as well. It's an ocean of people, so be ready t...

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